Greetings
There’s a lot of that
white stuff outside! I’m not venturing
anywhere! This week I have introduced
embedded hyperlinks. I hope these work
for you. I may use these, replacing the
direct hyperlinks, in the future. Let me
know if you have any problems with this.
Thank you.
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WORDz FOR THE WEEK
102.
Scars are simply tattoos with better stories.
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The Magnesium Miracle – a gift of an ebook from
the Nutritional Magnesium Association
“Every doctor and patient
should read this comprehensive book on the many roles of magnesium. . . . Excerpt:-
‘Most people with chronic
fatigue syndrome and fibromyalgia improve about 50 percent when they begin to
use magnesium. People who take magnesium
for muscle spasms have shared that their mild depression and irritability
disappear as a wonderful side benefit. One benefit of magnesium, which is
difficult to prove scientifically, is a greater enjoyment of sexual activity,
reported by many women. I’ve written about magnesium oil in this edition of The Magnesium
Miracle, but already my clients are
remarking on its many benefits. You can rub it into the gums to help treat
inflammation and prevent bad breath and gum bleeding. Applied as a spray, it
makes the skin smooth and soft.’” Read
rest of ebook
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'This brutal new system': a GP's take on
Atos and work capability assessments
I see work capability
assessments damaging patients struggling with mental health issues and serious
illness.
‘I had not seen Eileen for
some time, until a few months ago when I was asked to phone her. She sounded
distressed, confused and frightened and did not understand what was happening
to her. She has been a patient of mine for 10 years and over time, I've tried
to help her cope with her mental illness. A few years ago her mental health had
deteriorated so much that she needed to be in hospital.’ . . . See
full article
See
other articles
about ATOS.
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‘I've found some
information online that I thought would be useful to those in the process of
claiming ESA who have insufficient points for the WRA or Support Groups.’
http://www.ukfibromyalgia.com/forums/viewtopic.php?f=11&t=12541&sid=49165d770c3febcccef4774d13baed27
See lots of other
discussions on this subject.
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Sleep & Digestive Problems in
Fibromyalgia & Chronic Fatigue Syndrome
‘You find reference to them in just about every description of fibromyalgia
and chronic
fatigue syndrome, and you find instances of them in just about every person
with these illnesses - sleep problems and digestive disorders are part of the
package.’ Read
more .
Latest articles on Fibromyalgia
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January 11, 2013
Dear Friends, Here is your chance to participate in a new online fibromyalgia scientific study on mindfulness and fibromyalgia being conducted by the fibromyalgia research team at the Oregon Health & Science University (OHSU). This group has been involved in fibromyalgia (FM) research since the 1980s and has produced a large compilation of important scientific studies focused on growth hormone depletion in FM and the importance of exercise in successful FM treatment programs. Your participation entails filling out a short survey. Please click on the following link to learn more about this opportunity and how to participate. Click here for more information Sincerely, NFMCPA Staff and Volunteers |
Research on Fibromyalgia Skin Sensitivities
‘Does your skin burn or itch? Do you frequently get rashes that just
won’t go away? According to Charles
Lapp, M.D., who treats hundreds of people with fibromyalgia at
his center in Charlotte, NC, “fibromyalgia-related rashes occur in the majority
of patients that I see.” Lapp, along with another experienced physician, Daniel Wallace, M.D.,
of UCLA, agrees that skin sensitivities are common in fibro. So what is it
about your skin and its related tissues that make them so sensitive? Studies
during the past 20 years may help explain why your skin is such a nagging
issue.’ Read
more
If you’re Overweight, Sick, Tired and Sleep-deprived…Take My
30-day. . . . . .Rejuvenation
Challenge
‘Have you finally decided
it’s time to do something different to feel and look better rather than living
and eating the same old
way yet expecting new results..? The information in this
investigative report has helped hundreds of my clients, and me, feel better and
eliminate someof those extra pounds in a healthy way that can be incorporated into a life-long life-style change...click here to continue reading...
There are various online support groups for fibromyalgia patients. 
A New Type of Treatment for Fibromyalgia
‘Vasovagal therapy is
unique in that it goes beyond treatment of the symptoms, affecting the CNS
(central nervous system) directly through manipulation of the vagus nerve,
improving overall autonomic function.‘ Read more
Sunlight is
well-known to provide us vitamin D, but did you know that it kills pain, keeps
us alert at night, burns fat and more...
‘Our biological connection
and dependence to the sun is so profound, that the very variation in human skin
color from African, melanin-saturated dark skin, to the relatively melanin
de-pigmented, Caucasian lighter-skin, is a byproduct of the offspring of our
last common ancestor from Africa (as determined by mitochondrial
DNA) migrating towards sunlight-impoverished higher latitudes, which began
approximately 60,000 years ago. In order to compensate for the lower
availability of sunlight, the body rapidly adjusted, essentially requiring the
removal of the natural "sunscreen" melanin from the skin, which
interferes with vitamin D production; vitamin D, of course, is involved in the
regulation of over 2,000 genes, and therefore is more like a hormone, without
which our entire genetic infrastructure becomes destabilized.’ Read
more
Let’s hope for some
sunshine then!
