Search This Blog

FMS eNews 09/03/13

Hello there 
Isn’t it disconcerting just when it seems there is a breakthrough someone pours cold water over it?  But it only goes to show how important research is and no-one should jump to conclusions as the first few items this week illustrate. 


109.  Whoever said life was easy was an idiot, but whoever lived like it was easy was a genius.


 FM/a ® – The Fibromyalgia Test – at last a blood test to diagnose FMS?
With FM/a®, I finally have the validation and peace of mind, I need to feel like I can try to start living, again.

Can Help Doctors and Patients Lessen the Burden of What Too Often Ends Up a Lengthy, Costly, and Painful Diagnostic Journey

At last, a real test for FM!  It's nice to finally
be able to actually help my FM patients.
Finally the source code that uncovers the medical disease called fibromyalgia is available via an objective, multiple biomarker-based diagnostic test that has documented the altered immunology of the fibromyalgia patient.

At EpicGenetics, we're thrilled to be making such a positive impact.

Two separate medical studies were conducted at the University of Illinois College of Medicine at Chicago which investigated the uniqueness of the fibromyalgia patient.  Via the University of Illinois College of Medicine at Chicago, Department of Pathology, a CLIA certified laboratory, a rigorous analysis of fibromyalgia patients versus matched healthy control individuals revealed a distinct set of immunologic markers in those who have fibromyalgia.  This test proves that there are no boundaries when it comes to age, gender or ethnicity in reference to the development of fibromyalgia.


BUT - Questions arise over new diagnostic test for fibromyalgia
Laurie Tarkan

‘A new diagnostic test for patients with fibromyalgia will soon be available, but some experts question its value.
Fibromyalgia is a potentially debilitating disorder that causes chronic, body-wide pain, fatigue and “brain fog.” A diagnosis is based on a clinical exam and a patient’s symptoms, but there is no objective diagnostic test available. Fibromyalgia affects more than 12.3 million people in the United States, according to the American College of Rheumatology.’ Read on . . .

So, is it ‘good news’ after all? 



Junk Science – Junk Ethics
Posted by Fred Wolfe
In conclusion . .
‘Cytokine levels are abnormal in many physical and mental conditions. The authors studied none of those conditions. They provided almost no information about patient selection or many other vital data for a comparison trial. The CONSORT statement on publishing trials offers guidelines on the reporting of data. They didn’t follow these guidelines. As a clinical study, it was very poorly planned and carried out. As a pathology report it might pass. But the data did not in any way addresses the validity and reliability of their ‘test’ to diagnose fibromyalgia. I conclude that they (EpicGenetics and Dr. Gillis) were trying to fool people into buying the scientifically unproven $744 test.
For such an ethical violation, BMC Pathology should withdraw the paper. Want to diagnose fibromyalgia? Talk to the patient. In less time than it takes to get the blood drawn you can have the diagnosis (free!).’

What an anticlimax!  But you can draw your own conclusions.


Dubious Diagnostics
By  - a summary of the above

, Simone Moszkowicz
The test, called the FM test, measures production levels of certain cytokines, which are proteins that play an important role in your immune system. The test was developed by Dr Bruce Gillis, and in December 2012 ‘Unique immunologic patterns in fibromyalgia’ was published as Behm et al., which found lower levels of these cytokines in individuals with FM compared to healthy individuals. The authors declared that ‘they have no competing interests.’”  Read the rest . . .

Simone Says . . .
I am asking everyone to upload their VISIBLE Army photos to their profile picture on xocial metworkng sites on the 12th of EVERY month, until May, when we do it for the whole month of May (International Fibromyalgia Awareness Day is May 12), to encourage and support Fibromyalgia Awareness. 


Transcending: an effective remedy for fybromyalgia?

How Transcendental Meditation works
1.      Stress is one of the leading causes of fibromyalgia Often patients notice the onset of fibromyalgia symptoms after periods of severe or traumatic stress. Fibromyalgia also often coincides with reduced levels of the “happiness hormone” serotonin in the brain. Chronic stress is widely known to reduce serotonin production.


Pati Chandler’s Newsletter 3-3-13   #31

Pati Chandler
SLEEP - That Illusive Factor
‘"Sleep? What's that?" If this is your answer to your  doctor's question, then chances are really good that you're not getting enough of it, or the right kind of it. And if you're not getting enough of the quality sleep that we all need, then your pain will not likely go away, no matter how many prescriptions, treatments or pills you may take for pain!’   

You might like Pati’s book Fibromyalgia Basics. 
‘When you order a copy of my newest book, Fibromyalgia Basics, from my website, securely from Paypal, or by check or money order, I'll be happy to send you a personalized signed copy. Visit's "Look Inside" feature, and read parts of my book to check it out. Visit Tate Publishing Bookstore and find an E-Book for only $10.99, including directions on how to install your book on a Kindle, Nook, ipad or iphone! ‘


From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome
Adrienne Dellwo
My recent experience with delayed prescriptions.

