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FMS eNews 16/08/14

Those of you who are knitters, please get going on the mini hats for this year's innocents drinks' Christmas project to aid AgeUK.  Last year I knitted over 300, and have done quite a lot towards this years effort.
Completed hats can be handed in at your local AgeUK Centre or Shop.
The hats don't have to be complicated like the one on the left.  They can be simple like the one on the right!  Or anything in between.

 See the leaflet: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/The_Big_Knit_2014.pdf
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WORDz for the WEEK

 181. Life's hopes, dreams and memories merge together, creating a beautiful mural.  A beautiful mural of God's handiwork!!
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 From  Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome
A lot of us are overweight. We know that. Most of us probably figure we'd feel better if we lost some weight, and some research has backed that up. But now, a brand new study takes another look at how weight effects us. See what it has to say, below.
Also this week, a look at the Chinese exercise/meditation activity qigong and what research shows about it for both FMS and ME/CFS.
Down in Featured Articles, you'll find a lot of information on some of the pain conditions that are common in us.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/3053dfe68b00014519003175.htm
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 Orthostatic Intolerance, Pain and the Mitochondria in Chronic Fatigue Syndrome: Dr. Newton Talks 
Highlights from Dr. Newton’s Video on Blood Flow
“I would suggest that abnormalities of the autonomic nervous system are the underpinning phenomena that explain most if not all of the symptoms that people with ME experience.” Dr. Julia Newton
Orthostatic Intolerance
Dr. Julia Newton started off a section on orthostatic intolerance(OI) stating that 90% of patients with ME/CFS experience dizziness or lightheadedness. She diagnoses OI using a symptom questionnaire (Orthostatic Grading Scale >4 = OI).

 http://www.cortjohnson.org/blog/2014/08/06/orthostatic-intolerance-pain-mitochondria-chronic-fatigue-syndrome-dr-newton-talks/
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Where Fibromyalgia and Chronic Fatigue Syndrome Part Ways (and Where They Don’t) 

 Lately we’ve seen what appears to be a great deal of similarity in muscle issues in Chronic Fatigue Syndrome and Fibromyalgia. We know that Dr. Bateman and others believe ME/CFS and Fibromyalgia occur on a fatigue-pain continuum – that they are similar disorders that differ in the amount of fatigue and pain present. They both predominantly affect women, and similar  medications are used in both.
Both Dr. Natelson and the Lights, however, have found differences in ME/CFS + FM vs ME/CFS patients alone, and Natelson argues that they’re quite different disorders.
Now a recent study demonstrates an important way that this is so.

 http://www.cortjohnson.org/blog/2014/08/08/fibromyalgia-chronic-fatigue-syndrome-part-ways/
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Telomeres, Wandering Minds, and Creating Cellular Health: the Last Best Cure V 
“The good news is that we are not our thoughts.” – Clifford Saron, PhD, Center for Mind and Brain, UC Davis
People with Chronic Fatigue Syndrome and Fibromyalgia are advised to cut down the amount of ruminating they’re doing.   But according to a large Harvard  study, most of us – whether we’re healthy or ill – spend an extraordinary amount of time engaged in thinking about things other than what we’re doing.  We’re not ‘being here now’;  we’re either thinking about something that happened earlier, or thinking ahead to the future, or we’re judging and assessing what’s before us.   Our minds are darting around and around – here, there, and everywhere.

 http://www.cortjohnson.org/blog/2014/08/10/telomeres-wandering-minds-creating-cellular-health-last-best-cure-iii/
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Herbs and Supplements for Fibromyalgia 
Many herbal products and natural supplements claim to ease fibromyalgia pain or fatigue. Get the facts before you give them a try.
Read Article › 

   • Lidocaine Injection May Help Fibro Pain
  • How Can Physical Therapy Help?
  • Finding a Fibromyalgia Specialist  

  http://view.messages.webmd.com/?j=febf10737c6d027c&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff8d1d79&ju=fe8d13707667037a72&r=0
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Easy Exercises to Help Ease Your Pain
Exercise can help fatigue, increase energy, and improve sleep and mood. Try these simple moves you can do every day.
View Slideshow › 

