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FMS eNews 23/01/2016


  • I think that news of the week is that Tarragona, a city in Spain, is developing a specific support programme for people with CSS (Central Sensitivity Syndrome) which includes FM, and their families.  You can read about it in 'Seriously Sensitive to Pollution' below.  
  • The penny has dropped that 'approved' drugs for FM are not working.
  • FibroFlare Magazine has produced necklaces for FM Awareness.
  • FollyPogs has funded a survey produced by Sheffield Hallam University.

All the above are expanded below - and much more besides FYI.
Enjoy!
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WORDz for the WEEK

 256.  May your trails be crooked, winding, risky and dangerous, leading you to the most amazing view.  May your mountains rise into and above the clouds.
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Making Healthy Changes to Your Life
This is about the time most of us start giving up on resolutions, no matter how well-intentioned we were when we made them. Whether you made some or not, it's always good to look at what healthy changes you can make.
To boost those efforts, I've included a selection of articles about healthy changes that just might help you manage life with a chronic illness a little better.
Take care of yourself!
Adrienne Dellwo - Fibromyalgia & Chronic Fatigue Expert
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 The effect of health goals on health outcomes (study)
There are two types of people – internals and externals. Internals take the blame for everything because they feel that they are in control of the world around them, of how they react, how they behave, and even what happens to them.  Externals look to the world around them for answers, when things aren’t working they blame others. The truth isn’t really so black and white as most of us are actually somewhere in the gray area – internals in some parts of our lives and externals in others.
The question is are you an internal or an external when it comes to your health?
Do you believe you can have an effect on your health through changes you make? Or, are you simply relying on (and waiting for) doctors to have the answers?
Which category/cluster are you in?  Find out!
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 2015 Juice Cleanse
Four years ago I completed my first juice fast. As I’ve thought back to that time I would have sworn that it was a seven-day juice cleanse, but reading back through my blog has shown me I was wrong. It was only a five-day juice cleanse.  This last year I’ve found my diet slipping in a lot of ways. Mainly, I’ve been eating less and less fruits and veggies as my stomach has complained more and more about them. I’ve also not been juicing regularly the last six months or so. I wanted to change that. I wanted to get my energy back up and reset my taste buds. So, I set out to do a seven-day juice cleanse to start this year off right.
Find out how it went . . .
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 You are Possible Despite Chronic Illness #IAmPossible
This week a new book will be released, a book that I’m proud to be a part of. This book, The i’Mpossible Project: Reengaging With Life, Creating a New You, shares the stories of 50 individuals who have overcome adversity in some form to create a new life. There are stories (like mine) of chronic illness, stories of loss, stories of those who have overcome mental health issues, suicides averted, abuse, coming out of the closet, and so much more. This is a book about reminding us all that You are Possible, despite whatever you’ve had to deal with in life.
We all have a story to share. We have all overcome something and come out the other side.  Some of us are still fighting through, and some of us will be fighting for the rest of our lives. Each day that we choose to keep fighting we are overcoming. We are winning.
Tell the world why you are possible with the hashtag #IAMPOSSIBLE
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 Canadian researchers say gabapentin (Neurontin), pregabalin (Lyrica) and duloxetine (Cymbalta) aren’t very effective as a treatment for chronic pain and are way overprescribed.
Speaking of which … The Advisory Council on the Misuse of Drugs in the U.K. recommends pregabalin (Lyrica) and gabapentin (Neurontin) be rescheduled as Class C controlled substances amid abuse concerns.
Cort Johnson from Health Rising compiles a fantastic resource page for people with fibromyalgia and/or ME/CFS who are struggling with sleep. You’ll find links to research, treatments and other helpful resources. This one is definitely worth the click!
Looking for a change of scenery? Then you might want to consider moving to this Spanish city, which has become the first municipality to adopt a plan in support of people with ME/CFS, fibromyalgia and other central sensitivity syndromes.
And more besides . . .
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Awareness Ribbons Necklaces

 Pre Order and pay by 20th February to guarantee delivery before May 12th. 

 £5 + 63p P&P UK postage.  Overseas, extra postage as applicable.

 Paypal: fibroflaremag1@outlook.com

 See Feb issue of the magazine for more details (due out 1st Feb). 

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5 Supplements Every Fibromyalgia Sufferer Should Take
A wise physician and biochemist once noted, “For every drug that benefits a patient, there is a natural substance that can achieve the same effect.”  For many ailments, the key to addressing the underlying cause and restoring some level of peace can be found through natural options like vitamins, minerals or herbs. The same holds true for chronic pain.
There are natural nutrients that can help alleviate many of the symptoms of a chronic illness like fibromyalgia. Studies have shown the potential of these nutrients to help attack the root cause of chronic pain and lower the frequency and intensity of pain – as well as that of other symptoms such as fatigue and brain fog. Lets take a look at five of the most effective natural substances for fighting the symptoms of fibromyalgia:
What are the five?
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 When It’s Not All ME/CFS/FM: How a Sleep Study Turned One Chronic Fatigue Syndrome Patient’s Life Around
Not sleeping well? Experiencing a lot of daytime sleepiness? Not thinking clearly? These symptoms are all common to chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) but they don’t always entirely derive from it… not even in people with ME/CFS/FM.
If the experience of one person with chronic fatigue syndrome is at all representative, thinking that all your symptoms come from ME/CFS or FM could be costing you dearly in energy and health.
Find out more . . .
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 Are Chronic Fatigue Syndrome and Fibromyalgia Related to Parkinson’s Disease?
The Chronic Pain Connection
From “hand-warmers” to ion channel blockers to magnetic field generators more and more different approaches to get at the basis of chronic pain are being tried. Now comes an entirely different approach.
First, studies indicated that in rodents, chronic pain neurons thought to be associated with negative emotions showed increased activity after the onset of the pain. Those neuron’s connections to other parts of the brain associated with depression, also increased. The neuronal activity was associated with a drop in dopamine levels.
Combining a Parkinson’s drug called L-dopa with a non-steroidal anti-inflammatory drug completely eliminated any signs that an animal model was feeling pain. A clinical trial in humans is underway.
Find out more . . .
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Fibromyalgia: A Very Different Disease
Rheumatologists, the specialists many people with fibromyalgia see, treat people with diseases of the joints and muscles and immune problems. These diseases run the gamut from many types of arthritic disorders to autoimmune diseases such as lupus and Sjogren's syndrome to gout and hard to classify disorders such as fibromyalgia (FM).
A recent survey of symptom patterns in rheumatological patients seen over a year at an Israeli hospital provided an opportunity to see where FM patients fit into this mix.
The mixture included some heavy duty illnesses - some of which can kill and many of which are painful, as well as"little" fibromyalgia - a disease that still gets little respect from the NIH and many rheumatologists. Let's see how FM stacked up against some heavyweights.
Read The Study
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 Next Level Living Episode 1: Why Do We Sleep?

