Hi
Everyone
I
survived the week, and I got a reasonable eNews compiled. Hope it's
useful to you. The family is re-united, and refreshed after
their holiday.
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WORDz
FOR THE WEEK
123.
All the darkness in the world cannot extinguish the light of a
single candle.
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 |
| Adrienne Dellwo |
Do
you have "pain buttons" that send pain shooting around your
body? One reader asked a question about these awful things, and the
answer is below.
Also
this week, some tests you might want to ask your doctor about, and
how fibromyalgia could be making you age too fast.
Down
in Featured
Articles,
you'll find lots of information about supplements.
Take
care of yourself!
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A
Poignant Poem
A
MAP to diagnosis
If
after reading this poem you're not perfectly clear
I'll tell you much more if you click the link here
I'll tell you much more if you click the link here
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FROM
THE EDITOR, Pamela Bennett
Ah...summer.
After
a winter that seemed it would never end, and a spring that barely
was, the warmth of summer is finally upon us!
This
past week I was in DC for a policy forum held by the National Patient
Advocacy Foundation. The focus of this meeting was on patient
centric care. Patients shared their experiences which caused tears
to well in my eyes and anger to burn in my heart, experiences from a
health care system that is broken for many.
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I
have a confession to share with you!!
I've
been so busy building all my events that I haven't really paid much
attention to where the time has disappeared to.
One of my clients asked me 'How long have you been practising in Reflexology?' I suddenly realised that it's going to be 10 years next year, I've been telling everyone it's about 7 years!!!
I guess it's true when you are having fun the time goes quicker.”
One of my clients asked me 'How long have you been practising in Reflexology?' I suddenly realised that it's going to be 10 years next year, I've been telling everyone it's about 7 years!!!
I guess it's true when you are having fun the time goes quicker.”
Read
more about Debbie's plans.
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Why
We Should Care. Have you signed these Petitions?
Give
people on carers allowance working tax credits sign @
http://links.causes.com/s/clK14q?r=3jXN
(close to 700 signed already)
(close to 700 signed already)
Stop the
abolition of disability living allowance sign @
http://links.causes.com/s/clK14r?r=3jXN
(over 46000 signed already)
(over 46000 signed already)
Cumulative
Impact Assessment of Welfare Reform, and a New Deal for sick &
disabled people based on their needs, abilities and ambitions sign @
http://links.causes.com/s/clK14t?r=3jXN
(over 41000 signed already)
(over 41000 signed already)
Save the
UK justice sign @ http://links.causes.com/s/clK14x?r=3jXN
(getting very close to the 100 thousand needed to make change happen )
(getting very close to the 100 thousand needed to make change happen )
You are
and do make a difference. You are and will make change happen.
Join us,
support us and help to make change happen today.
Read the
full article
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You
may like to sign this one too
Fatigue is not a disease! In March 2013, Sophie Coldwell
died of leukemia. She never received a diagnosis, because when she told her
doctor she was tired, he said, "You have chronic
fatigue syndrome." 30% of MS patients are also
told they have "CFS." 10% of patients with brain
tumors, and who knows how many people with incipient heart disease, diabetes,
and cancer receive a diagnosis of CFS. It is time we got rid of "fatigue" as a
diagnosis for everybody's sake.
Please sign the petition and share it with your friends and family.
http://www.thepetitionsite.com/255/349/958/fatigue-is-not-a-disease/
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Creating The Right Diet For Fibromyalgia - How Does A Healthy Diet Help?
Maintaining
a healthy diet is important for everyone, but for patients with
fibromyalgia it is especially critical. Proper nutrition can help
fight fatigue and improve sleep and overall health. Some patients
with fibromyalgia also find eating certain types of foods, such as
fried food or food high in sugar makes symptoms worse.