   • Simple Tricks for Avoiding Everyday Pain
  • Painkillers, Narcotic Abuse, and Addiction
  • How Hypnosis May Help Relieve Pain  

 http://view.messages.webmd.com/?j=fec510747462007a&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff68177071&ju=fe9213707063017f76&r=0
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Fend Off Fatigue for Good 
If you're always complaining of exhaustion, it's time to take steps to get to the root of the problem. 
View Slideshow › 

   • Do You Snore?
  • Causes of Sleepwalking
  • Stop Grinding Your Teeth  

 http://view.messages.webmd.com/?j=fec410747462017a&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff6b167077&ju=fe89137070630d7870&r=0
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 2 Explosive Realisations About the Suffering with MECFS and Fibromyalgia

 The pain was suddenly so severe, that I screamed, “Call an ambulance!” I was writhing in agony. What happened next was an explosive realisation – more about that in a moment.
But first, let me tell you, that after around 7 years of illness, I have been recovered for several years now. So long, that it is starting to truly feel like a thing of the past and the rawness of the experience, the suffering with Fibromyalgia and ME/CFS has somewhat worn off. In fact, I had to look up the dates to realise that it is 4 years now that I have been recovered.
We often feel frustrated that others don’t realise the depth of our suffering with ME/CFS and Fibromyalgia. In fact, many people get so stuck in this frustration that they never move beyond this towards recovery.

 See more at: http://cfsunravelled.com/2-explosive-realisations-about-the-suffering-with-mecfs-and-fibromyalgia-2/
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Her Emotional Healing Allowed the Final Slide into Full Fibromyalgia Recovery  
Beth’s Fibromyalgia Recovery Story – 15 Years 
Recovered After 10 Years of Fibromyalgia.  It’s been over to 15 years since I have been free of the symptoms of Fibromyalgia. If you have told me that was possible in the earlier years of my diagnosis, I wouldn’t have believed you. Today, I share my story to let others know that recovery from Fibromyalgia is possible and additionally, that recovery doesn’t mean just surviving, but thriving! Here is my story of healing through a variety of strategies and my final fibromyalgia breakthrough from emotional healing on an energetic level.

 See more at: http://cfsunravelled.com/emotional-healing-to-slide-into-full-fibromyalgia-recovery/
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Chronic Fatigue Syndrome Recovery Stories & Fibromyalgia Recovery Stories

 See more at: http://cfsunravelled.com/cfs-fibro-recovery-stories/
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Three Symptoms of Fibromyalgia That Magnesium Could Alleviate
According to recent estimates, nearly 80% of Americans suffer from magnesium deficiency.  That’s a startling percentage for any country, let alone the United States.  You may be asking yourself, “Why does it matter?”  You may be surprised to learn that many of the symptoms of magnesium deficiency are similar to fibromyalgia symptoms.  Consequently, many of the symptoms of your  Fibromyalgia could be eased if in fact you are deficient and you take decisive steps to address the deficiency.
To be clear, magnesium deficiency is not likely to be the sole cause of your fibromyalgia – nor should addressing the deficiency be considered as the sole treatment.  You may be surprised, however, at the relief you may find from many of your symptoms after addressing the deficiency.  So lets take a look at three symptoms shared by both magnesium deficiency and fibromyalgia and learn how addressing the deficiency can provide relief.
  • Symptom #1:  Tenderness & Pain
  • Symptom #2: Fatigue & Weakness
  • Symptom #3:  Confusion & Cognitive Impairment

Read more: http://fibromyalgiatreatmentgroup.com/fibromyalgiatreatment/three-symptoms-of-fibromyalgia-that-magnesium-could-alleviate
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 Premier Biomedical Drug Feldetrex For Neuropathic Pain, Fibromyalgia Gains Key Patent Award

Premier Biomedical, Inc. has received approval from the United States Patent Office for their proprietary medication “Feldetrex,” a drug designed to relieve the symptoms of neuropathic pain and fibromyalgia.  The William Beaumont Army Medical Center Principal Investigator is now drafting a protocol in order to conduct a double-blind, placebo-controlled comparison of this medication and the leading FDA-approved regimen for these concerns, which will be submitted for IRB approval shortly.

 http://sacfs.asn.au/news/2014/07/07_04_new_drug_feldetrex_for_neuropathic_pain_and_fibromyalgia_gains_key_patent_award.htm
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Newsletter August 14th 2014

