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FMS eNews 22/02/14

I have been reading the booklet "Malic Acid and Magnesium for Fibromyalgia and Chronic Pain Syndrome" by Billie Jay Sahley.  As I read, certain words jumped out at me.  "If you are diagnosed with chronic muscle pain syndrome or FM, take responsibility for participating in your own treatment.  The time and effort you spend learning what FM is and what you can do to help relieve it are the most important steps in your care."  That is exactly what FMS eNews is for; to provide you with the sources of information you will need to this end.
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 WORDz for the WEEK

 When Life gives you the choice of going left or right: GO STRAIGHT!!!
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 From Adrienne Dellwo

  • Exercise & Oxygen Shortage in Chronic Fatigue Syndrome
  • Why I Don't Cover the Political Side of Chronic Fatigue Syndrome (Very Much)
  • Doctors Appointments with Fibromyalgia & Chronic Fatigue Syndrome
  • Staying Active in the Winter With Fibromyalgia & Chronic Fatigue Syndrome

http://specials.about.com/service/newsletters/chronicfatigue/3052f930040001af8f002604.htm
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Fibromyalgia Assessment - Living With Fibromyalgia?

 Answer a few questions, and you'll get:
  •   Information about fibromyalgia for those who haven't been diagnosed
  •   Treatment options that best fit your symptoms
  •   Tips to help you cope with your symptoms and improve your life
http://www.webmd.com/fibromyalgia/fibromyalgia-assessment/default.htm
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When Your Pain Medication Isn't Working
What your next steps might be in treating your chronic pain.

 More than 100 million Americans have chronic pain. If you're one of them, controlling it will likely require searching for treatments beyond medication.
That's because pain medication, while helpful, often cannot provide complete relief of pain. It may reduce but not eliminate pain.

 http://www.webmd.com/pain-management/features/when-pain-medications-not-working
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 Top 4 reasons you are sick
We live in an age where sickness is considered "normal". Allergies, migraines, digestive disorders, poor sleep, lack of  energy, and muscle and joint pain are considered a part of life, and not indicative of any serious illness. How did we come to accept this as normal, and how did we get so sick that we have completely turned the paradigm of what is healthy completely upside down?

 Learn more >  http://www.naturalnews.com/043976_chronic_disease_staying_healthy_digestive_disorders.html
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 Creating a Mindset of Healing By Lauren Schnell** 

 What if I told you that doctors have discovered a breakthrough in treating Fibromyalgia and ME/chronic fatigue syndrome you or a loved one is living with? Would you be open and willing to learn about what that breakthrough is? If the answer is YES, then it is from this space of openness and willingness where you will begin your healing journey.

 http://www.prohealth.com/ep/EP022014/index.cfm?slvor=11589.1144173.0.1.0.110434
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 **YOU CAN THRIVE!  IT BEGINS WITH A DAILY PRACTICE
 Four years ago Lauren Schnell created a radical u-turn surviving a brain tumor, near divorce, financial devastation and so much more. Lauren teaches individuals from her own personal transformation how to thrive by using her daily spiritual practice tools including a technology she created called Activating Affirmations™. Lauren is a motivational speaker, life coach and author of a series of life-changing audio recordings including her 30-Day Mind Cleanse. Lauren's expertise is
in holistic nutrition, yoga, and empowering women to prosper debt-free, transform troubled marriages, and return to optimal health.

 You can subscribe to Lauren's FREE morning meditation "Wake Up"!
http://laurenschnell.com/
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 Stress and Your Health - What is stress?

  Stress is a response to a situation which affects someone’s wellbeing. These situations could be physical, emotional or intellectual demands. It is at these times the body reacts in a ‘fight or flight’ mode by increasing production of the hormones adrenaline and cortisol. This changes heart rate, blood pressure and metabolism in order to improve performance.

