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FMS eNews 27/02/2016

This week there are several items about arts and crafts (after my own heart!) and their advantages, despite chronic illness.  I did a vast amount of reading this week but rejected many sites because they turned out to be off-topic, or they had so many adverts popping up I couldn't see all the text!  I hope that what I did select will be of interest to you.


WORDz for the WEEK

261. Ignore the little 'speed bump' in the road. . . It is designed to SLOW your forward momentum, NOT stop it!


Possible Cause of Pain, Brain Fog Discovered

I'm really excited about the discovery below, about something that's long been overlooked in the brain and the impact it may be having on us. Find out how tiny little cells that are part of the brain's immune system could be causing some of our worst symptoms.
From there on, we'll continue talking about pain and brain fog, including some of the most prominent aspects of our cognitive dysfunction.
Take care of yourself!
Adrienne Dellwo - Fibromyalgia & Chronic Fatigue Expert
Read all Adrienne's articles . . .


It's the 'Double Whammy'!  You're already dealing with all the symptoms of a FMS or CFS flare-up, and sure enough, you can feel the ol' familiar signs of an oncoming virus/cold/flu etc.  Post nasal drip aggravates the back of your throat, additional aches and pains attack your already weakened joints, and your eyes start to look as if you've been watching 'P.S. I Love You' for the first time.  Yep.  You've caught the same thing that's being passed around to everyone else.  But, unlike everyone else, your immune system is already damaged.  In fact, if you had to sum up FMS/CFS it would be, 'compromised immune system'.
Read on to find out what the '4 Ways' are . . .


24 February 2016 Update


Addicted to #crafting? #Spoonie crafting: guilt, welfare, self-esteem and isolation

My name is Laura. I’m 38, I’m a spoonie (here) and I’m addicted to crafting and make jewellery. . .(mainly)!
There you have it, I’ve fessed up. It feels a bit like a naughty secret that I make jewellery, which is the most ridiculous juxtaposition because I advertise it on my personal and business Facebook page, Twitter, Etsy, Instagram and on some host sites, such as the awesome Conscious Crafties. I obviously want to advertise and give out loyalty/business cards and join in networking as much as I can because I undeniably enjoy selling what I make. I can only sell online because my illness is so severe that I am housebound and mostly bedbound, but I am hoping that one day I will be able to sell at a craft fair. At the moment, any sale style is just an added benefit and I’m certainly not running a profitable business (at a loss really). I really just enjoy creating jewellery and have done so both pre and post chronic illness.
Read Laura's story here . . .


Inspired By Illness: Artistic Spoonies

About a year ago I shared the stories of several people who were inspired by illness. I’m so happy when I come across others who have found a new passion as a result of the terrible things that have befallen them. Illness sucks, but we’ve got to be able to make something positive out of it, or we just live in misery.
The last few months I’ve seen my friend Nick share some amazing spoonie artwork and it was my desire to share that artwork with you that inspired this post. But, Nick isn’t alone. I’ve been blessed to get to know others who have been inspired by their illness to create amazing things, and even to create a place for other spoonies to sell their amazing things.
The Artists

  1.  Nick Lutes
  2.  Donna Falcone
  3.  Karen
  4.  Sonia

Find out what they all do . . .

Fibromyalgia Warriors – Krissy Ward

This week we’ve got a new Fibro Warrior in the hotseat.  Krissy Ward is from Milwaukee, WI. She’s 26, but was diagnosed with Fibromyalgia at the age of 16. She’s single and has no kids but says she gets the best of both worlds with her seven godchildren. She gets to love them as much as she wants and take them back home when she’s ready.
Read Krissy's story . . .



Colouring in books for adults are becoming an increasingly popular trend. Although colouring books are usually associated with kids and playtime, today more and more companies are making colouring books for adults in addition to children. I even have one myself! There is good reason for their rise in popularity, as they have been shown to have many positive benefits. But just what are the benefits of using colouring books and – more specifically– how do they help those of us with a chronic illness? Below I have listed a few, which I hope will show you that colouring books are worth investing in.
1. Stress relief
2. Breaking the monotony of the day
3. Colouring relieves anxiety
4. Colouring enhances creativity
Read more details here . . .



