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FMS eNews 17/10/15



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WORDz for the WEEK

242.  In the book of life, the answers are not in the back.


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Can Yoga Help with Chronic Fatigue Syndrome?

Adrienne Dellwo - Fibromyalgia &Chronic Fatigue Expert

Can Yoga Help with Chronic Fatigue Syndrome? 
See what research says about the effect yoga may have on chronic fatigue syndrome. Get an example of a regimen that worked with making symptoms worse. 
READ NOW


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Fibromyalgia Tied to Hysterectomy, Gynecologic Disease 
Hysterectomy and other gynocologic surgery may be linked to the onset of fibromyalgia. See what we know about the connection. 
READ NOW


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Titer Test 
Get a definition of titer test and see how it's sometimes used in chronic fatigue syndrome. 
READ NOW


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Could Vitamin E & Protein Ease Fibromyalgia Symptoms? 
See what research says about protein and vitamin E consumption and the impact they can have on fibromyalgia symptoms and quality of life. 
READ NOW


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See how ActiPatch is changing lives!



See also this presentation


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The Tragic Neglect of Chronic Fatigue Syndrome

It leaves people bed-bound and drives some to suicide, but there's little research money devoted to the disease. Now, change is coming, thanks to the patients themselves.
This past July, Brian Vastag, a former science reporter, placed an op-ed with his former employer, the Washington Post. It was an open letter to the National Institutes of Health director Francis Collins, a man Vastag had formerly used as a source on his beat.
“I’ve been felled by the most forlorn of orphan illnesses,” Vastag wrote. “At 43, my productive life may well be over.”
There was no cure for his disease, known by some as chronic fatigue syndrome, Vastag wrote, and little NIH funding available to search for one. Would Collins step up and change that?
Read more . . .


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Amitriptyline Side Effects

Not all side effects for amitriptyline may be reported. You should always consult a doctor or healthcare professional for medical advice. Side effects can be reported to the FDA here. http://www.fda.gov/Safety/MedWatch/default.htm
For the Consumer
Applies to amitriptyline: oral tablet
In addition to its needed effects, some unwanted effects may be caused by amitriptyline. In the event that any of these side effects do occur, they may require medical attention.
You should check with your doctor immediately if any of these side effects occur when taking amitriptyline
(Around 150 symptoms of possible side effects are listed!  Explore the site for other drugs too.)


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This week’s fibromyalgia and ME/CFS news (week of Oct. 12, 2015)

Top stories …
Market researcher predicts more than 1 million new diagnoses of fibromyalgia by 2023.
Judicial Panel refuses to consolidate Cymbalta withdrawal lawsuits – again.
ME/CFS gets more mainstream media coverage! This week The Atlantic magazine featured “The Tragic Neglect of Chronic Fatigue Syndrome.” Here’s a teaser: “It leaves people bed-bound and drives some to suicide, but there’s little research money devoted to the disease. Now, change is coming, thanks to the patients themselves.”
Louisiana (U.S.) woman with fibromyalgia sues Life Insurance Company of North America after they canceled her disability coverage and told her to get a job.
Struggling to get dinner on the table? Then, these “9 Tips for Cooking with Chronic Pain” might be useful.
Well, this doesn’t happen often: Physicians and patients generally agree on the criteria to diagnose fibromyalgia, finds prospective study.
And loads more . . . .


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I think I’m getting better (and here’s how I’m doing it)

. . . When I got sick several years ago, I never accepted that I’d spend the rest of my life exhausted and in pain. I kept looking for answers. I’ve tried so many things over the years to manage my symptoms. Some stuff has helped (like low-dose naltrexone and CBD oil), and a lot of it hasn’t, like the drugs prescribed by my well-meaning rheumatologist.
But I think I may have finally found what works for me. If you’ve been following me for a few months, then you might have read that I’m a new-ish patient of Dr. Rodger Murphree. Dr. Murphree practices functional medicine out of Birmingham, Alabama (U.S.). For the past 18 years, he’s specialized in treating fibromyalgia and works with patients all over the world via phone consults.
Dr. Murphree doesn’t promise a cure for fibromyalgia, but he does have a good record of helping fibro patients feel better. His basic philosophy is that most pharmaceuticals don’t treat the underlying cause of disease; they just mask symptoms and often with bad side effects. He focuses on using vitamins, minerals and amino acids to restore the body to health. (My words, not his.)
Read on . . .


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You Only Live Twice - by Purple Law Lady  


Agent 007 and the secret Japanese company Daiichi Sankyo must find and stop the true culprit of a series of attacks on visual and auditory regions of the brain in fibromyalgia patients.