 http://www.healthmonthly.co.uk/stress_health_article
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 Celeste Cooper answers questions about Fibromyalgia
  •   Would participating in a sleep study help with my fibromyalgia symptoms?
  •   Can I eat foods that contain MSG if I have fibromyalgia?
  •   How often should I check my blood pressure with fibromyalgia?
  •   Does guided imagery help treat fibromyalgia?  etc. . . .
http://www.sharecare.com/user/celeste-cooper/answers
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 20+ Natural Fibromyalgia Solutions Including The Gluten Free Diet
(Although this is included in the GreenMed list at the end * I have put it here in case you don't read Green Med Info as it is usually general health rather than fibro orientated.  However, this one is specific to fibro so relevant to all fibro folk.)
Fibromyalgia, like most modern day 'syndromes,' is considered 'idiopathic' – a fancy word for "we don't know," and often times used as an excuse for not looking deeper into the root causes of the patient's suffering. Conventional treatment is palliative at best, and harmful at worst -- all the more reason why natural approaches are so greatly needed.
Thankfully, a significant body of research has accumulated on natural approaches to fibromyalgia that focus on dietary modification, avoidance of chemical exposures and the use of orthomolecular nutrition, i.e. vitamins, biological co-factors, minerals, etc.

 http://www.greenmedinfo.com/blog/20-natural-fibromyalgia-solutions-including-gluten-free-diet
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 Books and products listed as aids to ease fibromyalgia symptoms

 http://www.painstresscenter.com/searchprods.asp
And specifically, Billie Jay Sahley's book, "A Natural Approach to Fibromyalgia and Chronic Pain", (an update to the one in my opening comments.)

 http://www.painstresscenter.com/A-Natural-Approach-to-Fibromyalgia-and-Chronic-Pain/productinfo/FMBK4/#.UwCSAobw-b4

OR  http://www.fmsolution.net/malicbook.htm
See also http://www.fmsolution.net/
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Along the Mississippi

  Join Michael Gverney and friends for a journey along the Mississippi and enjoy the flavours and sounds of the South from Memphis to New Orleans.
Friday 14 March 2014, 7.30pm for 8pm
At Elvira's Café, next to Jeremy's Restaurant at Borde Hill, Haywards Heath.
Tickets cost £40 to include a welcoming drink, three course dinner, coffee and petit fours and cabaret Tickets are available from reMEmber PO Box 1647, Hassocks, West Sussex BN6 9GQ
Tel: 01273 831733 or email:  me_cfs@hotmail.com  www.remembercfs.org.uk

 https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Along_the_Mississippi.pdf
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From Ann Pizer
 A look at how yoga can help relieve low back pain, sciatica, and arthritis.
  • 5 Essential Lower Back Stretches
  • Yoga Stretches for Sciatica
  • How to Start Yoga With Arthritis
  • Knees, Chest, Chin + Chaturanga
http://specials.about.com/service/newsletters/yoga/3152fe2fe300011d73002851.htm
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 Your Health is our #1 Priority ¦ Newsletter, February 2014 ¦ Year 16: Issue 2

 We want to hear you! Drop us a line and request what you want to be included in the next newsletter.

 http://www.globalhealingcenter.com/newsletter/2014/february/
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Message from FMA UK Head Office regarding poor experiences with new Benefits assessment

 If you have had difficulties with Atos/Capita, please do report these to FMAUK.  But hurry because information is required by Wednesday 26th February.  Thank you.

 Message here >  https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/FMAUK_Message-Benefits14.02.22.pdf
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* Daily Newsletter, Feb 14th, 2014

Daily Newsletter, Feb 16th, 2014

Daily Newsletter, Feb 17th, 2014

Daily Newsletter, Feb 18th, 2014

Event Announcement, Feb 21st, 2014
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 I visited St Barts again yesterday for a check-up.  All is well.  It made me work on this blog until late, in fact into Saturday!
Warmest wishes to you all.
Stella
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 N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements,accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

Posted by

FMS eNews 15/02/14

Our country continues to suffer incessant battering by wind and rain.  Floods are an increasing hazard to homes and businesses.  "Conditions have got aggressively worse" said a TV commentator this morning.  My heart goes out to all those people and animals who are suffering under these extreme conditions. But life goes on and eNews is here for you again as usual.

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 WORDz for the WEEK

 155.  The sweet isn't as sweet . . . without the bitter . . .
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From Adrienne Dellwo

 Sometimes, you can't do anything because you have no energy, too much pain, or a fogged-in brain. Other times, you just don't have the motivation. What could be behind that, and what might help, below.

 Also this week, a surprising drug eyed as a treatment for depression in fibromyalgia, and how to avoid the flu and the related flare it could cause.

