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FMS eNews 04/04/15

Fibromyalgia Awareness Day Countdown

 Five weeks to go before Fibromyalgia Awareness Day!

 2015 Raising Awareness - Let's Get The Ball Rolling
Details of plans can be found in the April Fibro Flare Magazine (PDF) on pages 23-29, or below.
And the rest of the magazine is pretty good too!
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WORDz for the WEEK

 215.  There is a huge difference between accepting the inevitable and expecting it!!!!
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Lifestyle Changes for Improving Fibromyalgia & Chronic Fatigue Syndrome

 No doubt your life has changed dramatically since you got sick -- chronic illness does that to you! You don't get to choose a lot of those changes, though. This week, we're focusing on changes you CAN control in order to get your life, and your health, on a better track.
We'll look at lifestyle changes, good and bad habits, reaching your goals and much more. Take the things you can apply now and leave the rest for later. It's all about baby steps, right?
Take care of yourself!
Adrienne Dellwo
Fibromyalgia & Chronic Fatigue Syndrome Expert
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 Get Your Body Ready for Spring
The first thing you do to get your body ready for spring is to remind it that going from indoor activities -  Sitting, reading, watching TV, etc. to outdoor activities - Pulling weeds, raking leaves, riding bikes, etc. is a big, big jump and one that can cause a little weekend warrior syndrome.
You know, when you're like - I can totally ride my bike 30 miles!  Even though you haven't ridden a single mile in weeks and then you try it and you feel like you're going to die the next day.
Like that.
Paige Waehner, Exercise Expert
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 Potassium-Rich Foods

Potassium is a major dietary mineral that you need for a number of reasons. If you eat lots of fruits and vegetables, you're probably doing fine, potassium-wise. You don't eat enough fruits and veggies? Well, now you have another reason to up that intake.

 Shereen Lehman, MS
Nutrition Expert
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How Malic Acid (Malate) Helps Fibromyalgia Pain
Fibromyalgia is a crippling chronic condition estimated to affect around ten million Americans. Despite increasing acknowledgment of fibromyalgia as a serious illness, and despite multiple attempts to treat its symptoms (generally widespread muscle and joint pain, chronic fatigue, fibro “brain fog,” and more, depending on the individual), we still don’t have a clear biochemical or neurological account of what fibromyalgia really is, why it causes the symptoms it does, and, perhaps most importantly, how to effectively treat the condition itself rather than just its symptoms. . . . . . . While there are multiple supplements increasingly used to regulate fibro patients’ vitamin levels, I’ll discuss only one of them in this article: the supplement malic acid (or malate).
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Bad Relations: Study Finds Fight or Flight Response Tied to Pain in Fibromyalgia
We know that increased activation of the sympathetic nervous (fight or flight) system is present in fibromyalgia but is it contributing to the pain there? Martinez-Lavin (“When Stress Causes Distress”) has been hypothesizing that it’s been a key pain driver in FM for years. He’s shown that levels of norepinephrine – the neurotransmitter that turns the SNS on – are positively correlated with pain in FM. The higher the NE levels – the higher the pain level. He’s also shown that FM patients in severe pain tend to have alterations in some genes that control sympathetic nervous system functioning.  The authors of this paper suggest that these findings suggest fibromyalgia may be similar to several types of chronic regional pain syndrome (CRPS).
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 More Musing on Malaise
If ‘malaise’ doesn’t adequately describe my dreadful condition after too much exertion, it does fit another consequence of ME/CFS. After so many years of trying to pace myself successfully (whatever that means, since my over-taxed level seems to change from week-to-week or even day-to-day), a kind of ‘malaise’ has settled like dust into my bones and brain, bringing boredom and lassitude (mental weariness, listlessness or languor). Let me explain. On crash days, I fester in bed, trying to weather the head-to-toe pain,  bleary eyes and brain buzz.  I can’t read, talk on the phone, or even communicate much with my husband. The only distraction might be watching some mindless streaming true-crime video with my IPad perched on my pillow. This is far from malaise.
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 Partners: Autoimmune Organization Makes Urgent Call For Fatigue Research

