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FMS eNews 03/05/14

I hate housework!  Not that I don't like the place to be clean and tidy, but weilding the necessary tools is tiring, arm aching and back breaking!  So I do as little as possible. Shock horror!!??


Just before visitors are expected is the most likely time you will see me with even a duster in my hand!  Does it matter?  Not really.  My space, time and place are my own.  If I choose to be working on the computer, knitting, watching TV or listening to an audio book (I don't actually READ books any more) then I will do so without a guilty conscience.
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WORDz for the WEEK

 166.  Many people doubt their ability, but few have any misgivings about their importance.

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For UK readers, it's not too late to contact your MP about the FMA UK's presentation to MPs on 12th May in The House of Commons committee room 19 from 18.00.  See FMS eNews 19/04/14 for full details. 

http://fmsenews.blogspot.co.uk/2014/04/fms-enews-190414.html

 But do it SOON!
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 From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

 New research makes the case for a mechanism similar to multiple sclerosis in at least some cases of fibromyalgia. What could that mean for us? See what the study uncovered, below.
Also this week, three new studies on juvenile cases of fibromyalgia and chronic fatigue syndrome, and a question: what has the Affordable Care Act meant for you? Don't miss the poll!
Down in Featured Articles, you'll find a lot of information about getting through this time of year.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/3053557906000165a000262d.htm
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The ‘Body’ is Back in Fibromyalgia - Small Nerve Fiber Damage Suggests The Pain Begins There
The ‘word’ on Fibromyalgia, which was originally proposed to be a disorder of the muscles, has been that it’s a disorder of the central nervous system. Studies have found that both the pain-producing and the pain-inhibiting sides of the central nervous system in Fibromyalgia are clearly dysregulated. These are important findings, but they’re not the whole story. You wouldn’t know that from overviews of the disorder on the web where the central nervous system paradigm dominates.

 Read more:  http://www.cortjohnson.org/blog/2014/04/29/body-back-fibromyalgia-small-nerve-fiber-damage-suggests-pain-begins/

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Coping with ME/CFS Will Always Be Hard – But There Are Ways to Make it a Little Easier
 Insight and Practice …. A Lot of Practice We are all waiting for effective treatment for ME/CFS, but since we are not getting much help from those who could make headway in that issue (the government and its agencies, research funding bodies, the medical community), in the meantime we have to rely on coping. I know Cort loves guest posts on coping so here’s my contribution.  While I still must say I have an almost unbearable life with severe ME/CFS, some years into the illness I did manage to reach a degree of acceptance – at least much more than at the beginning. Through this decade of severe ME/CFS, with 24-7 immense pain and massive suffering, I think it has rescued me from going completely crazy.

 Read more: http://www.cortjohnson.org/blog/2014/04/27/coping-mecfs-will-always-hard-ways-make-little-easier/

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The ME/CFS and Fibromyalgia ‘Buzz’ Begins
From new research to treatment options to advocacy to events, there’s a lot going on in the ME/CFS and FM Communities – more than can be explored on the main blog page on Health Rising. The ME/CFS and FM Buzz blog will help rectify that by providing short takes on items of interest in Chronic Fatigue Syndrome and Fibromyalgia that would otherwise get missed. Sign Up
– Sign up to get the blog every time it’s posted or weekly using  the subscription box on the right hand side of this page.

 Read more: http://www.cortjohnson.org/blog/2014/04/25/mecfs-fm-buzz-blog-begins/

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How to Prove to Your Doctor You’ve Got Chronic Fatigue Syndrome (ME/CFS) And Are Not Just Depressed
Many people with ME/CFS and FM are mistakenly diagnosed with depression first] Wrong diagnoses hurt. They lead doctors to prescribe treatments that don’t work and may even be harmful (exercise!) and they keep doctors from prescribing treatments that do work.  They waste patients’ money and, given the fact that the earlier a person is diagnosed with ME/CFS the better chance they have of improving their health, they contribute to poor health.  The fact that only from 15-20% of people in the U.S. with Chronic Fatigue Syndrome have been diagnosed with it suggests wrong diagnoses run rampant in this disorder. Of all the wrong diagnoses, being diagnosed with depression is surely the most common.

