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FMS eNews 18/05/13



Hi there
This week I bought a new laptop computer as the one I have been using is being reclaimed by FMSSAS.  It’s Windows 8 – you can’t get any other kind now – and it’s all totally foreign to me!  It’s a completely different system and it’s going to be a great new learning curve for me.  I haven’t changed over to working on it yet, and I think that will take some time.    Whatever else I do, I am going to have to find a way to produce this blog on it!     

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WORDz FOR THE WEEK

119.  Life really stinks sometimes and yet it can be beautiful, peaceful; it’s the transition that’s so troublesome.

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Fibromyalgia Awareness: 7 Ways to Invoke the Fibro Warrior Spirit

Bayeux Tapestry
The efforts of Fibromyalgia Awareness Day shouldn’t be relegated to May 12th. Instead, they should infuse the whole calendar with the Fibro Warrior Spirit.
So short of storming the castle and scribbling all over accessible calendars, how do you infuse that Fibro Warrior Spirit into the days beyond May 12th?
Find out how!


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A New Type of Treatment

TVAM (Transvascular Autonomic Modulation) is unique in that it goes beyond treatment of the symptoms, affecting the CNS (central nervous system) directly through manipulation of the autonomic nerve fibers that travel along the jugular vein, improving overall autonomic function.
Patients with Fibromyalgia also suffer from autonomic dysfunction, or dysautonomia. Symptoms of autonomic dysfunction include fatigue, sleep disturbances, altered cognitive function (brain fog), thermal intolerance, headaches, and bladder or bowel dysfunction. An ongoing scientific study conducted at Synergy Health with a growing pool of patients with autonomic dysfunction (over 600), has shown definitive results in favor of TVAM


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The Role of Magnesium in Fibromyalgia - An investigatory paper by Mark London

“This web page was the result of my research regarding magnesium, and why it's important not only for the average person, but especially for people with fibromyalgia.  If you aren't interested in reading lots of studies, and are already convinced of magnesium's importance, then just click here to get to my recommendations.  Please note, magnesium is only one of many possible treatments that can help fibromyalgia.  It, by itself, cannot effectively treat it.”


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Message from Dr Kevin White


Dr Kevin White
“For your information, in the ESCAPE mnemonic, the C stands for "Consider FM a systemic disease" and the P stands for "Pinpoint the right diagnosis" (which means, identify sources of pain beyond fibro, like tendonitis or undiagnosed inflammatory arthritis, that are also contributing to the pain.)
Thanks for steering people towards my website.”
SO, the correct interpretation is
            Educate yourself
            Surround yourself by the right people
            Consider FM a systemic disease
            Accept responsibility for your own health
            Pinpoint the right diagnosis
            Educate your doctor and Enjoy good times
Thanks to Kevin for that correction.  His website is  http://www.thefibrofog.com/  and his blog is  http://thefibrofog.blogspot.com.

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Freedom from Fibromyalgia - Gina Michelina

Gina Michelina
Gina explains the dietary deficiencies in fibro patients and what she did to aid her own recovery.


There are many videos about fibromyalgia on YouTube. Look at the list on the right of the screen on the above link.
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If You’re Suffering From Fibromyalgia Everything You Need To Know Is Just A Few Simple Clicks Away”


Dr D

FREE video series finally gives you the answers, information and secrets you need to take control of your life and your disease…because fear, confusion and helplessness shouldn’t be symptoms of Fibromyalgia.
Get the information you need now – enter your information so you can start receiving these videos right away.

 

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Interventions in Pediatric Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: A Systematic Review.
A range of interventions have been used for the management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in children and adolescents. Currently, debate exists as to the effectiveness of these different management strategies. The objective of this review was to synthesize and critically appraise the literature on interventions for pediatric CFS/ME.


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Living With Pain: Two Types of Coping
Chronic Pain is a Form of Chronic Stress.


Living with pain presents all kinds of challenges in addition to the pain itself. You may find work difficult or impossible. Your social life may have been greatly reduced. Your roles as partner, parent, friend may have changed in ways that are deeply disappointing to you. The activities of daily living may have become difficult. You may find yourself trying many different ways of coping with pain. As described by Jochen Brandtstadter, coping efforts can be categorized as assimilative or accomodative. Effective chronic pain management may require knowing when to use each type of coping.

Read on

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Lynne Matalana answers questions (National Fibromyalgia Association (NFA) USA)
Lynne Matalana
"Is What can I do to give me more motivation in life while fighting fibromyalgia and not ending up in depression?" Lynne Kennedy Matallana, founder of the National Fibromyalgia Association, answers this question from Rosie. Lynne offers tips, advice and encouragement that will bring you inspiration as well as motivation to help with your daily battle with fibromyalgia.
Read more and watch the video


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“Forget Fibromyalgia” by Rebecca Richmond
 is not just about positive thinking, it is a complete self help programme, that incorporates alternative therapy techniques that you can do for yourself.  Although being positive is very important I know you can’t just be happy to make this terrible curse go away. If it was as simple as that I would not have had severe attacks during happy times – for example…


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South Bucks Newsletter May 2013

S.Bucks Fibromyalgia and ME/CFS Support Group
Giving help for those with Fibromyalgia and ME/CFS
Working with FMA UK, Registered charity No 1042582



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Worthing Newsletter May 2013

 What a great time we had at the 2013 conference. The group sponsored a race at the race night evening and how funny were the racing pigs. It was so good to be surrounded by people from all over the world all in the same boat. We had people from our group go this year, it was great, informative information, socially we all had a laugh well looked after and fantastic food. Well done Simon you did a great job at the conference. We even won some medals and certificates.


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May 11th, 2013 Newsletter

May 12th, 2013 Newsletter

May 13th, 2013 Newsletter

May 15th, 2013 Newsletter

May 16th, 2013 Newsletter

May 17th, 2013 Newsletter

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I’ll let you know when I’m up and running on the new computer.  For now I am happy with the familiarity of the old one!
Stella
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Contact me:- fmsstella@gmail.com
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N.B.   I would like to point out to you that the information in my eNews  blog is passed on to you mainly from other sources.   Links are given to the original articles.   I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership.  Sites I refer you to are  for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional. 
I also include various awareness items, benefits issues, as well as general health considerations.    Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new eNews is posted, please send an email to fmsstella@gmail.com as you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews.  Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com  These ceased at the end of November 2012 when I resigned as a trustee. This blog commenced on 8th December 2012.