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FMS eNews 19/01/13


There’s a lot of that white stuff outside!  I’m not venturing anywhere!  This week I have introduced embedded hyperlinks.  I hope these work for you.  I may use these, replacing the direct hyperlinks, in the future.  Let me know if you have any problems with this.  Thank you.



102.  Scars are simply tattoos with better stories.  


The Magnesium Miracle – a gift of an ebook from the Nutritional Magnesium Association

 “Every doctor and patient should read this comprehensive book on the many roles of magnesium. . . .  Excerpt:-
‘Most people with chronic fatigue syndrome and fibromyalgia improve about 50 percent when they begin to use magnesium.  People who take magnesium for muscle spasms have shared that their mild depression and irritability disappear as a wonderful side benefit. One benefit of magnesium, which is difficult to prove scientifically, is a greater enjoyment of sexual activity, reported by many women. I’ve written about magnesium oil in this edition of The Magnesium Miracle, but already my clients are remarking on its many benefits. You can rub it into the gums to help treat inflammation and prevent bad breath and gum bleeding. Applied as a spray, it makes the skin smooth and soft.’” Read rest of ebook


'This brutal new system': a GP's take on Atos and work capability assessments

I see work capability assessments damaging patients struggling with mental health issues and serious illness.
‘I had not seen Eileen for some time, until a few months ago when I was asked to phone her. She sounded distressed, confused and frightened and did not understand what was happening to her. She has been a patient of mine for 10 years and over time, I've tried to help her cope with her mental illness. A few years ago her mental health had deteriorated so much that she needed to be in hospital.’ . . .  See full article


‘I've found some information online that I thought would be useful to those in the process of claiming ESA who have insufficient points for the WRA or Support Groups.’

See lots of other discussions on this subject.


Sleep & Digestive Problems in Fibromyalgia & Chronic Fatigue Syndrome

‘You find reference to them in just about every description of fibromyalgia and chronic fatigue syndrome, and you find instances of them in just about every person with these illnesses - sleep problems and digestive disorders are part of the package.’  Read more .

Latest articles on Fibromyalgia


                                                                      January 11, 2013
Dear Friends,

Here is your chance to participate in a new online fibromyalgia scientific study on mindfulness and fibromyalgia being conducted by the fibromyalgia research team at the Oregon Health & Science University (OHSU).  This group has been involved in fibromyalgia (FM) research since the 1980s and has produced a large compilation of important scientific studies focused on growth hormone depletion in FM and the importance of exercise in successful FM treatment programs.

Your participation entails filling out a short survey.  Please click on the following link to learn more about this opportunity and how to participate.

Click here for more information

                                                                    NFMCPA  Staff and Volunteers


Research on Fibromyalgia Skin Sensitivities

‘Does your skin burn or itch? Do you frequently get rashes that just won’t go away? According to Charles Lapp, M.D., who treats hundreds of people with fibromyalgia at his center in Charlotte, NC, “fibromyalgia-related rashes occur in the majority of patients that I see.” Lapp, along with another experienced physician, Daniel Wallace, M.D., of UCLA, agrees that skin sensitivities are common in fibro. So what is it about your skin and its related tissues that make them so sensitive? Studies during the past 20 years may help explain why your skin is such a nagging issue.’  Read more


‘Have you finally decided it’s time to do something different to feel and look better rather than living and eating the same old way yet expecting new results..? The information in this investigative report has helped hundreds of my clients, and me, feel better and eliminate some
of those extra pounds in a healthy way that can be incorporated into a life-long life-style here to continue reading...


There are various online support groups for fibromyalgia patients. 


A New Type of Treatment for Fibromyalgia

‘Vasovagal therapy is unique in that it goes beyond treatment of the symptoms, affecting the CNS (central nervous system) directly through manipulation of the vagus nerve, improving overall autonomic function.‘  Read more


Sunlight is well-known to provide us vitamin D, but did you know that it kills pain, keeps us alert at night, burns fat and more...

‘Our biological connection and dependence to the sun is so profound, that the very variation in human skin color from African, melanin-saturated dark skin, to the relatively melanin de-pigmented, Caucasian lighter-skin, is a byproduct of the offspring of our last common ancestor from Africa (as determined by mitochondrial DNA) migrating towards sunlight-impoverished higher latitudes, which began approximately 60,000 years ago. In order to compensate for the lower availability of sunlight, the body rapidly adjusted, essentially requiring the removal of the natural "sunscreen" melanin from the skin, which interferes with vitamin D production; vitamin D, of course, is involved in the regulation of over 2,000 genes, and therefore is more like a hormone, without which our entire genetic infrastructure becomes destabilized.’  Read more

 Let’s hope for some sunshine then!


