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FMS eNews 10/01/15



Technical problems this week necessitated a Health Check which meant my laptop was out of action for a few days.  Working on the PC for any length of time does my back no favours so the blog is a bit limited.  However, I have managed to include most of the usual features.  Computers are a mystery!!
Don't forget, the links are now in the BROWN titles.
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WORDz for the WEEK

 204. Life is a mystery to be embraced and enjoyed; not merely a plethora of problems needing to be solved.
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 Whether it's a New Year's Resolution or an on-going struggle, I know many of us are hoping to lose weight in 2015. Get a look at some of the unique challenges we face and see what may help us out ... down the road, at least.
Also this week, setting goals that you can actually reach, in spite of your symptoms; and some things to do and not do. Down in Featured Articles, it's all about diet and exercise and how to improve both without sending yourself into a massive flare. On the right, ideas for getting and staying organized, no matter how foggy your brain may be.
Start the New Year right by taking care of yourself!
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 Palm Challenge

 Announcing Fibromyalgia Palm Challenge to raise awareness have created the Fibromyalgia Palm Challenge with a purpose to make the world understand Fibromyalgia  (FMS) and the people  suffering from it, and to help people get diagnosed in time. People with this syndrome suffer with everything from 24x7 chronic pain to hypersensitivities, from cognitive dysfunction to inability to lead a normal life, but more importantly, they suffer from lack of awareness. The most painful thing is to explain to people what they are going through. Since, people with this chronic debilitating illness do not look sick, they end up facing lot of indifference and harsh comments.

With this little challenge, I aim to raise awareness on a larger scale. There are no donations involved and the steps are really simple. People taking the challenge just need to read and understand what Fibromyalgia is all about. Not only will it result in a better understanding of the syndrome, it will hopefully bring relief to millions of fibromyalgia patients who are tired of explaining to people what they are going through. 
See also
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Health Rising Requests Your Assistance in Choosing a Logo 
As part of our goal to create a more professional appearance Health Rising has engaged a logo designer to produce a logo. Please let us know which of the following logos you think would be the best for Health Rising.
Please feel free, as well, to provide suggestions for changes with regards to colors, fonts, words or other parts of the design.
The results will help but will not necessarily determine what the final choice is. (I reserve the option of bucking public opinion :))
Six logos are provided.
Thanks for your help!
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Beating the Bloat: FODMAPS – the Best Diet for Irritable Bowel Syndrome 
The holidays are over. If you have irritable bowel syndrome (IBS), however, that holiday infusion of good, rich food may have left your gut bloated, gurgling, gassy, stopped up, or loosened up at some point.
IBS is a complex disorder that researchers are still learning about, but they’re pretty clear that four factors play a role: hypersensitivity reactions, increased gut transit time (motility), higher than normal amounts of fermentation, and malabsorption of sugar.
Developed by Peter Gibson and Susan Shepherd at the University of Melbourne, Australia around 2000 and published in 2009, the odd-sounding FODMAPS diet addresses two of these factors: fermentation and sugar malabsorption.

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A Fibromyalgia Patient’s Ten Strategies for Healing - By Darden Burns on January 4, 2015

 I am weary of reading about studies on the cause of fibromyalgia pain. Theories about altered pain perception, disordered sleep and immune dysregulation, etc might be interesting to a medical scientist but they are not particularly helpful for a person suffering from fibromyalgia.
What is needed is a list of strategies that are helpful for patients keeping in mind that each person is unique and what might help one person may not help another. There are no absolutes when it comes to health and this is particular true of complex conditions such as fibromyalgia and chronic fatigue syndrome.
My suggestions are based on my personal experience of living  with fibromyalgia pain for twelve years and ultimately finding treatments that resulted in significant reversal of my symptoms, communicating with others from my blog “Fibro Friends” for the past seven years, and sharing information with other patients I met at a fibromyalgia clinic where I spent three months.
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13 Ways To Improve Your Health In 60 Seconds Or Less

If you're the type of person who is constantly wondering where the day went, you probably just about jumped for joy at the recent study that found that just one minute of intense exercise (during an easy 10-minute workout) could improve health.
While that doesn't mean you should give up your lengthier workouts in favor of mere minutes of activity, it does add some strength to the comforting belief that every little bit counts.

And perhaps the best news of all is that it's not the only way in which you can improve your well-being in 60 seconds or less. Here are a few other ways to boost your health in just one minute.
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 200+ Symptoms of Fibromyalgia and Common Coexisting Conditions
Fibromyalgia is a syndrome with many symptoms. Each individual with Fibromyalgia will have some of the symptoms. A few people will have all of the symptoms, but not everyone with Fibro has the same symptoms or even has symptoms all of the time.  Also, symptoms may vary from day to day, year to year, or even minute to minute for each person coping with Fibromyalgia and other  common coexisting conditions as well.
How confusing is that? Well, it gets even more confusing!  
Find out how!
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Juvenile Fibromyalgia Support 

 Juvenile Fibromyalgia Support is a group for young people and their families so they can connect with others fighting this painful and under recognized illness. Everyone is welcome however I ask that we all come to the group with love and compassion in our hearts as well as the understanding that many of us will have bad days and might say things you may not agree with. 
Instead of starting an argument, acknowledge the bad day and offer your support. That is why we are here. Come on a bad day and we'll be here for you. Please also remember to come on a good day and offer your support in return. Thank you, from the group admins. 
Love and light to you all. x
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 UK Fibromyalgia

 Welcome to the January 2015 UK Fibromyalgia Research  Newsletter
Happy New Year!
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 New studies find causes of fibromyalgia, offer hope of relief

 Two new studies on fibromyalgia focus the problem on the thyroid, pituitary and hypothalamus, and suggest new avenues of relief for sufferers.
Research from the Fibromyalgia Research Foundation reveals deficient thyroid hormone regulation (DTHR) as an underlying cause of Fibromyalgia (FM). Poor diet, poor physical fitness and metabolism slowing drugs are primary contributors to symptoms as do additional hormonal imbalances of cortisol, estrogen and progesterone.
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 Behind Perception, Free Exhibition
If you are able would you please support this amazing project by promoting, attending, asking colleagues, friends and family to come along and view 'Behind Perception.' 
Sufferers with ME/CFS have participated in turning their ME/CFS by focusing on two contrasting portraits of a person with ME/CFS we hope to show the difference in how someone can look as opposed to how they feel. please support by popping along to the Exhibition free admission 15th-28th Jan, 9am-9pm, Hamilton House, Stokes Croft, Bristol, BS1 3QY
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 A personal  note from Vicky
I hope you all had a great Christmas.  I have certainly enjoyed the break and come back feeling refreshed.  It was lovely having so many of you join me for the Christmas meal at Pizza Express.  I appreciated the kind words spoken on your behalf by Jane at the meal and have done as instructed and not spent the money you gave me on another flashing Christmas jumper! 
I have though put it towards the signet ring with my name in Chinese Characters that has been beautifully reconstructed at the local jewellers James Stephens.  I had the original made during my time when I served in Hong Kong with the army and it’s quite special to me.  Read more.
Also:
Education: New Years Resolutions
Video of the week: Exercise to release tension in the upper back
Success Story: Jeni Webb
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 As I sign off the sun is streaming through the window.  The rise in temperature recently is a welcome change from the cold and frosty mornings we have been suffering.  It is a change from SAD to GLAD.  
I hope it is making you feel better.
Luv and best wishes Stella
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 N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources.  Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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