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FMS eNews 04/10/14


Next week it will be a limited edition, delivered early, as I shall be away from Friday until the following Wednesday.  So I may not be able to produce much for you then either.  So, it's apologies in advance for any shortfall in the next two weeks. For now, it's business as usual, so here goes . . . .


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WORDz for the WEEK

188. There are no ORDINARY moments and there is never NOTHING going on.


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ANOTHER PETITION FOR YOU TO SIGN
David Cameron & Nick Clegg: commit to increase NHS funding

The petition text:
Dear David Cameron & Nick Clegg
NHS finances are in crisis: life-saving local services are left with no option but to cut back hours or, worse, close down.
The NHS is something we are all proud of. We all benefit from it, and we are all willing to pay for it to keep it our NHS.
Please commit to increasing NHS funding in real terms if you win next year’s general election.

https://secure.38degrees.org.uk/page/s/david-cameron-nick-clegg-commit-to-increase-nhs-funding#petition


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From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

Can you read and listen to what someone is saying at the same time? Me neither. See what could be causing our multitasking problems, below.
Then, delve further into the fog that is your mind so you can really understand this pervasive, frustrating, embarrassing symptom. That's both below and down in Featured Articles.
To the right, you'll find more information about your brain - specifically, the neurotransmitters that cause a lot of our problems. Do you know which ones are responsible for which symptoms? Or how to improve their function? That's all in there.
Take care of yourself!

http://specials.about.com/service/newsletters/chronicfatigue/3054208008000128480031fe.htm


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Five Supplement Mistakes You Don’t Want to Make with Fibromyalgia or Chronic Fatigue Syndrome 

“Over the past fifteen  years I’ve spent thousands of dollars on supplements, most of which had absolutely no effect on my symptoms.” Dr. Courtney Craig – Youtube video

To take or not take supplements is a big question in disorders like Chronic Fatigue Syndrome and Fibromyalgia where the list of FDA approved drugs is short (or non-existent) and not particularly impressive.
Where there are no drugs, though, there are always supplements – each purporting to be helpful – each suggesting it might provide the critical nutrient you need to turn your health around. Hope springs eternal with supplements and maybe it should. 
The supplement field – encompassing herbs, vitamins, minerals, neutraceuticals, probiotics, medical foods, etc. is enormous.  With thousands of combinations available and new possibilities coming out regularly, supplements can potentially make a major impact on our health.

http://www.cortjohnson.org/blog/2014/09/28/five-supplement-mistakes-dont-want-make-fibromyalgia-chronic-fatigue-syndrome/


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Symposium Calls For Use of Immunotherapy To Treat Chronic Pain
“Despite the availability of different drugs, most patients with chronic nociceptive pain do not receive satisfactory pain relief…”

We all know the medical profession is poor at providing pain relief in general, but its record with regards to neuropathic or nerve pain is something else indeed. Despite the fairly large array of drugs physicians use (few of which were developed to reduce nerve pain), no more than 30-40% of  nerve pain patients receive as much as 50% relief from the medications doctors  provide.
Despite research that has uncovered important factors in the production of pain, much clearly remains to be learned.  The production of pathological pain has been shown to be a very complex process. Researchers know, for instance, that damage to the ion channels on nerves, increased levels of excitatory neurotransmitters and reduced activity in the pain inhibition pathways in the brain all play a role.

See more at: http://simmaronresearch.com/2014/10/symposium-calls-use-immunotherapy-treat-chronic-pain/#sthash.DRtojp1C.dpuf

http://simmaronresearch.com/2014/10/symposium-calls-use-immunotherapy-treat-chronic-pain/


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A One-Two Punch for Pain & Fatigue 


A combination of magnesium and malic acid tops the list of recommendations for easing pain and fatigue, especially for those with fibromyalgia or ME/CFS.  

http://www.prohealth.com/ep/EP092614/index.cfm?slvor=12054.1168538.0.1.0.110434


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Natural Wellness HealthWatch
Other articles from ProHealth

http://www.prohealth.com/eg/EG100114/index.cfm?slvor=12060.1168669.0.1.0.110434


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List of latest Fibromyalgia articles

http://view.messages.webmd.com/?j=febb1078776d0175&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff8f1d77&ju=fe9113757c67077f74&r=0


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List of latest Sleep Well articles

http://view.messages.webmd.com/?j=fec610787067007c&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff5c15797c&ju=fe9413767760027f75&r=0


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List of latest Chronic Pain articles

http://view.messages.webmd.com/?j=fec1107870660c7e&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff6c177075&ju=fe9313767767007c70&r=0


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Welcome to this week's newsletter.  

This week we are excited to be launching a new series of videos with the clinic team answering your questions!  
To get started, we have three short videos with Alex, answering the questions:

  • What is the difference between ME/CFS and depression?
  • Is it possible to make a full recovery from ME/CFS (and how do we define that)?
  • Should I start with psychology or nutrition treatment?

