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FMS eNews 26/04/14

What has been happening with the weather?  One day it is beautifully bright, warm and sunny, and we feel that spring has truly sprung but then it's dull, cold and wet and we wonder if we ever left winter behind!

But then there are inevitable 'April Showers', so perhaps it's not so odd after all!  Is there a fibro analogy there?  One day we might be feeling 'good' then a flare hits and we are instantly 'bad'.  Variety is the spice of life, or so we are led to believe!
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WORDz for the WEEK

 165.  As you travel through life, leave your mark, not a stain.
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  Cholesterol
  
Norah Wickerson
This is not the 'baddie' we have being led to believe. It is essential for many very important functions -
  • Helps to make hormones like oestrogen and progesterone.
  • Helps to make stress hormones like adrenalin and cortisol.
  • Helps repair little tears and damage in cells and blood vessels.
  •  Forms part of the make up of the myelin sheath to protect nerves.
 Most importantly it helps the body metabolize Vitamin D - vital to have optimal level of this in any chronic pain condition and problems with immune system and general health. I could argue that vitamin D is the most important vitamin, even though it is actually a hormone, as it does so much more than we previously were aware of.

 https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Norah_Wickerson_Article-05.pdf
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Fibromyalgia Awareness Day 12th May

 Please take note of the announcement in last week's FMS eNews about the presentation to MPs on 12th May in The House of Commons committee room 19 from 18.00. Do please write to your MPs to encourage them to attend, and to meet you there if you can go.

 http://fmsenews.blogspot.co.uk/2014/04/fms-enews-190414.html
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Adrienne Dellwo
From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

Have you worked hard to lose weight, only to find it nearly impossible? See what new research is showing about the metabolism and fibromyalgia, and why we have an even harder time than most people. That's below. Also this week: a drug shows promise in one study, but it's almost unknown in the U.S.; and a look at "crisis mode," why it's a real problem, and how you - and those close to you - may be able to better cope with it.
Down in Featured Articles, we'll take a look at different aspects of your life and how to make them a little better.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/30534c3e8600019b9a00262b.htm
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 Dr. Teitelbaum Talks on Chronic Fatigue Syndrome and Fibromyalgia
Dr. Teitelbaum has been studying and  treating Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia since he came down with ME/CFS over thirty years ago. The author of the best selling ME/CFS treatment book, “From Fatigued to Fantastic’, Dr. Teitelbaum talked for 48 minutes on his basic approach talk to ME/CFS and FM at the American Board of Integrative Holistic Medicine conference.

 Read more: http://www.cortjohnson.org/blog/2014/04/21/dr-teitelbaum-talks-chronic-fatigue-syndrome-fibromyalgia
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The Fatigue and Pain Producers: Could Glial Cells Be ‘It’ in Chronic Fatigue Syndrome and Fibromyalgia?
Suddenly glial cells are turning up in spades in Chronic Fatigue Syndrome and Fibromyalgia.  The Japanese neuroinflammation study found widespread glial cell activation in the brains of people  with ME/CFS. Younger’s leptin finding suggests the glial cells may be going bonkers in ME/CFS, does his successful low dose naltrexone study in Fibromyalgia. VanElzakker’s Vagus Nerve Infection Hypothesis proposes chronic glial cell activation near the vagus nerve is causing ME/CFS.

 Read more: http://www.cortjohnson.org/blog/2014/04/20/fatigue-pain-producers-glial-cells-chronic-fatigue-syndrome-fibromyalgia
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 Is choice lost? Microchips to administer drugs, replace pills

 According to reports from CNN, people who use pharmaceutical drugs, but who don't like having to remember, think, exercise their personal agency, or make their own proactive choices throughout their day, may soon be able to get their medications automatically administered via an implanted chip.

 Learn more: http://www.naturalnews.com/044868_microchips_drug_injections_hybrid_humans.html
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Natural ways to sweeten foods without refined sugar
People who prefer to sweeten their foods do not have to rely solely on refined sugar or artificial sweeteners to accomplish the task. There are several sources that produce the sweet taste many people crave without adding the calories most people are constantly trying to avoid. The important thing when trying to find a natural sweetener is to look for those that offer other benefits in addition to their sweet flavor.

 Learn more: http://www.naturalnews.com/044864_refined_sugar_natural_sweeteners_diabetes.html
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Do People That Eat Margarine Really Know How It's Manufactured?

