"Humble apologies, This is in draft form as I inadvertently deleted the finished blog for this week. The information is there but it does not look attractive. The links are not embedded, there is no colour and the illustrations are missing. Hours of work have been lost. If I have time I will attempt to restore it but for now it is as it is, and I am sorry. But I guess it's better than no blog! I think I'm the bug - see below!"
This is the revised version of the blog for 19/03/2016. Apologies again for the false start. I worked during the night to correct my error! I hope it is now OK.
+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+WORDz for the WEEK
264. Sometimes you are the windshield; sometimes you're the bug . . .
Things I Wish I'd Known in the Early Days
If chronic illness has one positive effect, it's making us wiser. Oh, how I wish I'd known -- back before my diagnosis or soon afterward -- the things I know now!
This week, we'll be looking at a host of things I wish I'd known back then. They'd have made things much easier on me ... and probably everyone around me, too. I hope you'll learn a few things that can smooth your path.
Take care of yourself!
Adrienne Dellwo - Fibromyalgia & Chronic Fatigue Expert
Getting A ‘Grip’ On Hand Pain In Fibromyalgia ~ 5 Budget Friendly Gadgets To Help Painful Hands With Fibromyalgia
As the years have gone on, the pain in my hands has gotten worse. In the past, I would have sore hands during the occasional flare. Today I experience sharp pains and aching fingers on a regular basis. Cold and overuse seem to exacerbate the problem.
We've all experienced the 'time limit' available during an activity that involves a lot of hand movement. It will either require frequent resting in between tasks, or a cessation of movement altogether.
What gadgets did Kristine find? . .
The Benefits Of Magnesium Are Mandatory
One of the minerals your body needs the most is likely one that you’re also deficient in. A typical human body contains approximately one to two ounces of magnesium, found mainly in the bones and teeth, with concentrations also in the heart and brain and even a small amount in the blood. In fact, every single cell in the body requires it to some degree to function properly. It’s also the second most abundant intracellular (positive ion) in your body and is critical in over 300 metabolic functions. Clearly, this mineral is vital, yet the USDA estimates that nearly one half of the American population consume an inadequate amount in their diets. Why is this so?
Find out . . .
ESA Cuts Go Ahead Plus Help Get Justice For Claimant Killed By Sanctions
Employment and support allowance (ESA) cuts for new claimants are to go ahead after the government finally won its battle with the House of Lords yesterday.
The Tories want to reduce ESA payments for claimants in the work-related activity (WRAG) group by £30 a week, bringing them down to the same level as JSA. They believe this will encourage WRAG claimants, such as those with degenerative diseases or serious mental health conditions, to go out and find work.
Twice the House of Lords voted down the changes, but yesterday the government finally got its way after declaring that the measures were covered by financial privilege rules.
The cuts will be introduced in April 2017, with the DWP claiming that no current ESA claimants will be affected.
Read more stories . . .
Effects of Music and Vibration on Fibromyalgia (a study)
120 Fibromyalgia patients took part in this study in one of four groups.
Find out what they were and what the study revealed . . .
+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+How can you be positive when you live with chronic pain?
How can you be positive when you live with chronic pain?
Whether you feel positive or negative is a choice that you make. Not only is it a choice that you make but it’s a choice you must make repeatedly. It’s a choice you often must make hundreds of times a day.
When you live with chronic pain it seems that there is every reason to feel negative, to live in the dumps, in the land of “poor me.” It’s easy to feel sorry for ourselves, to wonder what we did to deserve this fate, and to think that life will never get better. But, whether or not the pain improves, life can get better because life is about a lot more than the pain we are in.
Continue reading . . .
+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+Juicing for Fibromyalgia and Chronic Illness
This year after realizing that I’d been avoiding juicing regularly because cleaning the juicer aggravated my shoulder issue, we upgraded to a masticating juicer. It juices a little slower but it’s so much easier to clean. The juice yield is also a lot better so it’s well worth the added time. I actually get almost 50% more juice out of the same amount of produce.
Find out more - and recipes . . .
LOOKING FOR AN LDN FRIENDLY DOCTOR? | A REVIEW OF LDNDOCTOR.COM
My subscribers know by now that I’m a huge fan of low dose naltrexone as a treatment for fibromyalgia. I took LDN for about nine months in 2015, and I will be starting back on it next week. (I’ll give an update on how I’m changing my treatment protocol in an upcoming blog post.) LDN has helped to reduce my pain when no other pharmaceutical has, and I have a number of fibro friends who have benefited from it as well.
