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FMS eNews 12/04/14

This weekend we are celebrating two birthdays, my son Michael's on 11th and my daughter Christine's on 12th. So we're having a great family weekend all together.  I hope you are having a good weekend too.  There are lots more goodies for you in this week's eNews.  I hope you find some that are useful to you.
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WORDz for the WEEK

 163.  A life without cause is a life without effect.
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Deficiency of Digestive Enzymes
I think that digestive enzymes need to be given the importance they deserve. Without the optimum amount of these enzymes our digestion and absorption of food and nutrients will be compromised and this can cause or add to many troublesome symptoms and I believe that by improving the efficiency of our digestive system and absorption of essential nutrients are essential for Fibromyalgia sufferers to be able to get back to lasting better health.

 Read more: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Norah_Wickerson_Article-04.pdf
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 Plans are well underway for the next and sixth fibromyalgia conference which is due to take place from Friday 24th to Monday 27th April 2015. 
Great hotel, excellent food, helpful staff, fantastic Manager, pool, steam room, jacuzzi, exercise equipment AND wall-to-wall speakers with 12 presentations. Our Benefits experts are returning by public demand. Join our fibro family, folk who understand and do not say,'Fibro what?' Make great fibro friends.
Entertainment for three nights includes Fibro Fillies Frummies Race night. Name that horse and get a Winner. Sponsor a race and cheer the fillies on. An exciting event as delegates bet everything on the favourite. We have lots of plans for evening fun including a cabaret, dance competitions and a fun band. We will learn by day and enjoy fun and laughter in the evenings. 
Wonderful opportunity to meet Group Leaders, like minded folk, get your questions answered and 1-2-1 talks with the doctors. 

 Read more: http://fibromyalgiaconference.weebly.com/?fb_action_ids=10152062313724366&fb_action_types=weeblyapp%3Ashare
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From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome
Adrienne Dellwo

Would you believe that magnets on your head could improve your life? That's what some researchers are saying about an experimental treatment for fibromyalgia. See what they found out, below.
Also this week, why ME/CFS could lead to broken bones, and why it's a bad idea to take too narrow a view of these illnesses.
Down in Featured Articles, some glossary terms you should be familiar with.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/305339c98800015f48002626.htm
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Vicky's Newsletter
Well Richard has retired and started his first project, the conversion of our kitchen and dining room into one big L shaped room.  I’ve not been very keen on this project from the start and yes I know it will be lovely when it’s finished but…  I feel I’ve been invaded.  I’ve got kind of used to my own space as have the cats!  I think they may need therapy.  I’m going out a lot and I’m afraid with no sink, oven or hob our diet has gone a bit to pot and everything is being microwaved.  I’m told the  project will only last a couple of months…

 Read the rest of the newsletter:-
http://us4.campaign-archive1.com/?u=1f0fb2b9eada51a6fa54509ba&id=e8ff1977b6&e=2a0fc40be9

 Pilates Crawley Be Activated points
http://www.youtube.com/watch?v=9fN8I2dJUh8

 Crawley Pilates Back Mobility and Core Strength Workout
http://www.youtube.com/watch?v=drf4SuwN-W0 

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Better Sleep for Fibromyaglia and Chronic Fatigue Syndrome Using the FibroMapp App

 Do you have problems with your sleep?  (Too much or too little?).  Ever wonder how much your sleep/sleep debt is affecting your pain?  Your concentration levels?  Brain fog? Depression?

 Read more: http://www.cortjohnson.org/blog/2014/04/04/better-sleep-fibromyaglia-chronic-fatigue-syndrome-using-fibromapp-app/
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New Approach to Chronic Pain Leads to Novel Treatment Approaches: Antibiotics Anyone? 
Pain Is Not All the Same 
Brain imaging studies like functional magnetic resonance imagery (FMRI) have provided tantalizing
insights into the operation of the human brain. In this blog I’m going to review and highlight research and novel approaches by one of the leading researchers in the rapidly evolving area of chronic pain and the brain, Dr. A. Vania Apkarian, and his colleagues at Northwestern University, Chicago, Illinois.

