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FMS eNews 14/11/15



WORDz for the WEEK

247. Your life lies before you like a path of driven snow.
        Be careful how you tread it 'cause ev'ry step will surely show.


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Pacing & Planning: Essential Survival Skills

 I'm going through a particularly tough recovery period after failing to pace myself and having two really busy weeks, so my mind is stuck on what I should have done.
This is the worst time of year for over-doing-it, so let's look at some ways to keep from crashing. Or, at least, to keep from crashing really hard.
 Below, you'll find articles on every-day pacing and planning as well as some on how to deal with the holidays. Even if you don't follow all of the advice, you might be able to pick out a few things that can help you keep going, as much as possible, until January.
 Take care of yourself!
 Adrienne Dellwo - Fibromyalgia & Chronic Fatigue Expert


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Sootheze Toasty Collars – A warm hug from a pet


My husband saw this little critter hanging out in our living room and his comment was “I like that cat better than the other two.”  If you are like me and you love cats you might like this one better too. Unlike my other two fickle felines that only want to give me attention when they want something this one will give me a warm (or cold) hug whenever I need it.
This little guy is one of the many Sootheze Toasty Collars that can be used as a hot/cold pack around your neck and shoulders. I enjoy mine as a warm collar mostly.
The great thing about these guys is that they have seams in all the right places so that the filling is distributed evenly. . . .
See Sootheze website


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6 things that I had to give up in order to move forward


It was just about six years ago that I “got sick” and started feeling my life and my plans slipping through my fingers. I had to give up going to school and pursuing my plan to double-major in Marketing and Pyschology in hopes of focusing a career on market research. I climbed into bed for the next 2+ years and even when I finally began to see my physical health improve as a result of some major life changes, I still had to make some big changes mentally before I could really move forward. I want to share these six things that I had to give up in order to move forward, in hopes that they can help you move forward as well.
Find out what thy were . . . .


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Yes, cold and flu season is just around the corner and this is the beginning of a two part series on boosting your immune system.
Today’s focus will provide some lifestyle and supplemental tips you can use to keep your immune system function high and do your best to keep the cold and flu at bay for yourself.
Let’s first look at some lifestyle tips. . . .

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Disease Maps


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Dr. Axe’s Essential Oils Guide

Essential oils are organic compounds extracted from plants with tremendous healing properties. Using essential oils for healing purposes is often called aromatherapy which is a holistic treatment seeking to improve physical, mental and emotional health.
For over 5,000 years, many different cultures have used these healing plant oils for a variety of health conditions. They are often used for relaxation, beauty care, home cleaning and most often used as natural medicine.
Read more . . . and order a FREE eBook at the end of the page.


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This week’s fibromyalgia and ME/CFS news (week of Nov. 9, 2015)

Hi everyone! I’m publishing an abbreviated version of the news this week due to extra work obligations. I’ll be back with a full-length version next week.
Some highlights:
  •     Early results from the AFFIRM trial of Tonmya, a new fibro drug being developed by Tonix Pharmaceuticals
  •     23 truths that people with fibromyalgia wish others understood
  •     O (Oprah) magazine features a story on ME/CFS
  •     More fallout from the controversial ME/CFS PACE trial
  •     What you're eating could be increasing your fibromyalgia pain
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High pressure oxygen can effectively treat fibromyalgia

Fibromyalgia is a disease that is still shrouded in a lot of mystery in the medical community. For sufferers, the constant aches and pains are extremely difficult to deal with. Muscle pain, light sensitivity, and difficulty focusing are all symptoms that fibromyalgia patients express to their doctors.
Until recently, there have not been many studies that have gone in depth to understand fibromyalgia. This has frustrated many people who have long days (and even longer nights) due to the pain. Sure, there are a few ways doctors have tried to treat the pain, but sometimes those don’t work. Pain medications and drugs like Lyrica only work for a few lucky people who find some relief.
Finally, one group of scientists and doctors is trying to find a new way to help… and even heal fibromyalgia pain. Their way? With high pressure oxygen therapy.
Read on . . .


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Fibromyalgia Doctors

Part 1 of 5: Overview - Doctors Who Treat Fibromyalgia
People with fibromyalgia see many medical professionals. You may see as many as four or five providers in a single month depending on your:
  •  symptoms
  •  complete diagnosis
  •  other health issues
  •  resources
  •  personal treatment preferences
Knowing the professionals you will come in contact with can help set your mind at ease and decide who can best help you with the management of this syndrome.
Part 2 of 5: Primary Care - Primary Care Doctor
Part 3 of 5: Rheumatologist - Rheumatologist
Part 4 of 5: Psychiatrist - Psychologist and Psychiatrist
Part 5 of 5: Therapist - Physical and Occupational Therapist


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Promises To Keep: NIH Commits to Reinvigorating Effort on Chronic Fatigue Syndrome


The news had been rumored for months - something big was happening at the NIH. The NIH indeed finally moved on ME/CFS in a big way but exactly how was unclear. Were we indeed in NINDS? Can we expect a major grant announcement (RFA)? What are the next steps?
It took some time but I got some answers. Put up your feet and check out a long blog on the NIH and ME/CFS. What we got. What we didn't get and what (hopefully) we can expect in the future.