 Down in Featured Articles, you can learn a lot about alternative treatments. On the right, I've included a few pieces I thought were appropriate for Valentine's Day.

 Take care of yourself!

 http://clk.about.com/?zi=1/1UY&sdn=chronicfatigue&zu=http://specials.about.com/service/newsletters/chronicfatigue/3052fcb489032d7ad9002605.htm
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Quiz: Myths and Facts About Fatigue
16 questions!  Do you know the answers?
What's good for your fatigue?

  •  Taking several naps
  •  Walking for 30 minutes
  •  Drinking coffee

15 others here >  http://women.webmd.com/rm-quiz-fatigue-myths?ecd=wnl_slw_020914&ctr=wnl-slw-020914_ld-stry&mb=m7ZgnqG1govB9suQORgYx2dEpmNqbUHLHcFiuenJAyY%3d
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Fibromyalgia: The stigma and the truth

 Those suffering from fibromyalgia syndrome (FMS) now have undeniable proof that their illness is not psychogenic or psychosomatic (in the mind), thanks to a plethora of new and current findings from the most respected medical research facilities in the U.S.A.
After years of being ignored and told that it was all in their minds, like individuals suffering from obesity before them, FMS sufferers are finally getting the acknowledgment they deserve.

 Read more >  http://www.commdiginews.com/health-science/health/fibromyalgia-the-stigma-and-the-truth-4579/
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Fibromyalgia (Holistic) - About This Condition

 Fibromyalgia, an unsolved mystery, is a complex syndrome with no known cause or sure cure. According to research or other evidence, the following self-care steps may be helpful. 
Exercise 
Low-intensity exercise (like walking or swimming) is the best known treatment 
Address your stress 
Reducing stress and unpleasant emotions may also reduce symptoms 
Try 5-HTP 
100 mg of the supplement 5-hydroxytryptophan three times a day may ease symptoms
Check out SAMe 
800 mg of the supplement S-adenosyl-l-methionine a day may help symptoms

 Read more >  https://www.blueshieldca.com/bsca/health-wellness/health-library/article.sp?articleId=HWHN-1215007
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Tart cherry juice reduces fibromyalgia pain, improves sleep
Tasty daily drink can lead to less pain in 10 days.

 Experts say between 3 and 6 million people are living with fibromyalgia. This chronic condition makes you feel pain all over — especially in specific tender spots — so weak and tired you can’t function normally, and unable to sleep. You may also suffer from headaches, depression, and trouble thinking.
Read more >  http://www.fca.com/tart-cherry-juice-reduces-fibromyalgia-pain-improves-sleep/
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How to Manage Your Stress Levels and Reduce Fibro Flare-ups 

 Just having fibromyalgia alone is stressful because you are dealing with the pain, fatigue, fibro fog and the reduced ability to function. Often, sufferers face financial problems and a lack of understanding by others of what you are going through. All of this makes for a powerful stress cocktail!

 Read more >  https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Forget_Fibro-14.02.15.pdf
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 What Stops You From Trying To Get Better? An ME/CFS and Fibromyalgia Community Report
Everyone wants to get well, and if you asked anyone with chronic fatigue syndrome and/or fibromyalgia the one thing they wanted in their life, it would probably simply be  to be healthy again.  Most people would say they would do anything to be healthy again, and, in fact,  people often invest uncountable hours and enormous amounts of money  trying to get better.

 Read more >  http://www.cortjohnson.org/blog/2014/02/10/stops-trying-get-better-me-cfs-fibromyalgia-community-report/
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 Welcome to Wiki Fibromyalgia Com
Wiki Fibromyalgia Com is a unique portal web site that sets out to make finding information about Fibromyalgia quick and easy.
Using the established Wiki principal it allows web site visitors to become an EDITOR and ADD or CHANGE data to the site. This provides a massive knowledge base drawing on the experiences of people around the world who have Fibromyalgia in their lives.
Wiki Fibromyalgia Com is YOUR SITE as much as it us OUR SITE - if you know some news share it with us all, if you have tried treatments that worked or failed share it with us.

 Read more >  http://www.wiki-fibromyalgia.com/tiki-index.php
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Start Your Day Off Right

 A healthy breakfast can give you energy, satisfy your appetite, and set the stage for smart decisions all day long. Try one of these 20 staples and mix-ins tomorrow.