 Read more: http://www.cortjohnson.org/blog/2014/04/05/new-approach-chronic-pain-leads-novel-treatments-antibiotics-anyone/
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Archive for Fibro

 http://www.cortjohnson.org/blog/category/research/fibromyalgia/
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Pick the Question of the Month: The ME/CFS and Fibromyalgia Doctors’ Poll for April
The ten practitioners from Health Rising’s ME/CFS and FM Experts Panel has agreed to answer one question a month from the Chronic Fatigue Syndrome/Fibromyalgia community. We got about 50 questions and I winnowed them down to nine.  (It wasn’t easy)  I was looking for questions that might have application to a broad group of people and  that provided a good amount of information. Questions that were very basic (what is the right approach to treating ME/CFS or FM?), that were very specialized (why are my hands shaking?), that contained too many questions for the doctors to answer  (please tell  how to treat x,y and z) or that asked questions about research, how to find a doctor in a specific location and the like didn’t make the cut. Please use the poll at the end of the list of questions to pick the top three questions you’d like to see answered. The nine ME/CFS practitioners will answer the question that gets the most votes.

 Read more: http://www.cortjohnson.org/blog/2014/04/09/pick-question-month-mecfs-fibromyalgia-doctors-poll-april/

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Slideshow: What to do Today to Sleep Better Tonight
Avoid Sleeping In

As tempting as it may be, don't try to make up for a lack of sleep by staying in bed on the weekends. Sleeping in won't make up for a sleep deficit. In fact, according to a recent Harvard study, when you snooze extra hours to compensate for sleep deprivation, your ability to focus is worse than if you had stayed up all night.

See other 10 tips:

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What's Your Pain Tolerance?
Everyone struggles with pain at some point, but how you tolerate pain can be up to you - By Katrina Woznicki

 Why is back pain or a knee injury annoying to one person and sheer agony to another? Turns out, an individual's tolerance to pain is as unique as the person, and is shaped by some surprising biological factors, as well as some psychological factors that we can actually try to control.

 Read more:  http://www.webmd.com/pain-management/features/whats-your-pain-tolerance

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New from Harvard Health Publications


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What is Oil Pulling?  (Is it a good idea?)

 Oil pulling – or oil swishing – is the practice of swishing oil around your mouth. Not all too fun a
concept when put literally, eh?
The catch (and the reason the internet is going wild over it) is, when oil pulling is done right (see below) you experience some really phenomenal health benefits.

 http://www.lelalondon.com/2014/03/oil-pulling-101/

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Girls Night In at The Thomas A Becket

 Indulgent treatments & delicious food, what more could a girl ask for?
The Thomas A Becket in Worthing, Wednesday 16th April 2014 
Beautiful newly re-furbished venue. The Ultimate pampering evening.
Enjoy a 2 course delicious meal & 1 Indulgent treatment* for only £30!
Mini Manicure, Mini Pedicure, Reflexology,Massage Back, neck & shoulder or Indian Head Massage 

 Read more: http://us2.campaign-archive2.com/?u=c7d20b59d20e84ac52bbadaa9&id=d50477ea70&e=8911b240ec

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Sharpening Fibromyalgia Diagnosis and Management Skills: Improving the Patient Experience

 TARGET AUDIENCE
The educational design of this activity addresses the needs of primary care practitioners—physicians, nurse practitioners, and physician assistants—as well as pain specialists, rheumatologists, and neurologists involved in the treatment of patients with fibromyalgia.

 http://ce.paradigmmc.com/a/6798P Ax53AE

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Do You Suffer From Hot Flushes?

 Sorry, gentlemen, but this is one for the ladies ... I have been receiving requests for tips to help deal with the hot flushes that so many women experience during the menopause.
Who gets them? 
Research shows that up to 85% of women approaching menopause may experience hot flushes. As with many things the duration, intensity and frequency can vary greatly.
What causes hot flushes?

