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FMS eNews 09/11/13

Hi there
It looks like we're back in business!  I've managed a "normal" eNews this week.  My eye is getting used to working solo. 

WORDz for the WEEK

141.  If you haven't got the strength, desire or ability to do the right thing for the right reason, then perhaps it is better that you not do it all.
(I wonder if this should have said "then perhaps it is better that you do not do it at all".)



 Love and Let Die Fun Dinner Party

Chichester Park hotel on Friday November 22nd 2013

In Aid of Fibromyalgia Research

Read all about it

Booking Form


Two Studies requiring volunteers

1.  The Brain in Pain Study
Dr Julius Bourke Principal Investigator for The Brain in Pain Study at Barts and The London School of Medicine is conducting research into how the nerves and the brain feel and detect pain, how they respond to pain, which parts of the brain are involved and which chemicals are used by the brain to communicate between these areas.
People with fibromyalgia and healthy controls are needed.  The research involves quite lengthy appointments but I am assured that breaks can be taken as necessary.
Please read the attached information and consider taking part in this important research.  Contact Dr Bourke directly to register your interest.  This research cannot happen without your help. If you live within reasonable travelling distance of London you maylike to take part.

Full information is available at :


2.  Fibromyalgia and Pregnancy study
This research aims to explore the links between fibromyalgia and pregnancy, and we need participants to share their lived experiences in relation to this topic.


S. Bucks Fibromyalgia and ME/CFS Support Group

November Newsletter

Think of your body like a diamond!


Cranial Electrical Stimulation (CES) for Fibromyalgia by Dr Kevin White

Dr Kevin White
 I recently was contacted by Linda Horncastle, an Occupational Therapist
who lives and works in the United Kingdom. She wanted to know my opinions regarding the use of cranial electrical stimulation (CES) for the treatment of fibromyalgia. My first response was wise and confident: I told her I hadn't even heard of it. But then, not wanting to come across as more of an idiot than I already seemed, I told her I would look into it and get back to her.  So here I am, getting back to her (and you) regarding my thoughts on CES, having done some reading about it.  [CES]


From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

Adrienne Dellwo
Does a new study mean a lab test for fibromyalgia is finally on its way? See why this test is promising, but why you shouldn't rush out to get the test, below.
Also this week, a growing case for autoimmunity in chronic fatigue syndrome; and why some experts think fibromyalgia is a spectrum disorder, like autism.
Down in Featured Articles, get lots of information on improving your daily life.
Take care of yourself!


Pregabalin Significantly Improves Fibromyalgia Pain in Patients Who Also Suffer From Depression 

Pregabalin is approved for the treatment of fibromyalgia in the United States, Japan, and other countries. But, because prior pregabalin/fibromyalgia studies excluded the use of antidepressants in treatment, information about the effectiveness and safety of pregabalin for the treatment of pain in people with fibromyalgia who are being treated with antidepressants for their depression is lacking.


Monthly Prescribing Reference

Lyrica Successfully Reduces Fibromyalgia Pain

Pfizer announced top-line results from two Phase 3b studies with Lyrica (pregabalin) capsules in patients with fibromyalgia and painful diabetic peripheral neuropathy (DPN).


Fibromyalgia Might Be Harder on Younger Patients, Study Finds

Research compared symptom severity, quality of life in various age groups October 26, 2013 
Young and middle-aged fibromyalgia patients report worse symptoms and poorer quality of life than older patients, a new study reveals.


Celiac disease patients prone to develop fibromyalgia

While patients with celiac disease had more than a 10% chance of developing fibromyalgia, patients with fibromyalgia had the same prevalence of celiac disease as the general population, according to recent study results.


Fibromyalgia solved; A pathology, not in the mind

The National Biotechnology Information Center (NBIC) of the National Institutes of Health (NIH) recently released the findings of research funded by grants from Eli Lilly Pharmaceuticals and Forest Laboratories that claim to have discovered a causative pathology (the science of cause and effect)  for fibromyalgia.
The cause of the disease escaped researchers for years. In fact, the condition was considered by many in the field of medicine as psychosomatic (in the mind) because of the variety of symptoms that could not be clinically pinned down and patient reporting was the primary criteria.

Read more:

Follow us: @wtcommunities on Twitter


Thyroid's Connection to Fibromyalgia

Dr. Stephen Langer explains how nutritional imbalances and low thyroid produce symptoms similar to that of fibromyalgia. 
More at
Are you getting enough calcium, magnesium and vitamin D?


Weekly Review, Nov. 2nd, 2013

Weekly Review, Nov. 3rd, 2013

Weekly Review, Nov. 4th, 2013

Daily Newsletter, Nov. 7th, 2013

Daily Newsletter, Nov. 8th, 2013


A cold and frosty mornng and - at last - leaves falling from trees.  Late autumn, early winter?  Confused?  FM is also one of those things that is unpredictable, and inconsistent.  I hope eNews helps you unravel some of the incongruities.  
Love yourselves and love life



N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to and you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at  and on a blog at These ceased at the end of November 2012 when I resigned as a trustee. 
This blog commenced on 8th December 2012.