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FMS eNews 31/08/13

Another week gone and still no appointment at St Bart's.  Patience is a virtue, but could be detrimental to my eyesight.
I tried phoning the hospital yesterday  but the switchboard only had an answer machine service.  I am still  awaiting a return call.


WORDz for the WEEK

133. If tomorrow never comes, are you happy with the way you lived your life today? 


From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

Adrienne Dellwo
 A lot of people with ME/CFS wish they could be diagnosed with anything other than "chronic fatigue syndrome."
Now, for at least one subgroup, a new name could be emerging - and bringing with it already established diagnostics and treatments. More on that, below. Also this week, a look at heart-rate fluctuations in FMS and ME/CFS and how they're different, plus what the late-summer heat and upcoming change of seasons mean for me.
Down in Featured Articles, get at look at some definitions that it's good for you to know.
Take care of yourself!


Focusing on your Abilities not your Disabilities

[purpose]  When you first become chronically ill you go through a mourning processes of what you can no longer do which is very normally. This can take months and for some even a couple years. We all deal with things differently and there is no set amount of time this should take. But when you get “Stuck” in this mourning processes for an extended period of time it can become very debilitating emotionally and physically Because the mind and body are connected). In fact, it can become more debilitating than your chronic illness itself.


Turn Your Grains And Legumes Into Nutritious vegetables! Lets Talk About Cost Efficient Sprouting! 

Many people with chronic health issues are on a tight budget and getting fresh fruits and veggies can be a challenge when you only have so much money to spend on food. Sprouting is a great way to get fresh, easy to digest, nutrition, from the comfort of your kitchen! Yes you can grow them from your kitchen! Also, it is extremely easy to do and inexpensive.


Bless This Mess! How To Make Cleaning Less Exhausting With Chronic Illness. 

Along with chronic illness comes fatigue and I am not talking “I need a nap” fatigue but debilitating fatigue at times. When I was at my sickest there were days I had to make a decision to ether shower or fix something to eat because doing one thing just exhausted me beyond belief. Although my fatigue is no longer so debilitating I still have to balance everything I do because if I over to it I PAY BIG TIME! Cleaning has always been physically exhausting for me and there are somethings I still can not do without paying like mopping or vacuuming.


See more on this site -


Canadian Guidelines for Fibromyalgia Recognize the Need for Easier Path to Diagnosis and Management

Our friends from McGill University came out with a whole new plan for managing fibromyalgia recently in their 2012 Canadian Guidelines for Fibromyalgia. The content is nothing earth shattering or particularly new, really, they discuss the usual diagnostic issues and the typical treatment strategies, and they’re not even particularly succinct at fully 46 recommendations. So why are these guidelines so intriguing?


2012 Canadian Guidelines for the diagnosis and management of fibromyalgia syndrome: executive summary.


9 Surprising Reasons to Get More Sleep

What difference could an extra hour of sleep make in your life? Maybe quite a lot, experts say. Studies show that the gap between getting just enough sleep and getting too little sleep may affect your health, your mood, your weight, and even your sex life.

If you're getting less than the recommended seven or eight hours of sleep a night, here are nine reasons that you should shut down your computer, turn off the lights, and go to bed an hour early tonight.

Sleep Myths

How much do you know about sleep disorders? Review these statements and learn which are true and which are not.


Fibromyalgia & Fatigue Centers Inc. 

The Fibromyalgia & Fatigue Centers (FFC) are dedicated to treating patients suffering from conditions known as fibromyalgia and chronic fatigue syndrome. It is through a holistic, integrated and comprehensive approach to the treatment of underlying physiological factors that differentiates our approach and ultimate patient success. It is our goal to develop individualized and sustaining regimens that lead to a significant change for positive patient outcomes.


There is Hope, it’s Not All In Your Head

If you’ve had your life turned upside down and controlled by Fibromyalgia and Chronic Fatigue, there must be underlying reasons, not just a collection of symptoms and a label. In fact, for most patients, multiple, hormonal deficiencies explain your symptoms. In addition, nutritional deficiencies contribute to the severity of your condition. Our experience, along with scientific clinical trials has demonstrated that only a comprehensive approach achieves substantial long term results.