 Find out:  https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Forget_Fibro-14.04.13.pdf

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FM HealthWatch
What's the Hidden Cause Behind YOUR Fibromyalgia Flares? 
Often we know what causes our flares but sometimes they seem to sneak up on us without warning. Learn to recognize the many different and oft times subtle things that can trigger a fibro flare.

 This and other articles here: www.prohealth.com/em/EM040914F
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Fibromyalgia in Tonbridge, NEWSLETTER – April/May 2014
● Hello to you all again. Isn’t it great to welcome this warm spring with open arms? With Easter just around the corner, this weather is giving us all a much needed boost of natural vitamin D from the sun that we all benefit from.
● We are delighted to have recently received a kind donation of £50.00 from the ASDA store in Kingshill from their Kingshill Community Life Scheme. We were made very welcome when we visited the store to collect our cheque and ASDA Community Colleague Claire Lawlor is very keen to help us with further fundraising.

 Read whole Newsletter: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Tonbridge_FM_News_14.04-5.pdf
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WARNING!  Lawncourt Harvest Ltd recalls Munchy Seeds Honey Seeds due to possible contamination with small stones and pieces of glass

 Lawncourt Harvest Ltd has recalled the implicated product and customers who bought the product will be notified in writing by the wholesale retailer that supplied them. A copy of the recall notice that will be issued by Lawncourt Harvest Ltd is attached to this notice, which tells consumers about the recall and explains the actions to take if they have bought the product.

 http://www.food.gov.uk/enforcement/alerts/2014/apr/munchy-honey-seeds#.U0XGhoZBmb4
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Daily Newsletter, April 4th, 2014

Daily Newsletter, April 5th, 2014

Daily Newsletter, April 6 th, 2014

Daily Newsletter, April 7th, 2014

Daily Newsletter, April 8th, 2014

Daily Newsletter, April 9th, 2014

GreenMedInfo.com Special Announcement, April 10th, 2014

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I hope that those of you with young children are finding the strength to cope during the school holidays and are able to have some quality time with them.

 Best regards to you all
Stella

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N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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FibCon 2014

This FMS eNews is devoted to the Fibromyalgia Conference held at the Chichester Park Hotel from 28th-31st March 2014.  I have assembled links to the speakers' and therapists' or their organizations' web pages, where possible. I have not attempted to reproduce their lectures although I took copious notes.  This blogpage directs you to their online presence where you can read more about the work they do.  They are assembled in alphabetical order of the surnames of the speakers with photos when available. Quotes are, on the whole, direct from the respective websites.  I hope that, whether or not you attended the conference, you will find this guide helpful.

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 Debbie Barnes, Healthy Hypnosis
"Welcome to Chichester Hypnotherapy
So far 2014 appears to be the year of changes. Change can be difficult, but usually it makes our lives better in the long run. 

 Hypnotherapy can help you to work through any difficulties in your life and release any unwanted problems, habits and symptoms.
Only a few sessions of Hypnotherapy can help you to be motivated and empower you to become the person you want to be and to create the life that you want to lead."

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 Dr Natasha Campbell-McBride MD,GAPS ™ - Guts and Psychology Syndrome

 "All diseases begin in the gut! The Father of modern medicine, Hippocrates, made this statement more than two thousand years ago. The more we learn with our modern scientific tools, the more we realise just how correct Hippocrates was: all diseases do begin in the gut! Science has discovered, that about 90% of all cells and all genetic material of the human body belongs to the gut flora - a mixture of various microbes, which live inside our digestive tract. So, in reality your body is just a shell, a 10%, providing a habitat for this mass of micro-creatures living inside you; and their role in your health and physiology is monumental. Our modern world poses many dangers for human gut flora, and once it is damaged, the health of the whole body enters a downward slide towards disease."

 http://www.doctor-natasha.com/gaps-book.php

 Her books are available from Amazon.
http://www.amazon.co.uk/s/?ie=UTF8&keywords=dr+natasha+campbell&tag=googhydr-21&index=stripbooks&hvadid=34732139268&hvpos=1t1&hvexid=&hvnetw=s&hvrand=6292612993285341065&hvpone=&hvptwo=&hvqmt=b&hvdev=c&ref=pd_sl_2zu5pbm566_b

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Prof. Trudie Chalder PhD, Cognitive behavioual Therapy and the treatment of CFS.

