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FMS eNews 17/05/14

My weekend away was not as enjoyable as it might have been because I came down with a heavy cold.  Been feeling rock bottom but recovering now, I am pleased to say.

I hope you did your bit towards raisng awareness of FM before and on 12th May.  If not, you CAN do it any time!  Tell the world.


WORDz for the WEEK

168.  I don't live for the moment, I live for the second; because every second makes a moment!


The Burden of Gluten

Norah Wickerson
10 Facts about Gluten

  • We now eat a great deal more gluten than we did 50 years ago.
  • Gluten is used as a filler, a binder, taste enhancer and thickener and is now used in unexpected foods eg coleslaw, chocolate and even some ice creams!
  • We can be intolerant ie allergic to gluten, as in Coeliac Disease (CD) or sensitive to gluten which is much harder to get diagnosed but can still be a very serious problem with life affecting symptoms.

Read the rest here:


Press Releases
Fibromyalgia International Awareness Day May 12

Fibromyalgia Association UK calls for greater awareness and education to help thousands of diagnosed patients in the UK
London, May 12th – Fibromyalgia Association UK (FMA UK) today calls upon MPs at a closed session at the House of Commons to request for greater research into the level of fibromyalgia suffering in the UK. Campaigners for the charity, predominately run by volunteers, demand a clearer assessment on the extent of the condition ahead of an official review by NICE in 2016.


Adrienne Dellwo
From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

 I can't thank you all enough for the well wishes! My recovery is going well but is still just about all I can focus on.
This week, I've included lots of information on pain and pain management.
Take care of yourself!


From Shereen Jegtvig, MS , your Guide to Nutrition

Shereen Jegtvig
Some Articles 4 U

I Love Smoothies
Super Seeds
Three Nutrition Lies We Tell Ourselves
A Month of Family Meals

Read them here:


What Is Fibromyalgia?

Fast Facts: An Easy-to-Read Series of Publications for the Public
Fibromyalgia is a disorder that causes muscle pain and fatigue (feeling tired). People with fibromyalgia have “tender points” on the body. Tender points are specific places on the neck, shoulders, back, hips, arms, and legs. These points hurt when pressure is put on them.

Read more:


What is Fibromyalgia? - (fy-bro-my-AL-ja)

Fibromyalgia is a common and complex chronic pain disorder that causes widespread pain and tenderness to touch that may occur body wide or migrate over the body.  Along with other symptoms, pain and tenderness wax and wane over time.  Fibromyalgia (FM) affects people physically, mentally and socially. 

Read more:


Missing Diagnosis: From Fibromyalgia to Hyperparathyroidism – Could You Have An Entirely Treatable Condition? 

Symptom-based definitions involving pain and fatigue have a problem: they can fit a lot of people, and that means subsets abound. If you have them and don’t get a thorough workup at your doctor’s office something could be missed. According to a recent conference report from Medscape News that something in Fibromyalgia includes a very treatable condition called 
hyperparathyroidism. As with orthostatic intolerance, thyroid and adrenal problems, small fiber neuropathy, and other disorders, the symptom overlap between FM and hyperparathyroidism is huge. People with either disorder commonly experience fatigue, musculoskeletal pain, headache, cognitive dysfunction, and mood disturbance. Both disorders are more common in women, and both increase with age.



National Motorcycle Museum Conference Centre, Solihull, West Midlands 18th October 2014
The Thyroid UK 2014 conference at the National Motorcycle Museum Conference Centre will give you an opportunity to learn about thyroid disease and related conditions as well as meet up with people you can relate to and enjoy a relaxing day in this unique venue.
The venue is only a five minute taxi drive away from Birmingham International railway station.
If you would like more information about the conference, please contact us on 01255 820407 or send an email to

To see the venue go to:
To see the Manor Hotel go to:


Fibromyalgia Causes

There are several theories about the causes of fibromyalgia, from hormonal disturbances to stress to genetics. While there is no clear consensus about what causes fibromyalgia, most researchers believe fibromyalgia results not from a single event but from a combination of many physical and emotional stressors.
Other Theories About Causes of Fibromyalgia . . . . .


OTC Pain Relievers: What You Should Know

Find out how over-the-counter pain meds may affect your heart, kidneys, blood pressure, and more.


Chronic Pain Causes and Treatments

 What you can do to help relieve the pain, and things you should avoid.
View Slideshow ›

  • Surprising Reasons You May Be in Pain
  • Personalized Tips for Pain Relief
  • 10 Daily Habits to Ease Chronic Pain


19 Natural Remedies for Anxiety

No Rx needed
You're anxious, worried, freaked. You're upset about (pick one): money, health, work, family, love. Your heart is beating fast, your breathing is shallow and rapid, your mind is imagining doom, and you wish you could just relax…now! Whether you have a full-blown anxiety disorder or are just freaking out, you may not want to try medication—at least not yet.
There are many safe nondrug remedies for anxiety, from mind-body techniques to supplements to calming teas. Some start working right away, while others may help lessen anxiety over time.,,20669377,00.html


Welcome to this week's newsletter.  

