Hello to you all
I have managed an eNews this
week, practically the only thing I have done!
Apart from sleep! Pains in arms and legs have been debilitating, whether caused by fibro
or my degenerating spine, I am not sure.
After an MRI scan I have been advised to have spinal surgery. But I am looking for an alternative
treatment!
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115.
The man who views the world at 40 the same as he did at 20 has wasted 20
years of his life.
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It’s Like Thunder(Clap)!
By
“If you follow my Twitter or Facebook page,
you will know that I have been nagging everybody to support and promote
our ’Make Fibromyalgia VISIBLE’ Thunderclap; and with 14 days to go, it’s
time I started nagging you! “ Please
read on and take part!
Please share, tweet, re-blog,
etc. Let’s get as much coverage as possible!
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April 2013 Newsletter
From the Editor
Pamela
Bennett, RN, BSN, CCE, Executive Director, Healthcare Alliance Development
Welcome spring!
The sun is coming up over Boston and there is not a
cloud in the sky. Looking down from my hotel room, I see one person walking
the street. Coffee is brewing and my thoughts reflect back to the lecture
I attended yesterday at Tufts.
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From Adrienne Dellwo, your Guide to
Fibromyalgia & Chronic Fatigue Syndrome
See what an immersive sensory
experience may be able to do for you.
Search Related Topics: treating
fibromyalgia fibromyalgia
research living
with fibromyalgia
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See what has finally driven
me to prescription sleep aids.
Search Related Topics: sleep
issues overlapping
conditions living
with fibromyalgia
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Keep allergies from taking
over your spring.
Search Related Topics: fibromyalgia
symptoms chronic
fatigue syndrome symptoms managing
symptoms
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Read the many comments and
add your own!
Search Related Topics: living
with fibromyalgia fibromyalgia
research managing
symptoms
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What is the Paleo Diet?
The Paleo
Diet, the world's healthiest diet, is based on the simple understanding that
the best human diet is the one to which we are best genetically adapted. It is
supported by documented scientific evidence and by real-life improvements, even
triumphs, of people winning their personal health battles.
How does the Paleo Diet work?
Good
question. Read on to find out how the Paleo Diet works: With readily available
modern foods, The Paleo Diet mimics the types of foods every single person on
the planet ate prior to the Agricultural Revolution (a mere 500 generations
ago).
What are the health benefits that may
occur?
The
carbohydrates (unlimited fruits and veggies) in The Paleo Diet are of a
low-glycemic index, meaning that they cause slow and limited rises in your
blood sugar and insulin levels. Excessive insulin and blood sugar levels are
known to promote a cluster of diseases called Syndrome X (obesity,
hypertension, undesirable blood cholesterol and other blood lipid levels, Type
2 diabetes and gout). The high fiber, protein, and omega-3 fat content of The
Paleo Diet will also help to prevent Syndrome X diseases.
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Michelle Arbore's Fibromyalgia Blog
Michelle Arbore, the brave
young mother who has battled fibromyalgia for over 15 years, shares her
fibromyalgia stories and tips with readers in a heartfelt, compassionate way
that will instantly help readers identify with her struggles.
Sharing her tribulations
and triumphs, Michelle uses her Fibromyalgia blog to break through the
isolation that an invisible illness can cause, and works with undaunted
enthusiasm to bring the reality of fibromyalgia to the public. She works not
only to make life better for herself, but also to gain acceptance and
understanding for others in the same boat.
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100 Best Sites for Fibromyalgia or Chronic Fatigue
Information
In honor of Fibromyalgia
Awareness Week, we’ve scoured the web and compiled a list of 100 great websites for people
who suffer from chronic fatigue syndrome (CFS), fibromyalgia and other chronic pain
disorders.
[Two years out of date but
probably mostly still relevant.]
Also explore the
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Product Information
 Vita Sciences
was the first to research, develop, patent,
and marketthe B12 Patch. The Vitamin B12 Patch is a
topical patch that was developed by
leading scientists in
their field. From time to time otherproducts may
come
along and purport to have similar benefits,however this
technology is complex, and these other products should
not be relied
upon.
