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FMS eNews 12/12/15

Some of the articles this week are looking forward towards Christmas with advice on how to cope, lots of hints and tips as well as ideas for pressies for poorly people.  Next week's will be the last blog before Christmas.  I think I will take some time off after that and give myself some breathing space.  So don't expect a blog on Boxing Day!

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WORDz for the WEEK

 251.  The best lessons of life come in small daily packages ... called experiences!
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 Inflammation: What's It Doing to You?

 Inflammation is a tricky subject when it comes to fibromyalgia and ME/CFS. We're learning a lot more about the roles they play, though, and that new information is changing the way we think of these illnesses.
Today, we explore the role inflammation plays and why, along with some treatments for inflammation and comorbid inflammatory conditions.
Take care of yourself!
Adrienne Dellwo - Fibromyalgia & Chronic Fatigue Expert
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 A Look at Fibromyalgia

 This webpage would not allow copying so I can't quote but it is a comprehensive article about all aspects of Fibromyalgia and worth perusing.
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Fibromyalgia and Loneliness (A study)
As I was reading for my Personality Psych class I came across a section on loneliness, and how there is a correlation between loneliness and illness (simple things like colds and flus). In one study that had people opt to be exposed to a virus and found that those who reported stronger bonds with friends and family (and less loneliness) were less likely to get sick. Whereas those who were lonely were much more likely to get sick.  As I read that study I had to wonder if anyone had done a similar study correlating Fibromyalgia and loneliness, and sure enough I found a 2014 study from Wolf & Davis that did just that.
Read on . . .
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 9 Gift Ideas for #Spoonies
Christmas is coming, Christmas is coming! (And, my is just a few days away, in case anyone wondered.) With Christmas just around the corner I wanted to share a few last-minute gift ideas for spoonies in our lives. So, if you are a spoonie you can send this post to the people who love you, and if you aren’t a spoonie but love one here’s a few ideas for Christmas, birthdays, and beyond. Each of these ideas is a product I use and enjoy so I know it will benefit others.

 Find out what they are.  Want to put them on your Xmas list?

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 FEDUPWITHFATIGUE.COM’S FIBROMYALGIA GIFT GUIDE

 How did this happen? It seems like it was just yesterday that I was walking around in shorts and flipflops, swatting away the mosquitoes and complaining about the humidity. Somehow, someway, “the most wonderful time of the year” is here! With Christmas just a few days away, I thought it would be fun to create a fibromyalgia gift guide with some of my favorite products just in case you or your loved ones are looking for some holiday shopping inspiration.
So, here are my top picks this year
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FIBCON XMAS 2015 NEWSLETTER

 We are sending a warm Christmas greeting to yourself and all of your Members. We are hoping 2016 might be the year of a cure – but we have a feeling that pigs might fly before they find a cure.
Nevertheless we will continue to fight for research funds for Folly Pogs Fibromyalgia Research UK if we are to make any headway at all. As a Christmas appeal we are asking all groups and members to consider doing some carol singing among friends and neighbours in the hope we will raise some money to our next step on the research ladder.
Read on about next year's Fibromyalgia Conference (FibCon)
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 Fibro Flare Magazine New Year's Honours
Voting is now open to non members.  You can still vote TODAY ONLY.  This is the second round and the winner will be chosen from this short-list of 7.
These are the nominees

  •  Gemma Flood
  •  Shayne Town
  •  Tracey Napper
  •  Joan McParland
  •  Stella Bernardi
  •  Angela Bentley
  •  Larry Power

You can read about the candidates here 
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 Save your stamps
Will you please save your used stamps from Christmas cards (as well as from letters and parcels) and send them to Citadel Stamps to help raise funds for FMA UK.

 Send your stamps to:
      Citadel Stamps
      In aid of FMA UK Stamp Appeal
      PO Box 6107
      Stromness, KW16 9AB
Thank you
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 Have A Healthy Holiday!
To create the ultimate holiday eating guide, we tapped three nutritionists for their best and worst picks. Check out which foods are worth skipping, and which you should enjoy to the fullest.

 Read more here. . .
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Getting Grounded: Could Earthing Work for Fibromyalgia and ME/CFS?

