Fibromyalgia is the most Googled medical condition; new hope in suggested treatments - Vagus Nerve Stimulation, Avacen 100, almond milk and pro/prebiotics. The sublime to the ridiculous??? You can find them all in the items below.
255. You don't need eyes to see - you need vision.
Top Articles from 2015: Symptoms, Simple Explanations & More
Welcome to 2016! I hope you've managed to recover well from the holidays -- I think I'm just about there myself. This week, we'll take a look back at the Top 8 articles from 2015.
Take care of yourself!
Adrienne Dellwo - Fibromyalgia & Chronic Fatigue Expert
Some people experience nerve tingling in their hands and/or their feet.The condition is one that is bothersome as well as uncomfortable.The tingling sensations are those that we all have experienced at one time or another.
Paresthesia: One of Fibromyalgia's Nastiest Symptoms
Many people experience paresthesia that is very painful. It is one of fibromyalgia’s nastiest symptoms, but fortunately it is also one that has a variety of treatment options available. Individuals with paresthesia as a symptom of fibromyalgia should make an appointment with their health care professional immediately to discuss potential treatment options.
Is Almond Milk Good For Fibromyalgia?
Fibromyalgia is a serious and chronic condition, often misdiagnosed in favor of other diagnoses or it is over-diagnosed as a favor to new pharmaceutical marketing?
I am a problem solver by nature, so when I was diagnosed with fibromyalgia two years ago, I obsessively researched information on the best strategies for reducing fibromyalgia symptoms. I found out there are no easy answers. Certain drugs work for some and not for others. Some people find relief through massage, and others howl from pain at the thought of it. Most of us have medicine cabinets full of supplements that promised to ease our pain or exhaustion. Some helped, and some didn’t. Some of us find exercise helpful, and some of us silently scream every time someone mentions it.
Fibromyalgia sufferers are a complicated bunch, but I do believe we can learn from what has worked for others. So, I’ve asked a bunch of my fellow fibromyalgia bloggers to answer the following question: What has helped the most for reducing fibromyalgia symptoms?
I think you’ll find their answers interesting, and some are even a bit unexpected. After reading these, I’d love for you to leave your own tip in the comments!
Read what they all say (I am one of them! S]
I think that I can speak for most of us with Fibromyalgia when I say that we can’t really be sure of the first time we knew we had the condition aside from our final diagnosis. Fibromyalgia has a nasty habit of creeping up on you and before you know it, you have succumbed to fatigue, pain, depression and life never feels exactly the same again. Sound familiar??
Certainly for me, I was kind of aware when things changed……October 1989.
I was tired beyond belief, not the usual feeling out of sorts but an overwhelming fatigue that saw me just existing on work and sleep, nothing more. Next, Irritable Bowel Syndrome (IBS) hit me big time. Unbearable pain and bowel spasms resulted in endless tests and investigations but with no cure. I can’t even remember how the pain crept in but it did, slowly, like a stealth Ninga who pride themselves on a “You can’t see me but I am there” kind of motto.
Read more . . .
Self-Care Isn’t Selfish - 9 Tips to implement healthy self-care
Even if you’ve never flown before, I’m sure your aware of the speech given by the flight attendants as you taxi down the runway. They tell you, in case of an emergency, to put on your own facemask first – before you help those around you. We all seem to understand their logic. How can we help others if we can’t breathe?
The same holds true for us in our daily lives.
You have to be sure you’re as healthy and strong as possible before you can begin to take care of others.
Read on . . .
When Chronic Illness Leaves You Asking, “Why Me?”
I have a 3 year old grandson named Levi. He’s the joy of my life.
Three is an amazing age. The world is opening up and you begin to see there is a bigger world around you. Far bigger than the toys that once were set in front of you, directly within reach. You’re walking, learning and wondering.
Levi’s always wondering.
Can you guess his favorite question right now? “Why?”
His “Why?” follows almost every sentence you say to him.
Let’s get in Grammy’s car? Why?
Don’t touch that! Why?
It’s time to clean up. Why?
You need to stop asking why. Why?
Because. Because why?
The other day we were going through another episode of the why-this-and-that saga and my answers were getting very close to the just-because line when my 21 year old son, Austin, took over.
“Dude, just accept that some stuff just happens.”
Finish reading the article. . .
The Best, Least, Biggest and Strangest: An ME/CFS and FM Look Back at 2015
- News, People and Organizations
- Treatment and Symptoms
(Many items under each heading)
Find out what they are . . .
Vagus Nerve Stimulation, Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS)
Vagus nerve stimulation is one of the most promising chronic pain interventions under development today. An earlier blog on Health Rising featured an astonishing story of a woman whose very severe fibromyalgia was largely ameliorated by a vagus nerve stimulator implant.
She was part of a small 2011 study which suggested that VNS may be very effective in fibromyalgia. The study was small but the success rate was high. Dr. Natelson, a neurologist who’s been treating and researching FM and ME/CFS for decades said:
“The results blew me away. I have never seen an effect as powerful as this.”
Many of the participants in that study no longer met the criteria for FM after it: that’s a criteria for success that few FM studies are willing to even contemplate using.
Read on . . .
Did Probiotics Cure My Chronic Fatigue Syndrome?
I didn’t have anything to lose. Or at least that’s the way I felt. I’d been sick for so very long.