Polyunsaturated margarine became a major part of the Western diet and had overtaken butter in popularity in the mid-20th century. Despite their best efforts, the margarine lobby has failed to convince most people that their synthetic concoctions are healthy. So what is not obvious to most of the people who consume it? The manufacturing process of course, which is very similar to the way plastic is produced.


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 The Revolutionary "Good Fat" That Promotes Heart, Brain, Bone and Joint Health 
Although we tend to think of fat as a "bad" thing, there are "good" fats that our body needs in order to function properly - in fact, we can't live without them. 
Essential fatty acids (EFAs) are in that good fat group. Our body requires them in order to perform a number of different biological processes. EFAs must be ingested because the body does not manufacture them itself.

 Read on: http://www.prohealth.com/ep/EP041814

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Innovative Nutrient Helps Repair Damaged Mitochondria & Reduce Fatigue up to 45%

 Clinical trials have shown that NT Factor® can actually support the repair of damaged cell
membranes - in effect reducing the cells' biological age and restoring mitochondrial ability to generate energy.
This is true whether the reduced energy/fatigue is from an illness like ME/CFS or fibromyalgia, a side effect of chemotherapy, or simply a result of aging. Studies done with severely fatigued patients in each of these populations demonstrated that NT Factor can support reduction of fatigue levels by as much as 45 percent.(1-3)

 http://www.prohealth.com/ep/EP042414/index.cfm?slvor=11743.1152956.0.1.0.110434
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Pain Drug Dos and Don'ts
Does Motrin IB contain aspirin? What’s the difference between Norco and Vicodin? A top pharmacist answers your questions.
Watch Video ›
  • How Narcotic Pain Medications Work
  • Tips to Choose a Nonprescription Pain Reliever
  • States Oppose Powerful New Painkiller

 http://view.messages.webmd.com/?j=fec01774726c0474&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff6017747d&ju=fe8c11787762007f7d&r=0
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Bust Stress for Better ZZZs

 [stress] Feeling overwhelmed? That can make it hard to unwind and rest at night. Manage your stress and end sleepless nights.
Read Article ›
  • Secrets of Contagious Yawning
  • Worst Jobs for Sleep
  • Music for Your Workouts

 http://view.messages.webmd.com/?j=fec01774726c077b&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff69167374&ju=fe87117877620
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 Women and Fibromyalgia (sorry gentlemen!)
Many of the books on fibomyalgia tend to focus primarily on how to live with the condition. While there is value in this approach I believe we need more answers about why fibromyalgia is more common in women.
This is a book that will share twenty women’s stories of courage in living with this unbelievably common, debilitating and chronic condition. It is storytelling that allows voices to be heard that have often been silenced. During the process of interviewing the women I lived through an ‘aha’ moment that led me to a possible, and highly likely explanation about why fibromyalgia occurs primarily in women.

 Read more: http://womenandfibromyalgia.com/about-the-book/
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 Fibromyalgia pain: Resetting the hypothalamus with diet, sleep, excercise
For fibromyalgia sufferers, increasing movement and re-setting the hypothalamus are critical first steps in reducing pain and restoring wellness.
Victims of fibromyalgia (FM) suffer from fluctuation in body temperatures, making them hot one minute and cold the next. The feeling can range from feverish to shivering.

 http://c.washingtontimes.com/neighborhood/steps-authentic-happiness-positive-psychology/2013/oct/31/fibromyalgia-hot-cold-and-painful
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Fibromyalgia understood: Sensitive receptors generate excessive pain
Studies conducted at Georgetown University and the National Institutes of Health (NIH) by Daniel Clauw M.D. and Richard Gracely M.D. and supported by the National Fibromyalgia Research Association, the U.S. Army and NIH have revealed via advanced brain imaging that fibromyalgia is rooted in physical source and not generated by psychological issues.
Advanced technology called functional magnetic resonance imaging (fMRI) clearly shows brain blood flow and neurological changes during painful episodes that affect victims of the disorder.

 http://c.washingtontimes.com/neighborhood/steps-authentic-happiness-positive-psychology/2013/nov/4/fibromyalgia-pain-modern-brain-imaging-confirms-ph
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Fibromyalgia solved: Not in the mind, but a very real physical ailment

The National Biotechnology Information Center (NBIC) of the National Institutes of Health (NIH) recently released the findings of research funded by grants from Eli Lilly Pharmaceuticals and Forest Laboratories that claim to have discovered a causative pathology (the science of cause and effect)  for fibromyalgia.
The cause of the disease escaped researchers for years. In fact, the condition was considered by many in the field of medicine as psychosomatic (in the mind) because of the variety of symptoms that could not be clinically pinned down and patient reporting was the primary criteria.

 http://c.washingtontimes.com/neighborhood/steps-authentic-happiness-positive-psychology/2013/dec/29/fibromyalgia-solved-pathology-not-mind

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Thalasso-WHAT?

