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FMS eNews 20/04/13

Hello to you all

I have managed an eNews this week, practically the only thing I have done!  Apart from sleep!  Pains in arms and legs have been debilitating, whether caused by fibro or my degenerating spine, I am not sure.  After an MRI scan I have been advised to have spinal surgery.  But I am looking for an alternative treatment! 



115.  The man who views the world at 40 the same as he did at 20 has wasted 20 years of his life.


It’s Like Thunder(Clap)!

“If you follow my Twitter or Facebook page, you will know that I have been nagging everybody to support and promote our ’Make Fibromyalgia VISIBLE’ Thunderclap; and with 14 days to go, it’s time I started nagging you! “   Please read on and take part!

Please share, tweet, re-blog, etc. Let’s get as much coverage as possible!


April 2013 Newsletter

From the Editor
Pamela Bennett, RN, BSN, CCE, Executive Director, Healthcare Alliance Development
Welcome spring!
The sun is coming up over Boston and there is not a cloud in the sky.  Looking down from my hotel room, I see one person walking the street.  Coffee is brewing and my thoughts reflect back to the lecture I attended yesterday at Tufts.


Adrienne Dellwo
From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

See what an immersive sensory experience may be able to do for you.
See what has finally driven me to prescription sleep aids.
Keep allergies from taking over your spring.
Read the many comments and add your own!
See what researchers are learning about these important immune cells.
Find out how to minimize side effects, as I learn about yet another drug I can't tolerate.
Low pain tolerance? Guess again!
Take part in this great conversation!

What is the Paleo Diet?
The Paleo Diet, the world's healthiest diet, is based on the simple understanding that the best human diet is the one to which we are best genetically adapted. It is supported by documented scientific evidence and by real-life improvements, even triumphs, of people winning their personal health battles.

How does the Paleo Diet work?
Good question. Read on to find out how the Paleo Diet works: With readily available modern foods, The Paleo Diet mimics the types of foods every single person on the planet ate prior to the Agricultural Revolution (a mere 500 generations ago).

What are the health benefits that may occur?
The carbohydrates (unlimited fruits and veggies) in The Paleo Diet are of a low-glycemic index, meaning that they cause slow and limited rises in your blood sugar and insulin levels. Excessive insulin and blood sugar levels are known to promote a cluster of diseases called Syndrome X (obesity, hypertension, undesirable blood cholesterol and other blood lipid levels, Type 2 diabetes and gout). The high fiber, protein, and omega-3 fat content of The Paleo Diet will also help to prevent Syndrome X diseases.


Michelle Arbore's Fibromyalgia Blog

Michelle Arbore, the brave young mother who has battled fibromyalgia for over 15 years, shares her fibromyalgia stories and tips with readers in a heartfelt, compassionate way that will instantly help readers identify with her struggles.
Sharing her tribulations and triumphs, Michelle uses her Fibromyalgia blog to break through the isolation that an invisible illness can cause, and works with undaunted enthusiasm to bring the reality of fibromyalgia to the public. She works not only to make life better for herself, but also to gain acceptance and understanding for others in the same boat. 


100 Best Sites for Fibromyalgia or Chronic Fatigue Information

In honor of Fibromyalgia Awareness Week, we’ve scoured the web and compiled a list of 100 great websites for people who suffer from chronic fatigue syndrome (CFS), fibromyalgia and other chronic pain disorders.

[Two years out of date but probably mostly still relevant.]

Also explore the
Product Information

Vita Sciences was the first to research, develop, patent, 
and marketthe B12 Patch. The Vitamin B12 Patch is a 
topical patch that was developed by leading scientists in 
their field. From time to time otherproducts may come 
along and purport to have similar benefits,however this 
 technology is complex, and these other products should
not be relied upon.


Pilates and Yoga for Chronic Pain and Fibromyalgia

Exercise is a crucial component to optimally managing fibromyalgia symptoms. However, exercise as it is commonly prescribed, often results in a flare of pain, fatigue, poor sleep and low mood. Two recent studies report that the average 40 y/o with fibromyalgia has fitness findings expected for a healthy 80 y/o.  The good news is that the spiral of deconditioning can be reversed without inducing a symptom flare. The fibromyalgia research team at OHSU are pain researchers and clinicians who have developed and tested multiple exercise programs for people with chronic pain and fibromyalgia over the last 3 decades. We film real patients completing the exercise routines and offer them to you for home exercise on DVD. Our latest DVD is Pilates and yoga.

Exercise DVDs


Think you might have fibromyalgia? It can be surprisingly hard to tell, even for your physician. There are no blood tests or scans that offer an easy answer. Here are 13 conditions that can mimic fibromyalgia.


It’s officially Depression Awareness Week and I want to ask you to take time to either learn a little bit about this illness, or help raise awareness.
For a very common illness which will affect 1 in 5 people at some point in their lives 1. there are still ALOT of misconceptions about depression, and 2. people don’t realise the seriousness of it.
In case you didn’t know and you’re asking me now, what is depression?
It is the feeling of persistently feeling sad for more than a couple weeks accompanied by other symptoms. Read more about it by clicking on the link above.


  April 13th, 2013 Newsletter 
April 15th, 2013 Newsletter
April 17th, 2013 Newsletter
 April 18th, 2013 Newsletter


Articles - Apr 15, 2013 eNewsletter Issue - 5451
Which light-sounding coffee drink has a whopping 1,360 calories? Curious how many calories are in your favorite snack food? How about the fat and sodium in your morning muffin? Find out the surprising nutrition information for 10 common foods.
Leafy green vegetables are incredibly healthy, but most people don't eat nearly enough of them. Here are some less common (and tasty) green leafy vegetables to add to your menu.
Do you find it hard to get a moment of privacy in your home or office? Here's why your personal space is so important -- essential to your health -- and how to set up a solitude sanctuary of your own.


A series of short videos showing you how to manage CFS and fibromyalgia, presented by Bruce Campbell, creator of the Self-Help program and a recovered CFS patient (video bio).


Advocates for Fibromyalgia Funding, Treatment, Education and Research

AFFTER is a non-profit 501(c)3 organization run by volunteers, most of whom have fibromyalgia. We have a solid organization in place with a professional board of directors and a strong medical advisory committee, including nationally and internationally known researchers.
There are board members responsible for things such as: coordinating fund raising activities, educational projects and materials, networking with other groups, publications, publicity, and internet correspondence, etc.
AFFTER helps educate patients, their families and the medical community by providing support groups, seminars and various printed and electronic materials. The internet has been instrumental in our ability to reach folks across the globe, offering support, medical news and research updates.


So, there you are!  Next weekend I am due to be away at the FMS Conference at Chichester (if I’m feeling up to it)!  So I will try and upload my blog early, probably Thursday. 
Until then - I will be thinking of you all and wishing the best for you.


Contact me:-



N.B.   I would like to point out to you that the information in my eNews  blog is passed on to you mainly from other sources.   Links are given to the original articles.   I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership.  Sites I refer you to are  for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.  
I also include various awareness items, benefits issues, as well as general health considerations.    Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new eNews is posted, please send an email to as you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews.  Past issues of FMSSAS eNews can be found at and on a blog at  These ceased at the end of November 2012 when I resigned as a trustee. This blog commenced on 8th December 2012.