Hello Everyone
A mixed bag awaits you again
this week:- brief reports on the rest of
the fiibro conference, as promised; last minute Awareness Day thoughts; Guidelines
for the Diagnosis and Management of Fibromyalgia Syndrome in Adults – from Canada
– quite a breakthrough; and more besides. So here we go .
. . . ..
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WORDz FOR THE WEEK
118.
Life isn’t always beautiful. But it can be a beautiful ride.
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Fibromyalgia Awareness Day is Tomorrow – May
12th
Here’s something you can share
with your friends. Thanks go to Natalie of
the Chorley Support Group for producing this Fibromyalgia Wordsearch.
Don’t
forget to post your ‘I’m Making the Invisible Visible’ photos on your Facebook
and Twitter pages - again. And, have you
got the purple header for awareness on your page? I have!
If not, get it here http://fibromodem.com/wp-content/uploads/2013/02/header.jpg
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Fibromyalgia Conference, Chichester, 26th - 29th April 2013 (Part 2)
This week I am reporting on the events of Sunday 28th
April.
10am, Claudia Marek, Fibromyalgia & Hypoglycemia
A pre-diabetic condition, hypoglycaemia can be controlled by diet
but has a number of symptoms which overlap with fibromyalgia.
www.fibromyalgiatreatment.com
[I could not gain access to this site.
You might have better luck!]
For fuller information see http://www.ukfibromyalgia.com/complementary-treatments/hypoglycemia-and-fm.html
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11.15am, Lyn Mynott, Chair & Chief Executive Officer, Thyroid UK
– Thyroid Disease and Fibromyalgia
Fibromyalgia symptoms can
be similar to thyroid problems. It is important to have adequate thyroid
tests to establish whether the thyroid gland is functioning properly.
Unlike fibromyalgia, hypothyroidism can be treated effectively as long as all the relevant thyroid tests are done
and the appropriate treatment is
given.
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12.15pm, Dr Kevin White MD PhD, Six Secrets to Feeling
Better and Living Longer
Although
fibro is said not to be a terminal illness it DOES kill people through suicide,
cardiovascular disease, liver disease et.
It affects all 9 body systems but in order to feel better and escape; an
acrostic of that word was used as a reminder (as far as I remember!)
 |
| Dr Kevin White |
Educate yourself
Surround yourself by the right people
Counter those who doubt fibro
Accept responsibility for your own health
P[erhaps someone else can remember this one?!]
Educate your doctor and Enjoy good times
It is important to treat the patient, not only
the disease, to improve quality of life.
Submitted by Teresa, a conference volunteer:-
Dr Kevin White has won numerous awards
for his research, teaching and books. As the author of 15 books he is now
Executive Officer of Wortley Road Books, Based in
Canada. His goal is to increase
awareness about the scientific reality of fibromyalgia with his award-winning
book “Breaking Thru The Fibro Fog: Scientific Proof Fibromyalgia Is Real”. The
book that won an international book award has been endorsed by the British
Columbia Trial Lawyers Association. It addresses several critical medico-legal
questions related to fibromyalgia, including the issue of traumatic causation,
and cites 481 published scientific references to support its conclusions. It is
a must read for lawyers with personal injury cases. As an accomplished
singer-songwriter and closet comedian, Dr. White uses these skills to prove
fibromyalgia is a real PHYSICAL disease.
Books on sale via Folly
Pogs Fibro Research UK, contact Jeanne Hambleton at books@follypogsfibro.org phone 08433 828 829.
£20
plus p&p
All funds going to the charity to raise much needed funds for a cause to
find a cure.
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2pm, Iain Casey MD, CryoClinics, the Cutting
Edge Recovery Technique
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| Cryo chamber |
Marie-Caroline gave an introductory talk about her experience of
cryotherapy (She had given a full talk at last year’s conference) . Iain showed a film and gave further
explanation:-
Cryotherapy is a treatment consisting of exposing
the body to extreme cold for several minutes.
It relieves and eliminates pain, promotes blood circulation, improves
joint and muscular function , and releases endorphins. It stimulates the body to heal and reduce
pain.