 Welcome to this week's newsletter.  This week we are pleased to share the recording of the second Secrets to Recovery LIVE, broadcast on 28th July.  This session included a summary of our patient survey, an inspirational interview with James Sawyer, and Helen Lynam (Director of Nutrition) talking about Postural Orthostatic Tachycardia Syndrome (POTS) and ME/CFS.

 http://us5.campaign-archive2.com/?u=fcdfb32950f88900216774c4e&id=080651b0bd&e=6252891a01
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 Pledge your support

 Help us to make our voice heard in Westminster and in Brussels; please sign our petition against excessive EU restrictions on vitamin and mineral supplements.
“We the undersigned urge the European Commission and the Governments of the Member States of the European Union to implement the provisions of the Food Supplements Directive (2002/46/EC) in such a way as to ensure that consumers have access to as wide a range as possible of safe, popular and effective higher potency vitamin and mineral supplements; with provision for individual Member States to permit onto their own national market products at higher potencies than the limits set by the Union if they consider it appropriate to local circumstances.”

 https://www.consumersforhealthchoice.com/save-our-supplements/pledge-your-support/
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A personal  note from Vicky
Our competition winner Jackie Bull (left) who has introduced her sister in law Brenda to our classes.
Thank you to all those who took part in our competition, I appreciate your efforts.  Jackie has won free classes for the whole of August.
Happy Birthday to Jackie’s husband Alan, who also comes to class as he is having a ‘noughty’ birthday this month.

 Also:
Education: How HIIT works
Video of the week: Pilates Exercise Video of The week: Single And Double Leg Stretch
Success Story: Linda Hurrell

 http://us4.campaign-archive1.com/?u=1f0fb2b9eada51a6fa54509ba&id=5db6fae613&e=2a0fc40be9
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Hello everyone,  We will soon welcome in the autumn term, hoorah. I always enjoy teaching in September, as students return from the holidays with a new found gusto! Across West Sussex, there is one course for new beginners, where we will start the Chen short form from the beginning on Mondays at 7.30pm in Horsham.  There are lots of ways to study Tai Chi and Qigong with us, feel free to contact me prior to making a start. You can view over the September 2014 calendar here. Thanks for reading and happy training, regards, Nicola.


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GMI Daily Newsletter: 8/13/14

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I had an eye test this week with the optician who first suspected my eye problem last year.  It was good to see her again and I shall be eternally grateful to her for detecting the problem before the cancer had time to spread to other parts of my body.  I am pleased to say that my good eye is still good and does not have any further problems.  I don't even need new spectacles!
Good wishes to all
Stella
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 N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources.  Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com  and you will be added to the emailing list.

Posted by No comments:

FMS eNews 09/08/14

Thanks go to Joan Chappell who responded to last week's blog with a blessings list of her own:-

 "LOVED your latest blog. Just thought I would send you a list of things I enjoy doing.
Joan Chappell
  • Walking (when I can)
  • Listening to Music
  • Reading
  • Listening to Plays on Radio 4, plus of course “The Archers”!
  • Seeing friends
  • Coffee  Mornings at our Church on a Saturday morning
  • Going to the Theatre, when I can

 All things to be grateful for. I count my blessings each night."

 Have you a list of gratitude, blessings or favourite things?
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WORDz for the WEEK

 180.  Love is not when you know you can live with somebody....  It's when you know you can't live without them...
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 From  Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome
When you hear that fibromyalgia is under-researched and poorly understood, it can leave the impression that no one is doing any research. Find out what doctors are really up to, below.
Also, a look at the differences between a disease and syndrome, and between tender points and trigger points.
Down in Featured Articles, I've included some good lists for you.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/3053d6ac0600015e30003171.htm
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What is fibromyalgia? The painful reality of life with FM 

Please read the message from FMA UK 

Dr Miriam Stoppard has set off a foray of correspondence in response to her original article.  FMA UK request you follow this up with letters to MPs.  Please take action as requested.

