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FMS eNews 24/10/15


WORDz for the WEEK

243. Think happy thoughts . . . think happy thoughts . .. think happy thoughts


Are FMS & ME/CFS in Your Genes?

First, I want to apologize for last week's newsletter. What you got was an automated version, which I usually edit extensively. I had a rough week and lost track of my days, and by the time I realized it was Friday, it had already gone out. I'll make sure it doesn't happen again!
 This week, we look at the genetic component of our illnesses, and I've also included a lot of expanded definitions of terms we should all know.Take care of yourself! 
Adrienne Dellwo - Fibromyalgia & Chronic Fatigue Expert


1 Sugar that Fights Disease, Chronic Conditions and Weight Gain

It's happening in small, private clinics...
And it's happening in the largest, most respected hospitals in the world...
A rising tide of doctors and health care providers are now urging their patients eat this "life-giving" sugar every single day.
They're not just recommending it to give a "slightly better alternative" to other sweeteners either. They're prescribing it to treat life-threatening diseases, heal chronic conditions, and keep people looking and feeling their very best.
What is this sugar?
If you guessed honey, then you're absolutely right. For we've all heard about how honey is a remarkable substance. We've heard about how it "doesn't go bad". Or about how archaeologists found unspoiled, 2000-year-old honey in an Egyptian tomb.
Read on . . . you don't have to buy the books - unless you want to.


10 common symptoms of Fibromyalgia & natural remedies to help

Pain all over, exhaustion, bloating and constantly forgetting things are but a few of the many symptoms often associated with fibromyalgia. You may experience all of these symptoms, some of these symptoms or other symptoms. For some, the symptoms are present every day, for others, only on some days. This is not to mention the varying intensity of symptoms from day to day… confused yet? Now you know why it is so frustrating for you and your doctor when trying to diagnose this syndrome.
The effect of fibromyalgia on the system varies from person to person; however, there are some common symptoms which frequently occur together. Recognising these symptoms and understanding how to treat them naturally can help you to manage your fibromyalgia better.
Who does fibromyalgia affect?
How to diagnose fibromyalgia
Common symptoms and natural remedies

 1. Widespread pain
 2. Fatigue
 3. Sleep problems
 4. Fibro Fog
 5. Digestive problems
 6. Headaches
 7. Sensory sensitivities
 8. Stiffness
 9. Stress & Anxiety
10. Mood swings


Webinar with Amanda Collins - Elephants, Tigers and Police Sirens.

Elaine Wilkins
Elaine Wilkins ingterviews Amanda about her fibromyalgia, workloads, family problems and how she overcame them

See also latest Newsletter and Website


This week’s fibromyalgia and ME/CFS news (week of Oct. 19, 2015)

Hi everyone! Here’s this week’s fibromyalgia and ME/CFS news roundup. Some highlights:
  1.     Indiana’s Cymbalta withdrawal lawsuits won’t be consolidated
  2.     Styx lead singer sues band members for touring without him after ME/CFS diagnosis
  3.     Australia legalizes medical cannabis.
  4.     How doctors take women’s pain less seriously
  5.     What not to say to someone living with chronic pain
  6.     ME/CFS linked to H1N1 infection
  7.     Tips for less painful mammograms
  8.     Plus research news, personal stories and much more
 Please consider sharing this link if you find the content valuable.


Hello !

If you are a new subscriber, I just wanted to highlight some of's most popular posts, so you can get a sense for all of the great content that will be coming to you in the future. Here goes:
Quitting Cymbalta? What You Need to Know Before You Take that Last Pill
- More than 200 U.S. Cymbalta patients are suing drugmaker Eli Lilly & Co., claiming the company has not been forthcoming about the antidepressant's withdrawal symptoms. If you are or were a Cymbalta user, then you don't want to miss this post!

What You Need to Know About CBD Oil & Fibromyalgia
- What is CBD oil? Does it work? Is it legal? Find out everything you need to know in this post!

The Fibro Drug Your Doctor Probably Doesn't Know About
- If nothing has worked to help relieve your fibromyalgia pain, then you might want to take a look at this post!

Need Energy? Why D-Ribose May Become Your Next Favorite Supplement
- If you're struggling with fatigue, then adding d-ribose to your supplement regime might help!

Why Your Fibro Meds Aren't Working
- Ever wonder why Cymbalta and Lyrica work for some people and not others? Find out the answer here!

Playing the Chronic Illness Blame Game
- Before you blame that new symptom on "just fibro," you better read this!

This is just a sampling to get you started!
Is there a topic that you'd like me to do a post on? Email me and tell me!
Gentle hugs,
Donna Gregory


Fibromyalgia And Ineffective Sensory Processing. What Are The Facts?

