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FMS eNews 07/02/15

On Monday of this week my husband attended East Surrey Hospital for an elective angiogram which diagnosed arterial stenosis resulting in his having two stents inserted into blocked arteries.  It has been quite traumatic as it was a critical situation.  However, the outcome was good, so he should be able to enjoy a few more years of life.  He will be 82 later this month.
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WORDz for the WEEK

 208. Think back; replay the last 365 days of your life, and if it doesn't bring you tears of joy or sadness, consider that time wasted.
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 From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome
You've heard about serotonin and other neurotransmitters, but how much do you know about what they do, or how they impact your symptoms? What about how different treatments effect them?
This week, we're focusing on the brain and neurotransmitters, which are believed to be disregulated in both FMS and ME/CFS; down in Featured Articles, classes of drugs that alter neurotransmitter function, how they work, and what potential problems they can cause; and over on the right, a look at some supplements that can help with neurotransmitter balance.
Take care of yourself!
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 6 No-Nonsense Tactics for Reducing the Emotional Toll of Fibromyalgia
Anyone suffering from fibromyalgia or a similar chronic condition knows that symptoms such as pain and fatigue are only the beginning. Something that is often overlooked is the emotional toll these illnesses can take on those suffering from them. 
In addition to deteriorating the quality of our mental health, the stress from this emotional toll can even exacerbate our pain levels – making the condition worse.
Though there is no “one-size fits all” remedy for dealing with the extra stress and emotional toll of fibromyalgia – there are certain tips, tricks and guidelines that have helped others and may help you to gain the upper hand in managing the emotional toll. Here are 6 tips to help you better cope with the emotional toll of fibromyalgia:

    1. Create a Coping Plan
   2. Be Open & Communicate
   3. Educate
   4. Say “No”
   5. Focus on what you can control (let go of what you can’t)
   6. Talk To A Professional
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 Standing Clear: Drug Stops Orthostatic Intolerance in ME/CFS In Lab – Next Steps
Few healthy people give any thought at all to standing up, but for a subset of people with chronic fatigue syndrome standing up is an act that’s fraught with peril.  Whether their hearts start racing (postural orthostatic tachycardia syndrome (POTS) and/or their breathing does (postural hyperventilation) standing often leaves them fatigued, loopy, cognitively impaired and out of it. If your heart beats too fast it doesn’t have time to fill with enough blood to feed the brain. If you breathe too fast your CO2 levels tank producing hypocapnia. Hypocapnia causes the blood vessels in your brain to narrow (vasoconstrict), impeding blood flows to the brain causing dizziness, anxiety and other symptoms. It also causes alkalosis, muscle cramps and pins and needles sensations.
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 FDA Approval of MS Drug Puts Ampligen Back In Play
Deja Vu? 
“I just try and not think about it, because it gets me furious” multiple sclerosis patient 
The story sounds eerily similar. Citing questions regarding study quality and side effects, the FDA refuses to approve a drug for a condition for which few or no effective drugs exist. After hearing story after story of patients who have been dramatically helped by the drug, the patient community goes ballistic. They send letters and emails and gather 10,000 signatures on a petition asking the FDA to change their decision. They argue they should be allowed to determine whether they want to accept the risk that comes with taking the drug. 
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 A One-Two Punch for Pain & Fatigue - By Karen Lee Richards†
A combination of magnesium and malic acid tops the list of recommendations for easing pain and fatigue, especially for those with fibromyalgia or ME/CFS. 
Magnesium (Mg) is one of the most important nutrients required by our bodies. It is necessary for more than 300 biochemical reactions in the body and is essential to human life. A few of magnesium's functions include:- find out what they are!
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 Dreaming of a Good Night's Sleep? By Karen Lee Richards
Chronic insomnia is a serious problem for many people. According to the National Sleep Foundation, 22% of Americans experience insomnia every or almost every night. For people who have fibromyalgia or ME/CFS, that percentage is significantly higher. More than 75% of people diagnosed with FM and approximately 60% of those with ME/CFS have difficulty falling asleep,  staying asleep and/or awakening from sleep feeling rested and refreshed. 
ProHealth founder, Rich Carson, is one of those people. Tired of fighting the nightly battle for sleep, he set out to develop a product that would help not only himself, but also the millions of others like him for whom sleep remains just a dream. Rich tells his story. . . .
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 Reduce Inflammation Naturally with Nature’s Pac Man - by Suzy Cohen on January 31, 2015

 Have you ever had a sore throat, been stung by a bee, or twisted your ankle?
Do you have arthritis, back pain or headaches?
Whenever you are in pain, even post-surgical pain, your body makes compounds in response to the injury which cause temporary redness, heat, swelling, and pain. Then naturally produced enzymes in your body eat up these inflammatory compounds, and that is when you notice the swelling goes down, the pain is relieved and the redness or stiffness recedes.
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Every month we collect all the relevant fibromyalgia research from around the world so that you can keep informed about your condition. 
As well as this email newsletter, we also produce the monthly Fibromyalgia Magazine which is available in a print format or in a more cost effective digital format,which is ideal for international readers.The 28 page February 2015 edition of the Fibromyalgia Magazine is out for only £1.49. 

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 Chronic pain not only hurts, it also causes isolation and depression. But there’s hope.
Chronic pain affects more people than cancer, diabetes, heart attack and stroke combined. The Institute of Medicine estimates there are more than 100 million sufferers in the United States, costing the nation as much as $635 billion a year in medical treatment and lost productivity.
It’s even the focus of a new movie: “Cake,” starring Jennifer Anniston as a woman struggling with chronic pain, is scheduled for release Jan. 23.
Chronic pain can be devastating, and a challenge to treat. As a mental health counselor, I have seen it damage productive lives and tear families apart.
Pain sufferers often are misdiagnosed, misunderstood and miserable. Their friends and family can become worn out from listening to complaints. Their identities may be significantly altered because they cannot engage in activities they once enjoyed. Doctors get frustrated by the inability to provide a cure.
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Slideshow: A Visual Guide to Fibromyalgia

 1. What Is Fibromyalgia?

Fibromyalgia is a chronic condition that affects about 5 million Americans. Doctors diagnose fibromyalgia based on a patient's symptoms and physical exam. Patients experience pain and stiffness in the muscles, but there are no measurable findings on X-rays or most lab tests. While fibromyalgia does not damage the joints or organs, the constant aches and fatigue can have a significant impact on daily life.
View 20 more slides.
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 A personal  note from Vicky
Thank you to Barry for showing how we should leave our mats at the end of class ;-).  The picture shows some of the ‘toys’ we use in class to make exercises more interesting!
 By the time you get this I should have finished my cleanse.  I’m on a 14 day programme run by a fellow fitpro and nutritionalist Jackie Ashdown.  Another local instructor  Debbie Beling is supporting clients through a 28 day programme. I do believe that in a toxic world it is a good idea to eat clean and bring the diet back down to basics every now and then. The upside of this is feeling better and losing weight which for me had crept up after Christmas. 
Also:
Education: Nature's Sunshine Healthy Starter
Video of the week: Leg, hip and IT band stretches using a Dynaband
Success Story:  Philip Smith
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 Calm Mind, Resilient Body, Open Heart
Our friend Mat Ward of Inner Harmony School will join us in Faygate in Horsham during 2015 for regular Tai Chi partner work, push hands and sensitivity training workshops. Learn to throw away our hard strength and yield to relaxed movement.  Join us for a morning of Tai Chi exploration, self discovery and in-depth learning.
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 Time to sign off now - with this thought.


Stella

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N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. 
Links (through the titles) are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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