 Read more >  http://www.health.com/health/webnewsletter/0,,20786431,00.html
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Is Your Thyroid Working Properly? By Terry Lemerond 

If you feel tired all the time, have gained weight even while keeping to a diet, and just can't seem to concentrate, your thyroid needs help. 

Sadly, thyroid function is too often ignored by conventional medical practice. It's a common misconception that if you have "normal" thyroid hormone levels then you don't need to do anything; just get a little extra sleep and forget about it.


Also on this page:-
  • Live Without Anxiety or Stress 
  • Omega-7 - The Amazing Essential Fatty Acid 

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This community is going to change healthcare.

We're all in this together, and just since the New Year, more than 10,000 of your fellow community members have already started donating their data. Join the movement. You are going to change medicine - for good. And all you have to do to make that happen is report your health experiences on your profile. Once a day, once a week, or even just once a month will have an impact.


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Daily Newsletter, Feb 8th, 2014

Daily Newsletter, Feb 9th, 2014

Daily Newsletter, Feb 11th, 2014

Daily Newsletter, Feb 12th, 2014

Weekly Newsletter, Feb. 13th, 2014

Daily Newsletter, Feb 14th, 2014
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 I hope this is enough to keep you going until next week.  I wish you well, or as well as can be.

 Best regards to all
Stella
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 N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

Posted by

FMS eNews 08/02/14

Happy St Valentine's Day!  May all your romantic wishes come true!! Lots of information here about St.Valentine and traditions associated with him. 

 http://en.wikipedia.org/wiki/Saint_Valentine
http://en.wikipedia.org/wiki/Valentine's_Day

 Maybe you'd rather just receive a card from your loved one!
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 WORDz for the WEEK

 154.  Unless you know who you are today you'll never figure out how to make "that you" better for tomorrow!
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From Adrienne Dellwo

Exercise intolerance is a key feature of ME/CFS, and now researchers could be a step closer to understanding it - which also means a step closer to treating it more effectively. See what new research shows, below.
Also this week, how to get through potentially problematic doctors appointments, and an aspect of ME/CFS coverage I tend to avoid.
Down in Featured Articles, a look at some work and school issues we face.
Take care of yourself!

http://specials.about.com/service/newsletters/chronicfatigue/3052eff585000171f8002603.htm

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Coping With Excessive Sleepiness - How to Stay Awake Naturally By Camille Peri
WebMD Feature Reviewed by Louise Chang, MD

 With more and more of us getting less and less sleep, it’s tempting to reach for a Red Bull or an espresso when we feel sleepy at work. But consuming caffeine to combat sleepiness can lead to a vicious cycle.
The java jolt that helps you stay awake can take up to eight hours to wear off. Caffeine can also reduce your sleep time, alter the normal stages of sleep, and decrease the quality of your sleep.
How can you stay awake naturally? Try some of these 12 jitter-free tips to take the edge off sleepiness.

 http://www.webmd.com/sleep-disorders/excessive-sleepiness-10/natural-tips-sleepiness?ecd=wnl_slw_020214&ctr=wnl-slw-020214_ld-stry&mb=
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New Medicines For Fibromyalgia

 If you have fibromyalgia syndrome, then you have probably tried countless treatments in order to help reduce your many symptoms. There are a wide variety of medications available to treat the widespread pain, fatigue, and depression caused by fibromyalgia. Unfortunately, a lot of this medication causes numerous side effects and requires persistent fine-tuning in order to be beneficial. Luckily, a number of new fibromyalgia medications are now available to help manage your fibromyalgia symptoms.

 http://www.fibromyalgia-symptoms.org/fibromyalgia_side_effects.html
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Flax Farm 

 Apart from being a food with health-changing properties Flaxseed/Linseed is the basis for many traditional natural remedies for a wide range of ailments.   It was used in bygone times long before antibiotics  were discovered and is used today by naturopaths, herbalists and Doctors.  A rich source of Omega-3 it is an ideal food as whole seeds, ground seeds and extracted oil.

 https://www.flaxfarm.co.uk/ 
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Live Longer: Groundbreaking Research on Omega-3s By Delia Wilder