Fibromyalgia sufferers are well aware that pain and discomfort can easily be triggered by certain sensory experiences like light, sound, and touch.
Sometimes, even the softest noise can sound like pots and pans banging around the kitchen sink. But is this sensory overload a symptom of fibromyalgia? Or is ineffective sensory processing linked to the cause of fibromyalgia? Let’s look at the facts.
Although scientists and doctors have been researching the cause of fibromyalgia for decades, there has been no conclusive evidence that proves the cause of the condition. It’s very frustrating, which is why the researchers continue to look for answers. . . .


7 Things I Wish I’d Known When I Was Diagnosed With Fibromyalgia

We’ve all heard the old adage that “experience is the mother of wisdom.” For me, this has certainly proven to be true. With regards to fibromyalgia, there is a lot that time and experiences have taught me. Some of these things I wish I’d known when I was first diagnosed, but for a variety of reasons (i.e. my own stubbornness, lack of reliable info at the time, etc.) the learning process took me years.
Truth be told, there is still much to be learned and a lot I wish I understood about fibromyalgia but still don’t. However, as I reflect back on many of the lessons I’ve been taught I know a lot more now than I did when my journey first began. Here are a few of the biggest lessons I’ve learned that I wish I’d known (or believed) when I was first diagnosed with fibromyalgia:
  1.  It’s Okay to Say “No”
  2.  Listen to What Your Body is Telling You
  3.  Diet & Nutrition Can Make a Difference (but everyone is different)
  4.  Find Ways to Reduce “Decision Fatigue”
  5.  Find Positive Ways to Handle Stress
  6.  Alternative Exercises Like Yoga Can Be Helpful
  7.  Think Holistically About Your Treatment

"Complete Relaxation"

Glenn Harrold is one of the world's most successful hypnotherapists. He has helped thousands including many celebrities in a 20-year-career and has sold over 6 million hypnosis CDs, MP3 downloads and Apps.
His hypnotherapy titles are well established as the UK's best-selling self-help CDs and downloads of all time, they still consistently top the self-help audio charts on Amazon, iTunes, Audible and the App Store.
You can buy his books and CDs or download a free iphone app.


What Is Tired and Wired?

This video explores the concept of being ‘tired and wired’ and its relationship to CFS/ME.
Alex explains what the difference is between “normal tiredness” vs the “wired” feeling experienced as part of ME/CFS. This is often referred to as being ‘tired and wired,’ and in this short video Alex explores the impact of being wired.
Click on the video below to learn more.


We hope you enjoy and please do forward on to anyone you think might find it useful...


United Nation’s investigation in the UK concerning the human rights of disabled people- submission deadline

I reported last year that the UK is to be investigated formally by the United Nations because of allegations of “systematic and grave” violations of disabled people’s human rights.
In August I wrote that officials from the United Nation’s Committee on the Rights of Persons with Disabilities (UNCRPD) are to visit Britain. The inquiry is confidential, and those giving evidence have been asked to sign a confidentiality agreement.
A United Nations team have arrived in the UK and it’s understood they will visit Manchester, London, Bristol, as well as parts of Scotland, Wales and Northern Ireland.
The United Nations team are also expecting to meet with the Equality and Human Rights Commission, members of parliament, individual campaigners and disabled people’s organisations, representatives from local authorities and academics.
The team will be gathering direct evidence from individuals about the impact of government austerity measures, with a focus on benefit cuts and sanctions; cuts to social care; cuts to legal aid; the closure of the Independent Living Fund (ILF); the adverse impact of the Work Capability Assessment WCA); the shortage of accessible and affordable housing; the impact of the bedroom tax on disabled people, and also, the rise in disability hate crime.


Sleep Easy Workshop by Caroline Hinkes

Saturday the 31st of October, or Saturday the 28th of November
Arrival time is 9.30am, The Workshop will run from 10am-1pm
South East Cancer Help Centre ( ) , 2 Purley Road (near Tescos), Purley CR8 2HA
Details in a Word document
Caroline is offering this workshop to FM patients for £10 instead of £25.  So, a bargain if you are within reach of Purley.
Contact Caroline for more information or to make a Workshop Booking
Please email with ‘sleep workshop booking’ in the subject box, or visit her website




I had a day out on Thursday when I went to Southampton! Not a pleasure trip, but to South Hants Hospital for an MRI liver scan and to Southampton General Hospital to see the oncology specialist.
Fortunately the results were encouraging - no metastasis.  Glad that's over with for now. Next visit will be in April. 
Don't forget to put your clocks back tonight!
Sleep well


or leave your comments below under Post a Comment 

N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in PURPLE like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  If you have any navigation problems, let me know.
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to and you will be added to the emailing list.

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