We got our first sprinkling of snow this morning. Just enough to make the landscape white.
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207. Shallow people usually and unfortunately have problems that run so very deep. Try throwing them 'a line'.
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Odds are good that as soon as you started to research chronic fatigue syndrome, you came across arguments about whether Fukuda is better than Oxford, or how some researcher uses the flawed empirical definition. Get a quick, simple explanation of what all these things are and what it means that they're dividing researchers' attention.Also this week, a look at risk factors and possible causes of our illnesses.
Take care of yourself!
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FIBROMYALGIA IS A REAL ILLNESS WITH NO CURE.
About this PetitionPlease sign this petition to help raise awareness of the condition known as fibromyalgia.
Fibromyalgia is a complex condition that's difficult to understand, especially if you don't have a medical degree. Because it involves the brain and nervous system, it can have an impact on virtually every part of the body.
We need the government and the health department to recognise this illness for what it is, a debilitating life-changing illness for which there is no cure. Every day, people who suffer from fibromyalgia endure chronic, widespread pain. It feels like a flu that never goes away. And there is no help on the way.
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Brain in Pain study
Volunteers are required for the Brain in Pain study which is being carried out by The Centre for Psychiatry, Barts and The London School of Medicine and Dentistry, Queen Mary University of London.
"The Brain in Pain study seeks to better understand changes in brain chemistry that might explain the pain in fibromyalgia and chronic fatigue syndrome. To do this, we are using a method of brain scanning that enables us to look at which parts of the brain and which chemicals are active during pain. The study is based in London and is actively recruiting patients with fibromyalgia or chronic fatigue syndrome who are NOT currently on ‘centrally acting’ medications (including gabapentin, pregabalin and antidepressants such as duloxetine and amitriptyline) or chronic opiate treatment. The study will reimburse participants for their time. If you are interested in taking part, further information can be obtained from Dr Bourke: j.bourke@qmul.ac.uk.”
Please contact Dr Bourke directly if you are interested in participating.
Thank you for reading this. If anyone has any questions then please email the office on head.office@fmauk.org.
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7 Tips You Probably Haven’t Tried To Help Cope with Fibro Pain
For the nearly 5 million people in the U.S. suffering from fibromyalgia, the chronic pain can wreak havoc on their lives. For most, the pain is consistent and widespread. It can turn what may have once been simple tasks into seemingly impossible feats. For many, medications can take a slight edge off the pain, but even so the pain persists.Finding additional ways to cope with the pain can make a world of difference. In addition to pain medications, there are a number of visualization techniques that can help give you greater control over your pain. We’ve poured over various different techniques and have found 7 of the most effective ones for coping with fibromyalgia pain.
- Mental Anesthesia / Analgesia
- Pain Movement
- Pain Symbols
- Escape Technique
- Sensation Transfer
- Progressive Relaxation
- Altered Focus
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Fibroduck Lights Up Blackpool Tower! Tuesday May 12th 2015
We have managed to pull off something quite spectacular for Worldwide Fibromyalgia/ME awareness day.Blackpool tower will be lit up for Fibroduck
Here are the details of this amazing event for awareness day.
Blackpool Tower will be lit up PURPLE, and the Heart BLUE, with FIBRODUCK text running through the heart.
This lighting format will run on 12th May 2015 for the Fibromyalgia World Awareness Day."
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Colds and Flu
Before I was into all this stuff, I used to get 2-3 colds or flu infections per year, mostly in the winter. Now I rarely get them at all, and if I do, they are so mild I barely notice them. I don't think there is anything especially amazing about my inherent immunity - it comes down to the products I take. I avoid milk products in the main as they are extremely mucous forming and contribute to catarrhal states, and I take quite a few supplements. But I think my rare contracting of winter viral infections primarily comes down to three core immune supporting products, and if you take them, you will get far fewer, if any winter sniffles too. So here we go...- First take liquid oxygen - Vitamin 'O'. . . .
- Second, take Vitamin C - foundational immune support. . . .
- Third, take Vitamin D - the sunshine Vitamin. . . .
. . .if you follow these steps, I am confident you will get a lot less colds and flu's this winter.