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 “How Stress Becomes Pain in Fibromyalgia” Pt. II: the Autonomic Nervous System
“The Autonomic Nervous System is the interface between the mind and body.” – Martinez-Lavin
This is the second in our series of blogs overviewing Doctor Martinez-Lavin’s short primer “Fibromyalgia:  How Stress Becomes Real Pain”.  (Note that Dr. Martinez-Lavin has a very specific view of Fibromyalgia, and his is one among many.)
 Martinez-Lavin believes the development of Fibromyalgia is ‘related’ to physical, infectious, or emotional agents (illness, divorce, broken arm, etc.)  that produce stress.  He doesn’t appear to be saying the infections, psychological stress, etc., cause FM, but that the stress response system plays a critical role in this disorder.

 http://www.cortjohnson.org/blog/2014/07/28/stress-becomes-pain-fibromyalgia-ii-autonomic-nervous-system/
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Methylation, Post-exertional Malaise, Disproportionate Immune Responses and Unique Science - the Solve ME/CFS Webinar Series

Suzanne Vernon
A Unique Biobank – and Its  Work
The Solve ME/CFS Initative’s webinar series is back. Their research director, Suzanne Vernon, Ph.D, will start the series off with an update on the SolveCFS research efforts and the SolveCFS’s ‘unique’ Biobank.
The SolveCFS Biobank was one of the first biobanks created for ME/CFS.   Suzanne Vernon predicted the SolveCFS Biobank would lower costs, speed up studies, enhance collaboration, and most of all, attract outside researchers.  Has it? We’ll find out as Suzanne  goes over the research emanating from one of the more comprehensive Biobanks created for Chronic  Fatigue Syndrome.

 http://www.cortjohnson.org/blog/2014/07/29/methylation-pem-immune-unique-science-me-cfs/
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Autoimmune Research Opening Up New Options for Chronic Pain Sufferers 
A Different Kind of Pain
Not all pain is the same. Immune drugs can work very well for some types of pain.
That the immune system might play a major role in producing pain might seem obvious. Inflammation, swelling, and the symptoms of ‘sickness behavior’ including muscle and joint pains are all produced by the immune system when we catch a cold.
Even in Fibromyalgia – long thought to be a quintessential nervous system pain disorder – immune issues are popping up. The small fiber neuropathy found in that disorder could be caused by an autoimmune response, and recent studies have uncovered immune abnormalities involving cytokines.

 http://www.cortjohnson.org/blog/2014/08/01/autoimmune-research-new-options-chronic-pain/
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The Cortisol, PEM and Stress Management Link in Chronic Fatigue Syndrome 
“Given the paucity of effective treatments for CFS, there is an ongoing search for potential intervention targets based on the limited understanding of the mechanisms that govern symptom expression.”

Noting the “paucity” of effective treatments and their “limited understanding” of its disease mechanisms, the authors didn’t pull their punches about how in the dark we are regarding understanding and treating Chronic Fatigue Syndrome.

One area we do pretty much understand about ME/CFS is cortisol – the subject of dozens of studies.  It’s pretty clear now that it’s the cortisol awakening response, not total cortisol levels, that’s primarily off in Chronic Fatigue Syndrome.

 http://www.cortjohnson.org/blog/2014/08/04/cortisol-postexertional-malaise-stress-management-collide-mecfs-study/
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Author Archive for Cort Johnson 

 A selection of articles

 http://www.cortjohnson.org/blog/author/Cortttt/

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 Best and Worst Fibro Drugs 

 Here's some help as you try to treat your fibromyalgia. This quick guide shows the pros and cons of available drugs.
Read Article ›

   • Have More Restful Nights
  • Why You Might Want to Try Yoga
  • When Fibro Saps Sex Drive

http://view.messages.webmd.com/?j=fec9107371610578&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff6d157074&ju=fe8612797067027e7c&r=0
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 Calm Burning Nerve Pain

 Damaged nerves may cause sudden stabs, all-day aches, or even numbness. Learn how to avoid triggers and find relief.
View Slideshow ›

   • What's Hurting Your Eyes
  • 9 Pain Pill Mistakes
  • Top Rubs for Achy Joints

 http://view.messages.webmd.com/?j=fec610737366007b&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff68177071&ju=fe7b1279726c037473&r=0
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 How To Boost Your Energy and Fight Chronic Fatigue with Coenzyme Q10
If you suffer from fibromyalgia then chances are you’re also familiar with the symptoms of chronic fatigue.  Chronic pain can make it difficult, sometimes impossible, to get a restful nights sleep.  As those restless nights add up, our bodies struggle to run on empty tanks.
For anyone feeling the effect of chronic fatigue – Coenzyme Q10 (CoQ10) is an important supplement to be aware of.  Don’t be scared away by the name.  CoQ10 is really much simpler than it sounds.  In a nutshell, it is an energy enzyme.  Your body naturally produces it and it can be found in virtually every cell in your body, helping to produce the energy they need to perform their functions.