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Pilates and Yoga
for Chronic Pain and Fibromyalgia
Exercise is a crucial component to optimally
managing fibromyalgia symptoms. However, exercise as it is commonly prescribed,
often results in a flare of pain, fatigue, poor sleep and low mood. Two recent
studies report that the average 40 y/o with fibromyalgia has fitness findings
expected for a healthy 80 y/o. The good news is that the spiral of
deconditioning can be reversed without inducing a symptom flare. The
fibromyalgia research team at OHSU are pain researchers and clinicians who have
developed and tested multiple exercise programs for people with chronic pain
and fibromyalgia over the last 3 decades. We film real patients completing the
exercise routines and offer them to you for home exercise on DVD. Our latest
DVD is Pilates and yoga.
Exercise
DVDs
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It’s
officially Depression Awareness Week and I want to ask you to take time to
either learn a little bit about this illness, or help raise awareness.
For a very common illness which will affect 1 in 5 people at some point
in their lives 1. there are still ALOT of misconceptions about depression, and
2. people don’t realise the seriousness of it.
In case you didn’t know
and you’re asking me now, what is depression?
It is the feeling of
persistently feeling sad for more than a couple weeks accompanied by other
symptoms. Read more about it by clicking on the link above.
http://theinvisiblef.wordpress.com/
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April
13th, 2013 Newsletter
April
15th, 2013 Newsletter
April
17th, 2013 Newsletter
April
18th, 2013 Newsletter
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Articles
- Apr 15, 2013 eNewsletter Issue - 5451
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Which
light-sounding coffee drink has a whopping 1,360 calories? Curious how many
calories are in your favorite snack food? How about the fat and sodium in
your morning muffin? Find out the surprising nutrition information for 10
common foods.
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Leafy
green vegetables are incredibly healthy, but most people don't eat nearly
enough of them. Here are some less common (and tasty) green leafy vegetables
to add to your menu.
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Do
you find it hard to get a moment of privacy in your home or office? Here's
why your personal space is so important -- essential to your health -- and
how to set up a solitude sanctuary of your own.
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Videos
A series of short videos showing you how to manage CFS and fibromyalgia,
presented by Bruce Campbell, creator of the Self-Help program and a recovered
CFS patient (video
bio).
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Advocates for Fibromyalgia Funding,
Treatment, Education and Research
AFFTER is a non-profit
501(c)3 organization run by volunteers, most of whom have fibromyalgia. We have
a solid organization in place with a professional board of directors and a
strong medical advisory committee, including nationally and internationally
known researchers.
There are board members
responsible for things such as: coordinating fund raising activities,
educational projects and materials, networking with other groups, publications,
publicity, and internet correspondence, etc.
AFFTER helps educate patients, their families and the medical community by providing support groups, seminars and various printed and electronic materials. The internet has been instrumental in our ability to reach folks across the globe, offering support, medical news and research updates.
AFFTER helps educate patients, their families and the medical community by providing support groups, seminars and various printed and electronic materials. The internet has been instrumental in our ability to reach folks across the globe, offering support, medical news and research updates.
So, there you are! Next weekend I am due to be away at the FMS Conference at Chichester (if I’m feeling up to it)! So I will try and upload my blog early, probably Thursday.
Until then - I will be thinking
of you all and wishing the best for you.
Stella
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Contact me:- fmsstella@gmail.com
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N.B. I would
like to point out to you that the information in my eNews blog is passed on to you mainly from other
sources. Links are given to the
original articles. I take no
responsibility for their accuracy but freely give them publicity if I think
they might be of interest to my readership.
Sites I refer you to are for information
only. They might conflict in their opinions, they might not even be
medically sound, but I merely offer them for you to peruse and make your own
judgements, accept or reject as you will. Only by reading widely can we
get an overall picture of fibromyalgia syndrome and how we can deal with its
symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or
legal nature should always be discussed with a qualified professional.
I also include
various awareness items, benefits issues, as well as general health
considerations. Anyone wishing to
reproduce any of the included items in printed form should seek permission from
the originators.
Wordz for the Week
are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my
personal offering to fibromyalgia sufferers and their carers and is not related
to any other organisation or charity.
If you don’t
already get reminders when each new eNews is posted, please send an email to fmsstella@gmail.com as you will be added
to the emailing list.
I previously sent
out emails as FMSSAS eNews. Past issues
of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a
blog at http://fmssas-enews.blogspot.com These ceased at the end of November 2012 when
I resigned as a trustee. This blog commenced on 8th December 2012.
