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FMS eNews 20/07/13

Well, here I am again.  It was a glorious break from normality, down in Somerset.  Not that the weather wasn't glorious everywhere in the UK, and has been for nearly three weeks.  Some find it too hot, but after the atrocious winter, excessive rain and dismal outlook, the warmer weather has been, at least for me, very uplifting.


WORDz for the WEEK

127.  The time that you enjoy wasting is not wasted time.


 From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

You know how those of us with fibromyalgia tend to have really sensitive hands and feet, especially when it comes to temperature? Scientist may have discovered why. Read about that below, and make sure to check out the comment left by the senior researcher.
Also this week, a look at how your habits - good and bad - can impact your quality of life, and some help getting through the torturously hot summer months.
Down in Featured Articles, you can learn all about different types of drugs doctors frequently prescribe for us.
Take care of yourself!


From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

When you have a disabling illness, you get judged. When you have a poorly understood illness, you get judged.
The last people who should be doing the judging are our fellow sick people - and yet, some of them do it. See what I have to say about that, below.
Also this week, an interesting new hypothesis about infectious agents and the cause of ME/CFS, and surviving dental appointments with these illnesses.
You'll find lots of information on overlapping pain conditions down in Featured Articles.
Take care of yourself!


   Forget Fibroyalgia - Recent Blog Posts

        Effects of caffeinated drinks on fibromyalgia symptoms
        Fibromyalgia Self Help Techniques, reducing negative media impact
        Fibromyalgia self help techniques, give yourself a clutter free place to relax
        Fibromyalgia Self Help Techniques – Weight Control
        Fibromyalgia Self Help Techniques – Effects of Alcohol


Manage Fibromyalgia: How Meditation and Hypnosis Can Help

I hope you're feeling good today ...
Why is hypnosis and meditation so powerful in helping people with fibromyalgia to overcome their symptoms? This is a question I am often asked.
Meditation and hypnosis enable you to achieve a state of deep relaxation, which is an important part of a healthy lifestyle. More importantly, when you are deeply relaxed your negative inner critic shuts up. I used these deeply relaxed states achieved through meditation and hypnosis to reprogramme my thinking and behaviour. . . . .

Read more:-


Has Fibromyalgia Affected Your Self-Esteem?

When you are suffering from a long-term health problem your self-esteem can be adversely affected, which in turn can make managing your condition even more difficult.  Having great self-esteem means you can manage challenges with more ease, and life becomes more enjoyable. . . . .

Read  more:-


A Parliamentary Briefing from the Prescription Charges Coalition
Prescription Charges and People with Long-Term Conditions

About The Prescription Charges Coalition
The Prescription Charges Coalition is an alliance of 28 organisations concerned with the detrimental impact that prescription charges are having on people with long-term conditions in England.  Following a survey of nearly 4,000 people with long-term conditions, the evidence-based report Paying the Price was published in March 2013.  Over 3,000 people have since contacted their MPs on this issue.
 Read more . . . .


Better sleep, naturally

The world looks very different at 3 a.m. when you’re lying in bed staring at the ceiling or the clock. “How will I make it through tomorrow without any sleep?” you worry. If you regularly can’t get to sleep — or stay asleep — and it’s affecting you during the day, then you may have insomnia.

Read more . . .


UK Fibromyalgia July Newsletter.

Lots of fascinating articles as suggested reading.


Latest Newsletter from Cort Johnson


The Fibromyalgia Drugs Your Doctor (Probably) Knows Nothing About

Fibromyalgia syndrome – Novel therapeutic agents. J. Ablin and D. Buskila. Maturitas 2013
“The long term follow-up of FMS patients indicates…..that the degree of improvement achieved by many medications…is modest at best” Ablin and Buskia
Affecting 2-3% of the population of the US or about 8,000,000 people in the US fibromyalgia’s impact is huge yet physician ignorance is high, with many doctors restricting their drug prescriptions to the three drugs the FDA has approved for fibromyalgia.

Read more: . . . . . .


 FMSSAS has a new Website

The one I managed for 8 years,, is staying as an archive.  The new website, still under construction, is


MECFRA News No. 3

Welcome to the third issue of THE M.E, CFS and Fibromyalgia Recovery Association Newsletter.
We are so excited about what the next 12 months has to offer for the Recovery Association. We have started so many amazing things so far this year which is spreading the word about recovery. Our Wellbeing Gatherings have already raised over £300 look out in the events section so you can ensure you attend the next one. 


Chronic Pain Can be Lonely: Nine Ways to Reconnect

Chronic pain can make it hard to feel connected to others. Pain puts a strain on friendship – whether
you have fibromyalgia, headaches, back pain, arthritis, or any other type of chronic pain. You may have found that you see friends less or that you feel disconnected when you do get together. You may have lost touch with some friends who you feel are too active – you may believe you just can’t keep up. You may feel that some of your friends just don’t understand what you are experiencing and that some are even downright insensitive. Chronic pain can be lonely.

Read more . . . . . .


July 9th, 2013 Daily Newsletter

July 11th, 2013 Daily Newsletter

July 13th, 2013 Daily Newsletter

July 14th, 2013 Daily Newsletter

July 15th, 2013 Daily Newsletter

July 17th, 2013 Daily Newsletter

July 18th, 2013 Daily Newsletter


 Next Friday is my husband's and my 55th wedding anniversry - half-way between Golden and Diamond, but apparently known as Emerald.  Think GREEN on Friday!!  This photo was taken for our 50th.

Best wishes to you all



N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources.
Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.  I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new eNews is posted, please send an email to as you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at and on a blog at These ceased at the end of November 2012 when I resigned as a trustee.
This blog commenced on 8th December 2012.