 Her research projects are outlined here: https://kclpure.kcl.ac.uk/portal/trudie.chalder.html

 Her books are available from Amazon:
http://www.amazon.co.uk/s/?ie=UTF8&keywords=trudie+chalder&tag=googhydr-21&index=stripbooks&hvadid=23265180889&hvpos=1t1&hvexid=&hvnetw=s&hvrand=10801919198294606249&hvpone=&hvptwo=&hvqmt=b&hvdev=c&ref=pd_sl_q0q7jl5o2_b

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Dr Andrew Dilley PhD, Fibromyalgia - A Pain in the Nerves

 "Research focus
The peripheral mechanisms of chronic pain. In particular how inflammation can affect the physiological properties of sensory neurons.
Ultrasound and magnetic resonance imaging as clinical tools to identify peripheral nerve inflammation and altered nerve dynamics in patients with chronic pain. . . . . ."

 http://www.bsms.ac.uk/research/our-researchers/andrew-dilley

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Colin Eveleigh, Everyday Mindfulness
"For the past 10 years I have explored the relationship between Mindfulness and my previous work in the field of Psychology - both corporate and clinical. I find that understanding Mindfulness as a way of everyday life is the key to alleviating many of life's struggles and sufferings, and I work with individuals and groups who are keen to gain this Mindful insight and self awareness so that they can learn to accept and let go of the stresses of everyday life. I guide and support people in learning to be more Mindful in everyday life - Wherever and whoever you are in Mindfulness, and whatever story brings you to this site, why not get in touch? Doesn't matter where you are in the world - let's acknowledge that we are all interconnected!"

http://www.everydaymindfulness.com

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Dr Peter Fisher, Clinical Director and Director of Research at the Royal London Hospital for Integrated Medicine (RLHIM)

 http://www.uclh.nhs.uk/OurServices/Consultants/Pages/DrPeterFisher.aspx

 RLHIM website home page: www.uclh.nhs.uk/rlhim

 "Fibromyalgia syndrome service - a holistic approach.
Fibromyalgia syndrome (FMS) is a musculoskeletal condition causing chronic widespread pain and increased sensitivity to touch and pressure. Associated features include tiredness, depression, anxiety, sleep disturbance, headaches, irritable bowel and bladder syndromes."

 www.uclh.nhs.uk/OurServices/ServiceA-Z/INTMED/IMFSS/Pages/Home.aspx

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Nancy Gordon (USA)  Paws for Comfort
Nancy's dogs (Xolos), Toaster and Pink are a great aid to her, providing warmth and comfort as well as companionship.
"The heart-felt mission of Paws for Comfort® is two-fold:
1. To provide uplifting and comforting messages for those in challenging health situations as well as for the under recognized population of caregivers and loved ones, who play an irreplaceable role in the lives of those who are health challenged.
This is accomplished through Paws for Comfort’s greeting cards . . . .
2. To increase public awareness regarding an alternative method of muscle pain relief: the rare dog breed Xoloitzcuintli (Mexican Hairless) as the unique service dog for chronic muscle pain."