 Autoimmune Fatigue Chronic fatigue syndrome (ME/CFS) and fibromyalgia aren’t the only disorders being shortchanged by the paucity of “fatigue”research.  We’re not talking about ordinary fatigue. There’s a dramatic difference between normal everyday “fatigue” and the kind of “profoundly debilitating fatigue” that can affect every part of one’s life. Citing a nearly 8,000 person online survey, the American Autoimmune and Related Diseases Association asserted that the often disabling fatigue found in autoimmune disorders should become a serious research focus. The survey indicated that profound fatigue is probably the most common, debilitating and most poorly treated symptom people with autoimmune disorders have to deal with.
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 Barriers Falling: Psychiatrist Slams Pace Trial, Proposes Antivirals for ME/CFS
Doctors on Missions Dr. Thomas Henderson and Dr. William Pridgen are on similar missions. They’re both asserting doctors in their respective fields are missing the boat. Henderson, a psychiatrist, asserts herpesviruses are a major issue in misdiagnosed chronic fatigue syndrome adolescents and patients. Dr. William Pridgen, a surgeon, proposes antivirals and anti-inflammatories are knocking down herpesvirus infections in people with fibromyalgia. They’re bucking strong headwinds for sure, but their message is getting out there, and it’s getting into surprising places.
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 Big Studies – Big Possibilities: Montoya and Unger on Their Big Chronic Fatigue Syndrome Projects

 Dr. Elizabeth Unger 
The Multi-Center ME/CFS Experts Study
Unger’s statement that the seven site ME/CFS experts study will help produce an evidence-based definition makes one wonder how long any definition is going to last. We’ve never, after all, seen a study this big (@470 patients) and this comprehensive looking at the symptoms and characteristics of people with chronic fatigue syndrome.
Moving Slowly 
The studies must be very complex. Two years ago, Unger presented some if its findings at the FDA Workshop. A year ago at the IACFS/ME Conference she stated they were “scrubbing” the data. Now she’s reporting they’re beginning to write the papers. Maybe all good things do take time.
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Why We Sleep Better In Cooler Climates
The Question: Why do we sleep better in fresh air?
The Answer: There's nothing quite like the brisk spring air floating through an open window. In fact, you could even argue that it helps you sleep better -- and you'd be correct. That's because when it comes to drifting off to dreamland, our brains simply prefer to do it in cooler climates, says Natalie Dautovich, Ph.D., an environmental scholar at the National Sleep Foundation.
"Fresh air can have a cooling effect and we know that a cool bedroom environment is key to getting a good night's sleep," she told The Huffington Post. "We also know there are a lot of positive associations between fresh air and relaxation, and when we feel relaxed and comfortable in our environment, we're more likely to feel sleepy."
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10 Things Not to Say to Someone with Fibromyalgia
Speaking with Kindness and Respect
Fibromyalgia, like many chronic health conditions, is very difficult to cope with. However, more difficult than that is the wide range of symptoms and the lack of understanding associated with it. It’s
therefore not surprising that people struggle to know what to say or, more importantly, what not to say.
Here are 10 things not to say to someone with fibromyalgia.
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Manage Pain and Boost Energy Naturally with Infrared Heat and Negative Ions
Far Infrared Heat is the invisible part of the Sun's spectrum, not to be confused with ultraviolet light which may damage your skin. FIR is the safest form of energy that is directly transmitted onto objects because of its specific wavelength. The human body can easily absorb far infrared heat because of its deep penetrating ability. Studies have shown that far infrared waves can actually penetrate up to 2-3 inches deep into muscular tissue and ligaments.
Far infrared heat can be found in two forms, direct and indirect. Direct far infrared provides the deep heat to warm you up without raising the temperature of the surrounding air. Indirect Far infrared heat comes to us through absorbing the excess energy transmitted from plants or animals that are in close proximity to us.
Read more
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Drug Muggers