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UNDERSTANDING PEOPLE SUFFERING WITH CHRONIC PAIN AND COEXISTING DISORDERS - Posted on January 23, 2015 by Dr. Steve Grinstead
This past year I’ve been helping several agencies implement my Addiction-Free Pain Management® System into their programing. The past several years have led to more and more people understanding that the prescription pain medication problem is really spiraling out of control. There are many reasons for this but a big one I’m concerned about is people living with chronic pain not receiving appropriate treatment interventions and end up with a substance abuse problem as a result. Please watch my Video Blog below and then read the remainder of this post.
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13 Healthy Kale Recipes
Get your vitamin K (Page 1 of 15)
Kale is one of the healthiest veggies you can put on your plate. One serving, which contains just 30 calories, provides a day's worth of vitamin C, twice the recommended daily intake of vitamin A, and nearly seven times the recommended amount of vitamin K. Add a sizable dose of minerals and healthy fatty acids, and you've got yourself a nutrition powerhouse.But due to its sturdy texture and slightly bitter flavor, kale can be more challenging to cook with than some other greens.
Don't be intimidated! These recipes will give you plenty of tasty ideas for using this superfood in your next meal.
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Stress Effects on Immune Functioning in “Chronic Fatigue Syndrome”
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“Pharmaceutical Grade” Low Dose Naltrexone Now Available for ME/CFS and Fibromyalgia Patients
Into the Big Leagues Low dose naltrexone (LDN) is able to do for some people with intractable pain what opioids and other drugs can’t do – reduce the pain. Those drugs have something LDN doesn’t, however, – FDA approval. You can’t prove that LDN works, however, until you can identify what you’re testing and with one compounding pharmacy producing it’s version of LDN and another producing it’s version of LDN – standardization – a key factor in any scientific analysis – has pretty much gone out the window.
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The Myth of a Perfect Drug for Fibromyalgia or Chronic Fatigue Syndrome: the NNT Dilemma
Welcome to the Number Needed to Treat (NNT) statistic. The NNT refers to the number of patients needed to treat with a drug in order for one to have a significantly improved result. Check out a website – theNNT.com that’s devoted to providing NNT data – you might be a bit shocked.
The NNT, for using antibiotics, for instance, to treat a sinus infection, is 15. Studies indicate that you need to give antibiotics to 15 people with sinusitis in order to have one person derive benefit from it. Unfortunately since 1 out of 8 people who take the drug are harmed by it the risk/benefits ratio for antibiotics for sinusitis appears to be negative. Despite the miserably low NNT number and risk of side effects, one out of every five prescriptions for antibiotics written in the U.S. is for, guess what – sinusitis.#
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Secrets to Recovery: 12 Lessons in Healing ME/CFS/Fibromyalgia
Welcome to this newsletter. We are excited to be sharing with you the latest chapter from the OHC team's book, "Secrets to Recovery: 12 Lessons in Healing ME/CFS/Fibromyalgia". Chapter 9, exploring Catherine's story, focuses on the importance of developing self-love in the recovery path. You can read it in full here.
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Nicola's Note
Hello everyone, I hope the new year has started well for you all, there is still time to fulfill your new year exercise resolutions! New beginners are always welcome to come along to my drop-in classes, these are a great way to start your Tai Chi and Qigong journey. The next enrolments for a new beginner Tai Chi course will start in March. Please view over the February 2015 calendar and the schedule. Thanks for reading, will look forward to seeing you in class soon. Regards, Nicola.
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NEWSLETTER – Winter 2015
February 7th meeting, 11am – 1.30pm
Tonbridge Baptist Church, Darenth Avenue, Tonbridge, Kent TN10 3HZ
This will be an opportunity for members to catch up with each other. Our information boards & the group’s library of books, magazines and DVDs will be available for members to browse through at their leisure.
Loads ore information useful not only for Tonbridge members but for others too.
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A personal note from Vicky
Also:
Education: Magnesium Deficiency
Video of the week: Safari
Success Story: Keith Fuller May
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Wrap up and keep warm.
Keep busy, but don't overdo it.
Till next time
Luv and hugz
Stella
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Contact: fmsstella@gmail.com
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N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources.
Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
Stella your newsletter is always so informative thankyou
ReplyDeleteThank you Jacqui. I don't think anyone has posted a comment before! Maybe you will have started a trend.
ReplyDelete