Guess what I did today!
After only 5 hours sleep (I was up ‘til 3am with friends drinking vodka), I went to an appointment, stopped at the nursery to pick up some plants and soil, did some gardening, played with Kimba, finished the laundry and made some important phone-calls. Pretty cool, huh?
The appointment I went to was for another drug trial check-up. I bounced in, a little hung-over but full of beans. I’m feeling like the old me – could this be a second chance at my life?
The doctor and nurse practitioner looked on kinda stunned. (Remember, none of us know exactly what drug I’m taking.) I’m kinda stunned…on Sunday, I realised that I was happy – really happy – and I don’t know when I last felt happiness. I guess antidepressants just keep you on an even keel and you don’t realise that you’re not happy; you just know that you no longer feel so bad. I find myself singing to the radio where, before, I couldn’t handle the radio even being on.
Read on . . .


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Is There A Link Between Food Additives And Fibromyalgia?


Recent studies have shown that food additives may increase symptoms of fibromyalgia. Although there is no proof of a complete cure for fibromyalgia, the foods you eat might just help your symptoms. But what are food additives and how do they affect fibromyalgia sufferers?
You might know food additives by the names of MSG or aspartame. Those are just common examples seen in everyday foods like diet sodas. These food additives are in the category of “excitotoxins,” which is also a naturally occurring substance in the brain. The normal function of these excitotoxins is to get your brain firing quickly, which helps you learn and retain information. In fact, you’re using them right now! But what happens when we add artificial excitotoxins to our body?


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Best and Worst Foods for Sleep

What to eat before bed - by Amanda Gardner
1. of 18.  From early birds to night owls, we all can agree that when we finally lay our heads on the pillow we’d like to actually go to sleep, thank you.
Nothing is more annoying than insomnia, and the evidence is piling up that sleep is essential for good health. Although the research is a bit spotty when it comes to which foods help or harm sleep, anecdotal evidence does suggest that certain items consumed right before bedtime are more likely to be “sleep promoters” while others may be “sleep stealers,” says Russell Rosenberg, Ph.D., CEO of the National Sleep Foundation.
 See 2 - 18.


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ME/CFS/FM Webinars, Survey, Summits and Health Rising’s New Look


Sometimes things all seem to happen at once. This is one of those times. There’s lots going on this month.
Webinars, TV Shows, Conference Calls and Summits
Alan Light On “New Developments in ME/CFS”
Alan Light graphs showing almost off the chart changes in gene expression in ME/CFS patients is perhaps the most vivid visual portrayal of post-exertional malaise yet produced. One of the few ME/CFS/FM researchers to consistently get NIH grants, Alan Light has produced 9 papers, mostly on the effects of exercise on the gene activity in ME/CFS, FM, depression, prostate cancer, depression and multiple sclerosis.  He’s on the cutting edge of understanding how PEM occurs.


Carol Head doing an impromptu interview with Dr. Light



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When Panic Isn't: Dr. Bell on Maggie's ME/CFS and Fibromyalgia Story


"CFS, and the patients who suffer from it, have a great deal to teach those of us who have made medicine our life. Once researchers unravel the physiologic mechanisms of this illness, the discoveries will help unravel basic mechanisms of unnumbered other diseases." Dr. David Bell MD​
(Dr. Bell's case history of a patient, Maggie, with chronic fatigue syndrome and fibromyalgia plus panic attacks is excerpted from Dr. Bell’s book Faces of CFS - Case Histories of Chronic Fatigue Syndrome,* published in August, 2000.
It shows how an expert diagnostician can tell the difference between a panic disorder and ME/CFS and fibromyalgia. In Maggie's case her prior doctors had zeroed in on symptoms similar to those found in panic attack (heart racing, face flushing, lips quivering) while ignored symptoms that were associated with ME/CFS (exhaustion, cognitive problems, leaden feelings in limbs, sore throat, IBS symptoms). Their diagnosis incorrect Maggie received treatments that did nothing for her - until she Dr. Bell who correctly diagnosed with orthostatic intolerance and ME/CFS/FM and gave her appropriate treatments - Cort)
Read Maggie's story.


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8 Nutritional Powerhouses You Can Add To Your Water To Support Digestion, Hydration and Cleansing


How many of us actually follow the “eight glasses of water a day” rule? Plain water can be a bore to drink, especially if a person’s day doesn’t include strenuous activities. But there are ways to help make water more inviting to drink! Adding herbs, fruits, and vegetables to your water not only adds flavor but might make your water healthier. We’ve picked out 8 scientifically-backed nutritional powerhouses to support digestion, cleansing, hydration and all round good health. [1]
1. Fruit (Citrus Or Berries)
Those restauranteurs were on to something by adding lemon to the water. Beyond adding a pleasant taste to other wise plain water, using lemon zest, peel, or juice to water also adds much needed Vitamin C to the drink. You can use the citrus of your choice, strawberries, blackberries, raspberries and more.
See 2. - 8. as well!