 www.pawsforcomfort.com

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Prof Andrew J. Holman MD


Lectures:
1. Friday: Autonomic nervous system, Benign Joint Hypermobility and FM

 Related article:  http://www.nfra.net/fibromyalgia-syndrome-dr-andrewholman.htm

2. Saturday: PC3 - Positional Cervical Cord Compression
   For information on PC3 see http://www.fmpartnership.org/articles/PC3_Holman.pdf

and www.PositionalCordCompression.com

3. With Sue Horton (Physical Therapist): Management

 4. Sunday: The Big Question?

 YouTube has some of Dr Holman's lectures, not necessarily the sme as above, but worth viewing.
Fibromyalgia: A Unifying Theory" 
https://www.youtube.com/watch?v=Ei8LbUDkQno
Treatment Pearls: Fibromyalgia"
https://www.youtube.com/watch?v=_V2DVOqRUmE

 See also: http://www.pacificrheumatology.com/homepage.html

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The rest of the Team from 

 Esther Odetunde, Physiotherapist - Graded Exercise Thrapy (GET)

 "Patients may be referred to physiotherapist by any of the doctors working at the RLHIM, by a consultant at UCLH or a GP."

 See: http://www.uclh.nhs.uk/OurServices/ServiceA-Z/INTMED/IMPHYS/Pages/Home.aspx
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Mary Queally, Occupational Therapist 

 "Occupational therapy enables people to achieve as much as they can for themselves and get the most out of life.
Occupational therapists help people of all ages who have physical, mental or social problems as a result of accident, illness or ageing, to do the things they want to do."

 See: http://www.uclh.nhs.uk/OurServices/ServiceA-Z/INTMED/IMOT/Pages/Home.aspx
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Dr Raj Lal Sharma, Hypnotherapy and cognitive behavioural therapy for Fibromyalgia 
"He runs the Hypnosis and Cognitive Therapy Unit at the Royal London Hospital for Integrated Medicine, UCLH NHS Foundation Trust, where he treats a wide variety of medical, dental and psychological problems e.g. Irritable Bowel Syndrome, Chronic Pain, Anxiety Based Disorders, and Interventional Procedures.
Additional to his clinical responsibilities, he teaches medical students, doctors and dentists on various topics in relation to Medicine, Hypnosis and Cognitive Therapy."

 http://www.uclh.nhs.uk/OurServices/Consultants/Pages/DrRajSharma.aspx

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Linda Horncastle, Alpha Stim
More Energy, Less Pain!  
             
For many people with pain, insomnia and anxiety, medication fails to give sufficient relief. This stops them living life to the full.
There are two other alternatives to medication which have excellent results in reducing pain, anxiety and insomnia and enabling you to do the things you want.  
One - Microcurrent therapy
Two – Occupational Therapy 

 Read more:  www.microtherapyclinic.com
and http://microtherapyclinic.com/Treating_pain.html

 Linda is a HCPC registered Occupational Therapist who set up the MicrOTherapy clinic in February 2010 specialising in treating people with the Alpha-Stim®. She also offers Occupational Therapy where the goal is to help clients have independent, productive and satisfying lives. She has run the South Bucks Fibromyalgia Support Group since 2001.

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Roz Macarthur, Pilates

 Roz gave a demonstration of seated exercises called Fitter Sitters.  No website presence except for mention of her classes at the Selsey Centre: http://www.selseycentre.co.uk/activity.html

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Kim Lovelace, Qigong Pain Reduction

"These pages will help you discover something about two passions in my life, shiatsu and qigong.   If you want to find out more, there are links (see adjacent panel) to useful websites and you're most welcome to contact me directly about more specific issues."

 www.kim.lovelace.shiatsusociety.org

 "Qigong - Way of Life Force Enhancement

 Up until the mid 1990s (in Europe and North America) you might only have heard the term  Qigong mentioned in Taiji and other martial arts classes.   Even in these contexts Qigong movements and postures were often considered simply as “warm ups” in preparation for the real work.
Around 1995 two phenomenon rapidly brought qigong to the attention of Western media. . . . . ."

 http://www.kim.lovelace.shiatsusociety.org/index.php?page=What%20is%20Qigong

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Veronica Pettifer, Around the Neck and Shoulders