According
to the University of Maryland Medical Center, patients with
fibromyalgia should stick to a diet that is high in fiber and
includes foods, such as vegetables, fruits and whole grains. Patients
should also watch fat content and avoid too much animal fat.
http://www.symptomfind.com/nutrition-supplements/diet-for-fibromyalgia/
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Using Yoga For Fibromyalgia - Can Yoga Really Help With Fibromyalgia?
Yoga
has been often noted for its healing properties and role as a low
impact and sometimes strength building exercise. In this case, the
yoga classes in question are of the gentle, restorative nature.
Depending on the studio, it can be called gentle hatha, or just hatha
yoga. Read the rest of the article.
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Study Finds CoQ10 Cuts Heart Failure Mortality in Half
Coenzyme Q10 decreases all
causes of mortality by half, according to the results of a
multicentre randomised double blind trial presented today at Heart
Failure 2013 Congress. It is the first drug to improve heart failure
mortality in over a decade and should be added to standard treatment,
according to lead author Professor Svend Aage Mortensen (Copenhagen,
Denmark).
And it's good for fibromyalgia
too!
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Hurtful Comments and Chronic Pain
In
a moment of frustration I (Tracy) posted this on my Facebook page
dedicated to Chronic Pain, Tracy Rydzy- Oh What a Pain:
Sometimes
I wonder, when something comes up that is difficult to accept or
hurtful or upsetting because of living with chronic pain, do people
try to be jerks about it or are they really too stupid to understand?
One
of the pages’ followers, Cassandra,
responded with her opinion and I think it will resonate with many
readers. We co-wrote the following article:
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Urgent
– taking action to protect consumer choice in herbal products
Consumers
for Health Choice works hard to ensure that consumers get the widest
possible choice of traditional herbal medicines. A European Union law
called the Traditional Herbal Medicinal Products Directive, which
entered into force in 2011, threatened this choice by severely
restricting the availability of these products. Read more . . .
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June
8th, 2013 Newsletter
June
9th, 2013 Newsletter
June
10th, 2013 Newsletter
June
11th, 2013 Newsletter
http://us1.campaign-archive2.com/?u=7f494613c5ad4db1b93e647ad&id=0cef575241&e=3a786b8cc1
June
12th, 2013 Newsletter
June
13th, 2013 Newsletter
June
14th, 2013 Newsletter
http://us1.campaign-archive2.com/?u=7f494613c5ad4db1b93e647ad&id=e3fb4b6e43&e=3a786b8cc1
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I shall be away next weekend so
eNews will be published on Thursday, if at all!
Until then, look after
yourselves
Stella
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Contact me:- fmsstella@gmail.com
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N.B.
I would like to point out to you that the information in my eNews
blog is passed on to you mainly from other sources. Links are given
to the original articles. I take no responsibility for their
accuracy but freely give them publicity if I think they might be of
interest to my readership. Sites I refer you to are for information
only. They might conflict in their opinions, they might not
even be medically sound, but I merely offer them for you to peruse
and make your own judgements, accept or reject as you will.
Only by reading widely can we get an overall picture of fibromyalgia
syndrome and how we can deal with its symptoms, learn to cope with
them and still have a life. Any advice or recommendation of a
medical or legal nature should always be discussed with a qualified
professional.
I
also include various awareness items, benefits issues, as well as
general health considerations. Anyone wishing to reproduce any of
the included items in printed form should seek permission from the
originators.
Wordz
for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who
died in May 2011.
This
eNews is my personal offering to fibromyalgia sufferers and their
carers and is not related to any other organisation or charity.
If
you don’t already get reminders when each new eNews is posted,
please send an email to fmsstella@gmail.com
as you will be added to the emailing list.
I
previously sent out emails as FMSSAS eNews. Past issues of FMSSAS
eNews can be found at www.fms-sas.co.uk/fmseNews.html
and on a blog at http://fmssas-enews.blogspot.com
These ceased at the end of November 2012 when I resigned as a
trustee. This blog commenced on 8th
December 2012.
