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FMS eNews 21/06/14

Two people have told me that their Norton Anti virus software warned them not to view FMS eNews!  I hope that not too many others have had the same problem.  I don't know why this should be so unless it did not like the adverts that have been added to the page. Thanks to those who have been clicking on the adverts we have raised over £5 so far towards fibromyalgia research.

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WORDz for the WEEK

173.  If there was a trade off between reason and emotion, would you prefer to have more reason or more emotion?



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From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

We've had a vague idea of where the abnormal pain types of FMS and ME/CFS came from, but scientist may be closer to the exact source - and it could be related to immune-system activity. That's below.
Also this week, help for those wrestling with whether or not to tell the boss about their chronic illness, plus a look at disability stories from your fellow readers.
Down in Featured Articles, you'll find some good basic information to learn or review.
Take care of yourself!

http://specials.about.com/service/newsletters/chronicfatigue/30539a160c00017949002878.htm

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Results of survey - Fighting for Freedom from Fibromyalgia

https://docs.google.com/file/d/0B2x15mhmsw-bbTJTeGFHQkZMbm8/edit

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Immersed: How I Found a Way (After Decades of Trying) to Help My Allodynia and Nerve Pain

 I suspect many you are like me: there is something dramatically wrong with your body and it has been that way for quite a while. You surf the ups and downs of your symptoms and occasionally wonder, “What does this symptomatic change mean?”

Read more: http://www.cortjohnson.org/blog/2014/06/15/immersed-found-way-decades-trying-help-allodynia-nerve-pain/

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Networking ‘Vitality’: The Teitelbaum Effort To Train 1,000 Fibromyalgia and ME/CFS Practitioners 

1,000 new Fibromyalgia
and ME/CFS practitioners
 – what do you think?
The last blog on Dr. Teitelbaum showed that some people love him and others really, really don’t.  He’s a different breed from the Klimas’s, the Lapp’s,  the Bateman’s and the other ME/CFS experts  many of us are  most familiar with. He doesn’t do CFSAC and doesn’t seem to have participated in the IACFS/ME; instead he writes books and gets on mainstream  media. His book “From Fatigued to Fantastic”  sounds like  fluff  but is a very comprehensive treatment guide to ME/CFS and  FM treatment.  He has very high fees but he also provides a free electronic survey that can help you pinpoint possible issues (and use his supplements to fix them).  He’s an interesting blend of physician and marketer.

Read more: http://www.cortjohnson.org/blog/2014/06/16/networking-vitality-teitelbaum-effort-fibromyalgia-chronic-fatigue-syndrome-practitioners/


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Turning Stress into Pain: A Fibromyalgia Primer by Dr. Martinez-Lavin Pt I – Pain 
Dr. Martinez-Lavin

A Mexico City doctor and researcher, Dr. Manuel Martinez-Lavin, has been studying and treating people with Fibromyalgia for over thirty years. In a 2009 paper he proposed two pathways for Fibromyalgia. Dr. Martinez-Lavin has been treating people with Fibromyalgia for over thirty years One suggested that over-activation of the sympathetic nervous system fibers (sprouting) left nerve cell bodies called the dorsal root ganglia (DRG) in a hyperexcitable state. The last way stations for sensory input from the body before it reaches the spinal cord, Martinez-Lavin believes these nerve bodies are overloading the spinal cord with pain signals. He also proposed that increased activity of the sodium channels that transmit pain signals in the DRG could be present.

Read more: http://www.cortjohnson.org/blog/2014/06/19/stress-becomes-real-fibromyalgia-martinez-levin-pain/

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Stress Less, Snooze Better

Too much stress can cause anxiety and disrupt your sleep. Learn the signs, and get tips for better rest.
Read Article ›
  • Foods That Help or Harm Your Sleep
  • 10 Relaxation Techniques to Zap Stress
  • Helpful Tips for Getting Better Sleep

http://view.messages.webmd.com/?j=fec01778766d017e&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff66167072&ju=fe8e1273736d017d71&r=0

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Pain Quiz: What 's Up With Everyday Aches?

Some people say they feel pain tn their hair. True or false?
Carry on with the quiz.

http://www.webmd.com/pain-management/rm-quiz-everyday-aches-pains?ecd=wnl_fib_061714&ctr=wnl-fib-061714_ld-stry&mb=m7ZgnqG1govB9suQORgYx2dEpmNqbUHLHcFiuenJAyY%3d

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Fibromyalgia Assessment
Living With Fibromyalgia?

Answer a few questions, and you'll get:

  •  Information about fibromyalgia for those who haven't been diagnosed
  •  Treatment options that best fit your symptoms
  •  Tips to help you cope with your symptoms and improve your life
http://www.webmd.com/fibromyalgia/fibromyalgia-assessment/default.htm?ecd=wnl_fib_061714&ctr=wnl-fib-061714_promo_1&mb=m7ZgnqG1govB9suQORgYx2dEpmNqbUHLHcFiuenJAyY%3d

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“We have had a request from a journalist writing about any connection between domestic violence and fibromyalgia.  My current bank of case studies does not include anyone who has written about this.  All information can remain anonymous. Please contact pam.stewart@fmauk.org if you can help.”

