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FMS eNews 24/05/14

Recovery from my cold was not as rapid as I had hoped.  I've been feeling rather like this!

I had to cancel a hospital appointment and I didn't make it to the Horsham Fibro morning meeting.  Here's hoping for better times. 
You will see that I have added some 'Gadgets' to the right, which I hope you will find useful. These will appear on every blog.  Some variations can be found by refreshing your browser.
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WORDz for the WEEK

 169.  With your thoughts you sculpture your life, with your feelings you exhibit and enjoy what you have done.
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May 12 Blog Bomb Link List
What a fantastic response there has been to the #May12BlogBomb ! 
Thank you everyone: writers, readers, sharers and visitors. Your responses have made my day.

 http://sallyjustme.blogspot.co.uk/2014/05/May12BlogBombLinks.html
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 ME: Another Year on.....

 This time last year I wrote my most viewed blogpost ever. 
It was a post about ME & Fibromyalgia Awareness Day and called "So How Does ME affect Me?"

 http://sallysewssometing.blogspot.co.uk/
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All the #May12BlogBomb blog posts are being published in one place - LIVING WELL with FIBROMYALGIA! 

 Out June 1st - have you subscribed? It's free at http://eepurl.com/oUY7X
This month we have:
* Haullie Volker from Voices of Fibromyalgia
* Photos of #Awareness day activities from around the world
And it's NOT just for Fibro sufferers!
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 May 12th Posters

 Click on the picture to go to the next one, and the next one . . . . .

 https://www.facebook.com/may12th.awareness/photos/a.10151963007682161.1073741829.220534562160/10151963007772161/?type=1
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From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome
Adrienne Dellwo
Medical marijuana is hard to come by, but as it becomes more common, we're getting new information about how effective it may be for us - including how it compares to approved fibromyalgia drugs. More on that, below.
Also this week, a look at fibromyalgia history shows it's clearly not a "new" or "fad" illness, plus a look at some changes you'll soon be seeing.
For my readers with ME/CFS - I realize I haven't had a lot for you lately and I apologize! The Featured Article content is all about you this week, and I promise I'll let you know about some new research next time.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/305371288c000115bf00263d.htm
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 Medical Madness: How the Feds Approved Drugs for Fibromyalgia That Don’t Work Well While Barring Access to One That Might
Three drugs ( Lyrica, Cymbalta, and Savella) have been approved for Fibromyalgia. On the face of it  that’s great. 
That means three drugs have successfully undergone several large and rigorous clinical trials under the eye of the FDA. The drugs helped legitimize FM and their tremendous financial success revealed a population of 5 million  or so FM  patients that were eager for relief.  That was a huge step forward. Some even divide Fibromyalgia into Fibromyalgia pre-Lyrica (pre-2007) and FM post-Lyrica era’s. They made that much  of a difference. It doesn’t mean, however, that these drugs will  work for you or even that they’ll work all that well  if they do. The  Food and Drug Administration (FDA)  does not require a drug to be a  cure to be approved; it simply requires  that a  drug provide a significant  clinical benefit to a portion of the patient population and there’s the rub.

 Read more: http://www.cortjohnson.org/blog/2014/05/15/medical-madness-feds-approved-drugs-fibromyalgia-dont-work-well-barring-access-one-might/
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 A Closer Look at Natural Killer Cells In Chronic Fatigue Syndrome and Three Natural Ways to Boost Them 
Natural Killer (NK) cells are specialized immune cells of the innate, non-specific immune system. Comprising about 10% of white blood cells they are densest in the liver, spleen, blood, lung, bone marrow, and lymph nodes. In response to an immune threat, NK cells release a class of chemical messengers (cytokines, IFN-y) that recruit T lymphocytes and other immune cells to attack. They also function to communicate to other immune cells to curtail their offenses, thus inhibiting an overactive response.

 Read more: http://www.cortjohnson.org/blog/2014/05/10/closer-look-natural-killer-cells-chronic-fatigue-syndrome-three-natural-ways-boost/
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Energy-Boosting Foods
Changing your diet can change your metabolism and brain chemistry -- and that, in turn, may lift your energy level and mood.
View Slideshow ›
  • 12 Ways to Manage Fibromyalgia Pain
  • What Fibro Fatigue Feels Like
  • Top Stretches for Morning Stiffness

 http://view.messages.webmd.com/?j=fec4177673650d7f&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff6b157076&ju=fe9512717561037a75&r=0
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 Outsmart Chronic Pain

 Harnessing the power of the mind, new research and powerful psychotherapies offer relief to those suffering living wtih chronic pain. 

 http://view.s4.exacttarget.com/?j=fe9910787767067e75&m=fe9515707360067a73&ls=fde9107272630d7474107876&l=fef11d757c6304&s=fe21117974640d78761c76&jb=ffcf14&ju=fe5a12747467037b7112&r=0
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 Fibromyalgia and sleep problems
What kind of sleep problems are associated with fibromyalgia?