Marie-Caroline has been
working with Prof Basant Puri and Iain Casey to get cryotherapy units introduced into
hospitals. The first one has been opened
in a hospital in Hendon.
See also this article http://www.prohealth.com/library/showarticle.cfm?libid=18048
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3.15, Dr David Owen MB, BS, FFhom – The Natural Pactice Clinic
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| Dr David Owen |
David Owen is a Homeopathic Doctor believing in the
holistic approach to medicine, based at Southampton University.
A quote from
William Osler sums up his philosophy:- “It is more important to know the
patient who has the disease than the disease the patient has”
Nevertheless it helps if the disease is understood by the
doctor!
See http://www.thenaturalpractice.com/
for details of Dr Owen’s Natural Practice clinics.
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Ask the Doctors
A Forum was held when all the speakers
of the day were available to answer delegates’ questions.
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AT LAST!
Canadian Guidelines for the Diagnosis and
Management of Fibromyalgia Syndrome in Adults
Comprehensive, evidence-based and written by a panel of experts from
across the country. Endorsed by both the Canadian Pain Society and the Canadian
Rheumatology Association.
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|
Articles
The role of the therapeutic
relationship in cognitive behaviour therapy for chronic fatigue syndrome.
Fear of movement and avoidance
behaviour toward physical activity in chronic-fatigue syndrome and
fibromyalgia: state of the art and implications for clinical practice.
Neurocognitive impairment in childhood
chronic fatigue syndrome.
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Welcome to the reMEmber website
Helping people with ME (myalgic encephalomyelitis) - also known as CFS
(chronic fatigue syndrome) - get the best possible treatment and advice to
enable them to lead happy and healthy lives.
Also useful for FM
patients.
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American College of Rheumatology
Fibromyalgia is a common
health problem that causes widespread pain and tenderness (sensitive to touch).
The pain and tenderness tend to come and go, and move about the body. Most
often, people with this chronic (long-term) illness are fatigued (very tired)
and have sleep problems. It can be hard to diagnose fibromyalgia
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Sleep Well
Before popping a sleeping
pill, make sure you
understand the potential risks and side effects. | |||
|
The
number of ER visits due to sleep meds such as Ambien has increased
dramatically.
Read Article › |
Getting
too little or too much sleep can increase your heart disease risk.
Read Article › |
The
4 types of studies conducted before a sleep disorder is diagnosed.
Read Article › |
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Recommended articles
Health-resource use and costs associated
with fibromyalgia in France, Germany, and the United States
Benefits
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May
5th, 2013 Newsletter
May
6th, 2013 Newsletter
May
8th, 2013 Newsletter
May
9th, 2013 Newsletter
May
10th, 2013 Newsletter
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So that’s it for now my
fibro friends. Until next week . . .
I am, as ever, at your
service.
Stella
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Contact me:- fmsstella@gmail.com
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N.B. I would
like to point out to you that the information in my eNews blog is passed on to you mainly from other
sources. Links are given to the
original articles. I take no
responsibility for their accuracy but freely give them publicity if I think
they might be of interest to my readership.
Sites I refer you to are for
information only. They might conflict in their opinions, they might not
even be medically sound, but I merely offer them for you to peruse and make
your own judgements, accept or reject as you will. Only by reading widely
can we get an overall picture of fibromyalgia syndrome and how we can deal with
its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or
legal nature should always be discussed with a qualified professional.
I also include
various awareness items, benefits issues, as well as general health
considerations. Anyone wishing to
reproduce any of the included items in printed form should seek permission from
the originators.
Wordz for the Week
are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my
personal offering to fibromyalgia sufferers and their carers and is not related
to any other organisation or charity.
If you don’t
already get reminders when each new eNews is posted, please send an email to fmsstella@gmail.com as you will be added
to the emailing list.
I previously sent
out emails as FMSSAS eNews. Past issues
of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a
blog at http://fmssas-enews.blogspot.com These ceased at the end of November 2012 when
I resigned as a trustee. This blog commenced on 8th December 2012.