 "The range of therapies work holistically to promote relaxation.  
Adapted reflexology and massage techniques are used to develop a tailored session plan for you. 
All these therapies should be seen as complementary to and not as an alternative to professional medical consultations and treatments.
Towards Balance Workshops offer a simple self-care routine to ease the upper-body tension often associated with office work, driving or caring."

 www.towardsbalance.co.uk

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Lisa Sturges, Laughterlines Coaching
"Welcome to Laughterlines Coaching.
Laughter Connects. It creates a bridge of understanding, playfulness and equality. It strengthens relationships, eases misunderstandings and oils the wheels of communication. Would you like to reduce stress levels in your own life, company or organisation? Would you like your employees to feel re-energised, engaged and relaxed during a conference or away day? Would you like to learn about a unique way to improve the health and wellbeing of your staff?"

 http://www.laughterlinescoaching.co.uk/

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 Wes Wright & John Stevens, Benefits Clinic

 "All about Frontline
Frontline is based mainly the South of England, and serves the community by providing expert assistance to those who are disadvantaged by the burden of debt, often through no fault of their own. We also specialise in offering independent, expert benefit advice.
Our volunteer advisors have many years experience working in this field, often liaising with government and other agencies to provide a totally confidential, free service to anyone in need, regardless of background or belief."

 www.frontlinedebtadvice.org.uk

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Despite meetings and hospital appointments this week I have worked hard to produce this special edition of FMS eNews.  All the speakers at the conference were good, if in some cases, controvertial!
But it was not all work and no play.  Each evening after dinner there was entertainment, with much fun and laughter. Next year's conference will be at the same place from 24-27 April, so book it in your diaries NOW!  Official announcements will no doubt follow.

 Best regards to all
Stella

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 If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

Posted by

FMS eNews 05/04/14

I think this is a fairly 'normal' eNews after all.  I have also been working on a post FibCon version which will be posted shortly. 
 I had an MRI scan this week - six months after my eye operation.  There is no sign of further cancer, so I am grateful for that.  I hope you had happy Mothering Sunday experiences; those who are mothers or still have mothers to celebrate it with. 

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WORDz for the WEEK

 162.  get mad . . . . then get over it!!

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From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

 I find fibromyalgia exercise research tired, flawed, and harmful in many ways, but I think it can also provide us with some valuable information. Get a look at three new studies and what they could mean for us, below.
Also this week, the importance of pushing to find out what's going on in your body, and a look at something that's helping me get by.
A couple of weeks ago, a temporary glitch in the system mistakenly sent some of you to the About.com home page instead of to the links you clicked. Sorry that happened! To make sure you don't miss anything, I've linked the three top stories from that issue over on the right, and I pulled the same content for Featured Articles this week.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/3053308f070001f012002622.htm

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 Nerve Pain Pictures Slideshow: Symptoms, Causes and Treatment Options
What Nerve Pain Feels Like


 The perception of pain varies with each individual; terms such as stabbing, prickling, burning, tingling, and other descriptions have been used. Nerve pain is difficult to live with but in most individuals, it can be reduced. Nerve pain is also called neuropathic pain.

 http://www.medicinenet.com/nerve_pain_pictures_slideshow/article.htm
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 Slideshow: A Visual Guide to Migraine Headaches
What Is a Migraine?
A migraine is a headache with throbbing pain that is usually worse on one side of the head. The pain is often severe enough to hamper daily activities and may last from four hours to three days if untreated. More than one in 10 Americans, including one in 6 women, have migraines, but many have been told mistakenly that they have a sinus or tension headache. Foods, stress, and hormones can be migraine triggers.

 See the rest of the slides here: http://www.webmd.com/migraines-headaches/ss/slideshow-migraine-overview

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Magnetic Effect: New Brain Technology Reduces Pain in Fibromyalgia 

 Numerous studies have found that altered activity in several parts of the brain correlates with pain and fatigue in Fibromyalgia and Chronic Fatigue Syndrome. rTMS, which uses a magnetic coil to alter brain activity levels, has  been found to improve the symptoms of a wide variety of neurological and psychiatric disorders in including migraine, stroke, tinnitus, Parkinson’s and  depression.  It can reduce or increase the excitability of the corticospinal tract depending on the configuration of the coils.