 People with fibromyalgia often awaken tired, even though they report sleeping for long periods of time. Sleep is often disrupted by pain, and many people with fibromyalgia have other sleep disorders, such as restless legs syndrome and sleep apnea.

 http://www.mayoclinic.org/diseases-conditions/fibromyalgia/in-depth/fibromyalgia-and-sleep-problems/art-20093401/?utm_source=newsletter&utm_medium=email&utm_campaign=pain-management
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 How to manage, reduce and control chronic pain
Advances in pain treatment are occurring at a rapid pace.
Mayo Clinic wants to share with you these latest advances for treating arthritis, migraines, low back pain, fibromyalgia, and painful illness and injury. The new edition of Mayo Clinic Guide to Pain Relief brings you all this and more.
Mayo doctors know how pain interferes with sleep, work, social life, and simple daily life. We help our patients meet these challenges every day, and we'd like to help you, too.

 https://store.mayoclinic.com/products/books/Details.cfm?mpid=150&trkid=22786S779168190&xid=nl_MayoClinicPainManagementAdvisor_20140520
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 A Personal Note from Vicky
After the climb to the top of the temple at Coba, Mexico.
As always I’m grateful to Sharon, Julia and Kay for stepping in and covering my classes while I’ve been away.  I was back on by the Monday morning but coping with 400 emails and jet lag. Sorry to miss yet another Monday morning but I then went down with a flu like illness.  I think I need a holiday! I am actually not planning any more breaks until the autumn when my husband has mentioned the possibility of a cycling holiday in France. . . . . .
Also: Another fat burning hormone: Human Growth Hormone; Video of the week: Hip And Back Mobility; Monica tells how Fitness Function classes have helped her.

 http://us4.campaign-archive1.com/?u=1f0fb2b9eada51a6fa54509ba&id=87f606bf61&e=2a0fc40be9
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FibCon 2015
After organizing 5 annual conferences Jeanne Hambleton has decided to retire.  Simon and Teresa are going to keep the 2015 conference afloat and have provided a newsletter telling of their plans and providing a booking form.  There is not much time left for booking at the reduced rate of £200.  Bookings have to be in, with a £75 deposit by the end of May.  After that the cost will be £220.  

 All details are in this letter
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/FibCon_2015_letter_14.5.17.pdf

 The booking form is here
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/FibCon_2015_booking_form.docx
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Worthing FMS Group Newsletter for May

 https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Worthing_Newsletter_14.05.pdf
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 . . . . While stress related to work and family remains the number one cause of insomnia, eating the wrong foods -- such as those rich in sugar, caffeine, gluten or polyunsaturated fat -- can also contribute to insomnia. Therefore, improving one's diet is an important first step toward ending insomnia, especially if one favors foods that are known to improve sleep.
1. Almonds  2. Cherries 3. Bananas 4. Valerian 5. Oatmeal

 Learn more: http://www.naturalnews.com/045198_Insomnia_Sleep_Deprivation_Almonds.html
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The Patient Voice- Becca, Fibromyalgia member

PatientsLikeMe member, Becca, shares her story about living with Fibromyalgia.

https://www.youtube.com/watch?v=U622JBNYmBI&list=UUQop4yFjrXxPyWaYWYfTCNg&utm_medium=email&utm_source=newsletter&utm_campaign=fibromyalgia_20140523
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Coming soon is our popular Well Woman workshop in Faygate, Horsham.  On Saturday 31 May, women will join together in healthy qigong movements and focused meditation.  Using the theory of Traditional Chinese Medicine, you will learn effective powerful movements that aid the female specific anatomy, clearing stagnation, nourishing the organs and allowing free flow of qi in the meridian channels of the body.

 http://us2.campaign-archive1.com/?u=75076062ba40962e2e364d5f4&id=068e1c60c8&e=751f85837c
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GMI Weekly Edition: 5/17/14

GMI Daily Edition: 5/18/14 

GMI Daily Edition: 5/19/14 

GMI Daily Edition: 5/20/14

GMI Daily Edition: 5/21/14

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Saturday, today, my husband is celebrating 55 years as a C of E Priest with a service at Litlehampton where we used to live. Next Tuesday is my birthday.  After that I will be able to say 'I'll be 80 NEXT birthday'!!!
All good things
Stella
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N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. 
Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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