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FMS eNews 30/03/13

A Happy Easter to everyone

I hope you are able to enjoy the Easter weekend with the Bank Holidays included.  The weather might be dubious but I hope you are not prevented from doing whatever you have planned.  My plans include going to Torquay in Devon  on Monday for a few days’ break.  Because of this I will not be able to produce the normal eNews next week.  Nevertheless look out for my usual email.   I hope the weather improves!



112.  Life is 10% how you live it and 90% how you react to it.


Adrienne Delwoo
Common wisdom might say no, but research raises some interesting questions.
Research links cardiac abnormalities to the poor sleep and fatigue of ME/CFS.
So much to do, so little energy! Get help with those springtime tasks, inside and out.
Read the comments and leave your own!
See what this umbrella term means and what conditions fall under it.
See what this sure-to-be-controversial research says.
A look at how many kids could be diagnosed with JCFS after a bout of the "kissing disease."
Read the comments and chime in with your opinion!

March 23rd, 2013 Newsletter

March 25th, 2013 Newsletter

March 27th, 2013 Newsletter


The Pursuit of Happyness – By Purple Law Lady

Simone, Purple Law Lady  

Contrary to popular belief, happiness doesn’t come from fame, fortune, or money. (We would still have FM if we were rich!) Rather, it comes from within. Happy people are happy because they make themselves happy. They maintain a positive outlook on life and remain at peace with themselves.
The question is: how do they do that?
It’s quite simple. Happy people have good habits that enhance their lives. They do things differently. Ask any happy person, and they will tell you that they … What?  Read more. . .


FibroTrack – Online Fibromyalgia Management

You Can Get Better. People Do Achieve Significant Improvement. Less Pain. Reduced Symptoms. Better Quality of Life. Fibromyalgia can be overcome – managed and controlled!
FibroTrack Will Teach You How and Help Make It Happen – Step by Step! 


Many people suggest that fibromyalgia has a connection with several other syndromes, primarily chronic fatigue and irritable bowel.  There are some compelling arguments for this connection based on adrenal fatigue and vagus nerve dysfunction.  I just came across another study that proposes a connection between fibromyalgia and psoriatic arthritis.  Psoriatic arthritis is a type of arthritis or joint inflammation that affects people with the skin condition psoriasis.  This study looked at 78 people, 34 who had been diagnosed with psoriatic arthritis.  Of these 34, 53% of them also had fibromyalgia compared to 4.5% of the others.  Click Here to access the study.  Honestly I had not heard of psoriatic arthritis until I saw the commercials with golfer Phil Mickelson talking about his battle with it.


Leah Tyler, 
founder of the FM Crusade 
& Chronicles of Fibromyalgia
The Fibromyalgia Crusade is a patient united awareness campaign promoting information, resources and support to aid in understanding and managing Fibromyalgia Syndrome.

We believe every patient has the right to effective medical care and the responsibility to pursue quality of life improvement through a balanced, total-body approach towards managing chronic pain and illness.

 From my pain I have found my purpose and share my journey to inspire hope. I seek not to be defined by what I have endured, but by what I have overcome. 4 pancreas attacks, CFS/ME, Fibromyalgia and 2 strokes, all before age 34!


About Dannette:

Diagnosed with Fibromyalgia in 1997, I have been learning to live well with it ever since. In 2008 I founded FibroHaven Support Foundation, creating a community of compassion, understanding, and healing for those learning to live well with chronic illness. Inspired by my advocacy with FibroHaven, I now work as a Life Coach, empowering others with chronic illness to live rich, fulfilling lives in spite of their illness. In 2009 I was introduced to the practices of Gentle and Restorative Yoga – nourishing and awakening my mind, body, and spirit – and a new passion was born. In the spring of 2011 I received a 200hr yoga teacher certification from Light and Love Yoga School and will soon graduate as a 500hr certified instructor.


About Felicia

I’d like to think that everything that I do in life is done with passion. To me it’s not worth doing something if you don’t believe whole-heartedly in it! I enjoy photography, flowers, baking, traveling and bicycling and am an active volunteer with my local Arthritis Foundation office. Everyone who knows me also knows my favorite color is purple.
I started this blog in hopes that I would be able to create a community where people with fibromyalgia and other medical conditions relate. I planned to share resources I have found to be helpful as well as my own personal tips and tricks. I am lucky enough to know a few other ladies with fibromyalgia and will sometimes share their experiences as well. Please let me know if you would like me to cover a particular topic. Read more about why I started

 The Voices of Fibro

People who suffer from fibromyalgia experience problems beyond the pain caused by their illness. Their condition is little understood and hard to explain, and often they are disbelieved by doctors. Even friends and loved ones may express skepticism toward the fibromyalgia sufferer, who, burdened with inexplicable pain, may cancel social plans, miss work and recoil from physical affection because it hurts too much.