A few weeks ago, I was asked by LDNDoctor.com if I would be interested in doing an online LDN consult. I’ve been thinking about going back on LDN for the past couple of months, so it was perfect timing.
LDNDoctor.com offers online consultations and prescriptions for low dose naltrexone to U.S.-based patients via U.S.-licensed physicians. Consults are available to manage conditions such as fibromyalgia, multiple sclerosis, Crohn’s/colitis, thyroid disorders (Hashimoto’s and Graves disease), rheumatoid arthritis and others.
Read the rest of Donna's LDN story . . .
+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+WEEK OF MARCH 14, 2016 FIBROMYALGIA AND ME/CFS NEWS
- The U.S. Centers for Disease Control releases new opioid prescribing guidelines, and pain patients react negatively as predicted.
- Now this is funny (and I bet every single one of us has our own version of this script): “Why am I awake? Sleeping with chronic illness” from fellow blogger Chronic Mom.
- “Must see” chronic fatigue syndrome documentary “Forgotten Plague” has been released to DVD, iTunes, Google Play and Amazon Instant Video.
- Now who thought of trying this in the first place? Using human placental extract to treat ME/CFS
- Why those of us with chronic illness should consider making a NOT to do list.
- A lot of us with fibromyalgia and ME/CFS aren’t able to hold a typical 9-5 job due to the severity of our symptoms. My friend Julie over at Counting My Spoons gives us some alternatives for “working with chronic illness.”
And much more besides . . .
Vote for Fibro Flare Magazine in the National Diversity Awards
Fibromyalgia/ME/CFS are chronic and debilitating conditions that have a major impact upon those diagnosed and their families. It is estimated that 3-5% of the population have been diagnosed (approx 70 million people worldwide) and despite Fibromyalgia having been around for hundreds of years very little is known or understood. Support, Awareness and Research are much needed in the future to ascertain the cause and aim for a cure.
People from across the spectrum can be struck down at any time, these chronic conditions do not discriminate. Children as young as 4 are already suffering.
Read the manifesto . . .
You can only vote up until 23rd March, so don't hang about!
Ask your MP to become a Fibromyalgia Ambassador
Join our campaign - write to your MP and ask to become a Fibromyalgia Ambassador!
We have written to all MPs and all Members of the House of Lords to ask them to become Fibromyalgia Ambassadors. We have already received a few positive responsaes - now we need your help to get more MPs on board!
We have joined forces with UK Fibromyalgia (publishers of the Fibromyalgia Magazine) to spread the message to all our supporters to join our campaign and to write to their MPs. Please ask your MP to lobby for their support for the fibromyalgia cause. Tell them about your personal situation and how widespread fibromyalgia is within the UK, and that you are looking for their help in our campaign. We want to create Fibromyalgia Ambassadors and we would appreciate it if you would ask them to sign up to become one.
Find out how . . .
+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+Recognition for Janet Horton
Janet has been working tirelessly in the fibromyalgia field for two decades despite living with this condition herself. She became trustee of Fibromyalgia Action UK in 1997 and has also been actively involved in many projects of the charity.
Find out more about Janet . . .
+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+Other News from FMA UK
FMA UK submission to NICE on clinical guidance concerning the diagnosis of fibromyalgia
FMA UK is surveying GPs on fibromyalgia
as well as Contact your MP Campaign - FMAUK and UK Fibromyalgia
Why Getting Outside Is Important For Fibromyalgia Relief
6 reasons why . . .
20 Things You Should Throw Away for Better Health
When we talk about the steps you need to take to get healthier, they often involve buying new things: workout clothes, fitness equipment, ingredients for healthy recipes, and the list goes on. But becoming the healthiest version of yourself also means throwing away the stuff that's holding you back—and we don't only mean junk food. Get your recycling or garbage can ready!
Find out what they are . . .
Rising! The Health Rising Chronic Fatigue Syndrome (ME/CFS) and FM Forums Take Off!
Health Rising Forums
The Health Rising Forums are booming ….