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Do you need to be diagnosed with
fibromyalgia to be successfully treated?
‘For years I thought I needed to find a doctor to diagnose me with and
treat me for fibromyalgia. I sought out various pain specialists;
physiatrists and anesthesiologists, the heads of departments. Some of
them even listed fibromyalgia among their clinical interests, which I thought
was sure to be a good sign.
Yet every time I actually
got into the exam room and asked one of those doctors if I had fibromyalgia,
the response was vague. “I don’t know, I don’t generally diagnose people
with fibromyalgia,” was the general answer I got.’ Read on
The Prevalence of Fibromyalgia in Other
Chronic Pain Conditions
‘Central sensitivity syndromes (CSS) include fibromyalgia syndrome
(FMS), irritable bowel syndrome, temporomandibular disorder, restless legs
syndrome, chronic fatigue syndrome, and other similar chronic painful
conditions that are based on central sensitization (CS). CSS are mutually
associated. In this paper, prevalence of FMS among other members of CSS has
been described. An important recent recognition is an increased prevalence of
FMS in other chronic pain conditions with structural pathology, for example,
rheumatoid arthritis, systemic lupus, ankylosing spondylitis, osteoarthritis,
diabetes mellitus, and inflammatory bowel disease. Diagnosis and proper
management of FMS among these diseases are of crucial importance so that
unwarranted use of such medications as corticosteroids can be avoided, since
FMS often occurs when RA or SLE is relatively mild.’ Read more
Articles about Fibromyalgia
Here are 30 scholarly
articles about fibro that you probably won’t have time to read – but just to
let you know they are there! Subjects
range from the effects of Cranialsacro Therapy and Tai Chi to Depression and Quality
of Life in fibro patients – and of course, many more.
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Newsletter from Tonbridge
FM Support Group for January 2013
Some interesting articles
included, of interest to all.
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Chronic Pain - Home Treatment
The following ideas can help you
manage your chronic pain.
Take your medicines as prescribed.
Participate in a physical therapy or exercise program
that includes stretching several times a day.
Keep your appointments with your doctor, especially if
you have moderate to severe or constant chronic pain.
Make lifestyle changes, such as:- . . . . Find
out here
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Fibromyalgia and Diet - Will changing your
diet help you cope with fibromyalgia?
If you have fibromyalgia,
you've probably wondered if there are ways you could modify your diet to
improve symptoms such as fatigue and muscle pain.
Research hasn't shown that
there are specific foods that all fibromyalgia patients should avoid or add to
their diets. But it may still be worthwhile to take a closer look at how foods
impact the way you feel.
"There aren't many
good studies that have looked at how diet can affect fibromyalgia symptoms. But
I think we can gather a lot from anecdotal evidence -- from what patients tell
us," says Ginevra Liptan, MD, medical director of the Frida Center for
Fibromyalgia in Portland, Ore., and author of Figuring Out Fibromyalgia:
Current Science and the Most Effective Treatments.
Here are some of the ways
doctors say food can play a role in fibromyalgia and tips on how you can tweak
your diet to support your overall health.
See
what they are
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The Sleepydust E-Magazine #38
What's In This Issue?
• Welcome From Sleepydust!
• Can Colon Hydrotherapy
Help To Ease Your Symptoms?
• What's YOUR Story?
• This Week's Personal
Story
• Latest News In The
ME/CFS & FMS Communities
• Chicken Soup For The
Sleepydust Soul
• And Don't Forget...
(Helpful Sections)
• A Few Notes
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I apologise if you find
there is information overload! It is difficult to know what to leave
out. You can do your own filtering and
read what appeals to you most. If there
is a subject you would like to be addressed, let me know and I will do some
research on the issue.
Stella
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N.B. I would
like to point out to you that the information in my eNews blog is passed on to you mainly from other
sources. Links are given to the
original articles. I take no
responsibility for their accuracy but freely give them publicity if I think
they might be of interest to my readership.
Sites I refer you to are for
information only. They might conflict in their opinions, they might not
even be medically sound, but I merely offer them for you to peruse and make
your own judgements, accept or reject as you will. Only by reading widely
can we get an overall picture of fibromyalgia syndrome and how we can deal with
its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or
legal nature should always be discussed with a qualified professional.
I also include
various awareness items, benefits issues, as well as general health
considerations. Anyone wishing to
reproduce any of the included items in printed form should seek permission from
the originators.
Wordz for the Week
are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my
personal offering to fibromyalgia sufferers and their carers and is not related
to any other organisation or charity.
If you don’t
already get reminders when each new eNews is posted, please send an email to fmsstella@gmail.com as you will be added
to the emailing list.
I previously sent
out emails as FMSSAS eNews. Past issues
of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog
at http://fmssas-enews.blogspot.com These ceased at the end of November 2012 when
I resigned as a trustee. This blog commenced on 8th December 2012.
Contact me:- fmsstella@gmail.com
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