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195. Dreams are adventures you have yet to fulfill.
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A lot of chronic fatigue syndrome research focuses on the immune system, but this new research highlights the importance of keeping an eye on the brain. See what abnormalities researchers have discovered and what they could mean for you. That's below.Also this week, a drug that's already on the market may ease fibromyalgia symptoms. In the third and fourth spots up here as well as down in Featured Articles, we're focusing on mental health. Our illnesses may not be psychological, but they can have a major psychological impact on us.
On the right, you'll find some help for the holidays.
Take care of yourself!
http://specials.about.com/service/newsletters/chronicfatigue/305457df0700014d1e00321b.htm
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Innate magic by Purple Law Lady
A while ago, I wrote about starting to see a Network Chiropractor and I’ve been a bit hesitant about writing about my experiences so far. I really don’t want to sound like I’m selling this modality to you – I’m just telling you how it has affected me. I cannot say whether it will work for you or not; and, whether you choose to try it or not, is up to you.
That being said…I am currently a huge fan!
Read more: http://fibromodem.com/innate-magic/
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7 Ways Magnesium Helps with Chronic Pain
Of course, as the years go by and we log more and more miles, problems arise. For some, the problems start early – long before they could even be considered a “classic car”. Such was my fate. For me, it is a constant battle to keep my body running. Most days, it takes all I’ve got just to get it out of “park”.I have a long list of things I do, foods I eat and nutritional supplements I take to keep myself out the junkyard. One of the most important supplements for me has been Magnesium. Some estimates show magnesium deficiency affects between 60-80% of Americans, with symptoms including pain, fatigue, muscle weakness and more.
So why do I take magnesium everyday? Besides wanting to avoid the symptoms listed above, here are 7 reasons Magnesium makes my list of important nutritional supplements:
- Improves Sleep
- Relieves Muscle Pain
- Calms the Nerves
- Boosts Brain Power
- Proper Enzyme Functions
- Healthy Bones
- Keeps Me Balanced
Learn about them all:
http://fibromyalgiatreatmentgroup.com/fibromyalgiatreatment/7-ways-magnesium-helps-with-chronic-pain
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The genetic process by which nerves can regrow
We are always following the latest scientific breakthroughs related to fibromyalgia and we decided this was worth sharing.
A team of scientists at Penn State and Duke University have discovered a single gene responsible for allowing nerves to regrow themselves after being cut or damaged.
Successful tests are currently being conducted on genetically modified fruit flies and this research will open the door to new and exciting treatment options for nerve related conditions such as fibromyalgia.
Several studies have shown that nutritional supplementation can affect gene expression in humans. As the research continues down this avenue, we will be looking into ways that we can tap into this additional resource using nutrition to fight fibromyalgia.
We will continue to follow this research and update you as progress is made. Until now, very little has been known about the genetic process by which nerves can regrow. This is very exciting.
https://qy127.infusionsoft.com/app/hostedEmail/511107/21baa06883b0a9fe?inf_contact_key=1fae8b664b5375c730679f133ffe35c33fdba2366ff8ea7f3538d193223f4346
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A “Fatigue” Disorder No More? – What Multiple Sclerosis Taught Us About Fatigue and Chronic Fatigue Syndrome
The “Fatigue” Disorders
Like Chronic Fatigue Syndrome, though, the fatigue in MS is a mystery. In fact in some ways it’s even more than a mystery. The fatigue in MS is, oddly enough, not correlated with disease severity. People with MS can be fatigued before lesions start popping up in their brains. In fact, severe fatigue is often the first symptom to show up in MS.
http://www.cortjohnson.org/blog/2014/11/06/fatigue-disorder-multiple-sclerosis-taught-us-chronic-fatigue-syndrome/
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Chapter Opens Up in Quest to Understand PEM in Chronic Fatigue Syndrome
http://www.cortjohnson.org/blog/2014/11/12/new-chapter-search-roots-post-exertional-malaise-chronic-fatigue-syndrome/
PEM Series
◾ A “Fatigue” Disorder No More? – What Multiple Sclerosis Taught Us About Fatigue and Chronic Fatigue Syndrome
http://www.cortjohnson.org/blog/2014/11/06/fatigue-disorder-multiple-sclerosis-taught-us-chronic-fatigue-syndrome/
◾ A Chronic Fatigue Syndrome Brain on Exercise – Not a Pretty Sight
http://www.cortjohnson.org/blog/2014/11/10/chronic-fatigue-syndrome-brain-exercise-pretty-sight/
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Supplements for Fibromyalgia
http://www.prohealth.com/fibromyalgia/fibromyalgia-supplements.cfm
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Your Guide to Treating Fibromyalgia
Read more: http://www.free-ebooks.net/ebook/Your-Guide-to-Treating-Fibromyalgia#ixzz3IlFhFkiq
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[Medical News Today]
A new study from Sweden finds fibromyalgia is linked to abnormal activity in parts of the brain that process pain signals and link them to other regions.
Decreased brain connectivity in fibromyalgia patients
For their study, the Karolinska researchers compared brain activity in women with and without fibromyalgia. In fibromyalgia patients, they found decreased connectivity between brain areas that process pain and sensorimotor signals.
[human brain] The results showed that the fibromyalgia participants had significantly increased pain sensitivity compared with the control group.
