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FMS eNews 19/09/15

September is Invisible Illness Awareness month.  Fibromyalgia is one of those illnesses.  Make your friends, acquintances and medical advisors AWARE.  They need to know. Forward Beth's video below, through this link - https://www.youtube.com/watch?v=2hJYpe8hPbE&feature=youtu.be  Tell the world. Perhaps you could copy the link on Facebook, Twitter or whatever social media you use, and send it by email to everyone you know.  Thank you.


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WORDz for the WEEK

238. There are times when you just need to hold on.  There are times when you just need to work harder.  But there are also times when you just need to let go. . .


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Change of Season, Change of Habits 

Just when you've gotten into the habit of doing things to stay cool and functioning by summer rules, it's time for a change of seasons -- and an accompanying change of habits. Everything flips on its head this time of year.
This week, we'll look at the things you need to start thinking about as temperatures begin to drop, including keeping yourself warm and planning ahead for the holidays, including travel. (I know -- I never want to think about the holidays this early, either, but trust me when I say that a little preparation now will help you enjoy the holidays a whole lot more!)
Take care of yourself!
Adrienne Dellwo - Fibromyalgia & Chronic Fatigue Expert


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1 Sugar That Fights Disease, Chronic Conditions and Heart Disease.


It's happening in small, private clinics...
And it's happening in the largest, most respected hospitals in the world...
A rising tide of doctors and health care providers are now urging their patients eat this "life-giving" sugar every single day.
They're not just recommending it to give a "slightly better alternative" to other sweeteners either. They're prescribing it to treat life-threatening diseases, heal chronic conditions, and keep people looking and feeling their very best.
What is this sugar?
If you guessed honey, then you're absolutely right. For we've all heard about how honey is a remarkable substance. We've heard about how it "doesn't go bad". Or about
how archaeologists found unspoiled, 2000-year-old honey in an Egyptian tomb.


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13 Mistakes Fibromyalgia Patients Make

Navigating fibro by Amanda Gardner


Dealing with the constant, daily pain of fibromyalgia can be tough. But the task can be even tougher if you fall into some common traps.
Everyone makes mistakes, but there are some missteps that can make it even harder to cope with fibromyalgia.
Learn how to avoid them and make living with fibromyalgia that much easier.


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 Top stories …

Pfizer loses its legal bid to force UK physicians to prescribe Lyrica for neuropathic pain instead of cheaper generics. The decision opens the door to “cheap copycats”of the drug. Pfizer, of course, is appealing the court ruling.
Here’s a fun headline for you: “I couldn’t get out of bed for eight months [due to ME] – Now I’m a burlesque stripper.” According to the woman featured in this story from the Mirror (UK), she’s lived a “normal life” for the past nine months … thanks to burlesque dancing! I bet your friends never suggested THAT as a treatment!
Fighting back: Two California women plan to appeal their losses in federal court last month over Cymbalta’s withdrawal symptoms. The women claim drug-maker Eli Lilly & Co. downplayed the severity of symptoms experienced by patients who stop taking the drug commonly prescribed for fibromyalgia.
And much more...


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Raising Awareness September 2015 Banish The F Word UT

Fibromyalgia - A Chronic Illness that is invisible but life changing and debilitating. With 200+ overlapping symptoms and affecting an estimated 70 million people worldwide.




Please watch and like and share. September is Invisible Illness Awareness month - a good time to push this out to the public.


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FM Surveys - will you help?

WANTED: People to take part in our surveys - reports will be published in the magazine and also made available to MP's, CCG's, GP's etc.
No names will be given out. If you want to take part and make a difference then please e-mail fibroflaremag1@outlook.com
Please can you help by sending in your email addresses if you would like to take part. 
Thank you
Beth


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Monday Mindfulness – Week 8

Continuing to be mindful with Ian Peric of Priceless Vitality.



See you next week.


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Sweet, sweet potatoes - by Benjamin Plackett


It's no surprise that sweet potatoes are at the top of nearly everyone's healthiest foods list. One baked, medium-sized sweet potato contains 438% of your daily value of vitamin A (a white potato contains 1%), 37% of your vitamin C, and some calcium, potassium, and iron too. All this at just 105 calories!
What's more, they also deliver 4 grams of dietary fiber—16% of the daily value—and absolutely zip in terms of fat.
And luckily there are many ways to whip them up. Here are 25 great (even kid-friendly!) sweet potato recipes.


