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FMS eNews 02/01/2016


My first duty in 2016 is to wish all my readers a very Happy New Year. It's hard to realise that 2015 has now gone and we have 2016 to look forward to and to cope with as best we can.  Find as many coping strategies as you can, and let us all know about them. You can reply in the 'Post a Comment' section at the end of this page, email me fmsstella@gmail.com  or leave a message on Facebook 
Although I didn't publish a blog last week I was collecting items for this week. This week I have not been able to do as much as I would have liked.  I don't know if it's a fibro flare, flu, a cold, or a virus, but I have not been feeling good at all.  I can't blame it on Christmas because I was waited on hand and foot by my wonderful daughter.  All she would allow me to do was to cut up some carrots, and that wasn't exactly taxing!  I did rally enough on Tuesday to help her and her husband celebrate their 30th wedding anniversary - and that was in a hotel! Christine is in the first group from WORDz for the WEEK, and I am proud to give her the credit.
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WORDz for the WEEK

 253. There are two kinds of people in this world; those who do the work and those who take the credit.  Be in the first group; there's much less competition.
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Fight Your Symptoms. Now!

What would you say if I told you that you could do a few things -- right now -- that could ease your symptoms? And what if they were free, easy, and didn't involve side effects? You'd do that, right? Hey, even if it's just to prove me wrong, you should try the 5 fun things I talk about below.
Also this week, a look at some of our symptoms, including some major ones and some that nobody really talks about.
I hope you're taking it easy in these last two weeks of the holiday season. Be sure to take extra good care of yourself!
Adrienne Dellwo - Fibromyalgia & Chronic Fatigue Expert
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 Preparing for the New Year

What would you like to do differently in 2016? Whether you're making New Year's resolutions or just trying to improve habits now that the Christmas craziness is over, there's a right way to do it and, perhaps more importantly, a wrong way. We'll look at that below.
First, of course, you need to give yourself time to recover. We'll explore recovery times as well as treatments that may help you get through it.
Take care of yourself!
Adrienne Dellwo - Fibromyalgia & Chronic Fatigue Expert
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Fibromyalgia: Your daily diet, the problem areas & healthy changes

It is often tricky for fibromyalgia sufferers to get a diagnosis, as common inflammatory markers may be absent and there is frequently no observable damage or deformity to any of the areas that are painful.
Adding to the confusion when trying to reach a diagnosis is the fact that fibromyalgia is a syndrome encompassing a range of symptoms that not every sufferer will experience. Pain is common to all, but fatigue, sleeping disturbances and digestive complaints are present in varying combinations.
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When you are dealing with the symptoms and issues that often come alongside fibromyalgia, you may be in a situation where you are fighting off the muscle spasms that make it even more uncomfortable. 

 Continue reading
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Counting My Spoons Top Spoonie Posts of 2015

Merry Christmas!  and Happy Holidays! I hope you are having a wonderful day and weekend with your family. Since it’s a holiday I’m forgoing the normal post for today and instead I’m going to give you another chance to check out the Counting My Spoons Top 10 Posts of 2015. These are the posts that you (and readers like you) enjoyed the most, that you enjoyed enough to share and share again. I really appreciate that and I really appreciate you.
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7 Signs Your Mattress Is Making You Sick

According to the National Heart, Lung and Blood Institute sleep is key to good health and a sense of well-being hroughout one’s life. Quality sleep benefits our minds and bodies in many ways. Several studies link insufficient sleep with weight gain, diabetes, heart disease, high blood pressure, depression, inflammatory diseases and life expectancy.
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HOW TO USE MEDICAL MARIJUANA WITHOUT GETTING HIGH

Hi everyone! New post today! NationalPainReport.com recently published my story, “How to Use Medical Marijuana without Getting High.” There's been a lot of media coverage lately about using medical marijuana for fibromyalgia, so I thought some of you might be interested in reading it. 
The research may be slim, but there are plenty of anecdotal accounts indicating marijuana can be effective at reducing fibromyalgia pain. Visit any online fibromyalgia support group, and you’ll find more than a handful of pioneering members who have sworn off pharmaceuticals and instead toke up regularly for pain relief and better sleep.
But if you’ve never tried marijuana before, the idea of using it – even for medicinal purposes – can be scary and more than a little overwhelming.
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 FIBROMYALGIA AND ME/CFS NEWS (WEEK OF DEC. 21, 2015)

Top stories …

  • Good news for Savella users: A generic is coming!
  • I bet a lot of our federal legislators had no idea this was included in the latest 1,000+ page budget bill: “Congress quietly ends federal ban on medical marijuana”
  • Nonprofits, bloggers and healthcare professionals form new ME/CFS advocacy initiative.
  • National Institutes of Health (U.S.) are considering ampligen and rituximab trials for ME/CFS.
  • From TheMighty.com: “Five Ways having Fibromyalgia Makes You Awesome”
  • U.K.-based clinical trial will determine if Cymbalta/duloxetine can effectively treat osteoarthritis.