 Vitamins Needed to Boost Mood and the Drugs that Smash Them
What makes one person depressed and another happy? Certain conditions are commonly associated with depression such as hypothyroidism, Crohn’s disease or colitis, migraines, diabetes, chronic infections and cancer. Lifestyles such as drinking alcohol and smoking are correlated and the biggest secret of all is drug mugging! In my book Drug Muggers, I describe how drugs “mug” you of vital nutrients which you need to produce “happy” brain chemicals termed neurotransmitters.  Today I’ll teach you what popular drugs lead to depression just by the mere fact they mug you of vitamins. No amount of Zoloft replenishes the nutrient steal.
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Welcome to the April 2015 UK Fibromyalgia Research  Newsletter
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 Effective Treatment of Chronic Fatigue & Fibromyalgia - Dr Jacon Teitelbaum

Published on Apr 3, 2014
Dr. Teitelbaum presents at the 2013 ABIHM conference.
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 You Can Beat Fibromyalgia...Naturally! - Dr. Michael Johnson

Published on Dec 5, 2012
www.drjfibrobook.com
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A personal  note from Vicky
As I think you know I am away at the moment cycling in Vietnam. Some of you asked what preparation I’ve been doing for this trip.  I’ve worked out on the spin bike.  There is no freewheeling or stops at junctions on a spin bike and so hopefully an efficient way of training- time will tell. Up to 50 miles in a day with temps in the high 30’s and high humidity will certainly be a challenge.
As many of you will know I applied to take part in the series of ‘The Island’ last year with Bear Grylls.  I got as far as the audition and when I didn’t make the cut, looked for an adventure to replace it - this is it.  I see the programmes are due to be screened soon, so will watch with interest and no doubt relief at not being there.
Also:
Education: THE VISUALISATION IN PILATES
Video of the week: The Side Bend.
Success Story: Linda Stewart
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Next week I shall be posting the blog on Friday as I am going away on Saturday.  It is unlikely that I will be able to produce one the following week, but we shall see!
Meanwhile, I wish you and your loved ones A VERY HAPPY EASTER.

Stella
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 N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in PURPLE like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  If you have any navigation problems, let me know.
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

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FMS eNews 28/03/15

Fibromyalgia Awareness Day Countdown
Six weeks to go before Fibromyalgia Awareness Day!
The Fibromyalgia Awareness Joint Project is advocating taking selfies first thing in the morning before getting out of bed!!!  Put them on Facebook to make an impression on the world.  Are you up for it???
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 WORDz for the WEEK

 214.  What is memorable need not always be understandable.
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 To Drive or Not to Drive; Food Sensitivities
Driving means freedom and independence, but do your symptoms make it unsafe? See what to take into consideration when you ask yourself that question, below.
Also this week, a look at eating out when you have food sensitivities that make you feel worse, plus the dreaded topic of exercise, including how to stay within your limits and what kinds of exercise work best for many of us.
Take care of yourself!
Adrienne Dellwo
Fibromyalgia & Chronic Fatigue Syndrome Expert
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 10 Untrendy Superfoods Every Kitchen Needs
A few years ago I co-authored Superfoods for Dummies. One thing that was important to me was including superfoods that weren't expensive, hard to find or overly exotic. I've continued that line of thinking with a list of superfoods that aren't trendy.

 Shereen Lehman, MS
Nutrition Expert
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 Fibromyalgia Awareness and Advocacy Forum Ireland
3,000 copies of this booklet were printed. They sold like hot cakes!  A reprint is underway.  If you didn't get a copy first time around you can do so now. It contains stories of people with fibro and relatives of people with fibro, proving 'Fibromyalgia Is Real'.
Gemma Flood who has spearheaded this project says to email her if you want a copy floodlight@eircom.net  Payment of 3 euros can be made by PayPal to fibromybook@gmail.com.  Beth Urmston has copies for UK customers.  Email her fibroflaremag1@outlook.com and ask for a copy.
A Kindle version is available Here  
Copies have been provided free of charge for doctors and hospitals.  If you would like one sent to yours, let Gemma or Beth know.
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Helping a Fibro Frog Stay Dry
Remember I told you about Amy's predicament?
Yes, Amy the owner/author of The Fibro Fog blog page [http://www.thefibrofrog.blogspot.co.uk/] - you know the one...voted as one of the top 15 Fibromyalgia blogs of 2014 by Healthline; voted as one of the top 15 Fibromyalgia blogs by Healthline for 3 consecutive years; and certified for medical accuracy by an M.D. through Healthline.
Yes, Amy the owner of The Fibro Frog Facebook page - with 0ver 15,000 LIKES (which should translate to over 15,000 votes, right?)
Read the whole story 
All we need you to do is visit Amy’s voting page in the nation-wide program called No Roof Left Behind, and vote.
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 Can’t Work Because Of Fibro? New Ruling Gives Fibro Sufferers Disability Payments