(Congratulations to Donna on being appointed as National Pain Report‘s new fibromyalgia editor.)

Top stories …
It’s not often that I say this, but well done, Mr. President: Obama rejects limits on opioid prescribing. “If we go to the doctors right now and say ‘Don’t overprescribe’ without providing some mechanisms for people in these communities to deal with the pain that they have or the issues that they have, then we’re not going to solve the problem,” he says.
Dr. Jarred Younger, best known for his research on using low-dose naltrexone for fibromyalgia, will host a live question-and-answer session on YouTube on Thursday, March 3 at 3 p.m. CT. Submit your questions early at jarredyoungerlab [at] (See below under YouTube.)
From HuffPost: “Why is marijuana banned? The real reasons are worse than you think”
Combining pregabalin (Lyrica) and paroxetine (Paxil) increases drug tolerability and reduces depressive symptoms associated with fibromyalgia. Another story on the same study: “Fibromyalgia study finds Paroxetine [Paxil] best of newer antidepressants to combine with drug treatment”
Heroin users who died from overdoses were also abusing pregabalin (Lyrica) and gabapentin (Neuronton), finds U.K. multi-agency panel.
City employee in Savannah, Georgia, says she was fired after she developed fibromyalgia and asked for special accommodations at work.
Virginia physician loses license after medical board found he overprescribed narcotics to patient with fibromyalgia.
And loads more besides . . .



Sadly this has been cancelled and refunds are being sorted. The conference always raised much needed funds for research and this is going to be severely impacted - so I'm here with my begging bowl, please, please, please can you help? If you can spare anything, at any time during the year it is very much needed .... would be a shame to have to give up when the first step is already underway. Wish we could rely on the Government but that's obviously not going to happen so it really is up to us to do it for ourselves. The link below will take you to our donations page. Thank you. Beth X
Read the full announcement 
PDF version 


How Sugar Wreaks Havoc on Fibromyalgia (And the Amazingly Simple Way to Beat It)

It’s 3 p.m. and I’m at my office desk. I fidget restlessly in my chair. The afternoon crash is starting to hit me. I tell myself to stay strong – just drink some water and push through it. Then I glimpse the soft, inviting glow of the soda machine sitting just 20 feet away in the break room. My heart flutters. As determined as I am to win this battle, in my heart I know I have already lost.
I grab my quarters and walk anxiously (and somewhat ashamedly) to the machine to get my afternoon fix. As the sweet taste of Coke touches my tongue, by body rewards me with by releasing pleasure endorphins. Mmmmm…so delicious.
I’ll do better tomorrow, I tell myself – as I do every afternoon around this same time.
Find out how to combat sugar . . .

+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+-+ – Review

Hello folks. This is a review of a nifty new site called MedNexus. This is a medical search engine designed for patients. I am all for this since I firmly believe we should all be our own health advocates, I actively encourage people to be well-informed about their own health conditions but not all websites are full of reliable information! This site has the potential to make sure patients are reading accurate, condition-specific info.
First impressions are good, the site is clear and well laid out with a neutral and non-migraine-inducing colour scheme. I also like the font size and obvious search bar.
Find out more . . .


The Therapeutic Science Of Adult Coloring Books: How This Childhood Pastime Helps Adults Relieve Stress

Coloring used to be reserved for children and the occasional adult who got to babysit them, but recently, the activity has found a different demographic. What started as a niche hobby has now turned into an international trend, as adult coloring books find themselves on more and more bestsellers’ lists throughout the world. However, while this trend may be a fun way to pass the time, it’s the books’ therapeutic properties that really have them flying off shelves.
The Healing Power Of Art
Art may not be able to cure disease, but it can surely make coping with it a lot better. Researchers have acknowledged the therapeutic qualities of art for years, and today, art therapy is used to help people express themselves when what they’re feeling is too difficult to put into words, such as when they’re faced with a cancer diagnosis.
Read more . . .