If you’ve checked out the Health Rising Forums please check them out again and if you haven’t – check out the only ME/CFS/FM Forums with Recovery Stories, Doctor Reviews, Resource and Media sections.
Read on . . .
+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+Brian Walitt and the Psychosomaticism of Fibromyalgia: Another Look
The authors asserted that chronic fatigue syndrome and fibromyalgia are real, biologically based disorders and suggested immunological and epigenetic therapies as treatments but use the "P" word was overwhelming. The word psychosomatic carries connotations of a disease that is "not real" and is "all in one's head". During a recent conference call Walitt asserted that these disorders were biologically based, were not in one's head and were very real indeed.
Read more . . .
WE'RE MAKING A FEATURE-LENGTH DOCUMENTARY ABOUT FIBROMYALGIA!
WE WANT TO HEAR YOUR STORY!
Official Facebook page: https://www.facebook.com/fibromyalgiafilm
Official Twitter page: https://twitter.com/MyFibroAlgia
If you’re interested in taking part, please email: email@example.com
Read full details here . . .
Depression & Fibromyalgia - An Admission.
I wrote way back in October / November of last year about how I was battling some really dark clouds in my life. I put it down to turning fifty and being in constant pain and I was determined to overcome it without the need for medication.
Just after Christmas I thought I'd beaten it. Things began to look brighter. I was still in chronic pain and I had, in the time since I last wrote about being depressed, been prescribed Oramorph to take alongside my Cocodamol - despite my being unwilling to go down the drug guinea pig route again. But, up until last week, everything seemed fine. I'd beaten my depression.
Or had he? . .
The Need to Set Priorities With Fibromyalgia
Priorities — they can be a challenge to set and maintain for healthy individuals, nonetheless those dealing with the added issues that come with fibromyalgia. Still, setting priorities and learning how to fulfill them is of utmost importance if you are to regain control over your life once diagnosed with fibromyalgia.
This need has never hit home with me more than in the last few months. I have been walking the journey of life with fibro for almost 16 years, and as I face more of life’s responsibilities, duties and opportunities, I understand more than ever how invaluable the art of setting priorities is.
Find out how . . .
Free online event
The PAIN-FREE FOR LIFE event is an easy-to-follow guide with the step-by-step processes, tools and information you need to achieve your health goals....ALL IN ONE PLACE!
Online for FREE from March 28 to April 7
Access it from ANY computer or mobile device
Watch it while waiting in the doctor's office, making dinner, during your lunch break...or whenever you get a chance!
Simply tune in. We hope this event will give you the information you've been waiting for to truly change your life for the better.
Sign up now . . .
Reverse the ESA disability benefit cut
The House of Lords has been unable to stop a planned £30-a-week cut to disability benefits forced through by Government MPs. This will cripple those in receipt of these benefits, leaving many in literal poverty.
The government must reverse this decision. Lives are at risk.
Sign this Petition . . .
Chronic illness and light therapy
Do the winter months leave you feeling flat?
You may benefit from LIGHT THERAPY.
Many from the chronic illness community are advocates of light therapy as a powerful gift in raising their moods during winter darkness. I say gift as the negative to this therapy is cost. Most units are in the region of a hundred pounds so a good way to get one is birthdays or Christmas.
NB. Any of my family reading this, no I don't want one as I am not a good candidate for its magic, read on and see why. *
Light therapy has been shown to help with depression and sleep disorders as it resets the circadian rhythms (Biological clock) that control sleeping and waking.
Find out more . . .
The different stages of Fibromyalgia
Discover the 6 stages . . .
24 Things No One Talks About When It Comes to Having Fibromyalgia
We asked people with fibromyalgia in our community to share one thing not often talked about when it comes to having this disease. Every answer offers more insight into this misunderstood illness — and hopefully increases awareness and advocacy in the process.
See what they all said . . .
This section is included because it provides general health education, but not necessarily fibro related.
+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+I am still working on The Liebster Award. If you have any favourite blogs, please let me know and I will try and include them. Thanks
or leave your comments below under 'Post a Comment'
N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in GREEN like the dividers. This blog gives just a taster of each article which can be viewed in full through its link. The sites included are in alphabetical order. If you have any navigation problems, let me know.
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgments, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in any way should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity although I do work in conjunction with other bloggers and Facebook groups.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to firstname.lastname@example.org and you will be added to the emailing list.