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FMS eNews 06/07/13

Next week I shall be away, visiting my other daughter in Somerset so I won't be able to produce an eNews for you. The next one should be available on 20th July.  So, I'll see you all again then, metaphorically speaking.  I am editing this issue in a different way, so as I write, it remains to be seen how it will turn out.  Fingers crossed!!


WORDz for the WEEK

126.  Life is like a ten-speed bike, most of us have gears we never use.


The brand new fourth edition of the Rough Guide toAccessible Britain is now available to view for free via the Zinio online reader New window icon. It’s packed with over 200 inspiring ideas for fantastic worry-free days out with reviews, hints and tips on some of the UK’s best attractions written by and for disabled people.

Geared for 2012 but much is still relevant.
(link takes a while to download)


Acceptance = Strength - GO TIGERS!!!

A few weeks ago it was our towns Homecoming week. Our 7th grader is in the marching band for the first year (and most likely the last). We live in Northern Wisconsin and the weather had turned cold. The high of the day was 43 degrees. By the time the game had started the temperature was 32 with high winds making the temperature below zero with the wind chill.
I have never been a winter baby. I hate the cold. I have a harder time dealing with it now. . . . .

Read the rest of this moving story.


16 Best Fibromyalgia Blogs of 2013

Whether you suffer from it yourself or know someone who does, these blogs open a world of camaraderie and self-discovery that will leave you feeling more in control of Fibromyalgia.
Fibromyalgia can affect sufferers’ lives on many levels, from fatigue and sleep, to memory and mood, and widespread musculoskeletal pain experienced as “tender points” throughout the body. Yet because fibromyalgia is an “invisible disease,” it’s often misunderstood by others, including many in the healthcare community.
To help ease the burden, many bloggers devote their time to creating online diaries about their experience. These blogs provide a sense of community and allow sufferers to share support and strategies with others who have fibromyalgia and their loved ones.
Click through the slideshow to discover the Best Fibromyalgia Blogs of 2013.


Fibromyalgia Treatments

There is no cure for fibromyalgia, so treatments seek to decrease pain, improve muscle and joint function, and help patients avoid situations that can worsen their symptoms.

Read about Fibromyalgia Drugs, Lifestyle Changes, Psychological Counseling and Physical & Occupational Therapy.


Treatment Search - 36 Treatments for Fibromyalgia

 Tests,  Medical Procedures, Prescribed Medications, Over the Counter Medications, Self Care, Herbs and Supplements, Alternative Procedures


Chronic Comic by Purple Law Lady

Things can change!

See full size Comic


Is the Stress of Everyday Life Causing Your Fibro Flare-ups?

Rebecca Richmond's latest Newsletter.


Your Connection to Healthy Living!

Epidural Steroid Injections Increase Spinal Fracture Risk

Stem Cell-Destroying Virus Used to Fight Breast Cancer

Increasing Neck Pain, Low Libido, Weight Gain – Maybe Your Opioid Medication Is to Blame?

Using Music for Pain Relief: Could Brahms be a Balm to Your Back Pain

and more . . .


Fibro Flares

Blog of One Girls Daily Struggle With Fibromyalgia


Fibromyalgia and Irritable Bowel Syndrome - Exploring the possible connection between the two conditions.

Are irritable bowel syndrome and fibromyalgia connected? It's a question many people with these chronic conditions are asking. . . . . . Irritable bowel syndrome (IBS) is a disorder that involves abdominal pain, cramping, bloating, as well as changes in bowel movements - constipation or diarrhea, or alternation of both. People with IBS often experience anxiety and depression.

Tools & Resources


Quiz: How Much Do You Know About Alternative Fibromyalgia Treatments?

1. What percentage of people with fibromyalgia use some form of complementary or alternative treatment?
2. Scientific studies suggest people with fibromyalgia may benefit from: ????

Do the whole quiz and test your knowledge - and learn from your mistakes!!


Find a Vitamin or Supplement - RIBOSE

Ribose is a kind of sugar that is produced by the body. It is used as a medicine.
Ribose is used to improve athletic performance and the ability to exercise by boosting muscle energy. It has also been used to improve symptoms of chronic fatigue syndrome (CFS), fibromyalgia, and coronary artery disease. Ribose has been used to prevent symptoms such as cramping, pain, and stiffness after exercise in people with an inherited disorder called myoadenylate deaminase deficiency (MAD) or AMP deaminase deficiency (AMPD deficiency). Ribose has also been used to improve exercise ability in people with another inherited disorder called McArdle's disease.

Read more, including Uses, Side Effects, Interactions and Dosing.

Here are some suppliers:-


Fantastic New Android App for Fibromyalgia - The FibroMapp

"50% of the net profit of the sale of this app will go to UK Fibromyalgia where it will be used to support UK based support groups. . . . . . . . . As Fibromyalgia is unique to each person, so is UKFibroMapp! It can be completely personalised to your needs and requirements and takes into account that there are over 100 different conditions and symptoms within FM.
UKFibroMapp has been designed BY people with Fibromyalgia FOR people with Fibromyalgia. . . . More . . .


June 30th, 2013 Daily Newsletter

July 1st, 2013 Daily Newsletter

July 3rd, 2013 Daily Newsletter

July 4th, 2013 Daily Newsletter

July 5th, 2013 Daily Newsletter


No time for more this week!   Hope there is enough to keep you going for two weeks!
I wish you well



N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources.  Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new eNews is posted, please send an email to as you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at and on a blog at These ceased at the end of November 2012 when I resigned as a trustee. This blog commenced on 8th December 2012.