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From Autoimmune Drugs to Tai Chi: the NIH’s Approach to Fibromyalgia


The National Institute of Health (NIH) is easily the biggest funder of medical research in the world. Many research groups depend on the NIH for the majority of their funding.
Health Rising’s recent review of NIH funded studies on chronic fatigue syndrome revealed a small (14 studies underway) but rich list of  studies. From an analysis of the gut microbiome, to the effects of exercise on the immune system, to studies on Epstein-Barr virus  infection to cerebral spinal fluid studies, the NIH was looking hard for the cause of ME/CFS. If the NIH isn’t funding ME/CFS much the studies it does fund are focused strictly pathophysiology.
The fact that not one treatment study was funded suggests the NIH is still floundering in that area.
The opposite picture is present for FM. The NIH is placing very little emphasis, at least this year, on trying to understand why or how fibromyalgia occurs (5 studies) but is more focused on treating it (14 studies).


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How To Make Your Own Homegrown Medicinals


Here’s a great tutorial we found for those who are just getting into herbalism and looking for a “way in” to begin the process of making things with herbs – starting with the real living plants that grow (for free!) around us, instead of just grabbing a product off the shelf in the supermarket!
Although store-bought herbal products such as tinctures have benefits such as a certain degree of standardization and quality control, there is much value in learning to prepare herbs yourself.
First of all – it is a survival technique and therefore an incredibly useful aspect of learning survival / off-grid skills. One interesting aspect of this is that many of the plants that are considered beneficial in herbalism are generally considered by others to be weeds and of “no value”! For example, when you learn about dandelions and all the amazing things you can do with them, you will be truly astonished that so many people just want to spray them with poisons and be done with them.


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How To Make A Herbal “Sleep Like A Rock” Tincture


We’ve just found a great recipe for a herbal tincture for sleep.
The main ingredient is valerian – which has been used as a sleep remedy since ancient times and is a well known natural sedative.
The recipe also includes vegetable glycerin, which is an interesting alternative to alcohol that is typically used for making tinctures.
The article also includes a huge list of other other tips on the subject of helping you sleep without use of pharmaceutical drugs.
There are numerous herbs which people have found beneficial for sleep. We also compiled a more scientific-style article listing ten of the best ones, together with some of the medical research that has been done on them – and this will make great ‘supplemental reading’ for those interested in this subject: 10 Herbs For Insomnia

Ok, here is the link to the full tutorial for the herbal “sleep like a rock” tincture (web archive):
You might also be interested in these two related pages of ours – 20 Foods To Help You Sleep Better 
and 3 All-Natural Sleep Aid Drinks


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4 Herbs That Relieve Joint Pain


Here’s a nice simple post we just found which lists 4 herbs which are reported useful for joint pain, together with a description of the benefits of each.
Joint pain is typically caused by inflammation, which may be a result of numerous causes from colds / fever through to injury. Another possible cause may be rheumatoid arthritis – which is reported to be caused by an overactive immune response.
The classic signs of inflammation are pain, heat, swelling, redness and loss / difficulty of mobility.
You will find that some of these herbs are not “instant fixes” – for example with Ginger, it is suggested to incorporate some fresh ginger into your daily diet and to be observant for any overall improvements after a few weeks.
Ok, here is the link to the original list of 4 herbs for joint pain: http://naturehacks.com/natural-remedies/4-herbs-that-relieve-joint-pain
You might also be interested in a couple of our other full length pages which relate to this subject:
Top 20 Natural Painkillers In Your Kitchen
10 Herbs For Joint Pain


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End Fibromyalgia Fatigue with Chocolate

Chocolate can help fibromyalgia sufferers by reducing inflammation, increasing energy and promoting alertness.
Let the rejoicing begin!  Eating a small chocolate bar every day helps fights exhaustion!  What?!  You mean chocolate is good for your health!?  Absolutely!
Many people who have fibromyalgia crave chocolate. The reason for this is because Chocolate has high magnesium content. Something that most fibromyalgia patients lack.
Studies show that fibromyalgia sufferers are deficient in nutrients, such as calcium and magnesium. Raw cacao contains both of these, and thus can help you to restore those nutrients back to your body.
Calcium and magnesium both can help to regulate your muscles so that you can overcome muscle spasms once and for all.


