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FMS eNews 07/12/13

Happy Birthday to US!

We are one year old!  The first FMS eNews was published on 8th Dec 2012.  It doesn't seem possible, but it's true. Judging from the appreciative emails I have received it has all been worthwhile.  Apologies for the few weeks I was not able to deliver, for various reasons.  I will endeavour to keep the news flowing for the next year.


WORDz for the WEEK

145.  Instead of being the worst somebody, I'd rather be the greatest nobody.


Arthur Hambleton RIP

 Arthur's funeral will take place at Chichester Crematorium on Wednesday 11th December at 11am. If you intend to attend please inform the undertakers as requested in the notification.


LIVING WELL with FIBROMYALGIA - December edition

 Be fancy but frugal this year

Holiday time is before us once more. So, it's time to review the previous year and look forward to the year ahead.

Accordingly, I gave our contributors the big job of tackling Looking Forward/To the Future as a topic.  So, you will notice that the theme of this issue is incredibly positive.


The Care and Handling of Your Achy Crabby Friend

Congratulations on your purchase of a friend with fibromyalgia! With gentle care & small considerations, you will have a friend for a lifetime. Please take a moment to read these care instructions, & refer to them any time your friend appears to be fraying or wearing out.


Will Fibo affect your Christmas?

Here is an opportunity to get published on the matter, but time is short.
FMA UK has sent this message:-
We have received the following request from Matt Barbour, The Sun.  Please distribute around your group members. (I'm reaching beyond my group members by including it here.  S.)
I’m looking for any families whose Christmas might be affected in some rather extreme way by some health condition or illness – for instance, autism, extreme allergies, through to any other health conditions. We’re open to suggestions. We want to provide an insight into how some families’ Christmases aren’t all turkey and presents, with rather large obstacles to contend with. We can plug any charity, provide copy control for the family and pay a fee.
Please contact: and copy in if you are interested
Request deadline: 11 December 2013 - 17.00
Please get back to me asap if you can help.
Matt (contributing editor)"
Thank you for reading this email. If anyone has any questions then please email the office on


From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

Fibromyalgia has come full circle, from being considered "arthritis like" to neurological, and now -- back to arthritis like because of the neurology! See the fascinating new study, below.
Also this week, what else? We're now neck-deep in the holiday season, and I'm sure getting through it is a major focus for you just like it is for me.
Some of my most popular posts of the year are down in Featured Articles.
Take care of yourself!


19 November 2013 Newsletter - Latest news

In this newsletter we reveal that although many thousands of adults will make a renewal claim for DLA over the coming months, not one of them will have to fear a visit from an Atos health professional – nor will most children. We also learn that the much despised multinational managed to avoid paying a single penny in UK corporation tax last year, in spite of taking billions of pounds of taxpayers money.


Herbs and Supplements for Fibromyalgia

Managing the symptoms of fibromyalgia or related ailments is not easy. So, many patients turn to alternative therapies for relief of pain and sleep problems. They may use Chinese herbs or over-the-counter supplements such as 5-HTP, melatonin, and SAM-e.

Because so many people -- not just those with fibromyalgia -- are using alternative therapies, Congress has formed the National Center for Complementary and Alternative Medicine (NCCAM). It is part of the National Institutes of Health (NIH), and it helps appraise alternative treatments, including supplements, and define their effectiveness. This organization is now creating safe guidelines to help people choose appropriate alternative therapies that may help their symptoms without making them ill.


Win your Christmas with Give as you Live

We’ve teamed up with some of the 3,000+ Give as you Live retailers to give you the chance to ‘Win your Christmas’.  For one lucky winner we’ve got Christmas all wrapped up with top gifts for parents, kids, techies, foodies and fashionistas from the UK’s top retailers including John Lewis, Hotel Chocolat, UGG Australia and the Disney Store worth over £1,000.

If you win, we’ll also donate £250 to your chosen charity, so you won’t be the only one celebrating!
To enter, just fill in your details in the box below! The winner will be chosen at random on December 11. Good luck


Take the Donor Survey

Win £5,000 for charity

Please choose Fibromyalgia Support for Surrey and Sussex as your chosen charity.  Put in FMSSAS then click on the charity name.

Don't forget, when you shop online, you can support your chosen charity with no extra cost to yourself through Give as You Live.


Exciting news for Islanders with Fibromyalgia as research project gets underway

 A  brand new neuroscience research project is about to get underway on the Isle of Wight that will focus its attention on the debilitating chronic pain condition, Fibromyalgia Syndrome (FMS).

The Island’s Radiology and Chronic Pain departments will be linking with neuroscience colleagues at both Imperial College and University of Southampton to explore new techniques to help them better understand the condition.


Good news: ‘fibrofog’ doesn’t portend Alzheimer’s

‘Fibrofog’ – the cognitive dysfunction experienced by up to 80% of fibromyalgia patients – is not an early harbinger of Alzheimer’s disease, Dr. Robert S. Katz asserted at the annual meeting of the American College of Rheumatology.

The problems with memory, concentration, language, and thinking, collectively known as fibrofog, affect fibromyalgia patients in their 20s-50s. The onset is typically more sudden and dramatic than with classic forms of dementia. As fibrofog becomes chronic, many affected fibromyalgia patients – fearing the worst – worry they are on a road to Alzheimer’s disease in middle age.
Not so, according to Dr. Katz, professor of medicine at Rush Medical College, Chicago.


Medical News Today

Brain imaging reveals how chronic pain drug works

New research from the University of Michigan has explored the use of brain imaging in order to track the clinical action of a drug used to treat chronic pain. This is according to a study published in the journal Anesthesiology.

Using three different brain imaging procedures, the investigators were able to track the actions of pregabalin - a drug commonly used to treat patients suffering from fibromyalgia and neuropathic pain.


Tai-Chi's Effectiveness for Decreasing Fibromyalgia Pain

Tai-Chi has shown benefits in physical and psychological outcomes in diverse populations. We aimed to determine the changes elicited by a Tai-Chi program (12 and 24 weeks) in acute pain (before vs. after session) in fibromyalgia patients. We also assessed the cumulative changes in pain brought about by a Tai-Chi program.


Just to clarify Horsham Tai Chi sessions


Daily Newsletter, Nov. 30th, 2013

Daily Newsletter, Dec. 1st, 2013

Daily Newsletter, Dec. 3rd, 2013

Daily Newsletter, Dec. 4th, 2013

Daily Newsletter, Dec. 5th, 2013

I hope you haven't started getting stressed over Christmas.  Pace your preparations to avoid last minute panic.  I've been doing Christmas cards this week!  Good luck with yours.
With every good wish



N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to and you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at and on a blog at These ceased at the end of November 2012 when I resigned as a trustee. This blog commenced on 8th December 2012.