 Earthing advocates proclaim that we've lost our connection to Mother earth - not in some spiritual way - but to the negatively charged electrons the earth provides. They assert that when we lost our connection to our natural ground (the earth) we lost an important inflammation fighter at the same time.
Could they be right? Or is this just more new-agey hype?
Check it out and let us know what you think
Clint Oder on Earthing​
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Our nutritionists' favourite nourishing meals
Winter is well and truly here and Christmas is just around the corner; this time of year often results in poor food choices and ‘comfort’ eating. Whilst it’s not always possible to be virtuous (Christmas parties and get togethers with friends and family are particular problems…) we can make sure we eat well the rest of the time.
It’s particularly important to opt for nutritious meals at this time of year to keep your immune system strong and energy levels up – we all need extra energy for Christmas! With that in mind, we’ve complied a list of our nutritionists’ favourite ‘comfort’ meals along with a recipe for you to try them out yourself!
There are four to tempt you
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 5 Herbs That Improve Memory

 Memories contain the story of our lives. We like to reminisce about the wonderful moments we share with our loved ones, the exciting milestones that define us and our unique achievements. Memory and learning go hand-in-hand to assist us in our professional lives where we need to recall our knowledge to get crucial tasks done.
Nowadays, the stresses of modern living seem to come together as a conspiracy to impair our memory functions. High blood pressure, poor thyroid function, drug interactions and occasional bouts of forgetfulness cause our minds to go blank when we need to recall stored memories the most. We just have too much to deal with at any given time.
Nature infuses us with life in so many ways, and we can turn to the following five herbs to help us in revitalizing our minds to take back those memories and make them vivid as they always were:
  1. Gotu Kola
  2. Gingko Biloba
  3. Bacopin
  4. Blessed Thistle
  5. Rosemary
Read all about them
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 How Fibromyalgia Impacts Your Family
We Are Not the Only Ones Who Are Suffering
When you are suffering, when you are in pain, when you walk around exhausted all the time, it is very easy to get wrapped up in yourself and your own suffering.
It is easy to center your thinking on how your life has been affected by fibromyalgia – this is completely normal human behavior. But I feel it is important to remember that we are not the only ones who are suffering.
Our family and our loved ones are also very much affected by this terrible illness. They often have to make sacrifices to help us. They suffer because we suffer. It would be unhealthy for our relationships with them to become consumed with our own suffering, and not recognize theirs.
Read more . . .
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 Fatigue & Brain Fog: Could You Have a B-12 Deficiency? 
A feeling of being tired all the time. Problems with memory and concentration. Trouble sleeping. Diarrhea and/or constipation. These can all be important signs of the body's need for more vitamin B-12.
Vitamin B-12 (cobalamin) is an essential nutrient, meaning it is required for normal body functioning but cannot be produced by the body. Therefore, it is necessary to obtain the B-12 our bodies need through the food we eat and/or dietary supplements.
A vitamin B-12 deficiency is relatively common - thought to affect approximately 15% of the general population. That percentage goes much higher among people with chronic illness.
Because so many people are deficient in B-12 - particularly people with fibromyalgia and ME/CFS - and because a number of FM and ME/CFS specialists recommend high doses of B-12 for their patients, ProHealth's founder, Rich Carson, set out to develop the most potent B-12 supplement available.
Read on . . . .
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The Ancient Egyptian secret health weapon that’s in your cupboard
 You’ve probably got these two health remedies in your kitchen.
They’re the stuff of legend – used and trusted since Ancient Egyptian times.
Combined, these remedies are nature’s secret weapon against ulcers, colds, sore throats, stomach aches and infections
Find out what they are
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 To end on a personal note: I recently had a health M.O.T. with Horsham Wellbeing.  I discovered that my metabolic age is 65!!  Not bad for an eighty year old!
See you next week
As ever
Stella
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Contact: fmsstella@gmail.com
or leave your comments below under Post a Comment
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 N.B. The links on this my FMS eNews blog are in BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in PURPLE like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  If you have any navigation problems, let me know.
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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FMS eNews 05/12/15