Also on this page

Michelle's Fibromyalgia Story

'Don't give up on life.'


9 Tips for Coping With Fibromyalgia

1. De-Stress
2. Write everything down
3. Exercise regularly
4. Take warm showers or soak in a warm bath
5. Have “Me Time” every day
6. Make working easier
7.Make sure to talk about Fibromyalgia with other people
8. Say NO more often
9. Keep a daily journal so you can get a better idea of what is working and what is not


100 Best Sites for Fibromyalgia or Chronic Fatigue Information

In honor of Fibromyalgia Awareness Week, we’ve scoured the web and compiled a list of 100 great websites for people who suffer from chronic fatigue syndrome (CFS), fibromyalgia and other chronic pain disorders.


The Big Knit

 Have you, like me, been busy knitting mini hats for innocents drinks in aid of AgeUK?  If you haven't started yet, there's still time.  The deadline is 27th Sept. Your efforts will support your local AgeUK centre. Remember that knitting is very therapeutic!

Read the latest bulletin

There's loads more info including patterns, here



Saturday October 26th at the Roundstone Room, Haskin Roundstone Garden Centre, A259 at Angmering -

Please notify Jeanne Hahmbleton, if you wish to attend.
See the Fibromyalgia Newsletter for deatils of the event and much more news besides.


Fibromyalgia: Are We Getting Anywhere?

 Chances are good that someone in your family or your circle of friends has fibromyalgia.
Fibromyalgia affects 10 million Americans, which is 2 percent to 4 percent of the population. It has become the 21st Century Disease. Although the disorder has been around for thousands of years, a name was not designated for this miserable condition until 1976. Then in 1990, the American College of Rheumatology published a formal set of diagnostic criteria. Nevertheless, medical science still struggles to understand fibromyalgia and physicians continue to argue over whether or not it is a “real” disease.
The reason for all of this fibro-furor is its complexity. This report will provide you with a
summary of what is known to date about this disease, from what causes it to what can
be done about it.


The definitive guide to the herbs, vitamins, and nutrients your body really needs

Walk down the supplement aisle of any health food store, pharmacy, or major grocer and you’ll see hundreds—no, thousands—of pill bottles. Seven different kinds of vitamin C. Four folic acids (plus eight prenatals that contain it). An entire shelf of omega-3s—with some marked “super plus.” Plus what, exactly?
If you’re (understandably) confused about what you actually need, we’ve got you covered with our list of the 100 best supplements for women. We enlisted the help of Prevention advisory board member Ashley Koff, RD, to create this one-stop resource for women of all ages. Click through all 100 to see what brands we love, along with any precautions you should consider before taking them. Plus, key tips on scoring the same nutrients in these pills from food—and why you should be getting enough of these ingredients in the first place.

Read more:


Rheumatoid Arthritis Videos

Select from the list on the right


Webinars which might be of interest

Welcome to the Benjamin Institute online webinars page. You can see all of our current offerings below. Please join our mailing list to be alerted when new webinars become available. You can also follow us on Facebook.


 All RICE is Not Created Equal - What to Watch For

With reports of more and more arsenic being found in our rice supply, patients and readers have asked for more specifics. This investigative report deals with the facts as reported by the Center for Science in the Public Interest. According to Carolyn Smith DeWaal, director of food safety, there are steps consumers should take to reduce their exposure to arsenic in their rice. The following is a condensed and edited list of her top five suggestions:


August 24th, 2013 Daily Newsletter

August 26th, 2013 Daily Newsletter

August 28th, 2013 Daily Newsletter

August 29th, 2013 Daily Newsletter


That's all for now folk.  I hope you found something useful in this week's recommendations.
Until next time . . . .
Best regards



N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources.  Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia yndrome
and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new eNews is posted, please send an email to and you will be added to the emailing list.  I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at and on a blog at These ceased at the end of November 2012 when I resigned as a trustee.
This blog commenced on 8th December 2012.