 http://fibromyalgiatreatmentgroup.com/fibromyalgiatreatment/how-to-boost-your-energy-and-fight-chronic-fatigue-with-coenzyme-q10
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Fighting Fibromyalgia With Vitamin B12
Among the vitamins that help our body perform its vital functions, the b vitamins are among the most important.  Among other things, they help fuel our body by converting carbohydrates into energy.  This fuel provides the energy required to perform many important cellular functions within the body.
One of the most important b vitamins, as it relates to Fibromyalgia, is vitamin B12.  Vitamin B12 performs two critical functions that have a direct effect on many of the symptoms felt by fibromyalgia sufferers:
Find out what they are:  http://fibromyalgiatreatmentgroup.com/fibromyalgiatreatment/fighting-fibromyalgia-with-vitamin-b12
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DISABLED INDEPENDENT CANDIDATE SEEKS VOLUNTEERS TO HELP HIM STAND FOR BRIGHTON KEMPTOWN IN THE GENERAL ELECTION 7th MAY 2015
CAN YOU GIVE A FEW HOURS OF HELP FOR A DISABLED MAN WITH FIBROMYLAGIA?
His condition has given him word blindness (see Fibro Fog  and C.F.S.). and is not physically strong.
Plus, he needs to use a wheelchair at times and needs assistance in climbing stairs, so you need to be reasonably strong.
Also you would need to take him to meetings, push him around Brighton so he can Campaign.
You can work flexible hours to suit yourself throughout the week and weekend and evenings. by going to meetings and door-to-door campaigning. Two or more hours a week would be a great help.
If you also have any of these skills it would be great; good I.T. skills. Facebook, Twitter. be able to take dictation, type up emails, letters, speeches; read emails, letters, update data to make sure nothing has been missed by word blindness. Updating Facebook, Twitter, Web site and do research on the internet, This job will be 90% computer/paperwork.
PLEASE NOTE THIS PERSON IS STANDING AS AN INDEPENDENT PARLIAMENTARY CANDIDATE              
Contact Joe:- vote4joe2015@gmail.com if you think you can help in any capacity.
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 A personal  note from Vicky
I love Brighton and Richard and I had a lovely walk from the Marina to Hove on Sunday last week.  It was a glorious day.
Also:
COMPETITION Result!!!  Jackie Bull is the winner.  Congratulations!
Education: HIIT Workouts
Video of the week: Pilates Exercise Video of The week: Single And Double Leg Stretch
Success Story: Pru Rajani
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GMI Daily Newsletter: 8/03/14

GMI Daily Newsletter: 8/05/14
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Many links I give offer advice on vitamins and supplements.  These obviously work for some.  I take quite a few myself, so I hope they do some good!


 What about you?  Do you find any particular ones help relieve fibro symptoms?
Fondest wishes to all
Stella

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 N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

Posted by No comments:

FMS eNews 02/08/14

How are those of you with school-age children coping with the onset of school holidays?  I hope some of you will manage a getaway and be able to enjoy it.  Staying at home can be enjoyable too.  Give and take with your children;  get them to help you and treat them in return.  They can be an asset and not a burden. Have fun!
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WORDz for the WEEK

 179. The strange thing about life is that it is never so bad that it can't get worse.
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From  Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

 We all know that stress makes us worse, but new research sheds light on what's actually going on in the body of someone with ME/CFS - and it could be a key to understanding, and lessening, post-exertional malaise. That's below.
Also this week, a bit about tricyclic antidepressants, and a look at some other drug classes - with a special focus on the problems they can cause. That focus will continue down in Featured Articles.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/3053cd718600014108003160.htm
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Getting Older: A Chronic Fatigue Syndrome Patient Faces a Difficult Decision 
It’s the Bones, Stupid

