1. It takes the right person to make the diagnosis. (In this case it was my granddaughter's fiance.)
2. The right treatment prescribed. (Replace faulty wire)
3. Acquire remedy. (Steal wire from CD player!)
4. Recovery complete. (When wire plugged in.)
If only it were so simple with fibromyalgia! One day maybe?
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151. Take the chance while you still have the choice.
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From Adrienne Dellwo
Do crowded places overwhelm you? How about a loud beep or bright lights? Sensory overload is a symptom many of us share. See what we know about it and how you can manage it, below.Also this week, a look at sore feet in fibromyalgia, and the posts from 2013 that got the most attention. And it's not too late to tell me what you're looking for in your newsletter for the next year - take the poll and leave your comments!
Down in Featured Articles, I've included some articles that can help you reach your goals for 2014, including setting achievable goals, making decisions, and taking control of your life.
Take care of yourself, and Happy New Year!
http://specials.about.com/service/newsletters/chronicfatigue/3052c1d1050001ee760025ec.htm
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From Adrienne Dellwo
Okay, yes - those of us with fibromyalgia hurt all over. But where are the most common places? And how do we compare to people with other pain conditions? Find out, and take the poll, below.
Also this week, gender differences are revealed in a couple of studies - one looking at fibromyalgia and sleep, and the other comparing ME/CFS to Gulf War illness.
Down in Featured Articles, you'll find some information on alternative treatments.
Take care of yourself!
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Are you fibromyalgic? Have you heard about our fibromyalgia conferences? The next one is soon sand we would love to meet you. We have so much to share to hopefully make your life easier.We have knocked £75 off the price saving £150 on a double booking, and we will start a day later. We are back to last year's prices. We also have a scheme where you can come now and pay it later. We think this is the best line up of speakers we have had - wall to wall speakers. The keynote speaker being Professor Andrew Holman.
Please read our News Flash!
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/14.01.18_5thFibConNEWSFLASH.doc
Booking Form here
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/14.01.18_5thFibCon_BKG_FORM.doc
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This research project aims to explore the subjective experiences of women with fibromyalgia within the context of transition to motherhood.
We are looking for women diagnosed with fibromyalgia who are reaching their third trimester of pregnancies or have completed their pregnancies no more than 2 years ago, to participate in an interview and share their personal experiences on how is like living with this condition during pregnancy.
The individual interview will take up to an hour and will be held at a convenient time and place for you. Specifically, you may wish to meet the investigator in a quiet location near your workplace or where you live, or even at your domicile, so that no travel will be required from you. Skype or phone interviews will be also considered when a face-to-face interview may not be possible.
This study is carried out by Ana Tunaru, a postgraduate student in Health Psychology at the University of Surrey, Guildford, and is supervised by Professor Mark Cropley who has extensively researched fibromyalgia syndrome.
In order to take part:
1. You must have been diagnosed with fibromyalgia at least 2 years prior to the onset of your pregnancy;
2. You should be approaching your third trimester of pregnancy or gave birth to a child no more than 2 years ago;
3. You should live in the UK and speak English fluently.
If you meet the above mentioned criteria and are interested to join this study or need further information, please don't hesitate to contact Ana Tunaru by email: at00208@surrey.co.uk or by phone 0750 36 54 920. Thank you in advance for your interest!
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Pain Alliance Europe Petition:
Pain Alliance Europe has placed a petition on line to improve the situation for all chronic pain patients in Europe. We would encourage you all to sign this so that pain gets the recognition it deserves throughout Europe, enabling greater funding for research and professional education.
http://www.pae-eu.eu/?page_id=575
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Bringing Order to Chaos; Health Rising's FibroMapp App For Better Health
Doesn't trying to get better seem like it's all too much at times? There are meds and supplements, activity levels, sleep, self-care, food, maybe meditation/mindfulness activities, naps, exercise to consider.A husband (developer) and wife (person with fibromyalgia) team just developed an Android/Google app that can take much of the guesswork out of figuring out what's affecting your health.
The FibroMapp, branded for Health Rising, has 8 apps you can use to figure what's working and what you want to cut out.
Find this and many other fibro related articles here
http://mad.ly/5b44a3?pact=19533180488&fe=1
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And here are even more
Moving Targets: Fibromyalgia and Chronic Fatigue Syndrome Over Time
We think we 'have'something called fibromyalgia or ME/CFS, but what if these disorders change over time? What if the ME/CFS or FM you had five years ago is not the FM or ME/CFS you have now?
Some research is beginning to suggest these disorders change over time, and that may have implications for treatment.
http://mad.ly/5b44a3?pact=19707053809&fe=1
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Read more: http://www.cortjohnson.org/blog/2014/01/15/new-approach-talking-finding-answers-mecfs-fm-healclick-debuts/
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Find HealClick here
See Cort's recommendation above.
http://www.healclick.com/
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Disease Basics 101: A world of misdiagnosis
So, what did the doctor say? Is it a disease, a disorder or a syndrome? Is it a neurochemical or neurobiological imbalance? Could you have a cognitive dysfunction or impairment? Are your problems genetic or can you not inherit bad eating habits? Do you have central sensitization syndrome? Maybe what you have is "comorbidity," meaning it's a host of disorders on top of other disorders on top of a syndrome, which could be muscular, psychiatric or stress-related. Maybe it's all just an anomaly and your doctor has no clue about the causes.Learn more: http://www.naturalnews.com/043496_disease_misdiagnosis_inflammation_GMOs.html
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UK news site The Ecologist featured a study performed by a British anti-GMO group called GM Freeze. Two major food brands contained traces of glyphosate. The research disclosed that all four cereal bars produced by Jordans and 34 out of 40 bread products sampled from Walburtons contained traces of glyhosate. These are both big name brands in the UK.
Learn more: http://www.naturalnews.com/043499_glyphosate_contamination_cereal_bars.html
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FMSSES Newsletter, January 2014
Welcome to the New Year and new horizons. Hope everyone had a good Christmas and you are all looking forward to a bright future in 2014.For our charity (formerly FMS SAS Fibromyalgia Support Surrey and Sussex) the future is exciting. At our AGM it was unanimously agreed to extend the horizons to include our friends outside our stated boundaries. So with the Charity Commission’s blessing this will also include any new friends we make along the way.
Read the rest of the news here
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/FMSSES_Newsletter-14.01.pdf
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South Bucks Newsletter, January 2014Happy New Year to everyone! Hope you enjoyed the festive season and were able to rest in between the rushing around, and it was as pain and fatigue free as possible.
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/South_Bucks_Newsletter_14.01.pdf
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15 January 2014 newsletter
Could claimants choose the next government?
Yes they could. We’ve done the research and there are more than enough working age claimants in marginal constituencies to make it entirely feasible.
The real question is whether claimants are so appalled by the current administration that they will turn out in large numbers to vote – or so disgusted by all politicians that they will stay at home. Leave a comment to tell us what you think you will do.
Read more
http://www.benefitsandwork.co.uk/news/2543-15-january-2014-draft-newsletter
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Weekly Newsletter, Jan. 10th, 2013
Weekly Newsletter, Jan. 13th, 2013
Daily Newsletter, Jan. 14th, 2013
Daily Newsletter, Jan. 15th, 2013
Daily Newsletter, Jan. 17th, 2013
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Well, that turned out to be quite a bumper bundle this week. I hope you found some of it useful. There are some gems there.
Fondest wishes
Stella
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Contact: fmsstella@gmail.com
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N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements,
accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