 This is something that I am happy to see! There are a really good amount of studies going around concerning Fibromyalgia and treatments that help ease the pain. Compared to years past, it’s a marked improvement, to say the least! I even keep a specific Google Alert set up to e-mail me when any news article with the word “Fibromyalgia” pops up, so I can keep on top of the latest news, research and studies going on with it. This morning, when I checked my e-mail, an article about Thalassotherapy for Fibromyalgia came up!

 http://fighterzblog.wordpress.com/2014/04/18/thalasso-what
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 Fibromyalgia Books! Why?

 Are you doing everything you can to control your fibromyalgia?
Fibromyalgia books can help You!
  •  Do you know why you're suffering from fibromyalgia?
  •  Do you understand your disease?
  •  When you get a flare up, do you know what's happening?
  •  One minute you're fine, the next you feel terrible. You go shopping and you come back exhausted like having run a marathon! Do you know why?
http://www.fibromyalgia-information-relief.com/fibromyalgia-books.html
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 "Let the beauty you love be what you do, there are hundreds of ways to kneel and kiss the ground" - Rumi

 Some recent articles
MARIE HOWE: HOLDING THE SILENCE by Kim Rosen
CLOSE TO THE GROUND: DIGGING FOR GOLD by Geri Larkin
MEDITATIVE STATE OF MIND LINKED TO BREATHING FOCUS by Traci Pedersen
HOW DOES THE BRAIN PROCESS FORGIVENESS? by Pamela Milam
and much more besides.

 http://spiritualityhealth.com/?ref=exct#
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Vicky's Newsletter


With the sun making a welcome appearance, I don’t seem to be the only one that has dusted off their bike this week.  I nearly came a cropper when my shoe, which clips onto the pedal, wouldn’t release but survived just.  The SPD clips are adjusted now to very lose! This picture was taken on the Worth Way which was a great place to get going again. (See below)

We have had a good break over Easter and caught up with family and friends.  I hope you found some time to do the same and enjoyed some ‘downtime’.  

I am in the process of having some new flyers printed as I plan to put more classes on in early June.  The hall has become available on a Tuesday evening now and I plan to start a 7.30pm class that evening.  Please let me know if you would be interested in attending that class or know of anyone that might like a FREE trial in that class.
I hope you had a lovely break over Easter and didn’t eat too many of those eggs!
Vicky x

 http://us4.campaign-archive2.com/?u=1f0fb2b9eada51a6fa54509ba&id=c733d8fd77&e=2a0fc40be9
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 May Tai Chi and Qigong Classes and Workshops

 Hello everyone, As usual we have a jam packed month of training coming up. We are delighted to have a new beginner Tai Chi course starting on 12 May in Roffey, it's the first beginners course since last September, so do join if you would like to start from the very beginning of Chen style Tai Chi. At the end of May there is our popular Well Woman Workshop, covering Qigong for women and meditation.  Bear in mind there are no classes on the two bank holiday Mondays. You can view over the May 2014 calendar here. Thanks for reading and happy training, regards, Nicola.

 http://us2.campaign-archive1.com/?u=75076062ba40962e2e364d5f4&id=7252dc9001&e=751f85837c
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S. Bucks Fibromyalgia and ME/CFS Support Group - May Newsletter

 Dear All,
The weather is getting warmer and I hope that is helping some of your pains disappear?
I was lucky enough to visit Keukenhof in the Netherlands a few weeks ago on a fine sunny day (see the photo below).
Alex Fong (expert Volunteer) has finished his report on the overview of our group which has been very helpful. One idea he has is helping committee members with a Buddying scheme please see the information on page 3.
Christine and I had a good time at the Chichester Fibromyalgia conference and we are keen to pass on to you the highlights at the next meeting.
Hoping to see you there, Linda

 https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/South_Bucks_Newsletter_14.05.pdf
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April 21st Edition

GMI Daily Edition: 4/23/14

GMI Daily Edition: 4/24/14

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Wow!  It's been a marathon!  But I won!  I hope my efforts give you food for thought, uplift for your spirit and amunition for fibro fighting.

Best of everything for you and yours
Stella

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 N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources.
Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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