 The endocrinologist and gynecologist both gasped at the results of my latest bone density scan. “If you don’t do something, you’ll wind up in a nursing home soon,” warned  the endocrinologist.
They insist that I take either Prolia or Reclast, heavy duty medications known to either slow down bone loss or rebuild bones.  
But possible side effects described by the flashy brochures with the pictures of radiant aging actresses, are distressing (flu-like symptoms, weakness – thank you, I already have those) and even hair-raising (osteonecrosis of the jaw), especially for someone who already feels as if she’s suffering from the side effects of something or other. And because these medicines are administered either intravenously or intamuscularly only once or twice a year, who knows how long any side effects might last?

 http://www.cortjohnson.org/blog/2014/07/23/getting-older-chronic-fatigue-syndrome-patient-faces-difficult-choice/
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Diet, Drugs, Herbs and SIBO: One ME/CFS/FM Finds Relief with the Pimental Approach 
Small Intestinal Bacterial Overgrowth (SIBO)
Small Intestine Bacterial Overgrowth or SIBO is a chronic condition or infection of bacterial overgrowth in the small intestine. Normally the small intestine has low numbers of bacteria and the large intestine has high numbers of bacteria; however, in SIBO bacteria exist in large numbers in the small intestine which interferes with proper digestion and can lead to nutritional deficiencies.

 http://www.cortjohnson.org/blog/2014/07/25/diet-drugs-herbs-sibo-one-patients-experience-pimental-approach/
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Measuring Blood Volume in Chronic Fatigue Syndrome – the Daxor Way 
 “For the first time, physicians have access to technology which enables them to obtain blood volume measurement rapidly and with a high degree of precision.” – Daxor Corporation
Blood volume is often low in ME/CFS, but it was not until recently that an accurate and easy method of measuring it was possible.
Some people with Chronic Fatigue Syndrome (ME/CFS)  have been doing a bit more travel lately. It used to be that blood volume measurements were done at local hospitals, but with the advent of a more precise method some patients are traveling, sometimes hundreds of miles, to get to a medical center/research hospital that will do the test right. What do all these medical centers have in common? They have a Daxor BV-A 100  blood volume measurement machine. Blood volume measurement has never been done a lot even in ME/CFS, where blood volume is often quite low, and there’s a reason for that.  Past techniques required spending 4 to 8 hours at a hospital, and on top of that weren’t very precise.  Instead of actually measuring blood volume, they measured the  ratio of red blood cells to plasma (higher ratio indicates higher thickness of the blood).  If you were missing equal amounts plasma and red blood cells, though, as many POTS and ME/CFS patients are, the test can indicate your blood volume is normal when it’s not.

 http://www.cortjohnson.org/blog/2014/07/27/measure-blood-volume-chronic-fatigue-syndrome/
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Prevalence of falls in fibromyalgia patients

 CONCLUSION
Our results suggest that patients with FM have greater frequency of falls than RA patients and normal controls. In the study sample, no relationship could be demonstrated between falls and BMI, depression or pain. Patients with more frequent falls in 12 months have worse quality of life. Even though this is retrospective study with all the recall bias involved in the project, we highlight the higher prevalence of falls in FM patients and it is suggested that further studies ought to be made in order to understand the pathophysiology of falls in this population.

 http://www.actaortopedica.com.br/artigos/volume22_n3_ingles_11.pdf
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The fibromyalgia stigma: When law enforcement, not pain management, wins
A patient who mentions the “F” word, or fibromyalgia syndrome (FMS), to most primary care physicians, hospital residents, specialists and even pain management clinics, is liable to be labeled as a ‘drug seeker’and not a serious patient.
The truth is, those who are diagnosed as having FMS are seeking drugs, but not for recreational use. They want medication to relieve the agony that FMS brings to their health table.

 Read more at http://www.commdiginews.com/health-science/the-f-word-fibromyalgia-21189/#YXHw8hMVtTIV5LoG.99
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 Women with Fibromyalgia Have a Real Pathology Among Nerve Endings to Blood Vessels in the Skin.
A rational biological source of pain in the skin of patients with fibromyalgia
What the team uncovered was an enormous increase in sensory nerve fibers at specific sites within the blood vessels of the skin in the palms of the hands. These critical sites are tiny muscular valves, called arteriole- venule (AV) shunts, which form a direct connection between arterioles and venules. The discovered pathology involving the nerve endings to the shunts provides a logical explanation not only for extreme tenderness in the hands, but also for the widespread deep pain and fatigue symptomatic of fibromyalgia.