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10 Signs You Have an Autoimmune Disease and How to Reverse It


Autoimmune conditions affect an astonishing 50 million people in the USA alone – the majority of whom are women. Autoimmune diseases are considered a top 10 leading cause of death in women under the age of 65.
Many people don’t know just how many of the serious conditions of the modern age are autoimmune conditions.They come in many different varieties, including rheumatoid arthritis, type I diabetes, thyroid disease, lupus, psoriasis, multiple sclerosis, and more, and can cause many different types of symptoms all over the body that range from mild to severe in nature. But what are they, what causes them, and how can they be treated?


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IBS: why do I have it and how can I control my symptoms?


‘My GP told me I have IBS, is this a serious disease?’ This question is asked over and over again by individuals experiencing digestive problems such as bloating, cramping and inconsistent bowel movements. There are, fortunately, a lot of nutrition tips available on how to control IBS.
So before we dive into the many factors on how to control IBS, let’s grasp an understanding of what this ‘syndrome’ actually is. Irritable bowel syndrome, often referred to as IBS, is not actually a disease. IBS is simply a term used to describe a collection of digestive symptoms present without a diagnosed disease. In essence, IBS can be considered to be a symptomatic mystery with various possible causes. If you have diarrhoea, cramping or blood in your stools, your GP will most likely refer you to a gastroenterologist who can check your gut lining using endoscopy (a camera on a long flexible tube) to look for abnormal growths, inflammation and ulcers; they may also run tests for conditions such as coeliac disease and H.Pylori bacterial infection. If all results prove negative, then you will most likely be diagnosed with IBS – no obvious state of disease, although digestive symptoms present.


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Misleading PACE claims should be retracted - Campaign created by ME Action
To:  THE LANCET, PSYCHOLOGICAL MEDICINE, AND THE AUTHORS OF THE PACE TRIAL

Given the weak and flawed methodologies of the PACE trial, which claims that CBT (cognitive behavioral therapy) and GET (graded exercise) led to the recovery of ME/CFS patients, we, the undersigned patients, doctors, scientists, parents, children, family, friends, caretakers and #MEAllies:
– call upon The Lancet to retract the claim made in its February 2011 editorial [1] that 30% of patients, or indeed any patients at all, were said to have recovered in the accompanying Lancet paper on the PACE trial [2]; and retract from that paper all analyses and statements in relation to the absurd “normal ranges” for fatigue and physical function;
http://www.meaction.net/whats-wrong-in-the-lancet
– call upon Psychological Medicine to retract the claims in this paper . . . .
– call upon the study authors to publish the recovery outcomes according to the analyses specified in the trial’s protocol
– call upon all parties to reject the view that being as disabled as patients with congestive heart failure is a good recovery of physical function in CFS.
Read more and sign the petition


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Fibromyalgia and Cognitive Problems


Managing Cognitive Fatigue
Pain is generally considered the primary symptom of fibromyalgia, but I feel there is another one equal to, if not worse than, pain. That symptom is fatigue.
Now I know everyone has different levels of pain, fatigue, and all the other symptoms, so this may vary from person to person. But the thing about pain is that to a certain extent you can push through it and still get things done. There are pain medicines that can help get rid of, or at least curb, the amount of pain that we feel.
There are topical ointments and lotions that help with pain. Heat and/or cold can help with pain.
But what helps fatigue?  Find out!


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The Brain Boosting and Fatigue Fighting B-12: Hydroxocobalamin


Hydroxocobalamin (hi-DROX-oh-koe-BAHL-a-min) is a natural and uniquely powerful form of vitamin B-12. Clinical studies and practice have shown it can help to improve cognitive functioning, fight fatigue, promote heart health, and more.
Vitamin B-12 is an essential nutrient needed to make red blood cells that carry oxygen throughout the body, the myelin sheath that surrounds nerve cells, and various proteins. It also plays a role in fat and carbohydrate metabolism. Yet, despite its importance to overall health, vitamin B-12 deficiency is relatively common. It is estimated that up to 15% of the general population may be deficient in B-12 - and more among those with chronic illnesses. . . .
Hydroxocobalamin's Relationship to Fibromyalgia and Chronic Fatigue Syndrome
 Many of the symptoms fibromyalgia and ME/CFS patients report are also symptoms of a B-12 deficiency - cognitive functioning problems, memory loss, and fatigue to name a few. Is that merely a coincidence or is there a connection?
 In a 1997 study of 12 patients with fibromyalgia and ME/CFS: Most had little or no detectable B-12 in their cerebrospinal fluid - despite the fact that all had normal B-12 blood levels. Conversely, they had high levels of homocysteine in their cerebrospinal fluid.


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Sleep Well Articles

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I have been amazed at the interest the innocents drinks' Facebook page (scroll down to November 4th) has aroused.  My moment of fame!!!  Almost 43,000 likes to date and must be hundreds of comments. Wish fibromyalgia could get as much attention!

There was a little opposition suggesting that hats should be made for prem babies, not bottles!  So I'm going to do some of those as well from now on.  Having had 3 prem babies myself I can see the need.  There are so many good causes one can work for.  Sometimes it's good not to focus on fibro!!

Fondest wishes to you all
Stella

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or leave your comments below under Post a Comment

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N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in PURPLE like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  If you have any navigation problems, let me know.
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified rofessional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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