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FMS eNews 01/08/15

I HAVE managed an eNews for you this week even though it is shorter than usual.  I have been involved with wedding preparations, as expected.  Add to this a failure on my laptop which wiped my early attempts at the blog and the pain in my arm which has been quite bad.  I had the steroid injection in my shoulder on Thursday and the arm is now almost pain-free.


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WORDz for the WEEK

231. When you have the love for life coursing through your veins, the troubles that will come don't create so much pain.


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Creatine & Other Supplements

Many of us use supplements in addition to, or instead of, meds. Find out why creatine is on the list of frequent recommendations for these conditions.
Also this week, other supplements and information about taking them safely.
Take care of yourself!
Adrienne Dellwo - Fibromyalgia & Chronic Fatigue Expert


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7 Healthy Ways to Serve Sweet Potatoes


Sweet potatoes are chock-full of good nutrition, including lots of vitamins, minerals, fiber and beneficial antioxidants. 
They're especially high in vitamin A and beta-carotene. Plus they've got plenty of calcium, potassium, lutein, and Vitamin C. 
Sweet potatoes also offer dietary fiber, and each medium-sized sweet potato has about 100 calories.
Sweet potatoes are easy to prepare and so delicious. Flip through the slideshow to find great ideas and recipes.


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107 Everyday Uses for Coconut Oil


There’s been a lot of hype about coconut oil lately, and there are so many claims being made that it sounds nothing short of a miracle. Well it’s really not a cure-all, and what works for other people may not work for you, but it still is pretty dandy to have around. With a little bit of resourcefulness and a dash of creativity, you can find over one hundred everyday uses for coconut oil.
Want this full list in a PDF? Get it free when you download the Everyday Roots Book.


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10 Foods for Fighting Fibromyalgia (with recipes)


As advances in science have given us a better picture of the impact of diet and nutrition on our health – it has become clear that the two are closely linked. According to the U.S. Surgeon General, Dr. Richard Carmona, because of “unhealthy eating habits, and physical inactivity, we may see the first generation that will be less healthy and have a shorter life expectancy than their parents.”
Understanding the impact of diet and nutrition on the body is especially important for those of us suffering from a chronic illness like fibromyalgia. While our fibromyalgia isn’t necessarily caused by diet or nutrition alone – they can influence our symptoms for better or for worse. Knowing which foods help and which foods hurt can put us on a path to a healthier, more comfortable life.


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The Next Lyrica? Thousand Person Fibromyalgia Drug Trial is Underway 


It’s not often that you see a 1,000 person drug trial for fibromyalgia or any other disease but one recently begun  in the U.S. and Canada. A Japanese drug company, Daiichi Sankyo, is making a huge bet on a new drug called mirogabalin for fibromyalgia and other diseases. A major fibromyalgia drug trial is underway in the U.S and Canada If mirogabalin sounds vaguely familiar it should.  Daiichi Sankyo believes mirogabalin is a significant upgrade of pregabalin, e.g. Lyrica. Both drugs bind to calcium channels that have been implicated in the production of neuropathic pain. 
Mirogabalin is believed to bind to a calcium channel subunit that has strictly analgesic; i.e. pain reducing properties. Lyrica, on the other hand, also binds to another subunit that has central nervous system effects that may be responsible for its side effects. Mirogabalin, Daiichi Sankyo believes will be more potent, have fewer side-effects and be longer-acting than Lyrica.


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The NIH’s Blindspot: The Real Reason ME/CFS and FM Funding Stinks 


The Bottom Forty at the NIH The first part of this blog series was focused on chronic fatigue syndrome and fibromyalgia. Now, in an effort to understand why these disorders get such poor funding, the focus broadens to the bottom forty of the two hundred plus conditions and disease categories the NIH provides funding levels for. The bottom forty diseases at the NIH get a small fraction of its funding. The NIH spends about $440 million/year on the bottom forty diseases. Compare that to the NIH’s total budget ($30 billion) and you can get a rough estimate of how little the money it spends on them. Where do ME/CFS and FM rank in all this? Chronic fatigue syndrome is the 10th and fibromyalgia is the 18th worst funded disease category/condition at the NIH.  If you take away three non-disease categories (hyperbaric oxygen, climate change, global warming) the NIH funds, ME/CFS becomes the fifth worst  disease funded by the NIH.  That’s a pretty low rank for a disease studies suggest affects a million people and causes tens of billions of dollars in economic losses.


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The Real Reason Chronic Fatigue Syndrome and Fibromyalgia Get Lousy Funding 


The cause of chronic fatigue syndrome’s decades long funding problems have prompted much speculation and finger-pointing. If only the CDC had taken the Incline Village outbreak seriously, or if Stephen Strauss had never showed up at the NIH, or if Bill Reeves hadn’t take over the CDC or if Fauci, for god sakes, hadn’t lead the NIAID for the last couple decades – then things would be different.  If only we’d had a good definition, an FDA approved drug, or top researchers then things would have changed. Then we would be doing well. I assert that the crucial problem ME/CFS and FM faces is rarely addressed I submit that these are all symptoms of the problem – not the problem. I assert that even if we had a better name, better leaders at the federal level, FDA approved drugs, better researchers, etc. we would still be facing a low funding ceiling – perhaps not as low – but still too low. I suggest that absent fixing a crucial problem, ME/CFS and FM have, from the beginning been essentially doomed to poor funding. First let’s look at some of the proposed causes for chronic fatigue syndrome’s funding problem. 


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Is This The End Of Diet Soda? Huge Study Links Aspartame To Major Health Problems; Sales Drop…


As concerns about health epidemics plague the nation, demand and sales of diet soda have plunged as consumers try to make better choices. As WeSupportOrganic.com reported recently, Aspartame (the main sweetener for diet soda – check the labels) is regarded by scientists as one of the most dangerous ingredients used in our food supply, who have linked it to seizures and a host of other major health issues including fatal cardiovascular events.
In a newly published study [1] (presented in 2014 at the American College of Cardiology, Washington D.C.), 60,000 women were sampled over ten years. It was shown that women who drink two or more diet drinks a day have much higher cardiovascular disease rates and are more likely to die from the disease.


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I hope I might have some wedding photos for you next week!  The weather looks set to be good, so fingers crossed.

Take care
Stella


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or leave your comments below under Post a Comment


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N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in PURPLE like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  If you have any navigation problems, let me know. 
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgments, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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