 http://origin.library.constantcontact.com/download/get/file/1115572560783-4/WINTER+LIFE+2014.pdf
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 The Chrysalis Effect News
Dear Chrysalis Effect Community
Did you hear me having a hissy fit?
This week we had some very frustrating things happen with the system that runs the emails, webinar bookings and payment pages in the business. I won't bore you with it all but I had a moment, you know one of those moments, of sheer frustration and got quite angry.
'Why does this system not do what I want it to do at the speed I need it to do it and why does it always cost money to sort out the problems!
[I ranted quite a bit actually, but I will spare you]
Then I had a call from a recoverer who has just started the programme and could really feel how sad she was at where her life is right now. She was frustrated that her body would no longer do what she wanted it to do and how long everything takes and worrying about what recovery will cost.

 Read rest of newsletter: http://getyourlifeback.s3.amazonaws.com/July2014News.pdf

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  A personal  note from Vicky
 One goes though phases in ones life and I feel we have ended a chapter.  My daughter moved (with a lot of help from Mummy and Daddy) into her own property - a two bedroomed flat in Battersea and the picture is a view from her road.  She can walk to work a real bonus in these days of high train fares.  We are so very proud of her.

 Also:

  • COMPETITION TIME!!! The competition winner is going to be announced next week. 
  • Education: Holiday tips for back pain suffers.
  • Video of the week: Pilates Exercise Video of The week: Dead Bugs
  • Success Story: Cathy Martin

http://us4.campaign-archive2.com/?u=1f0fb2b9eada51a6fa54509ba&id=2dbe643bcd&e=2a0fc40be9
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 It's not too late to book into this month's Girls Nights In
The Black Horse,  Mountain Range Restaurant & Bar in Findon near Worthing
Wednesday 6th August, 7pm-10pm 

 Book in on line here 

 Read more: http://us2.campaign-archive1.com/?u=c7d20b59d20e84ac52bbadaa9&id=b4fb548a88&e=8911b240ec
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What do patients and carers WANT from health apps?

 The survey is being conducted by PatientView in collaboration with Health 2.0, with the input of relevant healthcare stakeholders (policy-makers, suppliers of apps and mobile services, and healthcare professionals).
The results of the survey will be made public on November 10th-11th 2014 at the Health 2.0 conference in London, which attracts about 500 delegates. The 2014 conference is focusing on engaging the entrepreneurs who are behind the development of health apps.
So, the results of this survey should go some way to providing valuable information to app developers about how to improve their apps to meet your needs.

To participate go here: http://www.surveymonkey.com/s/HEALTH-2
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 The unexpected knock at the door is the DWP rule, not the exception

 An unexpected knock at the door. Someone standing there with an ID card claiming they have come to check if you are getting the correct benefits and could they please come in?
What do you do?
You don’t have to be guilty of anything to find the possibility of such a visit very alarming – especially if you have a mental health condition made worse by stress and anxiety.

 Read more:- http://www.benefitsandwork.co.uk/news/2837-newsletter-30-july-2014

 For previous newsletters go to http://www.benefitsandwork.co.uk/news
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 The Disability Benefits Consortium (DBC) is a national coalition of over 50 different charities and other organisations committed to working towards a fair benefits system.
This survey is about the new Personal Independence Payment (PIP). 
We want to find out more about disabled people’s experiences of applying for and getting this benefit. 
The survey has seven parts and should take about 20 minutes to complete. In order for us to understand your experience of the whole process of applying for PIP, this survey is best completed once you have gone through your application for PIP and know the outcome.
Your views are incredibly important and will help us to tell the government about any problems or issues with the process that need to change.

 http://www.surveymonkey.com/s.aspx?sm=RpNH52WtxAavjo4%2bQfoEaHHGu%2bWKCsIuLtte3IZK4HA%3d
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Register for this Free International Event!  The Detox Summit

GMI Daily Newsletter: 7/31/14
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I've been counting blessings again.  

Things that keep me happy.

  1. Sudoku puzzles
  2. Crossword puzzles
  3. Talking Books (Playaway, available at public libraries; and if you have a sight problem, they're free.)
  4. Magnesium, the great relaxer!
  5. My bed that welcomes me each night, and sometimes during the day!!
What keeps you happy?
Fondest wishes

Stella
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 N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should 
always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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