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FMS eNews 28/09/13

Hello fellow fibro fighters
I know we are all fighting fibro but some of us are fighting other conditions and illnesses as well.  It is too easy to have tunnel vision and concentrate on just one.  Until this week I had not researched much about others of mine!  Anyway, I trust you manage to find relevant information to help you with whatever other problems you have.


WORDz for the WEEK

137.  "They" call it philosophy . . . . . I call it life.


A High-Tech, Low-Cost Path to Better Sleep with ME/CFS and Fibromyalgia

Experts agree that improving sleep is one of the most important elements of treating ME /CFS and Fibromyalgia. If our sleep improves, so they say, it’s likely that many of our other symptoms will improve as well.  So how do you go about improving your sleep? That’s what you’ll learn by reading this article. I will focus on new, groundbreaking ways for improving sleep that have become available in this form only recently through the invention of smartphones.


Is the Glycemic Index Diet Right for Chronic Fatigue Syndrome and Fibromyalgia?

Do you get irritable and spacey if you don't eat regularly? Do you crave sugar? Do potatoes hit you like a ton of bricks sometimes?
Answering yes to any of these questions suggests you may have trouble regulating your blood sugar levels. The limited studies available, in fact, suggest blood sugar regulation may be a problem for some people with ME/CFS/FM.

Read the article here


From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

Adrienne Dellwo
Stores are full of Halloween stuff, and you know it'll be a matter of weeks before the Christmas decorations show up - if they haven't already. It's time to do more than complain about how those things show up earlier every year! 
See how you can formulate a plan to help you through the holiday season, below.
Also this week, an update on my elimination diet (sigh!) and an answer to a frequently asked question.
Down in Featured Articles, you can get some good information on causes and risk factors.
Take care of yourself!


Vitamin C helps eliminate chronic disease 

Vitamin C experts like Drs. Steve Hickey, Hillary Roberts, Frederick Klenner, Thomas Levy plus many others have dedicated their lives to shedding light on this valuable 'forgotten therapy' for a wide range of chronic health issues. Don't expect to hear this information from your conventionally-trained physician - because they were never taught this in medical school.

Learn more:


Drum rrrrrooooooolllllll please!

If that didn't wake you up... we're not all that surprised. As it turns out, many of you were probably awake already. How did we know? Well, the sleep survey results are in! As part of our ongoing "Are You Sleeping?" initiative, 5,256 of you added your voices to the survey, making it one of the largest of its kind, and the results might surprise you.


Coping With Excessive Sleepiness, Sleep and Weight Gain
Will better sleep help you avoid extra pounds?
Could lack of sleep be causing you to gain weight?

Think about it: If you’re feeling sleepy at work, you may be tempted to reach for a cup of coffee (or several cups) and a doughnut for a quick shot of energy. Later you may skip the gym and pick up takeout on your way home to your family -- no time to cook. When you finally find yourself back in your bed, you are too wound up to sleep.  It’s a vicious cycle, and eventually this sleep deprivation can sabotage your waistline and your health.

You can listen to this page using ReadSpeaker


Fibromyalgia Medications

There are many different medications used to treat fibromyalgia symptoms, including pain medicines, sleeping pills, and antidepressants.  Some fibromyalgia medicines help ease pain. Others boost mood and improve sleep. Working with your doctor will help you find the right fibromyalgia medication to add to your treatment regimen. That way, you can manage your symptoms effectively.


How to Ease Your Pain

Medication is only one of the many ways to lessen the hurt. See what else may make you feel better.
What Is Chronic Pain?

What condition do more than 100 million Americans share -- maybe including you? Whether it's caused by arthritis, migraines, fibromyalgia, or bad backs, chronic pain -- the kind that hangs on for weeks, months, or years -- can change your life. Never ignore pain. Whatever the intensity -- mild, moderate or severe -- treatment usually can help.

View Slideshow ›


FM HealthWatch, September 24, 2013
Coming Clean on a Dirty Secret: Irritable Bowel Syndrome

 Shhh! We've been taught it's not polite to mention such things in public. But the truth is a significant percentage of people with fibromyalgia also have irritable bowel syndrome - diarrhea and/or constipation that can result in some embarrassing situations. Read More »


September 24th 2013

Dear reader,
We are very excited this week to be launching the first in a brand new series of videos with the OHC team.  The first video is with Helen Lynam from our nutrition team, exploring the area of migraines in ME/CFS.  You can view the video at Migraines in CFS/ME

Full newsletter here


Gluten is Connected to Multiple Problems:

'All too often I see patients with headaches, joint pain, rashes and hormone based diseases.  These people often travel from one doctor to the next looking for answers only to be dispensed a steroid cream, pain medications, and a handful of hormone pills.  Many of them are told that their conditions are stress based and have nothing to do with diet.'


Living with Pain: Create a Soothing Space

Stress can make chronic pain worse. Whether you suffer from headaches, arthritis, abdominal pain, temporomandibular disorder, or any other chronic pain condition you may benefit from identifying methods to reduce the stress in your life. One approach to stress management is to create a “soothing space” – a  retreat where you can calm your body, quiet your mind, focus on your strengths, and remind yourself of what matters. You need not go there frequently or stay long to recover from stress. Even five or ten minutes in the morning and evening can be very helpful.


Sept. 22nd, 2013 Daily Newsletter

September 24th, 2013 Daily Newsletter

September 25th, 2013 Daily Newsletter

Sept. 27th, 2013 Daily Newsletter


Look after yourselves. And do it well!
Fondest wishes



N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to and you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at and on a blog at These ceased at the end of November 2012 when I resigned as a trustee. 
This blog commenced on 8th December 2012.