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FMS eNews 23/05/15

As predicted, this week has been somewhat chaotic and disrupted.  Nothing ran as smoothly as it should have done and the installation of the bathroom is incomplete.  I hope I will have better news next week!!  The pic shows what it is like right now!!!  We WILL get there though!

 Good news - my MRI scan was clear, so no worries at present in the cancer department!
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WORDz for the WEEK

 221. It's a hard thing to make a difference in this world.  Life makes us strong enough to change some things about it . . .  Why not strive to "make a difference"?
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 Get Answers to Your Questions!

 I was perusing some recent research when I realized that a new paper had a lot of great answers to common questions. You'll find a breakdown of that below, followed by more FAQs and the answers you may want -- for yourself, or for telling to people who need a better understanding of what you go through.
Take care of yourself!
Adrienne Dellwo - Fibromyalgia & Chronic Fatigue Expert
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 Understanding fibromyalgia: using twin studies to devise a diagnostic blood testfibromyalgia 

 What are the aims of this research? The aim of this study is to develop a diagnostic blood test by examining samples and measurements taken from 400 twin volunteers, in which one twin has fibromyalgia, to try to identify markers in their DNA that are associated with the disease. Why is this research important? Fibromyalgia is a long term painful condition which is poorly understood and difficult to manage. At present, treatment is limited and, in many cases, is unsatisfactory. Currently there is no blood test for fibromyalgia: this makes diagnosis difficult.
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 New blood test for fibromyalgia moves a step closer - 
For years there was doubt among the medical profession whether fibromyalgia actually existed – except in the minds of patients.
There's still no specific blood test, scan or x-ray that can confirm a diagnosis, although blood tests are often carried out to rule out other conditions.
Now scientists at King’s College London, FUNDED by a three year grant of £171,000 from us, are hoping their latest research will lead to a reliable blood test to enable doctors to make a proper diagnosis.
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 Why You Should Be Using Coconut Oil
. . . . Though it may be surprising to most people, coconuts produce, among a slew of other diverse products, a kind of cooking oil that is much better for your health and well-being than the run-of-the-mill butter or vegetable oils that you might ordinarily use. . . . .
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 Drive me Crazy
I hate driving! (Mind you, I also hate being a passenger with some people, too...but that’s another story!) Even in my cute little car. Driving can be a major stressor. And we are all very aware that stress is a common trigger of flare ups. As well as being stressful, driving requires you to sit and move in ways that can make your bits hurt more. Trains, buses and taxis may be options, but public transportation comes with its own stresses and is not always available or affordable. Many people with fibromyalgia cannot walk or bike very far without pain, and getting a ride is not always easy. As a result of all this, you may not be able to avoid driving, especially if you work. But, perhaps, there are a few things you can do to better cope with stressful driving situations.
Read on for The Risks of Driving with Fibromyalgia

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 Pam Stewart is going to be taking part in a walking marathon. 