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Mind Body Sciences


More and more, ever so slowly, we are beginning to see the concepts of mind body medicine make their way into the conservative "Conventional Medicine" community.
Resistance to these concepts has been very strong despite glaring examples of success by highly placed members of that "community" such as Dr. John Sarno who authored "The Mindbody Prescription" decades ago.  Even as the scientific basis was established in the '70s, '80s, and '90s, our conventional medical practitioners stuck to their "traditional" guns.
Now, however, with newer imaging technology, that allows viewing the molecular level of our cells, this mind body science is moving to the forefront of research into cancer, alzheimer, and yes, even fibromyalgia. 
Read on . . .


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Gluten-free diet

Definition
A gluten-free diet is a diet that excludes the protein gluten. Gluten is found in grains such as wheat, barley, rye, and a cross between wheat and rye called triticale.
A gluten-free diet is primarily used to treat celiac disease. Gluten causes inflammation in the small intestines of people with celiac disease. Eating a gluten-free diet helps people with celiac disease control their signs and symptoms and prevent complications.
Initially, following a gluten-free diet may be frustrating. But with time, patience and creativity, you'll find there are many foods that you already eat that are gluten-free and you will find substitutes for gluten-containing foods that you can enjoy.
[You don't have to have celiac disease to benefit from a gluten-free diet.]


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Paresthesia Connection to Fibromyalgia

Paresthesia is a condition that results in a burning sensation, tingling, prickling, or even numbness. This condition often occurs in the hands and extremities of the body. The symptoms associated with this condition can vary in severity from mild to very severe. Depending on the reason paresthesia is present, the condition may last chronically or it will disappear after a short period of time.
With fibromyalgia, it is not uncommon for paresthesia to occur without the sensation of pain, but pain can be felt sometimes when it is present. The condition can also occur without any advanced warnings. This may cause concern in patients especially if they have never felt the sensations in the past.


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Why The MAP is Your Road Map to Optimal Wellness


Why The MAP is Your Road Map to Optimal WellnessIf you’re new to the concept of the Matrix Assessment Profile – also known as The MAP – you may have concerns about how it works or how it benefits your health. In fact, we get a lot of questions. We’re happy to answer them for you here.
Here’s the background. The Matrix Assessment Profile was originally developed by NASA bio-engineers in order to eliminate low-grade health issues for astronauts in space. At Optimal Wellness Labs, we’ve taken that technology and used it to develop action plans to treat chronic health conditions for people all over the world.
This is not an event. It is a process. The MAP is a personalized 12-week road map to wellness based on the results of an individual’s biochemistry.
With 50 million cells in your body responsible for 6 trillion chemical reactions per second, it only stands to reason that your chronic conditions won’t disappear overnight. Prescriptions may ease your symptoms, but they don’t correct the underlying conditions.


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How to Relieve Joint Pain Without Ibuprofen


Many people have aches and pains that require ibuprofen and no one would begrudge you for taking this pill for an acute migraine or severe pre-menstrual cramps. I’ve been asked if I believe in ibuprofen and I do, but only for occasional use. I’ve even recommended a 200mg tablet of ibuprofen be taken along with a cup of coffee (to enhance effect) but that’s only for a select type of headache pain, or for mild post-operative pain. Sounds crazy but combining caffeine with ibuprofen can provide pain relief better than the ibuprofen alone. I’m often asked if acetaminophen is just as good as ibuprofen for arthritis and joint swelling and the answer is NO, it is not. Acetaminophen may ease the pain but it has no impact on your swelling. Ibuprofen, a drug that is part of NSAID [Non-Steroidal Anti-Inflammatory Drug] family,  WILL reduce both pain and swelling. So ibuprofen is better than acetaminophen when it comes to an inflamed joint.  There are caveats with that of course, nothing in my world is black and white.
[For recommendations see Suzy's website.]


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Sally Burch VIDEO Presentation for QUB ePatient Conference

The use of Patient Blogs as a Care Resource




See Sally's blog:


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I do. I do. I am. I won't. And they did!  This week has been a dream rather than the nightmare I had last week!  

I wish you wellness
Stella

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or leave your comments below under Post a Comment

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N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in whichcase the title is in PURPLE like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  If you have any navigation problems, let me know.
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified  professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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