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 Naltrexone “changed life” of fibromyalgia patient

Janice Hollander
My regular readers know I’m a big fan of using low dose naltrexone for fibromyalgia. I recently had the opportunity to write about LDN and how it’s becoming an emerging fibromyalgia treatment for Pain News Network. The story includes interviews with Jarred Younger, the researcher who conducted the first two LDN/fibromyalgia studies at Stanford University and Linda Elsegood, founder of the LDN Research Trust. I’m reprinting the story here with Pain News Network’s 
permission.
The pain in Janice Hollander’s legs was so excruciating that she wanted to cut them off. Diagnosed with fibromyalgia in 2013, she’d progressed through the normal litany of prescription drugs doled out by physicians – Lyrica, Cymbalta, gabapentin, muscle relaxers and narcotics – all without finding relief.
Then she happened to catch an episode of the Dr. Oz Show where a guest discussed using low-dose naltrexone (LDN) as a treatment for chronic pain. A few days later, she convinced her doctor to write a prescription and took her first dose of LDN.
Read the rest of her story . . .
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 Fibro Flare Magazine, Issue 21, January 2016

The Fibro Flare team would like to wish you a healthier, happier, hopeful New Year.
In this month's issue:
Who were our Top 3 finalists for the New Year's Honours?
Meet up with new fibro friends in 2016.
Forget the old adage 'no pain, no gain' and stay flexible.
Vitamins and Supplements - are they all good? 
Plus much, much more, as always.
Beth X

 PDF Version

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Is It True That The Weather Affects Fibromyalgia Symptoms?

 . . . . Many people who suffer from fibromyalgia also report experiencing a difference in pain levels as the weather changes.
According to a study by Ercolie Bossema, Ph.D. from Utrecht University in the Netherlands, “Many fibromyalgia patients report that certain weather conditions seem to aggravate their symptoms.” These changing weather conditions include precipitation, sunshine, and temperature.
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Is your skin more tender and sensitive during the winter? For millions of people, the winter months can wreak havoc on sensitive skin. For those with fibromyalgia, skin sensitivity yet another painful symptom in an already long list of symptoms that can flare up during the winter months.
While there may not be a way to entirely cure or eliminate this irritable symptom, there are steps you can take to help care for sensitive skin and keep the pain and irritation flare ups in check during the winter months. Try following these 10 guidelines to minimize irritable and sensitive skin this winter.
Find out what they are

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Magnetic Stimulation May Relieve Mental Symptoms of Fibromyalgia

The technique may provide a safe, easy, and noninvasive way to treat the social and emotional symptoms of the disease.
A form of brain-stimulation therapy called repetitive transcranial magnetic stimulation (rTMS) may help relieve some of the non-pain symptoms of fibromyalgia, including emotional distress, and improve overall quality of life for patients living with the disease, according to a new study published in the journal Neurology.
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New drugs for Fibromyalgia that show promise for sleep improvement & pain reduction

A new drug being tested in clinical trials to treat fibromyalgia, called Tonmya, is showing promise for sleep improvement and pain reduction.
Tonmya is being evaluated in the 500-patient Phase 3 AFFIRM study in fibromyalgia. The primary outcome measure for this study is a pain responder analysis, which basically means patients report a minimum of a 30% reduction in pain from their baseline after undergoing treatments for 12 weeks.
The drug is taken at night daily, and researchers are seeing that patients are seeing improvements in sleep.

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So that's it for this week.  It turned out better than I expected despite my limitations. Tonmya and magnetic stimulation look promising and LDN is still being promulgated as the best treatment for FM.  Perhaps 2016 will reveal further treatments that actually work!  We shall have to wait and see.  I will tell you all I can find out.  Will you tell me about any YOU discover?  We must keep good news circulating.
Fondest wishes
Stella
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or leave your comments below under 'Post a Comment'
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N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in GREEN like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  If you have any navigation 
problems, let me know. 
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity although I do work in conjunction with other bloggers and Facebook groups.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
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