 Fibromyalgia is the most misunderstood, complicated, and controversial condition I have ever run across. On top of dealing with chronic pain, fibro fog, lack of sleep, FATIGUE, and everything else that fibromyalgia sufferers go through every day, the medical world still refuses to give us our dues. Modern day doctor’s are still stubbornly and inappropriately…
Continue Reading
Also on this page:  
Fibromyalgia Sufferers! 
Learn how to beat fibro and get your life back with this FREE PDF!
Just enter your email address and click on 'FREE! Download Now'and it will be sent to your inbox.
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 How The Weather Affects Fibromyalgia
Many fibromyalgia sufferers report weather changes as one of the top causes of symptom flare-ups, especially muscle pain and stiffness. Interestingly, while many people with fibromyalgia report worsening of symptoms during cold weather, other fibro patients respond worse to heat. However, the validity of this claim is still up in the air, according to doctors and researchers. The connection between weather changes and fibromyalgia symptoms has been proven and disproven by multiple studies over the years—at this point, most doctors believe that reports of symptom flares as a result of weather are “all in your head.”
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 “An Immune Mediated Brain Disorder”: Mady Hornig and Llewellyn King 
It was a nice setup. There was Llewelyn King with his implacable, patrician profile (and his wonderful British enunciation) sitting across the warm and expressive American, Dr. Mady Hornig. How did Mady Hornig get interested in this field, he asked?  She said she’s been fascinated by the effects the immune system have on the brain for over twenty years.
Read more
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 On the Path: Dan Moricoli’s Remarkable Chronic Fatigue Syndrome Recovery Story 
Dan Moricoli’s Story 
I love Dan Moricoli’s story for a couple of reasons. For one, it demolishes the idea that chronic fatigue syndrome (ME/CFS) occurs to malingerers or “weak” people or people who somehow don’t fit in our modern world.  A business owner, internet MARKETER, motorcycle racer, skiing enthusiast, international  traveler and deep-sea fisherman Dan was using the modern world for  everything it had. Stress? He thrived in stressful situations.  He ate them for lunch. Then he suddenly got ill on a fishing trip – and that was it. Bam!  When he tumbled, he tumbled hard. Bye-bye went the health, bye-bye went the business, and later, bye-bye went the wife. If it could happen to him, it could happen to anybody. ME/CFS and fibromyalgia are equal opportunity diseases – they will take down the least of us and the most of us. They will take down people in superb physical shape.
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The Higher Nature Pill Reminder App

 My Supplement Manager
Keep taking the pills with our new app!
Ever forget to take your supplements or run out without warning? Then our brand new Pill Reminder App could be the answer!
Our new app has been designed to help you in managing your supplements and medications, with minimum impact on your daily life.
It will allow you to:

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  •     Set reminders for when you need to take these, including re-order dates
  •     Have an overview of your daily, weekly and monthly reminders and events
  •     Find out more about our product range
  •     Easy ordering and repeat ordering of Higher Nature products
  •     Keep up to date with offers.

And all this is with you, wherever you go!

 This app is completely FREE and can be downloaded and installed onto your mobile device from the App Store on your iPhone, or Google Play on your Android Phone. Simply search for “Higher Nature Pill Reminder”.
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Read more about it 
Click here to book 
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Nicola's Note
Hello everyone, 
When the clocks go forwards, it's a great time of year, with longer days that are getting warmer.  At this time everyone feels lifted and we start making plans for things to do with what feels like extra time in the day. Coming up in sunny 
pril, World Tai Chi and Qigong Day on Saturday 25th, all our welcome to come along to this annual free event in Horsham Park.  
This is the 4th year we have held this event in Horsham, so please do join students across the globe to celebrate with us.  
Please browse over the April calendar here. 
Look forward to seeing you in class soon.
 Regards Nicola.
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 A personal  note from Vicky
As you know I’m going away on a cycling tour of Vietnam all classes will run apart from the YOGA on 30th March and the classes on Good Friday and Easter Monday.  I’m very grateful to Sharon, Heather and Kay for stepping in to keep the classes going for me. . . . . . . You may have noticed a lot of people taking to the streets running of late.  I do wish some of the ladies would get themselves decent sports bras as they can permanently damage the Coopers Ligament; check todays education session for more about that. The Brighton marathon takes place on 12th April.  Simon Edwards who attends the 6.30pm class on a Monday is running in aid of St Catherines Hospice. 
Also:
Education: The ‘bounce test’
Video of the week: The Mermaid.
Success Story: Jeni Webb
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Don't forget to put your clocks forward tonight.  Going to bed a bit earlier than usual will compensate for lack of sleep time!
And finally, some timely thoughts.