We are pleased this week to be sharing the second of our series of Q and A videos with Alex from Secrets to Recovery.  This video explores members of Secrets to Recovery's questions around the maladaptive stress response and anxiety.  The video will only be freely available for several weeks (but is permanently available to members of, so please do watch now at Q and A with Alex on the maladaptive stress response and anxiety


The Adrenal Summit

I have professionally reviewed over 4,300 adrenal tests in my career and have seen only 5 return healthy and normal at the onset of a new client. Yes, this was not a typo, ONLY 5!
In fairness, I work with health challenged individuals so these are 4,300 plus results of people that are already dealing with some type of physically manifested disease state. This could be individuals with weight issues, fatigue, mental/emotional imbalance or any diagnosed disease state. Based on the numbers above, if you have a current health challenge, there is approximately a 1/10th of one percent chance that you have healthy adrenal function.
I don’t know about you but to me, those are not very good odds.
You may ask, “Why is your adrenal gland function so vitally important?” Basically because your adrenal glands will play a direct role in all of the areas listed below. . . .

See list and read more:


JSA sanctions

Sanctions against claimants have reached record levels and it is very clear that they are being imposed for the tiniest deviation from agreements or even for no good reason whatsoever. They are now affecting not just JSA claimants but also ESA claimants – particularly those forced onto the work programme.
Below we’ve given our top tips for avoiding sanctions and some of the most outrageous examples of unfair sanctions that we have come across.
We also explain how to sue the DWP or work programme provider if they make an activity mandatory and it is unreasonable because of your health condition or disability
But we’d very much like to hear from you about your experience of sanctions, or threats of sanctions, and also any advice you can give fellow claimants on how to avoid or challenge unfair sanctions.


8 years of Friendships & Support (+ contest) 

 Happy Birthday to all of us!
At first I couldn’t believe it. 
8 years?? Really? but thinking a bit more & realizing all that happened it’s starting to make sense (for starters I was single back then and now I have 3 daughters ;-)
When Alon and I started MDJunction we had very little knowledge of what it will become. We believed in ‘Patient Empowerment’ and in ‘People Helping People’ but those were slogans, not a grocery list.
A few people found the site and started talking (we didn’t have groups back then only one forum). A post every 3-4 days made us thrilled and excited. To think we have thousands of posts a day now, almost 2 million altogether. We actually have more than 20 members who have 10,000+ posts!!
More people found the site & they asked for disease specific groups instead of one forum. We started 14 support groups and realized this is what we want to do. MDJ has more than 800 groups now and almost all of them started with a member sending us a PM saying we should start a group for… 
Then - more friends joined ;-) and their friends too. Friendships were formed in the site and some taken to real life. 3.5 million Hugs sent over the years, and tens of millions of Private Messages between members!
Being a family-like social network means that all we are and all we’ve done is credited to our members. You guys make it happen every day in every way. People Helping People. Now we know what it is… and we’re proud to be a place where thousands meet every day to discuss their feelings, questions and hopes with likeminded friends.
We want to say a BIG Thank You to all our members! We love you ;-)

Read more - and about the contest:


FMS and Migraine Headaches Videos

The Facts About Fibromyalgia and Diet 
Healthy eating with fibromyalgia can often be an important factor in controlling symptoms. Here are some things you can try removing or including in your diet. 
Find us on: Like us on:  Follow us on:  Follow us on:  Follow us on by: StreamingWell  2:26 minutes - and many other FM related videos besides.



Some very, very good news. We did it! The government has accepted our amendment to the hospital closure clause in the House of Lords.
Without our amendment the hospital closure clause would have given the government new powers to close any hospital in England, even if local doctors were against it.
The clause was voted for by MPs back in March after the government made some concessions. Their changes didn’t go far enough, but it seemed like the government wouldn’t budge any further.
The clause was due to be passed today. So the government’s decision to accept – al

most word for word – the changes proposed by lawyers funded by 38 Degrees members came right down to the wire – and it was a big surprise.
Our people powered pressure worked and our hospitals are now safer. Thank you for everything you’ve done to make this happen. Hurrah!


Vicky's Newsletter

I thought as this building work at home is glorious that I’d run away on my annual ‘girls’ trip for a week.  So I’ve headed for the Sun and made use of the Bank Holiday.
We’re getting pretty busy!  The evening classes are getting busy with waiting lists and so there will be a new 45 minute class starting on 2nd June.  I think this class would be good for those with a busy life who would like to get their exercise done on their way home from work.  If you want to transfer from your regular evening class please let me know.  I already have two people booked for the class so you won’t be alone!  Please spread the word.

Read more:


The 2014 Membership Drive

GMI Daily Edition: 5/10/14

GMI Daily Edition: 5/11/14

GMI Daily Edition: 5/12/14

GMI Daily Edition: 5/13/14

GMI Daily Edition: 5/14/14

GMI Daily Edition: 5/15/14


Despite being away, being ill and consequently being short of time, I have managed a reasonable eNews for you this week.  
I wish you well - and happy reading.



N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. 
Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.

If you don’t already get reminders when each new FMS eNews is posted, please send an email to and you will be added to the emailing list.