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FMS eNews 30/04/2016

I have been very 'under the weather' this week with a cold; sore throat, coughing, sneezing, streaming nose, apathy, fatigue etc.  I can't remember the last time I had a cold.  I thought I was immune with all the vitamins and supplements I take, but alas, not so.  My immune system must be shattered.  Despite this I have managed to put together quite a package for you.  But I have NOT kept up with emails!  I get so many of them I can't deal with them all.  So if you have been trying to contact me, I apologise for my absence.

WORDz for the WEEK

270.  Faced with a crisis, the man of character falls back on himself.


Some questions get asked over and over. A big one for parents with these conditions is whether they can pass it on to their kids. The answer to that and more are below.
Remember the up-coming changes I talked about? They're here! You'll notice a different format and some other changes to the articles, and I hope you'll take a few minutes to explore the site as well.
Take care of yourself!
Adrienne Dellwo - Fibromyalgia &Chronic Fatigue Expert
Read Adrienne's articles . . .

A message from Beth

35 members, family and friends have joined and helped raise £21.29 in the last 30 days. Imagine if 350 signed up! We have done this just doing what we do anyway and hasn't cost us a penny more. We all shop at some point. Complete the form (link attached) and every time you shop online a donation will be made to Fibro Flare Awareness Group. You can also link to your debit/credit card for when you actually shop in stores.
Go on ... help us to help you. It's safe and secure. The link will automatically add donations to our awareness fund.

Support a good cause

Sign up to easyfundraising to support Fibro Flare Awareness Group.

Make a Fibro Mask #fibromask to mark the Fibromyalgia Awareness Day and share it with the world!

This year for the Fibromyalgia Awareness Day on the 12th May we encourage you to participate in a fun and creative art therapy activity together with us! Many thanks to our volunteer and an art therapist, Amanda Mckinlay, who inspired us to share this with you and to do our masks, too.
Amanda explains how this works: ‘’The ‘’two sided mask" idea really struck a chord with me with regards to living with fibromyalgia. The idea is that you decorate the mask with one side showing the face you portray to the world & the other showing how you really feel. This hit me as being perfect for fibro because often, to save trying to explain how you feel to someone who won't understand or because you don't know how to put it into words we just put on a happy mask & say "I'm fine" or on the other side of things often people say to us " you look well" when we don't feel it. I'd also seen quite a few mask themed posts on a few fibro themed social media pages & talked to some friends who agreed it'd be a good idea for an awareness project & that's why I contacted the charity.
Read more about art therapy . . .
Get Blank mask . . .  (PDF) or here (JPG)


Fibromyalgia is real… How has it impacted your life ?

Let The Fibromyalgia Summit teach you to heal from within!
To receive updates and reminders before the event beginning May 12th, Register now!

Read about the FM Summit on Sue Ingebretson's blog . . .


5 Facts About CBD Oil and Fibromyalgia

CBD Oil and Fibromyalgia
There has been a lot of buzz in our fibromyalgia community lately about the use of CBD oil products. We had never even heard of these products until about a month ago when we started noticing a large number of positive comments about it on our Facebook page. Since then we’ve been doing a lot of research and soliciting feedback from our community members. Two things have become apparent to us: (1) feedback from those who have tried CBD oils has been overwhelmingly positive, and (2) there is still a lot of confusion and misinformation out there about these products.
Below are 5 important facts about CBD oil products that we thought our community would find helpful and informative.
Find out the facts . . .


Nath Digs Deeper Into Big NIH ME/CFS Study: Warns of Push Back

The Solve ME/CFS Initiative’s webinar with Avindra Nath revealed again what an extraordinary study the NIH intramural study at its Clinical Center is.  The Webinar started off with Dr. Nath stating that it was “such a pleasure” to talk to the chronic fatigue syndrome community, and that he was “absolutely thrilled” to be leading the study.
His interest in ME/CFS derives from the patients he’s seen over the years (he’s an MD) as well as patients he’s seen in the multiple sclerosis clinic. Fatigue, he noted, is the most disabling part of MS. Given the immune nature of that illness as well as the effects MS drugs can have on fatigue, he thought it was likely there was an immune basis to ME/CFS.  (He also mentioned the Rituximab studies).
On that note be sure to check out, if you haven’t, one ME/CFS patient’s rather amazing  response to an MS drug:  A Chronic Fatigue Syndrome/POTS Patient Responds to a Multiple Sclerosis Drug – What Does It Mean?
Read the rest of the report . . .


