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FMS eNews 21/09/13

Hello  Fibro Friends
Yesterday was spent journeying to and from St Bart's in London and spending four hours there.  I have included a report on the day at the end of this blog.  You don't have to read it if you are not interested in my private life, but as many people have asked that I let them know how I got on, I have included it for them.

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WORDz for the WEEK

 136.  As long as you can laugh at yourself you will never cease to be amused.
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From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

 Inflammation is a problem most of us, and perhaps all of us, with these illnesses deal with. It can mean medications that are hard on the liver and digestive system, and after a while, those meds might stop working. That's the situation I find myself in, but I'm not out of options. Learn about the diet my rheumatologist put me on, below.
Also this week, little ways you can raise awareness of our illnesses and invisible illness in general.
Down in Featured Articles, I've included some information on our old nemesis - exercise.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/1379098800.htm
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Move over Lyrica and Cymbalta? Could Topamax (Topiramate) Be More Effective in Fibromyalgia?

 The three drugs approved for fibromyalgia are a good thing, but doctors that focus entirely on them may be missing real opportunities. A case study of a fibromyalgia patient (with migraine) who responded spectacularly to a little-used drug demonstrates how important it is to stay informed, find a flexible doctor, and keep your options open.
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http://www.cortjohnson.org/blog/2013/09/14/move-lyrica-cymbalta-topamax-topiramate-more-effective-fibromyalgia/

 See other articles
http://mad.ly/5b44a3?pact=538231133117031565&fe=1
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Newsletters Archives

 Recent subjects
Having Physical Pain? 8 Non-Drug Tactics to Eliminate Back, Joint & Other Pain
Eating Red Meat: Once and for All, Is it Bad for You or Good for You?
Is Your Trouble Losing Weight Due to Food Allergies?
10 Things to Discuss at Your Next Doctor's Office Visit

 http://www.healthrealizations.com/FoodsForFibromyalgia/NewsletterArchive.aspx
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The Big Blue Fish that Helps Chase the Blues Away 

 SAM-e: a Hard-Working Molecule that May Help Ease Pain & Brighten Mood
Natural Support for Mood, Sleep and Mental Focus?   L-theanine

 http://www.prohealth.com/ep/EP091613/index.cfm?slvor=11254.1112130.0.1.0.110434&eid
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Making Peace with Fibromyalgia
A diagnosis of fibromyalgia usually morphs into a feeling that life is nothing more than illness.
Despite the pain and the fibro fog; the inability to sleep and the isolation; a fibromyalgia patient can undertake helpful steps to manage their chronic pain and regain happiness. Below are five key components of a treatment regimen to help fibromyalgia patients take back control of their lives.

 http://fibrodaily.com/symptoms-and-diagnosis/making-peace-with-fibromyalgia/
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New Morning Taiji Qigong Classes in Horsham

 Wednesdays at 10.30am - 11.30am
Cost: £6 cash
Location: Roffey Millenium Hall, Crawley Road, Horsham

 http://us2.campaign-archive2.com/?u=75076062ba40962e2e364d5f4&id=905dbbef2c&e=751f85837c
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From Ann Pizer, your Guide to Yoga
As I was looking around the internet for strength sequences, I noticed something: most of them assume you are already strong enough to do arm balances and inversions. But how are you supposed to build yourself up to those intermediate and advanced postures? So I designed this 9-pose strength sequence with beginners in mind.

 http://specials.about.com/service/newsletters/yoga/1379426400.htm
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Muscle News Vol I.19:  Brush & Breathe

 Pain Takes Lives: Fibromyalgia and 2 Things That Can Help

 http://us6.campaign-archive2.com/?u=0af530fcf7f1fda8205a74cb9&id=38dc871d7f&e=db7884d522
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Sept. 14th, 2013 Daily Newsletter

Sept. 16th, 2013 Daily Newsletter

Sept. 17th, 2013 Daily Newsletter

Sept. 18th, 2013 Daily Newsletter

Sept. 20th, 2013 Daily Newsletter

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I had an eventful day yesterday. Although the transport (which turned out to be an ambulance) was late, nothing was lost as a result. One gain was that on arrival at the hospital the road was closed with mounted police around, to make way for the marching band of Christ's Hospital followed by the whole school. Chris (my daughter) filmed it all on her mobile phone. According to Wikipedia http://en.wikipedia.org/wiki/Christ%27s_Hospital 'Links with the City and the Lord Mayor of London are maintained, with an annual parade through the City of London on St. Matthew's Day'. Today is St Matthew's day, so the feast was being anticipated to hold the procession on a school day. What timing!
The ambulance men kindly took me into the hospital by wheelchair. We were 45 minutes late but I was seen within 10 minutes for a sight test. At periodic intervals I was subjected to scans, photography, various 'scopes' to determine the problem and interviews with various people. There were no conclusive results but eye surgery was recommended. Some further tests are to be arranged. We were at St Barts for 4 hours and got home at 5pm. For the return journey I made use of the stretcher/trolley which was more comfortable than the seats!
We celebrated Laura (my granddaughter)'s 22nd birthday (which was on 19th) with a family meal in the evening, including Michael (my son) who is spending the w/e with us. Laura and Steve announced the date of their pending wedding - 1st August 2015.
All good wishes   
Stella
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N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com These ceased at the end of November 2012 when I resigned as a trustee.
This blog commenced on 8th December 2012.

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