So experimenting with probiotics was something I was willing to do. The experiment was a success and because of it I want to share what I did, and why, in hopes that others might benefit. If you want to jump directly to my protocol, click here. If you want to learn how I reached this point, continue reading.
Autoimmune Diseases and ME/CFS
I was diagnosed with my first autoimmune disease at age 8. They thought I had rheumatoid arthritis. By age 12, Hashimoto’s thyroiditis and pre-diabetes were added to the diagnosis. As the years went by I struggled on and off with a variety of other illnesses. I had periods of good health and other times when I was completely bedridden.
Like many people with ME/CFS Carol’s many symptoms and conditions didn’t fit any one disease. In the end doctors settled on ME/CFS and/or atypical multiple sclerosis.
By the time I lost my job of 18 years due to my illness, I was still diagnosed with Hashimoto’s and diabetes, but also struggled with psoriasis, restless leg syndrome. depression, brain fog, irritable bowel syndrome, an intermittent inability to find words and form sentences, zero short term memory, balance problems, brain fog, lost time, low grade fevers, and on and on.
Read more . . .
In Health Rising's Sleep Survey people with ME/CFS and FM rated how effective many sleep drugs and other treatments were for them. We also asked for comments - and got hundreds of them. This resource covers comments made regarding those drugs and others.
In this report the comment is usually just listed unedited. The number of times someone simply stated a drug's name and made no other comment is presented like this.
Zipliclone (Zimovane) - 3x's
The comments indicated that people with ME/CFS and FM are using a wide variety of drugs to help them sleep.
See what they are . . .
ME/CFS and Fibromyalgia Patients on Drug Combinations For Better Sleep
Many people worry about taking combinations of drugs for sleep. Dr. Teitelbaum, however, believes getting better sleep is so important that if one drug doesn't do it, then he has little problem adding another (or another).
Teitelbaum uses as low as possible doses of several drugs to improve sleep. (Only do this under your doctor's supervision, of course.)
Dr. Teitelbaum on optimizing the use of sleep medications
Check out drug combinations that some people with ME/CFS/FM reported they used in Health Rising's Sleep Survey.
See what they are . . .
Lending a Hand: A Very Different Approach To Fibromyalgia
And now for something completely different. Forget the drugs - how about putting your hand in something and watching the pain ebb away... Science fiction? One company thinks not.
The AVACEN corporation touts their AVACEN 100 as the only medical device that's able to provide noninvasive, rapid whole-body muscular relaxation. They assert that simply applying the AVACEN 100 to the blood vessels of the hand will increase the blood flows throughout your body, releasing muscle tension, increasing your core body temperature and reducing sympathetic nervous system activation.
See Avacen's website
This ‘HOT’ news release has dropped on my desk top at 6pm today with worrying news for 2016 for those of us who may need medical help in the near future.
Written by the Editor of Pulse Weekly, Nigel Praities warns of problems even before the first week of the New Year has ended.
Why the Government and the medical profession seem unable to find the middle ground, while the majority of patients have no problems with their GP… I must admit some folk do get vexed while waiting for an appointment in the ‘future’. But to be fair our GPs do help us get better in many cases.
Read the full article . . .
FibCon April 15th-18th 2016, Chichester Park Hotel
Looking on the Bright Side: Good Things About Fibromyalgia
Whenever you hear about fibromyalgia, or any other chronic illness for that matter, you will primarily hear about all of the negative aspects of it. That is because there are a lot of them. Being chronically ill is an extremely difficult thing to deal with and can easily lead to depression.
That it is why it is so necessary, vital even, to pause and reflect on some of the benefits and positive aspects of chronic illness. I know, I know, that sounds like an oxymoron. You’re thinking, “What in the world could be a benefit of having a chronic illness?” Well, let me tell you.
Read on . . .
5 Ways Having Fibromyalgia Makes You Awesome
Today I dropped a bunch of two-by-fours on my foot. It’s swollen and bruised, but after letting off a few swear words I went back to my original task. My son asked me if I was going to rest my foot and was surprised when I told him no. His question made me realize that I’m just used to functioning on a much higher level of pain than normal people. What’s a swollen foot compared to pain spread throughout your entire body?
That’s when I realized I was awesome and kind of a bad ass. Not only am I awesome, but so is anyone else with fibromyalgia or any other chronic illness.
Here are five ways fibromyalgia makes you awesome (and a straight-up bad ass!).
1. You have a real-life superpower.
2. You sympathize with others.
3. You can find joy in the smallest things.
4. You adapt well to change.
5. You are a medical expert.
The UK's most Googled conditions have been revealed in a new study carried out by an online medical service.
Dr Morton's – 'The Medical Helpline' – says fibromyalgia was 2015's top condition searched for by people before calling a GP. Symptoms include all-over body pain, severe tiredness and problems with sleep, with the long-term condition particularly common in women.
The NHS estimates that up to one in 20 UK residents have the condition, but it is difficult to diagnose which may explain why it tops the list with more than one million searches this year alone.
Newsletter! Jan. 15th, 2016
or leave your comments below under 'Post a Comment'
N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in GREEN like the dividers. This blog gives just a taster of each article which can be viewed in full through its link. If you have any navigation problems, let me know.
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgments, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity although I do work in conjunction with other bloggers and Facebook groups.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to firstname.lastname@example.org and you will be added to the emailing list.