I can't believe it's December already.  I have been trying to prepare my Christmas message for friends and family but I can't get into the mood!  I must try harder!!  I have had one Christmas dinner this week with my fibro friends in the Horsham FM Group.  I have another with trustees of FMSSES today.  Maybe I'll soon realise it's nearly Christmas!!!
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WORDz for the WEEK

 250.  Listen to every word everyone says, but remember the words that count.


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The Holidays: It Just Got Real

 So, once again Thanksgiving has sneaked up on us and we find ourselves thrust into the full swing of the Christmas season. Are you wondering how you're going to get through the next month? Yeah, me too.
But never fear! I have a plan. I came up with it years ago, and fortunately, I wrote it down and put it on the Internet where I can't lose it. And now I'm going to share it with you! That's below, along with a few articles I've updated recently.
I hope you're resting up from the big turkey dinner and avoiding the stores at all costs. Take care of yourself!
Adrienne Dellwo - Fibromyalgia & Chronic Fatigue Expert
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 2 December 2015 newsletter - Latest News

 DLA To PIP To Take A Year Longer But One Quarter Still Expected To Get No Award
The DWP is now losing battles on all fronts, as the last fortnight has proved repeatedly.
Because whilst the big benefits news has been George Osborne’s massive u-turn over tax credits, there have been a host of smaller reverses for the DWP.
The forced transfer from DLA to PIP is already running into serious delays – though there has been no change so far in the estimate that a quarter of current working age DLA claimants will get no award of PIP; Maximus is failing to carry out enough work capability assessments, because not enough health professionals want to work for them, and support group numbers are rising as a result; the courts have ruled against the benefits cap for carers and mandatory work schemes are being axed as more and more big companies and charities bow to activist pressure.
On top of all that, Ken Loach is making a film about benefits sanctions. He says that the situation is now even worse than when he made ‘Cathy come home’.
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 5 Mental Shifts that Improved My Health

 The last few years have been years of very positive changes in my life. I’ve gone from so fatigued and in pain that I could barely do anything but lay on the couch and watch TV to going back to school full-time, while establishing a new career in freelance writing. But, all these positive changes weren’t just physical, in fact they didn’t even start with physical changes (like the diet changes and exercise) they started with mental changes. They started with changing my mind, with 
changing my thoughts.  These five thought shifts have made a huge difference in my life.
Find out what they were. . .
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What to Eat When You’re Broke

 The lower your income is, the more difficult it is to be particular about what you feed your family.
This probably isn't an earth-shattering revelation to anyone, but if you feel like experimenting, try to buy a week’s worth of healthy food for a family on a budget of, say, $50-75.  Food manufacturers that target lower income shoppers with more affordable products tend to include more GMOs and toxic ingredients in their offerings.
It just isn’t possible to stick to my usual food restrictions.  Generally speaking I avoid:

  • Non-organic dairy because of the hormones and antibiotics as well as the GMO feed given to the animals
  • Non-organic meat because of the hormones and antibiotics as well as the GMO feed given to the animals
  • Anything containing corn, soy, or canola in any form because it is almost certain to be GMO
  • Anything with chemical additives like artificial colors, flavors, or preservatives
  • Anything that is likely to have been doused in pesticides
  • Anything containing neurotoxins like MSG, fluoride, or aspartame (along with other artificial sweeteners)

It is a matter, then, of weighing the pros and cons, and figuring out what things, for you, are the most important, while also deciding which standards can be sacrificed.  These decisions will be different for everyone, based on their personal health concerns, their genetic propensity for certain diseases, and the members of the family for whom they are buying the food.
Read on . . .
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Fibromyalgia and ME/CFS news (week of Nov. 30, 2015)

 Hi everyone! Here’s this week’s fibromyalgia and ME/CFS news roundup. Some highlights:

  •     How to save money on Cymbalta
  •     Swedish psychiatrist uses vaccine to treat ME/CFS
  •     Company pays $1 million fine after ripping off fibromyalgia sufferers
  •     More evidence that medical marijuana relieves fibro pain
  •     A new facebook group dedicated to sharing best practices for relieving fibro symptoms
  •     Applying for handicap parking if you have FM/ME/CFS
  •     How visual stress could be used to help diagnose ME/CFS
  •     Plus research news, personal stories, the Ultimate Spoonie Giveaway and more!