 I hope you have a blessed Holy Week

 Stella
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 N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in PURPLE like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  If you have any navigation problems, let me know. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

Posted by No comments:

FMS eNews 21/03/15

Fibromyalgia Awareness Day Countdown

Seven weeks to go before Fibtomyalgia Awareness Day! Here's something you can do to help.  Sign this petition seeking awareness.

Fibromyalgia Support Awareness

Please sign this petition to help raise awareness of the condition known as fibromyalgia and how essential support is for those who have it and their significant others.
Fibromyalgia is a complex condition that's difficult to understand.
The symptoms deeply affect those that have it and also those around them, partners & family.
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WORDz for the WEEK

213.  Even the hardest problem in life can be easiy overcome . . . when you have someone who cares enough to help you through it.
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Why Use an E-Reader; Supplements

Holding the book, remembering what you've read ... those are just some of the challenges those of us with fibromyalgia and ME/CFS face when we read. See how an e-reader may help you read more and with fewer problems, below.
Also this week, an in-depth look at supplements: testing them, figuring out which ones are right for you, and a whole lot more. 
That starts up top, and then you'll find some supplement profiles down under More from About.com.
Take care of yourself!
Adrienne Dellwo
Fibromyalgia & Chronic Fatigue Syndrome Expert
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Problems Showering with Fibromyalgia & Chronic Fatigue Syndrome
A morning shower -- it helps you start the day invigorated and refreshed, right? Um, no, not so much for many of us. A shower seems like a basic, simple thing, but it can pose major problems for someone with fibromyalgia or chronic fatigue syndrome.I've seen a lot of comments here about how exhausting a shower can be. Why would a shower make us tired, sometimes even wiping us out for the rest of the day? Several of our physiological abnormalities could be playing into it.
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20 Reasons you should Drink Lemon Water in the Morning
Adding lemon to water not only quenches thirst better than any other beverage, but it also nourishes our body with vitamins, minerals and trace elements which we absolutely need. Lemon with water can be considered the best natural energy booster. When we wake up in the morning, our bodily tissues are dehydrated and are in need of water to push out toxins and rejuvenate the cells. In other words, this homemade “lemonade” helps eliminate internal toxins, regulating proper kidney and  digestive tract functions by forcing them to work as smoothly as possible.
20 Unbelievable Reasons To Start Your Day With Water and Lemon
Find out what they are
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Look After Yourself

REMEMBER: sometimes you just need to put yourself first…
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A Frog in a Frying Pan
Do you know Amy? No?
Ok, then, do you know The Fibro Frog? Ah…much better!
Yes, Amy is the owner/author of The Fibro Fog, as well as the correlating Facebook page.  Her blog has been voted as one of the top 15 Fibromyalgia blogs of 2014 by Healthline, and has received this honor for 3 consecutive years. The blog has also been certified for medical accuracy by an M.D. through Healthline.
She is also a regular contributor to our e-mag LIVING WELL with FIBROMYALGIA.
See Amy's Blog 
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11 Signs You're Sleep Deprived
Time for Bed
You know you're supposed to get seven to nine hours of sleep a night, but sometimes, you stay up for a night out on the town, to finish a project at work, or even just to watch Law & Order reruns. We get it—we've all been there, and a late night here and there won't have any lasting effects beyond the fatigue you feel the next day. It's when you skimp on sleep night after night that it becomes a real problem. Though you may think your five-hours-a-night habit is nothing to worry about, chronic sleep deprivation has been tied to an increased risk of type 2 diabetes, cardiovascular disease, obesity, and depression. Read on for subtle signs your body needs more time in bed.
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The Health Rising ME/CFS, Fibromyalgia and Chronic Pain Forums Are Here! 