 Pam is taking part in a challenging walking marathon on 21st June along the Thames path starting and returning to Windsor. The walk has been organised by The Street Children charity so they will benefit from the entrance fee but donations will go to FMA UK to continue work on getting fibromyalgia prioritised for research and better treatment options.
“It will help me on my way if I know each step is getting me closer to the finish and achieving a reasonable amount for a cause I believe in wholeheartedly.”
The text below is from the JustGiving page 
“My husband had many years of suffering through this cruel disease and still people are going through the same agonies as he did many years later.  More people need to be aware of the problems fibromyalgia causes and the heartache it brings to families.
I do my best to convince politicians and medical professionals to make use of the known treatments that can be effective up to a point, but far more needs to be done if the suffering is to be truly relieved.
Any amount raised will be a help to FMA UK so that they can "fight for freedom from fibromyalgia" and perhaps the t-shirt on the walk will make more people aware as well.”
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 Understanding Fibromyalgia and paresthesia
One of the underlying causes of Paresthesia is Fibromyalgia. A person may suffer from Fibromyalgia due to any of the above stated reasons then due to complications, the neurons of the nerves become affected.
Plus other articles.
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The 20 Best Foods to Eat for Breakfast
Start your day off right - by Amanda MacMillan
The NEXT time you rush out the door in the morning without something to eat, consider this: Skipping breakfast can set you up for overeating later in the day. A healthy a.m. meal, on the other hand, can give you energy, satisfy your appetite, and set the stage for smart decisions all day long.
"You want to aim for a breakfast that combines good carbs and fiber with some protein," says Erica . . . . .
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10 Potent Foods That Kill Pain Fast
We just discovered an awesome list of foods that research has indicated to have pain-fighting properties. Some of these we have already covered in other posts – however this is a great new list.
These foods contain compounds that scientific reports are showing can block pain signals and fight chronic pain. If you experience chronic pain daily, then it may be tempting to turn to big pharma pain relievers – but why not try simply adding these powerful pain relieving foods to your diet?
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 Breaking News: Underlying Cause of Fibromyalgia Revealed
Fibromyalgia Symptoms are Symptoms of Hypothyroidism
Fibromyalgia is simply a Latin word meaning muscle pain, yet it has come to be used by traditional medicine to describe a collection of symptoms as if it is a disease.  It is actually a symptom itself.  Take a look – do any of these fibromyalgia symptoms sound familiar to you?  They are also symptoms of hypothyroidism.
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 Looking for Sleep in All the Wrong Places
Despite dramatic increases in the number of sleep specialists, national sleep education initiatives and the use of sleep medications, healthy sleep continues to elude tens of millions of us each night. In fact, there are indications that the insomnia epidemic is worsening. Consequently, millions of us desperately search for sleep. And we do so in three common arenas: medicinals, mattresses, and what I'll call magic.
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Supplements for a more energetic you
Whether you occasionally lack energy or constantly struggle with fatigue, there are a range of nutrients that are absolutely vital in supporting the body's energy metabolism and production.
We prefer to avoid 'quick-fix' energy boosting supplements and stimulants, as the benefits are short-lived and tend to deplete energy overall.
A healthier approach is to take the right nutrients that will help you feel more energetic and motivated, while supporting restorative sleep and stress reduction.
Read on below for our nutritionists' top supplement recommendations to help support sustained energy, helping you to feel good - all day long.
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  • Examination of Single Nucleotide Polymorphisms (SNPs) in Transient Receptor Potential (TRP) Ion Channels in Chronic Fatigue Syndrome Patients
  • High-sensitive C-Reactive Protein as a Marker for Inflammation in Irritable Bowel Syndrome.
  • Increased prevalence of two mitochondrial DNA polymorphisms in functional disease: Are we describing different parts of an energy-depleted elephant?
  • Painful Temporomandibular Disorders Are Common in Patients with Postural Orthostatic Tachycardia Syndrome and Impact Significantly upon Quality of Life.
  • Transcriptomic signatures in whole blood of patients who acquire a chronic inflammatory response syndrome (CIRS) following an exposure to the marine toxin ciguatoxin.
  • Fatigue and functioning in rheumatic diseases: a biopsychological perspective 
  • Orthostatic intolerance and postural tachycardia syndrome as suspected adverse effects of vaccination against human papilloma virus.
and more!
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 Wellness HealthWatch
Omega-3 fatty acids boost B vitamin brain benefit
High level of omega 3s needed to benefit from B vitamins' protective effect against brain atrophy.
According to the outcome of a study reported online on April 15, 2015 in the American Journal of Clinical Nutrition, it may be necessary to have a high level of omega 3 fatty acids in order to fully benefit from B vitamins' protective effect against brain atrophy.
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 Multi-Vitamin Support for Your Specific Needs 
ProHealth's Fibro Complete Multi™ with Malic Acid is specially formulated to promote energy and vitality, and to maintain a healthy immune system.
This comprehensive multivitamin is infused with malic acid, essential for converting sugars and fats into energy; magnesium to spark increased energy production; and IP-6, an antioxidant that helps maximize natural killer cell function.
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 Unfortunately there was no weblink in this week's newsletter
BUT we have
Video of the week: Shoulder and neck release
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 Strange, isn't it?  So tired, but can't sleep!
Have YOU found any surefire ways of ensuring a good night's sleep???
Have a good Bank Holiday Weekend.
Stella
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 N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in PURPLE like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  If you have any navigation problems, let me know.
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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