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FMS eNews 27/07/13

Hello fibro friends

The world is rejoicing at the birth of George Alexander Louis.  The anticipation was intense, the media coverage possibly a little excessive but all are relieved that Kate, the Duchess of Cambridge was safely delivered of a son, the third in line to the throne of GB and the Commonwealth on Monday 22nd July 2013. The Duke, William said they "could not be happier".  Nothing to do with FM but a momentous occasion, not to go unnoted.   But then my opening and closing comments are usually informal and general in nature!


WORDz for the WEEK

128. The life given us is short, but the memory of a life well spent is eternal.


From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

Did you know your medications could make you sensitive to the sun? Mine have. See what common FMS & ME/CFS meds can give you photosensitivity, below.

Also this week, signs of real progress in acceptance for fibromyalgia, and some things to think about now that back-to-school season has crept up on us.

Down in Featured Articles, I've included some great content from your fellow readers.

Take care of yourself!


Body Betrayal: How to Cope with Chronic Pain and Illness

“As long as you make an identity for yourself out of pain, you cannot be free f it.” ~Eckhart Tolle
Up until fairly recently, I often felt betrayed by my body. It was always breaking down, leaving me frustrated and bitter.
No one else seemed to have as many problems. I’ve had Juvenile Rheumatoid Arthritis, an inflamed gall bladder riddled with

stones that ended in surgery. Chronic migraines, chronic hives, Chronic Fatigue Syndrome.
Whenever I get sick, it never seems to be something trivial. A cold becomes bronchitis. Hayfever leads to a sinus 

Read on


Laughter for Pain

I have my bad pain days/phases with fibromyalgia. But come to think of it, those are becoming less and less.  Or at least it feels like that.  I can attribute this to many things which I’ve written about previously: Medicine (namely Pregabalin), healthy eating, and working which forces me to keep somewhat active on a daily basis.  But there’s one thing I’ve not mentioned which has impacted so positively on my levels of pain.

Read on


Conquering fibromyalgia with love

Life with fibromyalgia can be inundated with many things, among them fears and anxieties over the future.
It’s not a progressive condition doctors say, but living on a day to day basis can be darn tough. Life, I’d argue, is hardly ‘normal’, and by that I mean how a typically healthy person would live. 
I know it’s not just for people who live with fms but also for others who live with other chronic illnesses.
One particular worry keeps resurfacing and I know many of you will be able to relate.
(Find this and other articles below the above entry). 


Other articles included:-

  • Can We Justify the Meds?
  • Zyleema the Dreamer
  • Hope for Tomorrow
  • The Magic of Believing & Self Definition - and more!

PatientsLikeMe Newsletter Issue - July 2013
Open those peepers all you sleepers

We’ve got some really exciting news to share with everyone and we just couldn’t wait.
So far, more than 4,300 of you have 

completed the PatientsLikeMe sleep survey and it’s on track to be the largest of its kind. Woohoo! The survey is still open so we don’t have the results quite yet, but we wanted to give a shout out to everyone who added their voice to the “Are You Sleeping?” initiative.
Know someone that might want to take the survey? There’s still time. Forward this link to your friends and family and they
can add their voice to research too. All they have to do is create a free profile and we’ll send a survey invitation to
their inbox.


Do you have Fibromyalgia?

  • What is it like to have Fibromyalgia?
  • What do patients take to treat Fibromyalgia and its symptoms?
  • Who has Fibromyalgia at PatientsLikeMe?


Fibromyalgia - What Have I Done to Deserve This?

Well, you will be pleased to know you have not done anything to deserve it!


24 July 2013 newsletter

Latest Welfare Benefits News - some recent articles


Folly Pogs Fibromyalgia Research charity.
Friday, November 22nd 2013 Chichester Park Hotel

Do you watch the murder mysteries on TV and enjoy good food with great company? If so we think you would enjoy our
JUST GOOD FRIENDS dinner evening with an optional overnight stay. This ideal for those who enjoy a glass of wine or two
and both of you can drink and find the clues in our murder mystery.


July 19th, 2013 Daily Newsletter

July 21st, 2013 Daily Newsletter

July 23rd, 2013 Daily Newsletter

July 24th, 2013 Daily Newsletter

We had a wonderful wedding anniversary yesterday. Relatives gathered for an al fresco meal at my sister-in-law's home.  A good time was had by all!!!
Bye for now.  See you next week.


N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources.
Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I
think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in
their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own
judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome
and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a
medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to

reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation

or charity.
If you don’t already get reminders when each new eNews is posted, please send an email to as you will
be added to the emailing list.
I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at
and on a blog at These ceased at the end of November 2012 when I resigned as a trustee.

 This blog commenced on 8th December 2012.