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FMS eNews 11/05/13

Hello Everyone
A mixed bag awaits you again this week:- brief reports on the rest of the fiibro conference, as promised; last minute Awareness Day thoughts; Guidelines for the Diagnosis and Management of Fibromyalgia Syndrome in Adults – from Canada – quite a breakthrough; and more besides.  So here we go . . . . ..


118.  Life isn’t always beautiful. But it can be a beautiful ride.


Fibromyalgia Awareness Day is Tomorrow – May 12th

Here’s something you can share with your friends.  Thanks go to Natalie of the Chorley Support Group for producing this Fibromyalgia Wordsearch.

Don’t forget to post your ‘I’m Making the Invisible Visible’ photos on your Facebook and Twitter pages - again.  And, have you got the purple header for awareness on your page?  I have!   


Fibromyalgia Conference, Chichester, 26th  - 29th April 2013 (Part 2)
This week I am reporting on the events of Sunday 28th April.

10am, Claudia Marek, Fibromyalgia & Hypoglycemia

A pre-diabetic condition, hypoglycaemia can be controlled by diet but has a number of symptoms which overlap with fibromyalgia. [I could not gain access to this site.  You might have better luck!]


11.15am, Lyn Mynott, Chair & Chief Executive Officer, Thyroid UK – Thyroid Disease and Fibromyalgia

Fibromyalgia symptoms can be similar to thyroid problems.  It is important to have adequate thyroid tests to establish whether the thyroid gland is functioning properly.  Unlike fibromyalgia, hypothyroidism can be treated effectively as long as all the relevant thyroid tests are done and the appropriate treatment is given.


12.15pm, Dr Kevin White MD PhD, Six Secrets to Feeling Better and Living Longer

Although fibro is said not to be a terminal illness it DOES kill people through suicide, cardiovascular disease, liver disease et.  It affects all 9 body systems but in order to feel better and escape; an acrostic of that word was used as a reminder (as far as I remember!)

Dr Kevin White
Educate yourself
Surround yourself by the right people
Counter those who doubt fibro
Accept responsibility for your own health
P[erhaps someone else can remember this one?!]
Educate your doctor and Enjoy good times

It is important to treat the patient, not only the disease, to improve quality of life.

Submitted by Teresa, a conference volunteer:-
Dr Kevin White has won numerous awards for his research, teaching and books. As the author of 15 books he is now Executive Officer of Wortley Road Books, Based in Canada.  His goal is to increase awareness about the scientific reality of fibromyalgia with his award-winning book “Breaking Thru The Fibro Fog: Scientific Proof Fibromyalgia Is Real”. The book that won an international book award has been endorsed by the British Columbia Trial Lawyers Association. It addresses several critical medico-legal questions related to fibromyalgia, including the issue of traumatic causation, and cites 481 published scientific references to support its conclusions. It is a must read for lawyers with personal injury cases. As an accomplished singer-songwriter and closet comedian, Dr. White uses these skills to prove fibromyalgia is a real PHYSICAL disease. 
 Books on sale via Folly Pogs Fibro Research UK, contact Jeanne Hambleton at  phone 08433 828 829.    £20 plus p&p  
All funds going to the charity to raise much needed funds for a cause to find a cure.

2pm, Iain Casey MD, CryoClinics, the Cutting Edge Recovery Technique

Cryo chamber
Marie-Caroline gave an introductory talk about her experience of cryotherapy (She had given a full talk at last year’s conference) .  Iain showed a film and gave further explanation:-
 Cryotherapy is a treatment consisting of exposing the body to extreme cold for several minutes.  It relieves and eliminates pain, promotes blood circulation, improves joint and muscular function , and releases endorphins.  It stimulates the body to heal and reduce pain.
Marie-Caroline has been working with Prof Basant Puri and Iain Casey to get cryotherapy units introduced into hospitals.  The first one has been opened in a hospital in Hendon.


3.15,  Dr David Owen MB, BS, FFhom – The Natural Pactice Clinic

Dr David Owen
David Owen is a Homeopathic Doctor believing in the holistic approach to medicine, based at Southampton University.

A quote from  William Osler sums up his philosophy:- “It is more important to know the patient who has the disease than the disease the patient has”
Nevertheless it helps if the disease is understood by the doctor!

See for details of Dr Owen’s Natural Practice clinics.

Ask the Doctors

A Forum was held when all the speakers of the day were available to answer delegates’ questions.


Canadian Guidelines for the Diagnosis and Management of Fibromyalgia Syndrome in Adults

Comprehensive, evidence-based and written by a panel of experts from across the country. Endorsed by both the Canadian Pain Society and the Canadian Rheumatology Association.


Adrienne Dellwo
From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome
[I hope these will be available but I haven’t been able to access recently].

Even if you can barely get out of bed, you can help further the cause.
See what our pain triggers say about the underlying mechanism of our illness.
The tables turned on me, and I found myself needing to take care of my husband. See how it went.
Read the comments and leave one of your own!


The role of the therapeutic relationship in cognitive behaviour therapy for chronic fatigue syndrome.

Fear of movement and avoidance behaviour toward physical activity in chronic-fatigue syndrome and fibromyalgia: state of the art and implications for clinical practice.

Neurocognitive impairment in childhood chronic fatigue syndrome.


Welcome to the reMEmber website

Helping people with ME (myalgic encephalomyelitis) - also known as CFS (chronic fatigue syndrome) - get the best possible treatment and advice to enable them to lead happy and healthy lives. 

Also useful for FM patients.

American College of Rheumatology

Fibromyalgia is a common health problem that causes widespread pain and tenderness (sensitive to touch). The pain and tenderness tend to come and go, and move about the body. Most often, people with this chronic (long-term) illness are fatigued (very tired) and have sleep problems. It can be hard to diagnose fibromyalgia


Sleep Well

Before popping a sleeping pill, make sure you
understand the potential risks and side effects.

Can't stop yawning? Find a fix for one of these 12 common causes of sleepiness.
View Slideshow ›
The number of ER visits due to sleep meds such as Ambien has increased 
Read Article ›
Getting too little or too much sleep can increase your heart disease risk.
Read Article ›
The 4 types of studies conducted before a sleep disorder is diagnosed.
Read Article ›

Recommended articles




May 5th, 2013 Newsletter

May 6th, 2013 Newsletter

May 8th, 2013 Newsletter

May 9th, 2013 Newsletter
May 10th, 2013 Newsletter


So that’s it for now my fibro friends.  Until next week . . .
I am, as ever, at your service.


Contact me:-


N.B.   I would like to point out to you that the information in my eNews  blog is passed on to you mainly from other sources.   Links are given to the original articles.   I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership.  Sites I refer you to are  for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.  
I also include various awareness items, benefits issues, as well as general health considerations.    Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new eNews is posted, please send an email to as you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews.  Past issues of FMSSAS eNews can be found at and on a blog at  These ceased at the end of November 2012 when I resigned as a trustee. This blog commenced on 8th December 2012.