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We are proud to announce a joint venture has been agreed between personal trainer Adam Foster of First Call Fitness, and FMAUK to produce a fitness DVD that will be aimed at people with fibromyalgia.  This fitness DVD is near the end its production but we will let you know when it becomes available with preorders available from here: http://www.thefibroguy.com/shop/pre-order-the-invisible-monster/. It will feature people with fibromyalgia and positive techniques that have been used by members of a support group. There will also be a documentary DVD focusing on fibromyalgia.

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 Fibroduck's Christmas Update

 Duck the Halls!
A very flappy Christmas season to all our supporters. 
We'd like to thank you all for continuing to support our fund raising for a UK-based biomedical study into finding a cause, test and effective treatments for Fibromyalgia. The first half of our year was very productive, with a number of groups and individuals fund raising on our behalf (see the end of update for our thank you list)
The big news is we now need just £5k to begin the research we have planned !
So lets make 2016 the year this research finally gets underway, we’re so close now and it’s all thanks to you guys out there doing your brilliant fundraising!
Read more . . .
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 FIBRO FLARE MAGAZINE - ISSUE 20, DECEMBER 2015
Select it on the Bookcase. 
1st December - Oh yes, advent calendars, thoughts of Christmas and best of all ..... our December issue of the magazine, but we are giving you even more .... Our New Year's Honours supplement.
Take a look at the amazing people who have been nominated for our prestigious awards this year and please make your votes count.
We hope you have found the past 12 month's issues informative, inspiring and helpful and had some fun along the way. X Beth
PDF Version 
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  FFM Supplement - New Years Honours 2016

 Select it on the Bookcase.
Today is the last day for voting, but you can only vote if you are a member of the Fibro Flare Magazine Facebook Group
Some candidates may be familiar to you!  
Please vote on Facebook if you are a member..
PDF Version
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Is Perfectionism Behind Fibromyalgia?

 We all know that everyone’s personalities are extremely different. Some people are lazy, some like to go for long walks, and some enjoy reading a good book. But did you ever think that your general disposition and personality might be a causing factor for fibromyalgia?
One study looked into the ties between the personality trait of perfectionism and chronic fatigue syndrome (CFS), irritable bowel syndrome, and fibromyalgia. The results were illuminating.

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Beat the Winter Blues
Slipping into a seasonal funk? The weather may not be the only reason. Here are 20 common winter habits that could be sabotaging your mood.
Let's face it: Unless you're a ski bum, winter's frigid temps and shorter days can really bring on the blues. "The cold and gray present significant challenges to all of us," says Carol Ewing Garber, PhD, an exercise physiologist and professor of movement sciences at Columbia University in New York City. But the weather outside isn't the only reason you may feel down in the dumps.
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 The Surge Protectors: the Next Big Thing in Pain Drugs?
Everyone knows that a) better pain relievers are desperately needed and b) the era of the opiates is ending. The question is what will replace them?
Perhaps the hottest entree in the pain drug stakes attempts to turn off the pain at its source. It won't be easy but if it can be done the world of pain treatment will change forever.
Check out a status report on possibly the next big thing in pain relief 
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 The Fatigue in MS, Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia - Is it the Same?
Multiple sclerosis (MS) can be REALLY fatiguing. in fact some studies suggest fatigue is the most bothersome symptom for many.
That could be good news for people with ME/CFS/FM. Since MS gets a lot more funding it conceivably could help explain the fatigue in ME/CFS/FM or even point the way to MS treatments. That's if the same kind of fatigue is found in all three diseases.
Is it? That's what I asked when a review of MS fatigue showed up. 
Check out what I found out 
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WARNING: Aspartame Has Been Renamed And Is Now Being Marketed As A “Natural” Sweetener: Amino Sweet

