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FMS eNews 16/11/13

Hello to all my readers
Another cold, frosty but sunny morning!  Very refreshing after a rather wet week.  Whatever the weather I remain at your service in the perpetual search for knowledge and information about our common enemy - fibromyalgia.  I remember once MANY years ago being told "Make friends with pain, then it won't hurt".  I thought that was mad at the time, but now I believe there may be some truth in it. 'Acceptance of'' perhaps rather than 'friends with' does create a sense of relaxation rather than the tenseness of opposition and fighting.  Embrace your pain.


WORDz for the WEEK

142.  The moment you stop blaming yourself for your istakes will be the moment you shall stop improving yourself.


What Are You Affirming to Yourself?

There have been many experiments that show that people's strength and their ability to cope with pain or discomfort are directly affected by what they are thinking about. People are constantly thinking and our bodies react to these thoughts -so in my opinion it is best to think empowering thoughts.
Affirmations are positive statements that describe a desired situation, and which are repeated many times, in order to trigger the unconscious mind into action to achieve a positive outcome.



FMSSES Newsletter

 This is not a typo error!  FMSSAS has changed its name.

 Read all about it here


Folly Pogs Fibromyalgia Conference 2014

 Plans are well underway for the next and fifth fibromyalgia conference which is due to take place from Thursday 27th to Monday 31st March 2014. Click on TO BOOK FOR CONFERENCE on the black bar at the top of the webpage to access all the relevant documents.



 (With more restrictions on pain drugs, new options for FM and ME/CFS are needed]
With the FDA clamping down on a major class of opioid drugs used for pain relief by fibromyalgia patients, we’re taking a look at other alternatives. pills With more restrictions on pain drugs, new options for FM and ME/CFS are needed In the first of a two blog series, we’re checking out ongoing or recruiting (or in some cases, recently completed) fibromyalgia clinical trials to see what the future may hold. There’s no telling how effective these treatments will be, but we do know some big bucks have been committed to see if these treatments work, and that says something. The trials are found in a clinical trials database run by the NIH called (which includes trials done outside the US , as well. )

Read more:

Complex Regional Pain Syndrome and Spreading neuroinflammation and autoimmunity – a model for ME/CFS and fibromyalgia?

 Complex Regional Pain Syndrome 1 (CRPS) (previously known as Reflex Sympathetic Dystrophy or RSD) is a relatively rare but possibly under-diagnosed condition which has been recognized for some 150 years. (It was included by the eminent and influential 19th century neurologist Charcot in the ‘hysteria minor‘ group of disorders.)  Some consider CRPS and fibromyalgia as close cousins, while others seem to want to put some clear blue water between the two based on the more intense pain experienced by CRPS patients (clocking in at a whopping 42 out of 50 on the McGill Pain Scale 2). Regardless, there’s extensive symptom overlap between the two disorders 3 and, by extension, with ME/CFS.

Chronic Fatigue Syndrome and Fibromyalgia Practitioner Review Program Requests Beta Testers 

 Finding a good practitioner is hard – and so is avoiding a bad one. We’re mostly running blind as we go from one practitioner to the other, hoping that one of them is going to know something about chronic fatigue syndrome and/or fibromyalgia. Please help us create a ME/CFS/FM practitioner review program... Please help us create a ME/CFS/FM practitioner review program… We want to cut out the guesswork, save you precious time and money and give you the best chance to improve your health.

Read more:


10 Things to Hate About Sleep Loss

You know lack of sleep can make you grumpy and foggy. You may not know what it can do to your sex life, memory, health, looks, and even ability to lose weight. Here are 10 surprising -- and serious -- effects of sleep loss.


From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

 Our brains are just built differently. Get a look at the many irregularities researchers are discovering and why they may contribute to your pain, below.
Also this week, tests I think doctors should do for all of us, and the sugar hangover - do you get it?
Down in Featured Articles, some help around the house, so you can do more with fewer symptoms.
Take care of yourself!


Best and Worst Foods for Sleep

  From early birds to night owls, we all can agree that when we finally lay our heads on the pillow we’d like to actually go to sleep, thank you.
Nothing is more annoying than insomnia, and the evidence is piling up that sleep is essential for good health. Although the research is a bit spotty when it comes to which foods help or harm sleep, anecdotal evidence does suggest that certain items consumed right before bedtime are more likely to be “sleep promoters” while others may be “sleep stealers,” says Russell Rosenberg, Ph.D., CEO of the National Sleep Foundation.
Here’s a list of potential good guys and bad guys when it comes to getting some shut-eye.,,20628881,00.html


Message from FMA UK

Pam has received the following request from a journalist, looking to do an article on fibromyalgia.  If anyone is interested in assisting please contact Pam Stewart directly on with a contact telephone number so Pam can have a talk with them before passing their details on.
Dear Pam,
I'm a freelance journalist. My mum suffered from fibromyalgia so it is something I've always been interested in. I've been commissioned by the Sunday Express's S Magazine to write a piece about the condition. They've asked me to find a case study so a woman in her 40s who suffers and would be happy to be interviewed and photographed. The interview would be conducted over the phone and would probably take about half an hour.
Please let me know if you can help. My deadline isn't urgent but would be good to get in the bag in the next few weeks.
I look forward to hearing from you.
Many thanks,
all the best,


Daily Newsletter, Nov. 11th, 2013

Daily Newsletter, Nov. 12th, 2013

Daily Newsletter, Nov. 13th, 2013

Daily Newsletter, Nov. 14th, 2013

Daily Newsletter, Nov. 15th, 2013


With friendly fibro hugs - may they be beneficial to you


N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional. I alo include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to and you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at and on a blog at These ceased at the end of November 2012 when I resigned as a trustee.
This blog commenced on 8th December 2012.