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FMS eNews 10/08/13

Hi everyone

 There are lots more goodies for you this week.  Don't forget you need to click on the provided links in order to read the full articles.  There's such a wealth of information and advice available.  I take the time to find it all for you.  I hope you take the time to read it!  I know many do - I value the messages of appreciation I receive from time to time.

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WORDz for the WEEK

 130. I'm not perfect . . . I love my flaws.  All the scars are simply proof of the many battles I've made it through.  Learn what life teaches you and have the wisdom to then apply it.
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A message from Pam Stewart, Chair of FMA UK
Pam Stewart
The Stene Essay is a chance to raise awareness of fibromyalgia if your entry can get through to the national finals and then through to Europe.  The first stage is to get your entry to FMA UK so that we can pass this on to the UK representative organisation of PARE to which we belong.
The title “Vision 2043 – my ideal world for people with a rheumatic or musculoskeletal disease” is certainly a challenging one.
There is no limit to the number of entries we can make to them but only one can go forward from all the organisations to represent the UK.  Please make sure you have read the rules.
Please send your entry to pam.stewart@fmauk.org
After judging has completed we can use any entries for our own publicity so nothing is wasted.  Start thinking and jotting down your ideal wish list ready to form them into your essay.
Full information and rules can be found at http://goo.gl/cAEY1y and http://goo.gl/5IF4DS
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"Practical Living with Fibromyalgia"

 An insight into daily living with Fibromyalgia as experienced by sufferers, their partners and carers  By Maurice S Clarke.
Written by the founder of Fibromyalgia-Support Net web site this free book is based on the stages and experiences of Fibromyalgia as seen through the eyes of sufferers and their partners.

 http://fibromyalgia-support.com/book/
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 Slideshow: A Visual Guide to Acupuncture
What Is Acupuncture?
Acupuncture is an age-old healing practice of traditional Chinese medicine in which thin needles are placed at specific points in the body. It's primarily used to relieve pain but also has been used to treat other conditions. More than 3 million Americans use acupuncture, but it is even more popular in other countries. In France, for example, one in five people has tried acupuncture.

 http://www.webmd.com/pain-management/ss/slideshow-acupuncture-overview?ecd=wnl_cbp_080113&ctr=wnl-cbp-080113_ld-stry&mb=
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Consider Heat or Ice

 Heat helps soothe stiff joints and relax muscles. Cold helps numb sharp pain and reduce inflammation. Use temperature therapy to complement meds and self-care. It's simple, affordable, soothing -- and you have to sit down to use either one.

 http://www.webmd.com/pain-management/try-heat-or-ice?ecd=wnl_cbp_080113&ctr=wnl-cbp-080113_promo_4&mb=

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Myofascial Pain Syndrome (Muscle Pain)

 Myofascial pain syndrome (MPS) is a fancy way to describe muscle pain. It refers to pain and inflammation in the body's soft tissues.

 http://www.webmd.com/pain-management/guide/myofascial-pain-syndrome?ecd=wnl_cbp_080113&ctr=wnl-cbp-080113_promo_3&mb=

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Understanding Post-Traumatic Stress Disorder -- Symptoms

 Post-traumatic stress disorder -- or PTSD -- is a condition in which one's life has been guided or dictated by an actual or perceived severe traumatic experience of the past.

 http://www.webmd.com/anxiety-panic/understanding-posttraumatic-stress-disorder-symptoms?ecd=wnl_cbp_080113&ctr=wnl-cbp-080113_promo_2&mb=
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10 Morning Mood Boosters

 Guarantee a better day by starting your a.m. off right with these easy tricks

 http://www.webmd.com/balance/features/morning-mood-boosters?ecd=wnl_slw_080413&ctr=wnl-slw-080413_ld-stry&mb=
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Two new studies show that supplementing with coenzyme Q10 may help reduce pain in fibromyalgia sufferers.
The first small study was a randomised, double-blind, placebo-controlled study involving 20 patients with 

 fibromyalgia. Supplementation with 300 mg of coenzyme Q10 (CoQ10) a day for 40 days was found to be associated with clinical improvements, including a significant reduction in pain, fatigue, and morning tiredness. . . . . .
The second study published in the journal Redox Report was also small one involving 10 children with fibromyalgia and 67 healthy controls.

 http://www.nyrnaturalnews.com/pain-2/2013/04/studies-show-benefit-of-coq10-in-fibromyalgia/#.Uf1s6wzXtQQ.facebook
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Children with Fibromyalgia

 28% of CHILDREN who are born to a parent with fibromyalgia will eventually develop the disease.

https://www.facebook.com/photo.php?fbid=307858162647548&set=a.286148818151816.47593.285789964854368&type=1&theater
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The Fibromyalgia Drugs Your Doctor (Probably) Knows Nothing About
  Many doctors restrict their drug prescriptions to the three drugs the FDA has approved for fibromyalgia. 
The Mayo Clinic – which appears to set the standard for brief, pithy and unrevealing treatment prescriptions for FM and chronic fatigue syndrome – lists just three categories of FM drugs: NSAID’s, anti-depressants and anti-seizure drugs. 
Adding muscle relaxants, pain relievers (tramadol, opioids) and benzodiazpines to the mix, WebMD does better, but that list, as a recent review article focusing on possible FM drugs indicated, is still far too short. . . . .