It’s finally happened. The Health Rising ME/CFS, Fibromyalgia and Chronic Pain Forums are open for business. The Health Rising Forums are here! We (Stavya and I) actually started working on them well over a year ago. Why did it take so long? We scoured the market for ways to improve the Forums and settled on some add on’s that were and still are under development. Plus putting together a complex package like this takes time. If it was not for Stavya, who quickly turned out to be an ace on the technical side, they never would have happened. But here they are. But why, with my old stomping ground – Phoenix Rising – thriving why build another Forums? That takes a little history.
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34 Ways To Feel Happier Right Now
Many of us are guilty of thinking that joy is a journey. We'll achieve happiness, we tell ourselves, if we accomplish a goal five years from now. We'll be happy, we think, once we've made a big change that will eventually lead us to our ideal life. And though it may be tempting to view happiness as a permanent state for the future, the field of happiness research tells a very different story. Here's the real truth: We don't have to work as hard as we think we do to get to a state of bliss. Sometimes a little tweak, shift or new habit is all it takes.
In honor of the International Day of Happiness, we've rounded up some tricks to help you get to a positive place -- without taking the long road to joy. Go on and give them a try. Happiness looks good on you.
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Better butter than any old oils
Did you ever find yourself daydreaming about a nice bit of lard? Maybe you were overcome by a craving for animal fat, slowly melting in a pan? No? Well, understandably so. Large amounts of fat or oil are not considered a palatable food but more than anything else, you could literally watch your arteries clog up and hear your heart gasping for oxygen….. or could you?
You can already tell that we have many questions to ask when it comes to fats. The message about ‘good’ and ‘bad’ fats is emphatic but their definition has become somewhat distorted, heavily influenced by the food and drug industry, the media and a propagated fear of saturated fat. For decades we have been told that we eat too much saturated fat and we should be increasing the amount of polyunsaturated fats (PUFAs) in our diet to harvest their health benefits. It certainly looks like we have succeeded because the average American now consumes around 40g of PUFAs a day in comparison to just 20g in the 1950’s. According to this wisdom, our heart health policy should have been successful but, instead, nearly every condition related to chronic inflammation is on the rise.
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Juvenile Primary Fibromyalgia Syndrome

Listen  

Fibromyalgia (fy-bro-my-AL-ja) is a long-term, or chronic, syndrome that causes widespread pain in the muscles, joints, and other soft tissues of the body. The term "fibromyalgia" comes from the Latin word "fibro" for fibrous tissue, and the Greek "myo" for muscle, and "algos" meaning pain. In kids, it is sometimes referred to as juvenile primary fibromyalgia syndrome.
What's in this article?


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Juvenile Primary Fibromyalgia Syndrome 