What is the Difference Between Gluten Sensitivity, Intolerance, and Celiac Disease?
The difference is very big and it may just surprise you.  Watch the video below to learn more on this, and to learn more about a TRUE gluten free diets Vs. Traditional gluten free diets…


8 Best Fibromyalgia Blogs and Websites

For people with fibromyalgia, dealing with symptoms such as chronic pain, fatigue, and insomnia is only part of the battle. The disorder can also cause emotional distress, relationship problems, and social struggles.

Even if your loved ones don’t fully understand what you’re going through, you don’t need to cope with fibromyalgia alone. There’s a wide range of online resources to help you better understand the disorder and connect with other individuals to share the low (and occasional high) points of living with fibro.

7 Conditions Linked to Fibromyalgia

Fibromyalgia, is characterized by painful, tender points along the body; fatigue; sleeplessness; and cognitive issues known as fibro fog.

Unfortunately, people with fibromyalgia are more likely than people in the general population to have certain other conditions too.

If you have fibromyalgia, here are seven other health concerns.


How the Fibromyalgia Brain Responds When Observing Others in Pain

Chronic widespread pain is a hallmark of fibromyalgia (FM). Previous neuroimaging studies have reported that the pain neuro-matrix in patients with FM showed augmented activation in response to actual pain. However, the effect of observing pain in others among patients with FM remains poorly understood.

Could a Common B-12 Deficiency Be Causing Your Symptoms?

Less than 20 years ago, patients complaining of fatigue were often given a "tonic shot" by their doctor. Many people claimed this worked like magic to improve their energy levels. What was this miracle tonic? A simple injection of vitamin B-12.
Although the practice of administering vitamin B-12 injections has fallen out of favor, modern medical science now understands why vitamin B-12 supplementation makes people feel better, and the reasons extend far beyond just the "placebo effect" of receiving a shot.


Creating The Right Diet For Fibromyalgia.  How Does A Healthy Diet Help?

Maintaining a healthy diet is important for everyone, but for patients with fibromyalgia it is especially critical. Proper nutrition can help fight fatigue and improve sleep and overall health. Some patients with fibromyalgia also find eating certain types of foods, such as fried food or food high in sugar makes symptoms worse.


Christine's pain eased by writing

'Fibromyalgia: A Treatment Guide' by Christine Craggs-Hinton Sheldon Press, £8.99

Christine Craggs-Hinton
When Christine Craggs-Hinton was diagnosed with fibromyalgia it left her so exhausted she spent a lot of time in bed.
On the advice of her physiotherapist, she looked for ways of increasing the times she could sit up – so she took up writing.


Quiz: Myths and Facts About Fatigue

1.      What's good for your fatigue?
Taking several naps
Walking for 30 minutes
Drinking coffee

Fibromyalgia Tender Points

Tender points are pain points or localized areas of tenderness around joints, but not the joints themselves. These tender points hurt when pressed with a finger.
Tender points are often not deep areas of pain. Instead, they are superficial areas seemingly under the surface of the skin, such as the area over the elbow or shoulder.

Herbs and Supplements for Fibromyalgia

Managing the symptoms of fibromyalgia or related ailments is not easy. So, many patients turn to alternative therapies for relief of pain and sleep problems. They may use Chinese herbs or over-the-counter supplements such as 5-HTP, melatonin, and SAM-e.



Fibromyalgia: The Heavy-Metals Connection

Have You Tried Everything Else to Fix Your FMS Symptoms? Try a Chelation-Challenge Test
Since 1992 I have suffered from the symptoms of hypothyroidism and fibromyalgia. I had just given birth to my third child and thought at first that I was just tired from poor sleep while fighting off mycoplasmal bronchitis and nursing a newborn. Then one day I winter-pruned our roses and raked the leaves--and have never been the same since. The muscle fatigue, tension, and pain started in my neck and has gradually moved into nearly every muscle in my body, including the involuntary ones. I can only hope it will not soon affect my heart.


Many of the sites I have highlighted lead you on to further pages or sites of a similar nature.  I can’t list them all but you can follow as many chains as you have time for.  Next week’s eNews will be different!
I will sign off here and wish you once again, a very Happy Easter.


N.B.   I would like to point out to you that the information in my eNews  blog is passed on to you mainly from other sources.   Links are given to the original articles.   I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership.  Sites I refer you to are  for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.  
I also include various awareness items, benefits issues, as well as general health considerations.    Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new eNews is posted, please send an email to as you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews.  Past issues of FMSSAS eNews can be found at and on a blog at  These ceased at the end of November 2012 when I resigned as a trustee. This blog commenced on 8th December 2012.

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