They suggest their findings show reduced brain connectivity may contribute to deficient pain regulation in people with fibromyalgia.
Read he report: http://www.medicalnewstoday.com/articles/283346.php
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‘It’s like someone beating you up’: The invisible illness no one’s talking about
Over the years several doctors had tried and failed to establish what was causing the debilitating pain that had derailed her life.
After countless misdiagnoses, a doctor in Gorey finally discovered the truth: she had fibromyalgia syndrome. . . . .
, , , , Last month she launched a booklet aimed at spreading awareness of the disease. It features the real life stories of fibromyalgia sufferers. Some 3,000 copies are currently being distributed nationally
Early diagnosis
Bucking the trend of a late diagnosis, Mairéad Deane (28) was just five-years-old when she found out that she had the illness.
Mairéad had scarlet fever when she was four, something she believes triggered her fibromyalgia.
Despite being so young, she remembers receiving her diagnosis vividly.
“I was in pain constantly … At 5 years of age I remember turning around to [the doctor] and asking ‘Am I going to die?’”
Mairead is featured in Gemma's booklet.
“People would be more inclined to listen to a famous person than to us.”
Read their stories: http://www.thejournal.ie/fibromyalgia-ireland-1696500-Oct2014/
For a copy of Gemma's booklet email her at floodlight@eircom.net
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Top Ten Things in a Chronic Illness Go Bag
Chronic illness means that leaving the house feels like a carefully orchestrated event where strategizing and preplanning are a necessity. It’s like going into battle. You have to make sure you have your weaponry (medications) plus everything else required for survival. And possibly a helmet, it’s rough out there.
To make it easier, create a Go Bag filled with all the essentials items you need to get out the door without constantly forgetting that one thing that you’re going to be miserable without.
Here are the top 10 tips from other chronic illness patients to help you pack for battle (or travel).
See them here: http://blog.healclick.com/lifestyle/top-ten-chronic-illness-go-bag
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Marijuana beats 3 leading fibromyalgia drugs
http://blog.healclick.com/fibromyalgia/medical-marijuana-fibromyalgia
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Sick Looks Like Me – The Revolution!
Is makeup festering in a drawer somewhere having not seen the light of day for years?
Has ‘making an effort’ become something other women do, women who aren’t living with chronic illness?
If so, then you’re going to get something valuable from this post, but if makeup, nice clothes, looking good and all that jazz aren’t your thing, and are never likely to be your thing, then you might just want to skip to the action in the last paragraphs.
http://lottieryan.com/
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A personal note from Vicky
Also:
Education: Raking Leaves
Video of the week: The Criss Cross
Success Story: Barry Davis
Read all of Viky's newsletter: http://us4.campaign-archive2.com/?u=1f0fb2b9eada51a6fa54509ba&id=02026b4341&e=2a0fc40be9
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There are a few places left for FibCon 2015. Book soon if you want to attend.
Email jeannehambleton@me.com or fibcon2015bookings@gmail.com
Jeanne has also said that she would appreciate some assistance from those who are attending the Conference - like selling raffle tickets, collecting for the FollyPogs Research Charity and generally helping out wherever needed. If you are willing to do this, please let Jeanne know jeannehambleton@me.com. She's back in the saddle due to Teresa's incapacity.
See http://fibromyalgiaconference.weebly.com/
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Bristol FM.E United Support Group
If you live in or near Bristol you may like information about the Bristol FM.E United Support Group, that is, supporting those with Fibromyalgia & Myalgic Encephalomyelitis. Please display the poster and hand out leaflets.
Leaflet: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Bristol_FM.E_Leaflet.pdf
Poster: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Bristol_FM.E_Poster.pdf
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Fibromyalgia in Tonbridge, Support Group for West Kent
Our September 6th fundraising Awareness Day at ASDA Kingshill went very well. We made £178 and spoke to a lot of people about FMS. A number of fibromites introduced themselves and we were pleased to be able to offer them information about the condition and our support group. The committee would like to extend a huge thank you to Yvonne, Carol and Christine for coming along to help and support us. Thanks go to ASDA for giving us the opportunity and to their Community Life Champion Jayne Ashdown for all her help.
Read the rest of the Tonbridge newsletter: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Tonbridge_FM_News_14.11.pdf
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Worthing & Surrounding Area’s Fibro/ME Support Group
Changes in the group for 2015: due to monthly meeting numbers dropping and other commitments we will be having 3 meetings a year. Same time and place … 17th March, 16th June, 20th October, Plus xmas meal to be arranged. There will be a charge at the door of £3.50 which works out at £10.50 for the year with free refreshments and newsletter.
Meals out: 17th February, 19th May, 15th September to local places will be in Newsletters, website and Facebook.
Once a month Coffee Meetings will stay the same: The last Wednesday of each month. 29th Jan, 25th Feb, 25th March, 29th April, 27th May, 24th June, 29th July, 26th August, 30th September, 28th October, 25th November.
Read all the Worthing news here: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Worthing_Newsletter_14.11.pdf
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It was heartwarming to see the response to the Children in Need appeal on TV last night, The money raised was phenomenal. .I don't know the statistics, but I wonder whether there are more, or less, needy children than there are people suffering from FM, ME/CFS? If only a national appeal could be made for our forgotten cause! I leave you with that thought.
I wish you well.
Stella
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Contact: fmsstella@gmail.com
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N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgments, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
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