Background
Juvenile primary fibromyalgia syndrome (JPFS) is a musculoskeletal pain syndrome characterized by multiple discrete tender points (TPs), fatigue, and sleep disturbance in the child and adolescent. JPFS can be chronic in nature and can necessitate a multidisciplinary approach to the ongoing treatment of the disorder. The pain experienced is modulated by factors such as activity, anxiety, stress, and weather changes.
The diagnosis is made on the basis of the presence or absence of specific criteria that have been found to be consistent with those who experience JPFS (see Differentials). The chronic nature of fibromyalgia in the pediatric population suggests consequences for psychosocial development and implies a more difficult transition from childhood to adulthood.[1]
(Click on 'Show All' in left column to see the whole article without navigating from page to page.)
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The Official Magazine of the National Fibromyalgia & Chronic Pain Association
SPRING 2015
Read Online FREE Now on Joomag  
OR
4 Ways to Buy and Enjoy Your Own Copy!
Order a Print Issue or Digital Download from MagCloud
Apple Newsstand App for iPad/iPhone
4 Free Issues with a $50 Membership Donation to
National Fibromyalgia & Chronic Pain Association
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Weather and Fibromyalgia
Fibromyalgia is a condition that causes patients a great deal of pain, and the pain is chronic. Some people experience the pain all the time, and others will experience it when they have what is called a flare up. But what causes Fibromyalgia flare-ups? Researchers and doctors have been able to show a link between stress, anxiety, and flare-ups.
Weather seems to be a common factor when it comes to a flare-up, and some people who suffer from the condition say weather is a big factor. Research has not proven that the weather has a significant effect on fibromyalgia flare-ups, but this does not mean that people cannot experience pain related to fibromyalgia.
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10 Things All Fibromyalgia Patients Should Have
Fibromyalgia Products to Have on Hand
Most fibromyalgia patients don’t find themselves cash-rich and time-poor. Instead, we spend a lot of time resting (and by ‘resting’ I mean sitting and being frustrated) and we don’t have a lot of money to throw around on one health gimmick or another.
Today I thought we could help each other by recommending some of the products that have a really positive impact on our pain levels. I’ll get you started with my top ten favourites, but if I’m missing any good ones then please do share your recommendations in the comment section.
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Secrets to Recovery LIVE
We are excited to let you know about the next Secrets to Recovery LIVE which is happening this coming Monday 23rd March at 6pm.  Alex will be talking with Alison Tulloch about her 20 year journey to recovery from ME/CFS, including how she became ill working as a paediatric nurse, and overcoming her initial skepticism about the role of psychology in recovery.
The broadcast is completely free to watch, please do join us at www.SecretsToRecovery.com/live at 6pm!
Warm wishes,
The OHC Team
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"Don't tell me to snap out of it!"
Those words, recently overhead in the forum, express the frustration many of you feel living with depression, post-traumatic stress (PTS) or any kind of mental illness or chronic condition. We all know the term stigma - disapproval and discrimination because of a condition you did not ask for and do not want. Many of you share that this sets you apart from friends, family and society - a "lonely" place to be. 
Some of you openly share about how feeling that kind of stigma might lead you to isolate yourself to avoid judgment, or how you avoid seeking proper care and treatment or social support. It's a common discussion topic within all of our communities - no matter your condition.
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Fighting Fatigue with Ground-breaking French Oak Wood Extract 
To date, as many as 4 million Americans are suffering from the debilitating effects of chronic fatigue syndrome.1
After decades of research, doctors remain puzzled as to how to treat this mysterious condition that involves unexplainable, extreme fatigue.2 Unfortunately, there are no pharmaceuticals to treat chronic fatigue syndrome other than sleeping pills and antidepressants, which do not resolve the problem.3
Frustrated by a lack of treatment options, an international team of researchers has focused their attention on a group of unique molecules called roburins, which are derived from oak wood.
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Here's Why You Should Always Freeze Your Lemons
All kinds of people are saying that the entire lemon should be used with nothing wasted. Not only for the obvious health benefits but also for the amazing taste! How? Simple, take an ORGANIC lemon, wash it and then put it in the freezer. Once it is frozen you get whatever is necessary to grate or shred the whole lemon without even peeling it first. 
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A personal  note from Vicky
The picture shows me showing ‘Be Activated’ sessions at the East Surrey Hospital.  I was asked to come along and lead some meditation/relaxation sessions at their health and wellness day.  The fact that people are stressed can impact on the way the body holds itself and performs and lots of people were interested in how we  could correct that. It’s something I inflict on people in my private classes and is one of the reasons I feel that my classes are unique.

Also:
Education: The Virtues of Crawley.
Video of the week: Back Stretches not suitable for people with Osteoporosis 
Success Story: Jeni Webb
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The eclipse yesterday was something of a disappointment.  I was en route to a hospital visit.  It was cloudy so the sun was not visible, and it got a tad dull, but not dark although cars  mostly had their headlights on,  You would never have known it had happened but for the media hype.  A bit of an anticlimax!
Perhaps it was more visible where you are?
Maybe the next one will be better, but I doubt I'll still be around for that!!!
Bye for now
Stella

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N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in PURPLE like the dividers.  This blog gives just a taster of each article which can be viewed in full through its link.  If you have any navigation problems, let me know. 
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.


If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
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