 Read more: http://www.cortjohnson.org/blog/2014/03/29/magnetic-effect-new-rtms-technology-reduces-pain-fibromyalgia/

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From International Traveler to 43 Square Meters: An ME/CFS Story From Sweden
I keep banging on the prison cell walls. Can anybody hear me? I am trapped. How did this happen? How was my active life transformed into imprisonment in a two-room apartment? How did I end up in this state of confined isolation and perpetual torture? And will there be no end?

 Read more:  http://www.cortjohnson.org/blog/2014/03/28/from-international-traveller-mecfs-report-stay-home-prison-can-anyone-hear/

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EUROPEAN COMMISSION SURVEY

• The survey is open to anybody who is living with illnesses or conditions that last many years (or even a lifetime), and the carers of people living with illnesses or conditions that last many years (or even a lifetime).
• The survey is being conducted online on this specialist survey website [http://www.surveymonkey.com], so allowing all responses to be COMPLETELY ANONYMOUS AND CONFIDENTIAL.
• The results of the survey will be made public by the European Commission’s Directorate General for Communications Networks, Content and Technology (DG CONNECT) at a conference in Athens, 12th-14th May 2014.
• As a survey participant, you can have a copy of the results emailed to you, if you wish.

Complete before 30th April:

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 Fibromyalgia has many causes and there are many things that can make your symptoms worse.
For example, heavy drinking of coffee, tea and soft drinks (including de-caffeinated coffee, tea and soft drinks). Many of these beverages cause the loss of both water and water-soluble B vitamins from the body. B vitamins are needed to repair damaged nerves.
Heavy smoking or drinking of alcohol, use of antibiotics and birth control pills, as well as stress can all damage your recovery.
And of course, there are many prescription medications that are associated with fibromyalgia as a side effect.
If you are taking one or more of the medications listed below, it can greatly add to the amount of time it will take for you to see results in repairing and reversing your fibromyalgia.

 https://qy127.infusionsoft.com/app/hostedEmail/117305/756b79cdbf33a186
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 Diet soda, aspartame linked to premature deaths in women

 A decade-long study of 60,000 women has confirmed that drinking diet soda sweetened with aspartame is linked with a 30 percent increase in heart attack risk and a 50 percent increase in death risk.
The findings, presented at the American College of Cardiology(1), have already been partially swept under the rug with the false explanation that diet drinks don't necessarily cause these risks but are instead merely correlated with them. "Women who toss back too many diet sodas may be trying to make up for unhealthy habits," claims an article on CNBC,(2) while citing no evidence whatsoever to support the claim. Keep in mind that any time a synthetic vitamin is correlated with increased mortality, the entire scientific community immediately describes those synthetic vitamins as "causing" death.

 Learn more: http://www.naturalnews.com/044510_diet_soda_aspartame_death_risk.html

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Top 5 foods for vitamin C
Vitamin C is a nutrient that has received a lot of attention over the years. It has been used by many households to combat colds, and is now getting acclaim for treating cancer. It's best to get vitamin C in whole food for its synergistic effect with other nutrients, and these are 5 great ways to do just that.