How old were you when ME/CFS hit? See why that could influence what type you have.
Fibromyalgia can come with painful periods. See why, and what might help.
Read the many comments and leave your own!

Does Having FMS Really, Totally Set us Apart from the Rest of the World?

Meshea Crysup
 I know...
I really, really know...
just waking up sometimes seems too much to ask when you have Fibromyalgia. I also really, really know that some days we are better off if we give in and just get more sleep. But I also really, really know this is not the case every day!

Apart from all the physiological reasons...the importance of exercise when you have FMS...all true...there is a much more BASIC reason: FMS robs us of so much...we have to refuse to let it rob us of whatever time we have to LIVE!


Latest articles


The majority of North Americans feel chronic or intermittent pain is inevitable. Do you or a loved one have daily pain? Here are some natural ways to eliminate pain, several of which you will actually greatly enjoy.
Self-destructive behaviors take on a multitude of forms, but almost all can be overcome by replacing them with positive behaviors instead.
Most people haven't even heard of choline, an essential B vitamin that's crucial for heart and brain health, and for pregnant women. Here's what you need to know, and the foods you can find it in.
BE QUIET Benefits! Find out how some fascinating studies confirm that silence in your external environment and inside of your mind is essential to your health and well-being. Then discover how to achieve healing silence in all aspects of your life.

Weekly Menus, Shopping Lists, and Tips Designed Specifically to Help You Reduce Fibromyalgia Symptoms and Save You Time & Money!

Get the support you desire and take all the guesswork out of what to eat, what to buy, and what to prepare when, to improve and maintain your health with our weekly meal plans. v^v^v^v^v^v^v^v^v^v^v^v^v^v^v^v^v^v^v^v^v^v^v^v^v^v^v^v^v^v^v^v

Feb. 29th, 2013 Newsletter!  1st March?

March 4th, 2013 Newsletter

March 6th, 2013 Newsletter

March 7th, 2013 Newsletter


Newsletter - March 1st 2013


Functional Exercise Is Critical For Immune Health – Dr Osbourne’s Newsletter, March 1, 2013

It is no mystery that gluten can cause and contribute to muscular loss, muscular weakness, and muscular inflammation.   The consequence of this damage can prevent your immune system from being able to properly protect you.  You see, muscle is a reserve tank for healthy immune function.  Unfortunately,  taking gluten out of your diet is not enough to restore good immune and  muscular health.  That is why I constantly put so much emphasis on building and maintaining adequate lean muscle.  Read on . . .

Top Foods To Avoid On a Gluten Free Diet

For those just getting started on a gluten free diet, the task can be very daunting.  Identifying what to and what not to avoid is where most people get stuck or frustrated.   Below we have put together a video and a list of some of the most common foods that will get you into trouble while following a gluten free diet…
Follow this  link


Creating The Right Diet For Fibromyalgia

MaryAnn DePietrol
How Does A Healthy Diet Help?
Maintaining a healthy diet is important for everyone, but for patients with fibromyalgia it is especially critical. Proper nutrition can help fight fatigue and improve sleep and overall health. Some patients with fibromyalgia also find eating certain types of foods, such as fried food or food high in sugar makes symptoms worse.  See more  . . .

Using Yoga For Fibromyalgia

Tiffany Tseng
Can Yoga Really Help With Fibromyalgia?
Yoga has been often noted for its healing properties and role as a low impact and sometimes strength building exercise. In this case, the yoga classes in question are of the gentle, restorative nature. Depending on the studio, it can be called gentle hatha, or just hatha yoga.


Gerald Taylor’s Newsletter, 27th Feb, 2013 warns against carbon monoxide poisoning

It was with much sadness that I read about an elderly couple who died in caravan alongside their daughter and dog from suspected carbon monoxide poisoning. It was such a tragic story that it was important to write about and raise awareness of the potentially life-threatening risks.

The Department of Health estimates that about 40-50 people die of CO and about 4,000 attend accident and emergency every year in England and Wales alone.


Don’t forget to upload your Visible Army photo to your Facebook/Twitter etc  page on 12th March – next Tuesday.
Happy Mothering Sunday tomorrow for all of you who are MUMS.
Fondest wishes to everyone

N.B.   I would like to point out to you that the information in my eNews  blog is passed on to you mainly from other sources.   Links are given to the original articles.   I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership.  Sites I refer you to are  for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.  
I also include various awareness items, benefits issues, as well as general health considerations.    Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new eNews is posted, please send an email to as you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews.  Past issues of FMSSAS eNews can be found at and on a blog at  These ceased at the end of November 2012 when I resigned as a trustee. This blog commenced on 8th December 2012.

Contact me:-