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What is Migratory Arthritis?

pain in the grainThis condition  falls under the auspice of autoimmune arthritis.  Patients who experience migrating arthritis typically have joint pain and stiffness that moves around from joint to joint.  Unlike other forms of arthritis that typically stay in one place.  The symptoms can flare up periodically (come and go), and they can migrate to different locations throughout the body – hence the term migratory.


http://www.glutenfreesociety.org/gluten-free-society-blog/gluten-a-cause-of-migratory-arthritis-pain

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Juvenile fibromyalgia


Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep and mood issues.
Researchers believe that fibromyalgia amplifies painful sensations by affecting the way your brain processes pain signals.
Fibromyalgia is commonly thought of as a condition that affects adults. However, fibromyalgia also occurs in children and adolescents. Estimates suggest that juvenile-onset fibromyalgia affects 2 to 6 percent of school children, mostly adolescent girls. It is most commonly diagnosed between ages 13 and 15.

http://www.mayoclinic.org/diseases-conditions/juvenile-fibromyalgia/basics/definition/con-20093409/?utm_source=newsletter&utm_medium=email&utm_campaign=pain-management

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Hypnosis

Hypnosis, also referred to as hypnotherapy or hypnotic suggestion, is a trance-like state in which you have heightened focus and concentration. Hypnosis is usually done with the help of a therapist using verbal repetition and mental images. When you're under hypnosis, you usually feel calm and relaxed, and are more open to suggestions.


http://www.mayoclinic.org/tests-procedures/hypnosis/basics/definition/prc-20019177/?utm_source=newsletter&utm_medium=email&utm_campaign=pain-management

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Mayo Clinic Guide to Stress-Free Living

[Stress free] Find joy, peace and contentment in your life & reduce the impact of stress on your health.

In The Mayo Clinic Guide to Stress-Free Living, you'll learn important information that will help you use your brain and mind to live your life to its fullest potential.
This book is based on the highly popular stress management program offered at Mayo Clinic. Dr. Sood and his colleagues have conducted several research studies of this approach among healthy volunteers, professionals experiencing stress, and patients confronting serious illness, and others. The results show remarkable improvements in stress, anxiety, resilience, happiness, well-being and quality of life.

https://store.mayoclinic.com/products/books/Details.cfm?mpid=154&trkid=22786S947976200&xid=nl_MayoClinicPainManagementAdvisor_20140617

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How Childhood Trauma Affects Adult Health

Do the aftereffects of traumatic events we suffered as children follow us into adulthood in a physical way? Research about Adverse Childhood Experiences (ACEs) proves that enormous childhood stress absolutely leads to increased potential for adult illness and disease. The original Adverse Childhood Experience study (conducted from 1995 to 1997) examined the link between childhood trauma and the likelihood of developing medical conditions as an adult. A collaboration between the Centers for Disease Control and Prevention and Kaiser Permanente’s Health Appraisal Clinic in San Diego, the study canvassed 17,000 Health Maintenance Organization patients willing to offer extensive information about childhood experiences of neglect, family dysfunction, and abuse. More than half the study respondents reported at least one category of childhood trauma, and a quarter of them reported more than two.

See more at: http://spiritualityhealth.com/articles/how-childhood-trauma-affects-adult-health

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Newsletter 18 June 2014
Latest news created Tuesday, 17 June 2014 13:31

PIP hope, frustration, result
“I will always remember this day! I had a phone conversation with the DWP today and was informed my claim for PIPs has been:-.................................. GRANTED!!!!!!... thank you for your support and advice through this long and worrisome process!
And a huge thanks to B+W for all your literature and support it made the difference!”

Read more: http://www.benefitsandwork.co.uk/news/2785-newsletter-18-june-2014

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Serious health conditions often come with serious stigmas, which is why we want you to join us for the launch of the Live Bold, Live Now Photo Contest. Help us stamp out stigmas: share your #LiveBold story by July 11th for a chance to win $500 (1st place), $250 (2nd place) or $100 (3rd place).
What does it mean to #LiveBold? It's finding the strength to persevere and thrive despite the adversities of a significant health diagnosis.

http://links.remedyhealthmedia.mkt6179.com/servlet/MailView?ms=NjY3MTcwMgS2&r=NjI5OTAyOTEzNzgS1&j=NDYxODc0ODM3S0&mt=1&rt=0

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Vicky's News

A personal note from Vicky
This week has been challenging for me having fallen down the stairs and sprained my ankle. I don't know where that extra step came for though I suspect it had been there for awhile and I just forgot! I was stone cold sober at the time before you comment. Luckily a lot of what we do in Pilates is floor based.  More . . . .
Also: What is Pilates
This method was original called Contrology by it’s inventor the late Joseph Pilates (who we discussed last week) and is a proven exercise technique which has been used for over 80 years.  More . . . .
Video of the week: Side Plank.
Success Story:  Helen Warwick.

http://us4.campaign-archive2.com/?u=1f0fb2b9eada51a6fa54509ba&id=a7f78f5d49&e=2a0fc40be9


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GMI Daily Edition: 6/13/14

GMI Daily Edition: 6/16/14

Upcoming Online Event

GMI Daily Edition: 6/18/14

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Our weekend in Somerset went well.  Helen and Frank duly renewed their vows in a Handfasting ceremony.
Explanation here -
http://en.wikipedia.org/wiki/Handfasting_%28Neopaganism%29 and here - http://handfasting.org/ 

Some of my photos are available here:
https://www.facebook.com/stella.bernardi1/media_set?set=a.10152512258507174.1073741830.639282173&type=1

The summer solstice is set to take place this weekend, marking the first day of the summer season in the northern hemisphere with the longest hours of daylight.
On Saturday 21 June, the annual solstice occurs when the sun's zenith is at its furthest point from the equator. At this time, the sun reaches its northernmost point while the Earth's North Pole tilts directly towards the sun, at about 23.5 degrees.
http://www.ibtimes.co.uk/summer-solstice-2014-how-where-celebrate-longest-day-year-1453380

Make the most it.  Get enough exposure to the sun to absorb Vitamin D but not enough to give you skin cancer!

Luv and Hugz
Stella

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N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources.
Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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