 Learn more:
http://www.naturalnews.com/044521_vitamin_C_food_sources_camu.html

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 National (USA) Fibromyalgia Partnership, Inc.
People with fibromyalgia (FM) no longer have to be alone. The National Fibromyalgia Partnership (NFP) offers high quality, medically-accurate information on fibromyalgia symptoms, diagnosis, treatment, and research.
Established in 1992, the NFP is a highly regarded, non-profit, educational organization whose members include FM patients and their families, as well as healthcare professionals, both research and clinical. 

 http://www.fmpartnership.org/

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 Fibromyalgia Syndome

 The National Fibromyalgia Research Association is THE source for what’s new in fibromyalgia research and education. On this site you will find fibromyalgia diagnostic criteria and an Informational Guide. Also available is the newest material regarding the connection between the central nervous system (Chiari & cervical spinal cord stenosis) and FM/CFIDS. Look at low blood pressure problems in FMS and CFIDS. Check out scientific abstracts including those from NFRA’s scientific research symposium. Learn about available resources to help you gain control of this condition including: Exercise videos, patient organizations, newsletters, upcoming FMS events and other web page links. 

 Explore the site: http://www.nfra.net/
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 Fitness Function

 As well as providing Pilates classes at Crawley, Vicky Haworth provides a website offering videos, testimonials, newsletters and lots of help especially with back pain.

 See more:  www.fitness-function.co.uk

Watch Vickie's video - Be Activated points: 
http://www.youtube.com/watch?v=9fN8I2dJUh8

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 We have been working hard on new developments in our school, to make our classes accessible by the whole community.  From this, we now offer Tai Chi and Qigong for all abilities, meaning seated and chair based for those with restricted mobility whether through disability, age, disease, injury or for rehabilitation.  Skype lessons and Horsham classes.

 Fid out more: http://us2.campaign-archive2.com/?u=75076062ba40962e2e364d5f4&id=82c6eac986&e=751f85837c

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 Gamechanger Going Viral - March 31st

 Over ten years of medical research has yielded some promising results – “It is a tip of the iceberg” – in terms of finding something to finally ease our battle with FM. Dr William “Skip” Pridgen has been researching FM for the past 15 years while simultaneously working in this full-time surgical practice, Tuscaloosa Surgical Associates PC. Through his research, he has developed a new drug and a treatment that may one day actually provide a cure for FM! IMCHis research has also led him to create Innovative Med Concepts, which is a new biotech company that one day hopes to bring forth the medical discoveries to the marketplace.

 http://wp.me/p376oM-32r
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Put a Smile on your Dial - April 1st

 It’s National Smile Day here in Australia…but it really couldn’t hurt to spread it around, right?
Scientist and spiritual teachers alike agree that the simple act can transform you and the world around you:

 http://wp.me/p376oM-32g
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 Take the Next Step → LAUGHTER! - April 2nd

 So, after smiling all day yesterday, let’s move onto LAUGHING!!!!
When was the last time you laughed until your side hurt from laughing… and not because of your typical aches and pains? 
Laughter is a natural medicine. It lifts our spirits and makes us feel happy. Laughter is a contagious emotion. It can bring people together. It can help us feel more alive and empowered.

 http://wp.me/p376oM-32i
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DR MYHILL PUBLISHES BOOK

 STOP PRESS -- Dr Myhill's first book of the year "Diagnosis and Treatment of Chronic Fatigue Syndrome" is now available to purchase from her office!!! Here is Sarah's commentary as copied from her website homepage. 
“It's official - it's mitochondria, not hypochondria! . . . . .

 https://www.causes.com/causes/557119-help-dr-sarah-myhill-fight-the-gmc/updates/906627-dr-myhill-publishes-book 

 The book is also available from Amazon: http://www.amazon.co.uk/Diagnosis-Treatment-Chronic-Fatigue-Syndrome/dp/1781610347/ref=sr_1_1?ie=UTF8&qid=1396544068&sr=8-1&keywords=sarah+myhill
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Daily Newsletter, March 27th, 2014

Daily Newsletter, March 28th, 2014

Daily Newsletter, March 30th, 2014

Daily Newsletter, March 31st, 2014

Daily Newsletter, April 1st, 2014

Daily Newsletter, April 2nd, 2014
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That's all for now folks.  Don't forget to read the special FibCon edition as well.
You'll be busy, but not half as busy as I have been in preparation!

 Kindest regards
Stella
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 N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. 
Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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