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FMS eNews 07/09/13

Dear All
What a wonderful spate of real summer weather we have had, 'the warmest and sunniest for seven years'!  Sadly, it seems to be over and we are back to rain, though that is much needed by gardeners and farmers, not to mention reservoirs.  Though, there were no water shortage warnings this year as far as I know!
I am pleased to say that St. Bart's has given me a date, 20th Sept, for my consultation within the Ocular Oncology Dept, but as yet, no time. Meanwhile I continue to wait and it's business as usual.


WORDz for the WEEK

134.  If a dream is a wish your heart makes . . .  My heart can make some really weird wishes!


Fibromyalgia Awareness Week

In recent years it has become traditional for those suffering our invisible disability (fibromyalgia) to endeavour to raise awareness during the appointed dates. This year it is from Sunday September 8th to the following Sunday, the 15th according to the NHS calendar. 


Mike Moulding's letter to George Galloway MP, The Respect Party - Disability Living Allowance 

Dear George Galloway MP
Can I please congratulate you on your barnstorming and sensational speech in the House of Commons on Thursday opposing UK intervention in the Syrian civil war. I watched the whole debate on Thursday and I am in no doubt whatsoever, that your excellent contribution made a significant and positive difference in the minds of many Members of Parliament, including Conservative MP's.
I am writing to you regarding the abolition of Disability Living Allowance for Personal Independence Payments.

Read the rest of the letter here


From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

Adrienne Dellwo
Have you ever felt like your body was torturing you? There's a good reason for that. See the similarities between our symptoms and actual torture techniques, below.
Also this week, a couple of studies on alternative treatments for ME/CFS, and why you shouldn't feel weird about using things that are designed to help you get around.
Down in Featured Articles, you can learn a lot about our messed-up brains.
Take care of yourself!


September Edition of LIVING WELL WITH FIBROMYALGIA: Volume 2: Issue 3

The theme of this issue is EMOTION - that should start some wonderful discussions!
And this issue, I'm asking you for lots of feedback and contributions - I really want you to get involved.


Gaining Traction (Through Distraction): A Chronic Fatigue Syndrome Chronicle #12 

With no proof whatsoever, I believe that many of us with debilitating chronic diseases are so focused on these diseases that other medical problems seem like annoying distractions. Get lost; I can’t be bothered with you. Healthy people have a troublesome symptom and they see a doctor. I, however, figure that the new symptom is just another part of CFS/ME, or I get angry and just don’t want to deal with it. Enough already. Find someone else to make miserable.


Drink this 2 hours before bed to sleep better (plus 5 tips for insomnia) by Mike Geary

I've noticed in my travels and with working with clients that a large majority of people in today's fast-paced stressful world are struggling at least part of the time with falling asleep at night.
Over the years, I've also struggled on occasion with insomnia because of the stress placed on me by running a large publishing business.  And I've researched and learned quite a few tips and tricks over the years to help fight insomnia and fall asleep faster.
Without diving into every single technique I've learned over the years, I'll just touch on a few really simple, but powerful tips, foods, drinks, etc that I think can help you to fall asleep easier and faster too!


Living with Pain: Sleep Quality, Depression, Pain and Disability

 Felix Naughton and his colleagues conducted a study to examine the relationship between sleep quality, depression, pain severity, and disability.  Their results (reported in the journal Pain) showed that sleep quality did not directly affect disability, but rather that poor sleep quality tended to make people feel more depressed and tended to make their pain feel worse. These changes, in turn, increased disability. In a study involving people with fibromyalgia, Nancy Hamilton and her colleagues reported a complex set of  findings in which poor sleep had a cumulative effect on negative emotions and interfered with emotional recovery on days in which the person experienced a high number of stressful, negative events.
The results of such studies provide scientific verification for what you may know from your own experience: sleep plays a crucial role in the daily experience of people with chronic pain.


The Fibromyalgia Diet: HELP! I Don't Know What to Eat

Does that sound like you?
If so, you’re shouting in good company. The cacophony over what to eat (or more loudly, what not to eat) is practically deafening.
Any post, tweet, or article I write that mentions nutrition is likely to have multiple comments expressing frustration in this area … and for good reason. While the specifics of individual diets vary, it’s clear that what we eat has a great effect on how we feel. And, we are each different, with unique nutritional needs. 


Tips for Coping With Fibromyalgia

About 5 million Americans suffer from the pain and fatigue of fibromyalgia. There is no "pill" to end your symptoms. But there are ways of managing them so they don't disrupt your busy life as much.
Why Is Coping With Fibromyalgia Important?  Find out here


Fibromyalgia in Children and Teens

Usually it's easy to find out what's making kids sick. Common childhood conditions like strep throat and ear infections are pretty simple to diagnose with a throat swab or doctor's exam.
Yet when kids complain of vague symptoms, like fatigue, achiness, and difficulty sleeping, they could be experiencing any one of a number of common illnesses. One condition that's easy to overlook in children and teens is fibromyalgia, which causes pain in the muscles and soft tissues surrounding the joints.
Fibromyalgia can be hard to spot in children because it's much more common in adults.


Your Health is our #1 Priority August 2013  |Year 15: Issue 8

We want to hear you! Drop us a line and request what you want to be included in the next newsletter.
Int this one:-  10 Best foods for Heart Health, Top foods for ultimate juicing, and lots more besides!


August 31st, 2013 Daily Newsletter

Sept. 1st, 2013 Daily Newsletter

Sept. 2nd, 2013 Daily Newsletter

Sept. 4th, 2013 Daily Newsletter

Sept. 6th, 2013 Daily Newsletter


I hope this issue has been helpful to you.
All good wishes



N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to and you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at and on a blog at These ceased at the end of November 2012 when I resigned as a trustee.
This blog commenced on 8th December 2012.