FIBROMYALGIA IS A REAL ILLNESS WITH NO CURE.
Please sign this petition to the The Prime Minister David Cameron & Rt Hon Jeremy Hunt Health Minister, requesting recognition for fibromyalgia.
http://www.thepetitionsite.com/309/717/019/fibromyalgia-is-a-real-illness-with-no-cure
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186. Imagination was given to man to compensate him for what he is not; a sense of humour to console him for what he is.
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The Horsham Fibromyalgia Support Group's stall on the same day raised £76 for the FMA UK research fund and a bit more on the sale of goods.
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From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome
You've probably tried melatonin to help you sleep, but did you know it can be a pain reliever as well? See what a study shows about what it may be able to do for us, below.Also this week, a new profile of amitriptyline, plus a look at some supplements that may be able to help you.
Several people have mentioned that they miss the old commenting system, and believe me, I'm right there with you! Hang in there with me, though - the powers that be are looking for a better way for you to be able to have your voice heard here. For now the forum works fine (especially when I remember to set up and link the threads, which I apparently didn't do last week. Sorry about that! The one I messed up on is included below as well.)
Take care of yourself!
http://specials.about.com/service/newsletters/chronicfatigue/30540e0b0a000136ea0031ba.htm
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Supplements for Fibromyalgia & Chronic Fatigue Syndrome
Matching Symptoms With Supplements
Many doctors, researchers and people with fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS) say nutritional supplements are an important part of managing your symptoms. Many of us swear by them, and some people use supplements as an alternative to medications.
However, supplements are typically not well researched, and many health-care workers believe them to have little benefit. Some of the supplements listed below have gone through double-blind, placebo controlled clinical trials and have had mixed results, while others haven't been scientifically tested, either for these conditions or at all. We have very little solid evidence that supplements do help alleviate symptoms of FMS or ME/CFS. Self-reported results are highly mixed as well, with different supplements working for different people.
http://chronicfatigue.about.com/od/treatingfmscfs/a/supplements.htm
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Dr. Mary Fletcher and the ME/CFS research team at the Institute for Neuroimmune Medicine at Nova Southeastern University have received a very large grant ($1.9 million) from the National Institute of Neurological Disorders and Stroke at the NIH. This grant will look for biomarkers in, get this, men with Chronic Fatigue Syndrome. The grant builds on the work provided by $10 million (that’s right, ten million dollars) worth of work on Gulf War Syndrome – a syndrome populated mostly by men. It may be first study devoted to specifically understanding this disease in men.
It’s about time! The NSU research group has been focused mainly on women, and this big grant will balance that out. ME/CFS is often spoken of as a “woman’s disorder”, but men make up twenty to forty percent of the million people in the U.S. believed to have Chronic Fatigue Syndrome. (The press release, interestingly, suggests that this figure is too low. One wonders who they feel the epidemiological studies missed
http://www.cortjohnson.org/blog/2014/09/13/big-chronic-fatigue-syndrome-grant-men/
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Pain Relief Products
http://www.healthmonthly.co.uk/promotion_pain_relief
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How Zinc Helps Clear Fibro Fog
For fibromyalgia sufferers, getting enough zinc can be critical to helping reduce some of their systems as well as protecting their overall health from disease and infection. So how exactly does Zinc help fibromyalgia sufferers? Here are 4 ways it helps:
Find them here: http://fibromyalgiatreatmentgroup.com/fibromyalgiatreatment/how-zinc-helps-clear-fibro-fog
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List of latest articles
http://view.messages.webmd.com/?j=fec91077756c067c&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff8e1d78&ju=fe8f1374776c047a71&r=0
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We specialise in treating FMS, ME, CFS and musculoskeletal pain. We use evidence-based medicine, based on the latest scientific research and years of clinical experience.
We are recognised by all major insurance companies. We offer big discounts to patients on Benefits at our private clinics in London and at Bristol.
For a free information pack contact our Clinic Manager Daniel Austen on 01438 821188 or 07777 654436 or at danielausten@fmsclinic.co.uk our web site is http://www.fmsclinic.co.uk
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Read more about it and watch more videos: http://kenc.teamasea.com/
These two testimonials sound like fibromyalgia.
This is Lizzie. She had a health challenge with extreme mobility and balance, as well as muscle weakness and tightness (18+ years) https://vimeo.com/93847691
Kelly-Anne. She had a health challenge with widespread pain, extreme sensitivity, fatigue and poor sleep quality and more (15+ years) https://vimeo.com/93862386
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Written by the founder of Fibromyalgia-Support Net web site this free book is based on the stages and experiences of Fibromyalgia as seen through the eyes of sufferers and their partners.
This unique publication sets out in 15 chapters to give you hints and tips about how to improve your life with Fibromyalgia in it.
It's no medical book and offers no instant cure, but it does show you practical ways many have used to make positive and successful changes to their lifestyle
http://www.fibromyalgia-support.net/book/A4FreeBook.pdf
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FibroMapp is the most comprehensive pain management app currently on the market.
As Fibromyalgia is unique to each person, so is FibroMapp! It can be completely personalised to your needs and requirements and takes into account that there are over 100 different conditions and symptoms within FM.
FibroMapp has been designed BY people with Fibromyalgia FOR people with Fibromyalgia.
FibroMapp has been designed for ease of use. Use as much or as little of it as you need to help you gain more control and understanding of what is potentially causing you pain and other symptoms.
Your Information is compiled to create easy to read CHARTS AND GRAPHS that can be downloaded and printed FOR FREE, unlike some other health apps currently available.
https://play.google.com/store/apps/details?id=co.uk.FibroMapp
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A personal note from Vicky
Read more: http://us4.campaign-archive1.com/?u=1f0fb2b9eada51a6fa54509ba&id=0981f0f424&e=2a0fc40be9
Also:
Education: Flexibility and Stretching
Video of the week: Back Stretches
Success Story: Helen Warwick.
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CFS/ME/FM Course
Our next self management course for adults, young people from the age of fourteen, their families and their carers will start on Friday 10th October at The Charis Centre, West Green Drive, Crawley, West Sussex, RH11 7EL
See poster for full details: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/reMEmber_course_14.10.pdf
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This group meets every second Tuesday from 11am-1pm at The Fisherman's Club, Royal Parade, Eastbourne, East Sussex BN22 7AA
All fibromites from the area are welcome. Contact Emma for further information ebournefibrosupport@live.com
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GMI Daily Newsletter: 9/13/14
GMI Daily Newsletter: 9/14/14
GMI Daily Newsletter: 9/15/14
GMI Daily Newsletter: 9/16/14
GMI Daily Newsletter: 9/18/14
GMI Daily Newsletter: 9/19/14
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I have recently experienced what I call 'episodes' (four so far) which occured at irregular intervals. They were comprised of extensive cold clammy sweating, churning stomach, nausea and itching hands. My doctors are mystified and undertaking extensive tests. I am wondering whether this is fibro related, in which case, nothing will be identified from the tests! Has anyone else reading this had a similar combination of symptoms? They are very debilitating and make me reluctant to go anywhere on my own, and just when I was regaining confidence in driving again!
Please let me know if you can throw any light on this.
Thanks
Best regards
Stella
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Contact: fmsstella@gmail.com
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Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
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