Search This Blog

FMS eNews 25/01/14

Here's another mixed bag for you today. Information about food, supplementation, sleep, depression, awareness, justice - all the things we fibro fighters need to arm ourselves with.


WORDz for the WEEK

152.  'Using your head' is something we do when we are faced with a dilemma in life!!  What do the ones with no common sense to figure that out do?


From Adrienne Dellwo

A single vitamin may be able to improve fibromyalgia, chronic fatigue syndrome, autoimmune disease, and even cancer. See what it is, what new research is saying, and whether you're getting enough, below.
Also this week, an hypothesis that some depression is really undiagnosed ME/CFS, and what can cause chest and rib pain in fibromyalgia.
Down in Featured Articles, you'll find information on supplements that are frequently recommended for us.
Take care of yourself!


7 Ways to Get Back to Sleep

It's the middle of the night and you're wide awake. You need to be rested for your big day at work tomorrow. What can you do to get back to sleep?


This blog is dedicated to provide information about Fibromyalgia, offer advice and raise awareness. The symptoms of the chronic condition include chronic pain, cognitive dysfunction, sleep disorders, stiffness, anxiety, hypersensitivity and much more.

Hold My Hand Campaign 
If you haven't joined us, consider this our invitation and simply drop us a mail on with the subject line "I would like to join hands" and anything you would like to say.  We also invite you to like and share our Facebook page with over 3500 members:

See more at:


Message from Jeanne Hambleton, Chair FMSSES and Folly Pogs Fibro Research

LATE NEWS  We are making a documentary about FM and the film crew will  be with us during the Fibromyalgia Conference  weekend. If you are coming to our residential event on March 28/31 2014 in Chichester, and if you are interested in being in the film please apply. Do share your interesting FM story with us. 
We would also like to hear from young folk with FM, fibromyalgic mums, share information about children with FM, and if a doctor has refused to diagnose you. If you want to be a STAR share your story as soon as possible with the film makers and the fibro team who will consider all applications. 

Please enclose your full name, email and postal address, your age group, tele. adding if you are group member of which group. Tell your friends.  Do get in touch with me,, if you will be with us during our weekend and would like to be in the film.   If you want details of the conference please email for details. Hope to hear soon and to see you at conference.


Fibromyalgia Public Meeting on Patient-Focused Drug Development

On  March 26, 2014, FDA is conducting a public meeting on Patient-Focused Drug Development for fibromyalgia. FDA is interested in obtaining patient input on the impact of fibromyalgia on daily life and patients’ views on currently available therapies to treat the condition. This is a rescheduling of the original December 10, 2013 meeting.
Enrol for Webinar


The Prescription Charges Coalition

 is a group of 29 organisations campaigning to end unfair prescription charges for people with long-term medical conditions
Over 3,000 people have taken our e-action and written to their MP on the issue of Prescription Charges, if you have not yet done this, please click here


Change Agents: Ken Lassesen on Prescription and Herbal Antibiotics to Alter the Gut Flora in Chronic Fatigue Syndrome

Changing the Gut Microflora in Chronic Fatigue Syndrome Not having the right bacteria was one problem; removing the bad bacteria that took their place was another My favorite conference paper is Faecal Microbial Growth Inhibition in Chronic Fatigue/Pain Patients because it identifies both undergrowth and overgrowth in a set of chronic fatigue syndrome patients.  I made a major assumption and assumed that it reflected my situation with CFS and proceeded logically to correct the imbalance.

Read more:


Our latest report provides evidence about the size of privatisation within the NHS. The numbers tell a powerful story. £5bn worth of new NHS contracts have been advertised since April 2013 and of those awarded 70% have gone to the private sector.


I'm currently working for Disability Awareness UK, a Chichester based charity who recruit and train volunteers with disabilities to give talks in schools to raise awareness. Full training and support is given to volunteers and the charity does not charge schools for this service, relying on donations instead.
I am currently recruiting in the Brighton and Crawley area and was hoping to set up an appointment to talk to disabled people about this voluntary opportunity. I have MS myself so understand some of the issues. You can visit their ebsite
Please feel free to give me a call on 07932 802782 to discuss this further.
Abigail Budd

(If you feel you would like to volunteer for this please contact Abi)


Eat, Drink, and Live Longer! 

Some things about life—and how long we get to enjoy it—are out of our control. But emerging nutrition science research, as well as data collected from people in their 90s and beyond, shows what, when, and how we eat has a profound influence on how long we live. Want to eat for a long and healthy life?

We're compiled the most compelling and surprising tips here!,,20610379,00.html?xid=foodandnutrition01232014


THE FUTURE OF NUTRITION CONFERENCE with Marc David, January 27 – 31, 2014

Welcome to the world’s biggest online nutrition event! Created and sponsored by the Institute for the Psychology of Eating, the Future of Nutrition Conference is a gathering of some of the most insightful and cutting edge thought leaders. Get ready for some powerful content and daring ideas that are designed to take us into a positive nutritional future. We trust you’ll enjoy these creative interviews and find plenty of inspired strategies and breakthrough information for your own metabolic journey.


Could Your Aches & Pains be Caused/Accelerated by "Glue" in Your Gut?

After working with hundreds of clients with inflammatory disorders specifically fibromyalgia, Scleroderma, arthritis, IBS, Crohn’s, etc., to name a few, I’m amazed they are not better informed as to the health-depleting consequences of eating wheat/gluten products. I’ve written extensively about the inflammation-inducing affects of consuming foods in the nightshade genre, but gluten can cause just as many aches and pains from the inflammation they induce.  includes other articles


I Learned

[dog]  When I got sick in 2005 my doctor insisted was there was nothing wrong with me. Seeking a second, third, fourth and fifth opinion didn't change my non-diagnosis, despite my worsening health. After a ridiculous breakdown I was finally given two diagnoses of exclusion, Chronic Fatigue Syndrome and Fibromyalgia. Little good it did, however, because I was told there was no way to treat those illnesses. Once again I was sent home with a patronizing pat on the head, except for this time it included the terrible advice to learn to live with something that was in the process of ripping my life apart. I guess it was progress, but it sure didn't feel like it.

Read on:-


Daily Newsletter, Jan. 18th, 2013

Daily Newsletter, Jan. 19th, 2013

Daily Newsletter, Jan. 20th, 2013

Daily Newsletter, Jan. 21st, 2013

Weekly Newsletter, Jan. 22nd, 2013

Daily Newsletter, Jan. 23rd, 2013


According to Bing Weather, in my area there should be sunny periods today, but more rain tomorrow.  Both remain to be seen!
Whatever the weather, I hope you will find some way to feeling less pain, even if not being painless.

Best of wishes to all


N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. 
Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to and you will be added to the emailing list.