Relieve Your Headache And Stress With Acupressure In 30 Seconds

Acupressure is an alternative therapy that derives from traditional Chinese medicine and is one of numerous Asian bodywork therapies.
In this traditional therapy, the theory is that the body has special “acupoints”, or acupressure points, that can be found along invisible “energy channels” of the human body. These are the same points that are targeted for acupuncture and part of the same overall system or theory. These channels are believed to be the passage of the body’s vital energy or the life force called Qi.
There are 12 channels that connect the different organs of the body, so the tradition believes. These points start at the fingertips, travel to the brain, and then disseminate to various channels that reach a specific body organ.
Like any other therapy, the desire of acupressure is to be an effective means to stimulate the body and relax the muscles. When acupressure is regularly practiced, this self-massage technique is believed to improve health and minimize recurrence of illnesses.
The most common, and probably the easiest point to target for acupressure, is point between the thumb and index finger – as depicted in the image. This is called the hook spot in Chinese medicine. It is widely reported to be the most effective target point for relieving headache and numerous people agree that self-massage of this pressure point brings relief.
Find out what to do and about the 7 other well known Acupressure points . . .



Folly Pogs Fibromyalgia Research UK may be a silly name but please remember it carries a lot of support for life changing experiences.
Folly Pogs is easier to remember than fibromyalgia, although we have been called Polly Fogs. There are 29 folly synonyms – words that mean the same - including witlessness and even preposterous, not to mention ‘a dumb thing to do’.  Pogs were round pieces of card, a little bigger than a £2 coin, with pictures on one side. They were part of a children’s a game but Folly Pogs means business in the research field.
Read more about Folly Pogs and the fight for fibromyalgia research . . .
Donations can be made here  - Fundrazr appeal by Fibro Flare Magazine on behalf of Folly Pogs

Other articles by Jeanne


Message from Shayne E Town

Hi guys! Time to pre-order my new Fibromyalgia book - signed. 'True Journey from Within, The Englishman with Fibromyalgia'.
The cost is £8.80 which includes post & packaging.
Live abroad? No problem:
The cost is £13.80 includes post & packaging.
Once books arrive they will be posted straight away...
You can pay by Paypal, Cheque or Postal Order - contact me for details. If you pay through Paypal please leave your name and full address in block capitals within PayPal.. So I know where to post the book. if you pay through PayPal please select payment with friends and family otherwise it costs me to receive payment.
Thanks guys. I hope you will all enjoy the book as much as I did writing it.
Royalties from the book will go to fund research. Thanks for your support to find a much needed cure for fibromyalgia sufferers. We have suffered for far too long. X
Read Stella's review of the book



If Your Fibromyalgia Could Text You, It Might Look Like This

Fibromyalgia is a chronic disorder characterized by widespread pain, diffuse tenderness, extreme fatigue and a number of other symptoms, according to the National Fibromyalgia Association. The invisible illness manifests itself in a variety of ways, and it can be a real pain in the neck — like an unwanted friend who just. won’t. stop. texting. you.
See what texts might be like . . .

When I Feel Like Everyone Moved On While I'm Stuck in My Life With Chronic Illness

Have you ever felt like everyone has moved on after something huge has happened, but you haven’t yet? That feeling like you’re getting sucked down by this enormous event — as if you were stuck in quicksand — and everyone just keeps walking and they don’t look back? They just assume you’re keeping up the pace with them? Well, that’s how I’ve been feeling.
Read on . . .

What the Media Got Wrong About Jennifer Aniston's Portrayal of Chronic Pain

As someone who deals with chronic pain — it’s an almost daily reality — I waited with anxious anticipation to see “Cake,” and scoured every review I could find on it. When I finally saw the film I was impressed; Jennifer Aniston’s portrayal of pain was so raw, so intense, and so spot-on.
Read more on pain in the context of  'Cake'. . .



This section is included because it provides general health education, but not necessarily fibro related.

If you are in the UK I hope you have an enjoyable 'May Day' Bank Holiday weekend.
Well wishes to you all

or leave your comments below under 'Post a Comment'


N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in GREEN like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  The sites included are in alphabetical order.  If you have any navigation problems, let me know.
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgments, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in any way should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity although I do work in conjunction with other bloggers and Facebook groups.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to and you will be added to the emailing list.

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