Your health and medical questions, answered.

Explore based on these search options - Recent searches, Common. Chronic and Seasonal.
Find out more about any medical condition . . .


What’s the Difference Between Fibromyalgia and Polymyalgia?

Knowing Your ‘Myalgias’
What’s the Difference Between Fibromyalgia and Polymyalgia?For many, every day is a battle with muscle pain, stiffness and fatigue. Unfortunately those are common symptoms of multiple conditions, so sometimes it isn’t easy to know exactly what you are experiencing.
Do you truly know your “myalgias”? You can help your physician give an informed diagnosis by understanding the differences between very similar conditions such as fibromyalgia and polymyalgia, so you can better explain and discuss your symptoms with him or her.
The word “myalgia” means pain within the muscles. Fibromyalgia and polymyalgia are conditions with symptoms that may be hard to tell apart, both characterized by muscle pain. When you have polymyalgia, you feel pain and stiffness in the muscles in your shoulders, arms, hips, and neck. This feeling often comes after you’ve spent time resting. Fibromyalgia can also cause muscle pain and stiffness in the same parts of the body.
But aside from the similar characteristics concerning the muscles, many aspects of the conditions differ.
Find out what are the differences . . .

Trying Hypnotherapy for Fibromyalgia Pain

NewLifeOutlook contributor, Sarah Borien, details her experience of hypnotherapy as an alternative treatment option for those suffering from fibromyalgia and chronic pain. 



I am a huge advocate for the power of sharing the highs and low of living with chronic illness. Hence me writing a blog about my life now I guess.
It took a while for me to out myself/ hang out my dirty laundry/show the real me. Trust me when I say it takes great strength to share your emotions, your ordinary life, your illness.
Contrary to what some believe, it is not us being needy.
Wowzer, that emotion is not in my vocabulary!
For me, during the early stages, I hid away.  I tried to continue as normal for so long, using the days between flares as times when I would allow outsiders into my life. I hid the painful days.
I felt alienated from my then current circle of friends and colleagues.
What happened next? . . .


Way too many fibromyalgia symptoms!!

Do You Have Fibromyalgia?  Check out the video below!
It usually takes 5 years (on average) for most people go get an accurate diagnosis of fibromyalgia. This is because Fibromyalgia can be difficult to diagnose.


Q&A with Younger Lab Researchers

"What is fibromyalgia and What is ME/CFS?" are the topics for the first YouTube Live Q&A Broadcast Session hosted by the Younger Lab, officially known as UAB's NeuroInflammation, Pain and Fatigue Lab. You'll be able to ask questions and hear an announcement on recent developments at the lab. 
Send in pre-broadcast questions to Please invite your friends to this event.
Tina Tidmore, of Tidmore Communications, is the broadcast facilitator.

Live stream currently offline

Our first YouTube Live Q&A Broadcast will be on Thursday, March 3 at 3 p.m. CST. Find out about the research at UAB's Neuroinflammation, Pain and Fatigue Lab, also known as the Younger Lab. These sessions are for our scientists to answer questions about our research into the role neuroinflammation may have in chronic pain and chronic fatiguing conditions, such as fibromyalga, ME/CFS (chronic fatigue syndrome or systemic exertion intolerance disease), and Gulf War illnesses. 
Will you participate? . .



This section is included because it provides general health education, but not necessarily fibro related.


This week my husband celebrated his 83rd birthday.  To me it seems like a miracle that we are both still alive, if not particularly well!  So, I do count my blessings.
Have a good week


or leave your comments below under 'Post a Comment'


N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in GREEN like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.   The sites included are in alphabetical order.  If you have any navigation problems, let me know. 
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgments, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in any way should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity although I do work in conjunction with other bloggers and Facebook groups.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to and you will be added to the emailing list.

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