 This Is Why Sleep Is So Important
We're excited to announce our new 10-part HuffPost Originals video series called Next Level Living,  which will explore the science that underpins our lifestyle choices. It'll cover topics around issues of wellness featuring smart breakdowns from experts to make us more knowledgeable about how our own bodies function. The project explores the science behind our habits, from why we need rest to why we crave social connections. Based on current research, each video will also offer tips on how to improve well-being. Think of it as a guide to hacking your life through science.
Our first episode covers sleep -- because getting the right amount of sleep is not only crucial to our well-being, it's also paramount to our survival. 
Next Level Living Episode 1: Why Do We Sleep?  
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 Folly Pogs/Sheffield Hallam University Research Survey for Fibromyalgia
Nice to have some good news. I am pleased to tell you that the delegates, the volunteer team, and the Conference raised enough money in 2015 for us to support our first Folly Pogs Fibromyalgia Research project. 
Working with Dr. Kim Lawson and Dr. Simon Ashe from Sheffield Hallam University and their research team, they have put together a survey with our funding.  
NOW WE NEED YOUR CO-OPERATION PLEASE.  Will you read the information booklet that follows, and complete the survey, clicking the right button at the end?  This must be completed by March 31st the very latest. Thank you.
We hope this will lead to a step in the fibromyalgia direction to improve lives one way or another. 
We are hoping to hear the results and prospects for this research, at the next Fibromyalgia Conference April 15/18 2016… in a few weeks time. So pat yourself on the back if you came last year. Having raised money for the survey, we hope YOU are now completing this survey to make an improvement in our lives. 
Read on . . .
Link to the actual survey 
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Top 10 NLO|Fibromyalgia Articles of 2015

 10. Coping with Fibromyalgia Back Pain 
9. The Danger of Saying ‘It’s Probably My Fibro’  
8. 10 Things Not to Say to Someone with Fibromyalgia 
7. Trying Cannabis for Fibromyalgia Pain  
6. Fibro Sensitivity and Pain  
5. Managing Fibromyalgia Night Sweats and Hot Flashes 
4. Fibromyalgia and Emotional Sensitivity  
3. Fibromyalgia Numbness: Causes and Coping 
2. Fibromyalgia and Noise Sensitivity  
1. Fibromyalgia and Cognitive Problems  
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Aching for Pain Relief? 
Pain is an ever-present problem for people who suffer from a number of chronic illnesses. It is the primary symptom in diseases like fibromyalgia, lupus, osteoarthritis and rheumatoid arthritis; and it may be a secondary, nonetheless significant, symptom in illnesses such as myalgic encephalomyelitis, chronic fatigue syndrome, Lyme disease, multiple sclerosis and many others. . . . . In an effort to help provide some relief, ProHealth has developed Fibro Soothe, a specialized formulation of natural herbs and other nutrients specifically designed to support a healthy inflammation response while also addressing joint and muscle discomfort.
Read about it . . .
(Not sure whether free shipping is available outsite USA. S)
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First Municipal Government Adopts Life Saving Plan for People With MCS/ES, CFS/ME, and FM

 RESCUE PLAN FOR PEOPLE WITH CENTRAL SENSITIVITY SYNDROMES:
THE CITY OF TARRAGONA (CATALONIA, SPAIN) IS THE FIRST MUNICIPAL GOVERNMENT THAT IMPLEMENTS IT!
The first municipal government that has stepped forward to implement this plan, is the City of Tarragona Municipal Government (Tarragona is a major city 100 kilometres south of Barcelona). In the plenary session held last November 30th, the “Institutional Declaration of support for people with Central Sensitivity Syndromes” was approved, which consists of a concrete programme of measures. This is a historical step.
In part, the agreement includes:
FIRST. Create and develop a specific support programme for people with CSS and their families in the City of Tarragona, in which the representatives of those affected have to be involved and which will include:
Find out what . . .
(Full marks and three cheers for the Tarragona Municipal Government. What a wonderful, understanding, caring, educated and sympathetic scheme. Here's hoping its ethics and administration spread throughout Spain and elsewhere. 
Read the full article. It is a non-perfect translation, but good enough to understand! I take my hat off to them! S)
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 This has been a somewhat stressful week.  My husband suffered a TIA (Transient Ischaemic Attack/mini stroke) on Sunday, so has to take life slowly!  No ill effects on me, so far.
Hope you are keeping positive.
Fondest wishes
Stella
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 N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in GREEN like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  If you have any navigation problems, let me know. 
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgments, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity although I do work in conjunction with other bloggers and Facebook groups.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
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