 What You Need to Know: Reduce Your Risk for Premature Death with Omega-3s

 http://www.prohealth.com/ep/EP020714/index.cfm?slvor=11574.1142708.0.1.0.110434&eid=
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Intermezzo® (zolpidem tartrate) is the first and only prescription sleep aid approved by the FDA for use as needed to help treat adults with insomnia when they have difficulty falling back to sleep after waking up in the middle of the night. It is taken only when needed, as long as there are at least 4 hours of bedtime left.

 http://www.myintermezzo.com/sales/f?p=800:ABOUT_THE_CONDITION:0:::::
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Miaxial helps relieve the symptoms of Fibromyalgia


Miaxial is one of the most advanced multi-nutrient formulas available and we are justifiably proud of it, not just because of the excellent range of nutrients included but also the natural support it offers our customers.


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Study Finds Vitamin D3 Helps With Pain in Fibromyalgia: Should You Try Vitamin D?

Vitamin D3 has become a big deal in the past couple of years, but the findings in fibromyalgia have not been particularly promising.  Several fibromyalgia studies have not found evidence of low Vitamin D3 (calcifediol) levels in fibromyalgia. Noting,though, that other studies suggest low Vit D3 levels are associated with increased pain, and that some studies suggest that increasing D3 may help with pain and other symptoms found in FM, these researchers took another look.


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FibCon 2014, 28th-31st March,Chichester Park Hotel
Have you booked yet?  There's still time but don't leave it too late.  

 Read about it here
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/14.01.18_5thFibConNEWSFLASH.doc
Booking Form
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/14.01.18_5thFibCon_BKG_FORM.doc
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Fibromyalgia Awareness – What YOU Can Do and Why By Purple Law Lady   

 I’m really sick of sitting on the couch, too tired to do anything every day; and then, at 5.16 am (now), being unable to sleep. I need some help. I need somebody to come up with a better way to manage this condition. Better yet, I need someone to cure this condition. Really? You, too?
In fact, I am incensed enough to get back on my high horse and start another Fibromyalgia Awareness Campaign.  

 What you can do?  Find out here
http://fibromodem.com/fibromyalgia-awareness-what-you-can-do-and-why/
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 Living with the unexplained: Coping, distress, and depression among women with chronic fatigue syndrome (CFS) and/or fibromyalgia compared to an autoimmune disorder.
 Chronic fatigue syndrome (CFS) and fibromyalgia are disabling conditions without objective diagnostic tests, clear-cut treatments, or established etiologies.Those with the disorders are viewed suspiciously, and claims of malingering are common, thus promoting further distress.

 http://cfsknowledgecenter.ning.com/page/inthenews-5
Other articles available on this page too.
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Fibromyalgia in Tonbridge, NEWSLETTER – Jan/Feb 2014
Happy New Year to you & your families!
Well, here we are - another year. Looking ahead from the floods, the worst of which are hopefully now behind us, Christmas is already just a blur, but weather forecasters warn we’re not completely out of the woods yet.

 Read more
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Tonbridge_FM_News_14.01-2.pdf

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Girls Nights In

 Even more dependable than alcohol for a good time.
We know this as we have over 3000 ladies who've been to one!

 Here's my very belated Happy New Year to you!
2014 has certainly started with lots of emails pouring in for Bespoke Pamper Parties and Girls Nights In and Out!
http://us2.campaign-archive2.com/?u=c7d20b59d20e84ac52bbadaa9&id=8b139d6b4a&e=8911b240ec
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Weekly Newsletter, Feb. 1st, 2013

Daily Newsletter, Feb 2nd, 2013

Daily Newsletter, Feb 3rd, 2013

Daily Newsletter, Feb 4th, 2013

Daily Newsletter, Feb 5th, 2013

Weekly Newsletter, Feb. 6th, 2013

Daily Newsletter, Feb 7th, 2013

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To finish on a personal note; I am being reassessed for my Disabled  Parking Badge next month;  I have been referred to Southampton University Hospital for screening to check that there has been no cancer metastasis; and I have been measured up for my permanent bespoke prosthetic eye.  So fingers crossed that all have a positive outcome!  Fibromyalgia has taken a back seat but still lurks!

 Hoping all is as well as can be for you.
Best regards  
Stella
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N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.  I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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