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Top 20 Natural Painkillers In Your Kitchen


Just discovered a fantastic, fascinating list of natural painkillers that are common kitchen ingredients! What’s interesting is that the list is not just a basic list – but also gives specific information as to the type of pain that researchers have found that these natural ingredients may assist with – and the way in which the food is used (not all of the remedies involve actually eating the herb / food in question!)
This list is absolutely incredible – and the uses are based on reports from scientific research (this info is included at the source article – link at the foot of my commentary). The original list is a bit of a long read though, requiring much scrolling – and so we thought it might be good to seem them all “at a glance” – so for those who want to “skim” through the list really quickly, I made a “short version” of the top 20, together with a summary of the condition each item is used for.


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Amazing Health Benefits Of Nuts


Nuts Are Energy-Dense Foods
Nuts are rich in protein, dietary fiber, vitamins, minerals, anti-oxidants, and phytoesterols – all of which have great health benefits for the prevention of cardiac disease and diabetes type 2. A study in 2014 by Jackson and Hu actually suggest eating handful of nuts each day to replace less healthy snacks, like junkfood and sodas, because they are much healthier.
Nuts have come under criticism by some because of high fat content, but research has shown that the fats they contain can be considered as “good fats” – which do not cause weight gain because their high calorie intake is easily absorbed and metabolized by the body into energy.


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600 Reasons Turmeric May Be The World’s Most Important Herb


We found a simply astonishing page all about Turmeric and had to share! I honestly think it is one of the best pages about a herb I have ever seen (and I’ve seen a fair number!) The link is after our commentary.
There are several things that are amazing about the page we discovered. First – of course – the fact that there is scientific research to support the notion that turmeric may be beneficial for a staggering 600+ conditions. It is one of the world’s most studied items for medicinal potential, with over 4000 scientific studies being recorded overall.
Read more . . .


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I Am The Woman: One Woman's Struggle With Fibromyalgia


I wish I could start this with Once Upon a Time and create a happy ending, but unfortunately this is nowhere near a fairy tale and my story has not come to an end.
I am a mother, wife, artist, foodie, writer, animal lover, health advocate, candle maker, crafter, DIY expert and becoming a pretty good Frugal shopper. I also have Fibromyalgia which has progressively gotten worse and has left me unable to work for the last two months!
This has taken a toll on my emotions and my womanhood.
It has made me shed many tears and made me question a lot of things...


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Fibro Sensitivity and Pain


Fibro Sensitivity to Touch
Fibromyalgia is well known for causing widespread pain. This comes in the form of joint pain, muscle pain, and even nerve pain. What some may not realize though, is that these different types of pain have different triggers. Nerve pain specifically is very different from the other types of pain. It is nerve pain that causes sensitivity to touch, which is known as tactile allodynia.
Tactile allodynia is not quite as common as joint and muscle pain, but it can be very difficult to live with for those who do experience it. As with most of the symptoms of Fibromyalgia this sensitivity to touch can vary in severity from person to person. I personally suffer with this, but not as badly as others that I have talked to.
For some, myself included, things like being poked, or bumping into a table causes pain, much more pain than it should. However, for others it is so bad that being lightly touched by another person and even the pressure of their own clothing causes extreme pain.


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Valeant Pharmaceuticals CEO: We’re in Business of Shareholder Profit, not Helping the Sick


Martin Shkreli might be the present poster boy for Big Pharma’s psychopathic greed; however, he is only the most public face of a problem that is drawing increasing scrutiny from lawmakers whose constituents are sick and tired of an industry that is literally murdering people in the name of profits. Recently, the Progressive media turned its spotlight on yet another blood-sucking corporate vampire: J. Michael Pearson, the smirking, self-satisfied CEO of Valeant Pharmaceuticals.
Pierson’s company is not in the business of curing disease and easing suffering. It exists to make big money for its shareholders, something that Pearson readily acknowledges: “[If] products are sort of mispriced and there’s an opportunity, we will act appropriately in terms of doing what I assume our shareholders would like us to do.” In “acting appropriately,” Valeant has raised the prices on several drugs this year – in some cases, as much as 800%.


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It is two years now since I lost my left eye to ocular melanoma (eye cancer).  I have recently attended the ophthalmology clinics at Horsham Hospital and Moorfields in London.  The sight in my right eye is still good so it's business as usual, but there is a cataract forming which might mean trouble in the future.  Hopefully it will develop slowly.  I don't want to have to face total blindness.  Not sure how I would cope with that!  Losing one eye was bad enough, but . . . . . I won't cross bridges before I have to!!!  I love this picture, very symbolic, so had to use it here.
Forever optimistic

Fibro Hugs
Stella

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or leave your comments below under Post a Comment

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N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in PURPLE like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  If you have any navigation problems, let me know.
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified  professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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