Read more: http://us5.campaign-archive1.com/?u=fcdfb32950f88900216774c4e&id=1334c65bcc&e=6252891a01

The videos are all free to view at www.freedomfromme.co.uk/what-is-the-difference-between-me-and-depression


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Brain study hints at how fibromyalgia works

Brain scans show that people with the pain disorder fibromyalgia react differently to what others would consider non-painful sights and sounds, new research suggests.
The small new study provides clues to what might be going wrong in the nervous system of people with fibromyalgia, along with possible new approaches to alleviating their pain.
“If we understand the mechanism, we may come up with new and potentially better forms of treatment,” said lead author Marina López-Solà of the department of Psychology and Neuroscience at the University of Colorado, Boulder.

Read more: http://www.reuters.com/article/2014/09/19/us-health-fibromyalgia-brain-idUSKBN0HE28O20140919


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Long-Term Opioid Use Can Increase Sensitivity to Chronic Pain

Many people who have been taking opiates for chronic pain can develop serious problems with long-term use. Some of them may even include an addictive disorder due to prolonged exposure to these very powerful medications. Others develop tolerance to the medication and need ever increasing dose increases. Others develop a condition known as hyperalgesia.

http://www.freedomfromsufferingnow.com/utility/showArticle/?objectID=65361&proAppName=stevegrinstead


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‘Invisible disease means I can’t do things girls normally do, like go out’ – Fibromyalgia teen Beth Fuller


Beth Fuller
It is only a couple of decades since Fibromyalgia was recognised as an illness. Danielle McGarry speaks to 17-year-old Hull sufferer Beth Fuller during national awareness week for the invisible disease.
Being in constant pain, and so fatigued that even the simplest everyday tasks become mammoth challenges, is bad enough.
For many people with fibromyalgia (FM), however, these things are only part of the battle. Often, one of the toughest things to deal with is the lack of understanding.
"With chronic fatigue-type conditions, sometimes other people will say, 'Oh, well I feel tired sometimes too, you just have to get on with it'," said Dr Kim Lawson, of Sheffield Hallam University's department of biosciences' Biomedical Research Centre. 
"They don't appreciate the severity of it."

Read more: http://www.hulldailymail.co.uk/8216-Invisible-disease-means-8217-t-things-girls/story-22896718-detail/story.html


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Trauma and Fibromyalgia — Black and White? Or 50 Shades of Grey?

Fibromyalgia (FM) is relatively common, with prevalence estimates between 2.0% and 3.5%1​,2,3​. Its prevalence increases with age, up to around age 60 to 70 years; FM is roughly 5 times more common in women than in men4, and is one of the most common reasons for referral to a rheumatologist5​. The etiology and pathophysiology of FM are not well determined, and while there are several extant theories — including muscle dysfunction or misuse, central sensitization, sleep disorders, and altered stress axis function — there is little consistent evidence to support, or refute, any of these. 

Read more: http://www.jrheum.org/content/41/9/1732.full


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FibCon 2015 Update


Below you can access a letter with information regarding the 2015 Fibromyalgia Conference which will run from Friday 24th - Monday 27th April 2015, at the Chichester Park Hotel, a Booking form and newly designed flyer which you can print off and give to people who may be interested and who have not attended before. At present there are, sadly, no more single rooms left, but there is a waiting list for people who would like to be on standby for one.

Update letter: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/FibCon_2015_letter_14.7.14.pdf

Booking form: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/FibCon_2015_booking_form.pdf

Advertising flyer: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/FibCon_2015_flyer.pdf

For further details or to book, email Simon: fibcon2015bookings@gmail.com


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Reminder of CFS/ME/FM Course

Our next self management course for adults, young people from the age of fourteen, their families and their carers will start on Friday 10th October at The Charis Centre, West Green Drive, Crawley, West Sussex, RH11 7EL

See poster for full details: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/reMEmber_course_14.10.pdf


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A personal note from Vicky

Spiky balls are back in stock.
Those that come to my community classes or on a 1:1 basis are very familiar with the delights they offer…  The rest of you don’t know what you are missing!!!  It is my intention to do some more filming over the next few weeks to show you how to use them. 

Read more: http://us4.campaign-archive1.com/?u=1f0fb2b9eada51a6fa54509ba&id=4e39051738&e=2a0fc40be9
Also:
Education: Benefits of drinking water
Video of the week: The Dart
Success Story: David Such M.Ost


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Daily Newsletter - Sept. 27th, 2014

Daily Newsletter - Sept. 28th, 2014

Daily Newsletter - Sept. 29th, 2014

GMI Weekly 9/30/14

Daily Newsletter - Oct. 1st, 2014

Daily Newsletter - Oct. 2nd, 2014



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I saw my GP on Monday to discuss the results of the blood tests and ECG.  All is 'normal' so I guess my episodes are merely another manifestation of FMS.  So nothing to worry about!

I wish you well as we begin this last quarter of 2014
Stella

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N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. 
Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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