 The highly controversial Aspartame has been regarded by some as one of the most dangerous ingredients used in our food supply – while “official” sources continue to maintain its safety and continue not to mention the “negative” studies.
Aspartame has in fact been linked to seizures and a host of other major health issues including fatal cardiovascular events in women. Recent studies (we’ve found them!) have shown that not only does artificial sweetener intake have an association with diabetes, it also increases the risk for heart, kidney, and brain damage. . . .
It’s important to know what you are eating – and important to understand the way marketing works: In a move to cover up it’s bad reputation, aspartame may be disguised as a new name in your favorite foods – aminosweet.
Read all of this article - it's vital.
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 Still Consume White Flour? After Reading This, You Won’t
Cakes, soups, pastries and chicken nuggets – what do all of these have in common? These foods all have white flour as one of the main ingredients. Because flour is such a common ingredient, most people don’t think twice when purchasing it or purchasing food containing it.
However, regular processed white flour is one of the unhealthiest “foods” you can introduce to your body. Its nutritional content – or lack thereof – leaves so much to be desired, even with all the “fortifications” the manufacturers have added to it. The next time you add white flour to your shopping list, remember these five facts:
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 Newsletter Issue 3, December 2015

  •  Perspective: From LDNscience® Founder Moshe Rogosnitzky
  •  Interview With The Experts: Dr. Leonard Weinstock Discusses LDN for GI Disorders, Restless Leg Syndrome, and Sarcoidosis
  •  An LDN User Story: Wendy Lowe Shares Her Experience Using LDN for Multiple Sclerosis

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 Headaches: Reduce stress to prevent the pain

 Stress can make your head hurt — and a headache can really stress you out. Either way, to reduce the pain, rein in the stress. . . .
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 Recent Posts
  •  5 Benefits of green tea supplements
  •  What are the symptoms of an iodine deficiency?
  •  Why do people take Biotin for hair?
  •  5 Benefits of zinc supplements for your skin, hair and nails
  •  What are the symptoms of a calcium deficiency?
  •  5 Benefits of Aloe Vera juice for your diet

Read more about each, and more besides . . .
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The Guaifenesin Protocol for Fibromyalgia - By Karen Lee Richards
Guaifenesin, derived from the guaiac tree, has been used as medicine for centuries, although it didn't receive FDA approval until 1952. An expectorant, guaifenesin is most commonly used to treat coughs. It works by loosening the mucus in your lungs when you have chest congestion due to colds, flu or allergies.
Now you may be wondering what in the world guaifenesin could possibly have to do with the treatment of fibromyalgia. Excellent question!
The guaifenesin protocol for treating fibromyalgia was developed by Dr. R. Paul St. Amand in the early 1990s. The protocol was based on his belief that phosphate deposits throughout the body were the cause of fibromyalgia and that FM symptoms could be reversed by removing excess phosphates from the body, which he said guaifenesin would do.
Read more. . .
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 How to Improve Memory by Suzy Cohen 
You don’t get alarmed when you you lose your keys, but what if you constantly forget what you were trying to say a few seconds ago. Full blown dementia and Alzheimer’s disease is disabling and difficult on family members. Today I am offering suggestions from my Functional Medicine standpoint which should protect your brain and help you regain memory molecules. 

  •  Eliminate harmful foods. 
  •  Eliminate drugs that mess with your mind.
  •  Exercise. 

And more . . .
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 Could a sea sponge hold the key to cancer prevention?
  •     Cutting edge breakthroughs for cancer and joint pain… from the bottom of the ocean
  •     The future of nutrition – bacon flavoured seaweed!
  •     Plus a seafood that eases joint pain…

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Don't Let Fatigue & Illness Ruin Your Christmas - Boost Your Energy Levels & Combat Nutrition Deficiencies

 This is the part of the year that many people turn their attention to their health. Most of us are tired of all the year’s hard work, and some of us plan to adopt New Year's resolutions to be healthier and lose weight during the upcoming year. 21st-century living poses so many significant challenges to our ability to obtain enough nutrients to stay healthy and energetic that most people can benefit from taking a good multivitamin and multimineral supplement. 
See more . . .
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This is the view from our bedroom window on 2nd Dec 2010. Glad it wasn't like that this year!
Keep warm, in case it happens again.
Stella
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N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in PURPLE like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  If you have any navigation problems, let me know. 
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.


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