http://www.prohealth.com/fibromyalgia/library/showArticle.cfm?libid=18225&B1=EM073113F&utm_source=EM073113F&utm_medium=em&utm_campaign=FM&slvor=11203.1105577.0.1.0.390600&eid
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A Doctor's Letter to Patients with a Chronic Disease
Dear Patients:
You have it very hard, much harder than most people understand.  Having sat for 16 years listening to the stories, seeing the tiredness in your eyes, hearing you try to describe the indescribable, I have come to understand that I too can’t understand what your lives are like.  How do you answer the question, “how do you feel?” when you’ve forgotten what “normal” feels like?   How do you deal with all of the people who think you are exaggerating your pain, your emotions, your fatigue?   How do you decide when to believe them or when to trust your own body?  How do you cope with living a life that won’t let you forget about your frailty, your limits, your mortality?
I can’t imagine.

 http://www.prohealth.com/fibromyalgia/library/showArticle.cfm?libid=18247&B1=EM073113F&utm_source=EM073113F&utm_medium=em&utm_campaign=FM&slvor=11203.1105579.0.1.0.390600&eid
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Does Your Brain Have an Effect on Your Pain?
Did you know our reactions to pain get catalogued in our brain? It doesn’t miss a beat. Some say "yes it does" because the brain does not react to chronic pain the same way it does to acute pain.  Hmmm, read on and you will see why I believe that is thinking INSIDE the box.  

http://www.prohealth.com/fibromyalgia/library/showArticle.cfm?libid=18246&B1=EM073113F&utm_source=EM073113F&utm_medium=em&utm_campaign=FM&slvor=11203.1105585.0.1.0.390600&eid
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What’s in Your Cup? The Drinking Problem No One is Talking About 
Sugary drinks that contain little to no nutritive value (empty calorie beverages) are linked to the rising obesity epidemic as well as to other dire health-related consequences.(1,2)
It’s not front page news to announce that sugar is unhealthy. The surprising revelation, however, is that it matters how we consume sugar. In fact, it matters a great deal.

 http://www.prohealth.com/fibromyalgia/library/showArticle.cfm?libid=18237&B1=EM073113F&utm_source=EM073113F&utm_medium=em&utm_campaign=FM&slvor=11203.1105581.0.1.0.390600&eid
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Check out InTheNews for daily updates on the latest medical news releases and other news items which may be of particular interest.

 http://cfsknowledgecenter.ning.com/?xg_source=msg_mes_network

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The Eat to Beat Fibromyalgia Challenge with Dr Dee (Dierdre Rawlings)

 Who Else Wants To End Exhaustion, Finally Banish Debilitating Pain, Sleep Blissfully Every Night, Watch The Scale Go Down 

 10+ Pounds …Without Gaining It Back, and Feel Lighter, Brighter, & Happier than Ever?
Introducing A Hand-Held Approach To Removing The Barriers to You Having Your Body Be Pain-Free So You Can Have More Freedom To Live Life Exactly How You Want To

 http://www.eattobeatfibromyalgia.com/
Hope it's not too late for the low price offer.

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Why Pain is so Lonely
 Many people in Chronic Pain feel very alone sometimes, myself included.  There is a big reason for that loneliness, mainly the fact that YOU are the one in pain.  Despite how much we wish our doctors or loved ones could feel our physical pain in order to understand and validate how we feel, there is no device that will allow us to hook our pain receptors up to another person (but we can all hope for that one day).  No one else can feel YOUR pain.

 http://blogs.psychcentral.com/chronic-pain/2013/07/why-pain-is-so-lonely/
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Living with Pain: Don’t Let Pain Define You
  Living with severe pain can be a trigger for depression, a sense of loss of who you are and who you will become, and a belief that you can’t manage your pain or your life. It is true that pain often changes people. You may have lost some of the positive abilities that defined you. These losses are powerful and sad. And coming to grips with them is a process that will likely take some time. People with chronic pain sometimes experience negative thoughts and beliefs about themselves.

 http://goalistics.com/2013/08/living-pain-pain-define/?utm_source=Living+with+Pain%3A+Don%27t+Let+Pain+Define+You&utm_campaign=intimacy&utm_medium=email

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Just for Fun

 You know that it is important to exercise your body but what about your brain?
Measure your Brain Age in 2 minutes by playing some games

http://www.freebrainagegames.com/
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August 3rd, 2013 Daily Newsletter

August 4th, 2013 Daily Newsletter

August 6th, 2013 Daily Newsletter

August 8th, 2013 Daily Newsletter

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This week, at last, I got to see the spinal surgeon regarding my spinal stenosis!  Although spinal surgery is an option for me, I decided that unless pain becomes unbearable I will not go down that road!  Also I had my annual eye test, only to find I have a cataract in my left eye.  Again, no action unless condition worsens!  So life goes on much as usual.

Best of wishes to you all
Stella 

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N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources.  Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.  I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com These ceased at the end of November 2012 when I resigned as a trustee. 
This blog commenced on 8th December 2012.

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