Do you need to be diagnosed with fibromyalgia to be successfully treated?

‘For years I thought I needed to find a doctor to diagnose me with and treat me for fibromyalgia.  I sought out various pain specialists; physiatrists and anesthesiologists, the heads of departments.  Some of them even listed fibromyalgia among their clinical interests, which I thought was sure to be a good sign.
Yet every time I actually got into the exam room and asked one of those doctors if I had fibromyalgia, the response was vague.  “I don’t know, I don’t generally diagnose people with fibromyalgia,” was the general answer I got.’  Read on


The Prevalence of Fibromyalgia in Other Chronic Pain Conditions

‘Central sensitivity syndromes (CSS) include fibromyalgia syndrome (FMS), irritable bowel syndrome, temporomandibular disorder, restless legs syndrome, chronic fatigue syndrome, and other similar chronic painful conditions that are based on central sensitization (CS). CSS are mutually associated. In this paper, prevalence of FMS among other members of CSS has been described. An important recent recognition is an increased prevalence of FMS in other chronic pain conditions with structural pathology, for example, rheumatoid arthritis, systemic lupus, ankylosing spondylitis, osteoarthritis, diabetes mellitus, and inflammatory bowel disease. Diagnosis and proper management of FMS among these diseases are of crucial importance so that unwarranted use of such medications as corticosteroids can be avoided, since FMS often occurs when RA or SLE is relatively mild.’  Read more


Articles about Fibromyalgia
Here are 30 scholarly articles about fibro that you probably won’t have time to read – but just to let you know they are there!  Subjects range from the effects of Cranialsacro Therapy and Tai Chi to Depression and Quality of Life in fibro patients – and of course, many more.


Newsletter from Tonbridge FM Support Group for January 2013

Some interesting articles included, of interest to all.


Chronic Pain - Home Treatment
The following ideas can help you manage your chronic pain.
Take your medicines as prescribed.
Participate in a physical therapy or exercise program that includes stretching several times a day.
Keep your appointments with your doctor, especially if you have moderate to severe or constant chronic pain.
Make lifestyle changes, such as:- . . . . Find out here


Fibromyalgia and Diet - Will changing your diet help you cope with fibromyalgia?

If you have fibromyalgia, you've probably wondered if there are ways you could modify your diet to improve symptoms such as fatigue and muscle pain.
Research hasn't shown that there are specific foods that all fibromyalgia patients should avoid or add to their diets. But it may still be worthwhile to take a closer look at how foods impact the way you feel. 
"There aren't many good studies that have looked at how diet can affect fibromyalgia symptoms. But I think we can gather a lot from anecdotal evidence -- from what patients tell us," says Ginevra Liptan, MD, medical director of the Frida Center for Fibromyalgia in Portland, Ore., and author of Figuring Out Fibromyalgia: Current Science and the Most Effective Treatments.
Here are some of the ways doctors say food can play a role in fibromyalgia and tips on how you can tweak your diet to support your overall health.  See what they are


The Sleepydust E-Magazine  #38
What's In This Issue?
• Welcome From Sleepydust!
• Can Colon Hydrotherapy Help To Ease Your Symptoms?
• What's YOUR Story?
• This Week's Personal Story
• Latest News In The ME/CFS & FMS Communities
• Chicken Soup For The Sleepydust Soul
• And Don't Forget... (Helpful Sections)
• A Few Notes


I apologise if you find there is information overload!   It is difficult to know what to leave out.  You can do your own filtering and read what appeals to you most.  If there is a subject you would like to be addressed, let me know and I will do some research on the issue.



N.B.   I would like to point out to you that the information in my eNews  blog is passed on to you mainly from other sources.   Links are given to the original articles.   I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership.  Sites I refer you to are  for information only.  They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will.  Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life.  Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.  
I also include various awareness items, benefits issues, as well as general health considerations.    Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new eNews is posted, please send an email to as you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews.  Past issues of FMSSAS eNews can be found at and on a blog at  These ceased at the end of November 2012 when I resigned as a trustee. This blog commenced on 8th December 2012.

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