 Read more: http://www.cortjohnson.org/blog/2014/04/26/prove-doctor-youve-got-chronic-fatigue-syndrome-mecfs-just-depressed/
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Fibromyalgia Pain

 Whether you are experiencing painful tender points, deep muscle pain, chronic headaches, unending back pain, or neck pain, you know how fibromyalgia feels. People with fibromyalgia experience pain in ways no one else can really understand.

 But what is pain? What causes it? Is fibromyalgia pain acute (short term) or chronic (long term)? And what impact does fibromyalgia pain have on every part of your life?

 http://www.webmd.com/fibromyalgia/guide/fibromyalgia-pain

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Marijuana Rated Significantly More Effective in Treating Fibromyalgia Symptoms than FDA-Approved Drugs, Global Survey Finds

 A survey of 1,339 people with fibromyalgia conducted by The National Pain Foundation and NationalPainReport.com, revealed that those who have used marijuana to treat their symptoms find it significantly more effective than any of the three drugs approved by the Food and Drug Administration to treat the disorder.

 http://www.ereleases.com/pr/marijuana-rated-significantly-effective-treating-fibromyalgia-symptoms-fdaapproved-drugs-global-survey-finds-214231

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Fibromyalgia Test: Get Treated Faster

 Fibromyalgia test may help you to know your probability of suffering from fibromyalgia.
To test for fibromyalgia is entirely based on clinical signs.

 http://www.fibromyalgia-information-relief.com/fibromyalgia-test.html
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HOSPITAL CLOSURE CLAUSE: BRIEFING FOR LORDS

 Baroness Finlay, a well-respected crossbench peer and doctor, has proposed an amendment to “clause 119” of the Care Bill. If enough Lords support her amendment, then it could be enough to stop Jeremy Hunt’s dangerous hospital closure clause from becoming law.
Earlier this week, 38 Degrees members chipped in enough money to fund a briefing which every Lord will receive. They’ll also be invited to a meeting where Baroness Finlay, along with legal experts, which will make the case for the amendment.

 http://blog.38degrees.org.uk/2014/04/25/hospital-closure-clause-briefing-for-lords/

 You can read the full briefing here: Download File
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Your Top Tips for Surviving Life on Benefits

 We’ve had well over 500 replies to our question about what advice you would give to people new to claiming benefits.
They cover issues as varied as where to shop, how to cook, what websites to use, where to get advice, how to cope with neighbours and the media’s hate campaign.
And the picture your suggestions paint is a very different one from the ugly distortions of the tabloids. Not a single mention of food banks. No suggestions about ways to afford flat screen TVs or cigarettes or alcohol.
Instead, your tips have an almost wartime spirit of defiance – a mixture of dig for victory and make-do and mend. Shining through them is a determination to survive without bitterness and without being ground down by adversity.
Above all, they demonstrate the reality of life on benefits that politicians, bankers and the media are desperate to keep hidden in order to make claimants the scapegoats for their own failings.
Having started this, we’re keen to keep it going. So, please add your own suggestions or comments if you haven’t already. You can use the Comments function on the page or email us at office@benefitsandwork.co.uk
We’ve highlighted the winning tips from last week’s competition in red.
Facebook users can also join in the conversation here.
And if you have a particularly pithy tip, you can even tweet it to us using #realbenefitstips

 http://www.benefitsandwork.co.uk/surviving-life-on-benefits?
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Video:How to Slash Your Grocery Store Bill

You can save money on groceries by practicing a few simple habits. Here are tips to slash your grocery bill and more save money on groceries.


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GMI Daily Edition: 4/28/14

GMI Daily Edition: 4/30/14
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Next week's FMS eNews will be all about International Fibromyalgia Awareness Day - 12th May.  It will also be early, probably Thursday because I shall be away for next weekend.

 Don't work too hard
Enjoy May Day Monday Bank Holiday
Fondest wishes to you all
Stella
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 N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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